title: Australian parents' experiences of speech generating device (SGD) service delivery.
abstract: OBJECTIVE
  To explore parents' perceptions of existing support for families with a new speech generating device (SGD).
  
  
  METHODS
  Six Australian parents of school-aged children who used an SGD participated in semi-structured interviews about their experiences of SGD support. Data were explored and compared using narrative analysis.
  
  
  RESULTS
  Participants discussed barriers to service access, including long waiting lists, service exclusion policies and limited therapist expertise in SGD practice. They emphasized the value of ongoing service coordination for families. Finally, participants discussed the nature of role boundaries and responsibilities for parents vs. therapists in the intervention process and the impact that intervention approaches had on parent autonomy, empowerment and confidence.
  
  
  CONCLUSIONS
  Having an SGD at home generates ongoing support needs, which had not been well met for some parents in our study. Results suggest that timely, well coordinated and family-centred support may enhance service experience for families with a new device.
authors.affiliation: Discipline of Speech Pathology, Faculty of Health Sciences, University of Sydney , Lidcombe , Australia .
authors.forename: Kate
authors.initials: K
authors.lastname: Anderson
authors.forename: Susan
authors.initials: S
authors.lastname: Balandin
authors.forename: Roger
authors.initials: R
authors.lastname: Stancliffe
mesh_terms: D001315:Australia; D002648:Child; D002662:Child Health Services; D002983:Clinical Competence; D003143:Communication Devices for People with Disabilities; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D010290:Parents; D011369:Professional-Patient Relations; D036301:Qualitative Research; D013064:Speech Disorders / Q000534:rehabilitation*; D013066:Speech-Language Pathology / Q000592:standards*; D014850:Waiting Lists; D055815:Young Adult