title: [An analysis of the individual perception and coping strategies of people with dementia in the early stage of their disease in accordance to the function and effectiveness of self-help groups on the basis of self-expression].
abstract: Society paints an inconsistent picture of people with dementia: on the one hand they are people who can basically think and act (even) self-determinate. But on the other hand they need support and help from outside in daily routine. Self-help groups are a possible form of support. There are actually no research results to decide if this form of intervention is appropriate to people with dementia or not. The question must be answered in which way people in the early stage of dementia perceive their illness and what kind of influence the intervention of a support group has on their self-concept. In the first survey period five focus groups and eight narrative biographically oriented interviews are performed. The following results are noted: People with dementia are exposed to processes of incapacitation. It is well intentioned (in order to help them), but in reality they are forced to do something they probably don't like. They must bear unwanted interventions. In contrast, the self-help groups promote recognition processes. Finding internal security and being able to accept the illness are some of the most important functions. Independent living with dementia is supported. Two conclusions can be drawn: Forms of incapacitation from outside must be reduced. Self-help groups in a support role should accordingly supply the existing care services for people with dementia. The support of self-help groups should be the provision/improvement of the existing care services for people with dementia.
authors.affiliation: Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Witten.
authors.forename: Birgit
authors.initials: B
authors.lastname: Panke-Kochinke
mesh_terms: D000203:Activities of Daily Living / Q000145:classification / Q000523:psychology; D000223:Adaptation, Psychological; D000368:Aged; D000544:Alzheimer Disease / Q000175:diagnosis / Q000451:nursing* / Q000523:psychology*; D017028:Caregivers / Q000523:psychology; D005260:Female; D005858:Germany; D006801:Humans; D007406:Interview, Psychological; D008297:Male; D009730:Nursing Assessment; D011788:Quality of Life / Q000523:psychology; D012649:Self Concept; D012650:Self Disclosure; D012657:Self-Help Groups; D012803:Sick Role
keywords: Intervention; Menschen mit Demenz; Selbsthilfegruppe; intervention; people with dementia; self-help group