title: Psychometric evaluation of the Dutch language version of the Child and Family Follow-up Survey.
abstract: OBJECTIVE
  The Child and Family Follow-up Survey (CFFS) is developed to monitor long-term outcomes of children and youth with acquired brain injury (ABI). The aim of this study was to translate and adapt it into the Dutch language and to evaluate its reliability and validity.
  
  
  METHODS
  The CFFS includes the Child and Adolescent Scale of Participation (CASP), the Child and Adolescent Factors Inventory (CAFI) and the Child and Adolescent Scale of Environment (CASE). The CFFS was translated into Dutch following international guidelines and adapted. The internal consistency, validity and test-retest reliability were examined among two groups of patients (n = 140 and n = 27) in the age of 5-22 years with ABI and their parents.
  
  
  RESULTS
  The translation and adaptation resulted in the CFFS-DLV, Dutch language version. The CASP-DLV, CAFI-DLV and CASE-DLV had a good internal consistency, with Cronbach's alpha being 0.95, 0.89 and 0.83, respectively. There were statistically significant correlations among the three CFFS subscale scores. These scores were also significantly correlated with the total scores of the Pediatric Quality of Life Inventory (PedsQL, parent) and the Pediatric Stroke Outcome Measure, but not with the domain scores of the Children's Assessment of Participation and Enjoyment (CAPE). The test-retest reliability was good to moderate, with the intra-class correlation coefficients being 0.90 for the CASP-DLV, 0.95 for the CAFI-DLV and 0.81 for the CASE-DLV.
  
  
  CONCLUSIONS
  The CFFS-DLV, as translation and adaptation of the CFFS into Dutch, proved to be a promising instrument to measure long-term outcomes of children and youth with ABI. Further research is needed to examine its responsiveness to change and potential in other patient groups.
authors.affiliation: a Sophia Rehabilitation , The Hague , The Netherlands .|b Department of Research & Development , The Hague University of Applied Sciences , The Hague , The Netherlands .
authors.forename: Arend J
authors.initials: AJ
authors.lastname: de Kloet
authors.affiliation: b Department of Research & Development , The Hague University of Applied Sciences , The Hague , The Netherlands .
authors.forename: Monique A M
authors.initials: MA
authors.lastname: Berger
authors.affiliation: c Department of Occupational Therapy , Tufts University , Medford , MA , USA .
authors.forename: Gary M
authors.initials: GM
authors.lastname: Bedell
authors.affiliation: d Department of Paediatric Neurology , Sophia Children's Hospital, Erasmus University Hospital , Rotterdam , The Netherlands , and.
authors.forename: Coriene E
authors.initials: CE
authors.lastname: Catsman-Berrevoets
authors.affiliation: a Sophia Rehabilitation , The Hague , The Netherlands .
authors.forename: Frederike
authors.initials: F
authors.lastname: van Markus-Doornbosch
authors.affiliation: a Sophia Rehabilitation , The Hague , The Netherlands .|e Department of Orthopaedics , Leiden University Medical Centre , Leiden , The Netherlands.
authors.forename: Thea P M
authors.initials: TP
authors.lastname: Vliet Vlieland
mesh_terms: D000293:Adolescent; D000328:Adult; D001930:Brain Injuries / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation*; D002648:Child; D003431:Cross-Cultural Comparison; D005260:Female; D006801:Humans; D007802:Language; D008297:Male; D009426:Netherlands; D010290:Parents / Q000523:psychology*; D011594:Psychometrics; D011795:Surveys and Questionnaires / Q000592:standards*
keywords: Acquired brain injury; adolescents; children; participation; traumatic brain injury; young adults