title: Families of individuals with intellectual and developmental disabilities: policy, funding, services, and experiences.
abstract: Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports while living with their families. Thus, it is important that researchers, practitioners, and policy makers understand how to best support families who provide at-home support to children and adults with IDD. This article summarizes (a) the status of research regarding the support of families who provide support at home to individuals with IDD, (b) present points of concern regarding supports for these families, and (c) associated future research priorities related to supporting families.
authors.forename: Amy
authors.initials: A
authors.lastname: Hewitt
authors.forename: John
authors.initials: J
authors.lastname: Agosta
authors.forename: Tamar
authors.initials: T
authors.lastname: Heller
authors.forename: Ann Cameron
authors.initials: AC
authors.lastname: Williams
authors.forename: Jennifer
authors.initials: J
authors.lastname: Reinke
mesh_terms: D000328:Adult; D017028:Caregivers / Q000191:economics* / Q000523:psychology*; D002648:Child; D017281:Cost of Illness; D002658:Developmental Disabilities / Q000191:economics* / Q000534:rehabilitation*; D004495:Education of Persons with Intellectual Disabilities / Q000191:economics; D005380:Financing, Government / Q000191:economics*; D006291:Health Policy / Q000191:economics*; D006297:Health Services Accessibility / Q000191:economics*; D006301:Health Services Needs and Demand / Q000191:economics; D006701:Home Nursing / Q000191:economics; D006801:Humans; D008607:Intellectual Disability / Q000191:economics* / Q000534:rehabilitation*; D008282:Mainstreaming, Education / Q000191:economics; D012050:Rehabilitation, Vocational / Q000191:economics; D012114:Residential Treatment / Q000191:economics; D012144:Respite Care / Q000191:economics; D012944:Social Support; D014481:United States