title: Health-related quality of life in Swedish pediatric burn patients and associations with burn and family characteristics.
abstract: Although many children with burns recover well and have a satisfying quality of life after the burn, some children do not adjust as well. Health-related quality of life (HRQoL) focuses on the impact health status has on quality of life. The aim of this study was to assess HRQoL with the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) in a nationwide Swedish sample of children with burns 0.3-9.0 years after injury. Participants were parents (n=109) of children aged up to 18 years at the time of investigation who were treated at the Linköping or Uppsala Burn Center between 2000 and 2008. The majority of children did not have limitations in physical function and they did not seem to experience much pain. However, there were indications of psychosocial problems. Parents of preschool children reported most problems with the children's behavior and family disruption, whereas parents of children aged 5-18 years reported most problems with appearance and emotional health. There were mainly burn-related variables associated with suboptimal HRQoL in children aged 5-18 years, while family-related variables did not contribute as much.
authors.affiliation: Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden. Electronic address: josefin.sveen@neuro.uu.se.
authors.forename: J
authors.initials: J
authors.lastname: Sveen
authors.affiliation: Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
authors.forename: F
authors.initials: F
authors.lastname: Sjöberg
authors.affiliation: Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden.
authors.forename: C
authors.initials: C
authors.lastname: Öster
mesh_terms: D000293:Adolescent; D000294:Adolescent Behavior / Q000523:psychology*; D001828:Body Image / Q000523:psychology; D002056:Burns / Q000150:complications / Q000503:physiopathology / Q000523:psychology*; D002648:Child; D002652:Child Behavior / Q000523:psychology*; D002675:Child, Preschool; D002921:Cicatrix / Q000209:etiology / Q000523:psychology*; D015331:Cohort Studies; D005191:Family Characteristics; D005195:Family Relations; D005260:Female; D005500:Follow-Up Studies; D006304:Health Status; D006801:Humans; D007223:Infant; D016015:Logistic Models; D008297:Male; D009068:Movement / Q000502:physiology; D010146:Pain / Q000209:etiology; D011537:Pruritus / Q000209:etiology; D011788:Quality of Life; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D013548:Sweden
keywords: Burns; Child; Health-related quality of life; Outcome assessment