title: Assessing quality outcome measures in children with coeliac disease--experience from two UK centres.
abstract: Improved diagnosis of coeliac disease has increased incidence and therefore burden on the health care system. There are no quality outcome measures (QOM) in use nationally to assess hospital management of this condition. This study applied QOM devised by the East of England paediatric gastroenterology network to 99 patients reviewed at two tertiary hospitals in the Network, to assess the quality of care provided by nurse led and doctor led care models. The average performance across all QOM was 96.2% at Addenbrooke's Hospital (AH), and 98.7% at Norfolk and Norwich Hospital (NNUH), whilst 95% (n = 18) of QOM were met. Patient satisfaction was high at both sites (uptake of questionnaire 53 of 99 patients in the study). The study showed a comparably high level of care delivered by both a nurse and doctor led service. Our quality assessment tools could be applied in the future by other centres to measure standards of care.
authors.affiliation: Department of Paediatric Gastroenterology, Addenbrooke's Hospital, Cambridge University Hospitals, Cambridge, CB2 0QQ, UK. mz304@cam.ac.uk.
authors.forename: Alexander
authors.initials: A
authors.lastname: Ross
authors.forename: Helen
authors.initials: H
authors.lastname: Shelley
authors.forename: Kim
authors.initials: K
authors.lastname: Novell
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Ingham
authors.forename: Julia
authors.initials: J
authors.lastname: Callan
authors.forename: Robert
authors.initials: R
authors.lastname: Heuschkel
authors.forename: Mary-Anne
authors.initials: MA
authors.lastname: Morris
authors.forename: Matthias
authors.initials: M
authors.lastname: Zilbauer
mesh_terms: D000293:Adolescent; D002446:Celiac Disease / Q000628:therapy*; D002648:Child; D003695:Delivery of Health Care / Q000592:standards*; D005260:Female; D006761:Hospitals; D006801:Humans; D008297:Male; D009726:Nurses; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D010372:Pediatrics; D010820:Physicians; D011787:Quality of Health Care; D059039:Standard of Care; D006113:United Kingdom