title: [Management of prolonged convulsive seizures in the community: results of the PERFECT™ study in Spain].
abstract: BACKGROUND
  The Practices in Emergency and Rescue medication For Epilepsy managed with Community administered Therapy (PERFECT™) Initiative was set up in 2011 to gain a better understanding of how prolonged convulsive seizures are managed, and rescue medication is administered, in out-of-hospital settings across Europe. This paper explores the initial research findings for Spain.
  
  
  METHODS
  A review was made of existing clinical guidelines, guidance to schools, and relevant policy and legal frameworks, as well as a survey of 20 healthcare professionals who treat children with prolonged convulsive seizures in Spain.
  
  
  RESULTS
  Existing clinical guidelines pertain mainly to the hospital setting, and contain very little information on how prolonged seizures should be managed outside of the hospital. Guidance for schools is unclear as to whether teachers are allowed to administer rescue medication to children, and there is no legal obligation for school staff to administer medication to children under their care. As a result of such uncertainty, whether or not children who experience prolonged seizures receive their rescue medication during school hours depends mostly on the resources and training available in each school.
  
  
  CONCLUSIONS
  There is a need for more explicit guidance covering educational and healthcare settings, clearer information to parents and schools, and more systematic training to be made available to caregivers. This is to ensure that all children at risk of a prolonged convulsive seizure receive rescue medication in a timely manner, regardless of where their seizure occurs.
authors.affiliation: Servicio de Neurología Pediátrica, Hospital Universitari Vall d'Hebron, Barcelona, España. Electronic address: 33936mrc@comb.cat.
authors.forename: M
authors.initials: M
authors.lastname: Raspall-Chaure
authors.affiliation: Servicio de Neuropediatría, Hospital Universitario La Paz, Madrid, España.
authors.forename: A
authors.initials: A
authors.lastname: Martínez-Bermejo
authors.affiliation: Servicio de Pediatría, Hospital de la Plana, Vila-real, Castellón, España.
authors.forename: J
authors.initials: J
authors.lastname: Pantoja-Martínez
authors.affiliation: Servicio de Pediatría, Hospital Arnau de Vilanova, Lleida, España.
authors.forename: F
authors.initials: F
authors.lastname: Paredes-Carmona
authors.affiliation: Unidad de Neurología Infantil, Departamento de Pediatría, Clínica Universidad de Navarra, Pamplona, Navarra, España.
authors.forename: R
authors.initials: R
authors.lastname: Sánchez-Carpintero
authors.affiliation: SHW Health Limited, Londres, Reino Unido.
authors.forename: S
authors.initials: S
authors.lastname: Wait
mesh_terms: D000927:Anticonvulsants / Q000627:therapeutic use*; D002648:Child; D006761:Hospitals; D006801:Humans; D017410:Practice Guidelines as Topic; D012574:Schools; D012640:Seizures / Q000188:drug therapy*; D013030:Spain; D013997:Time Factors
chemical_list: D000927:Anticonvulsants
keywords: Benzodiacepinas; Benzodiazepines; Colegio; Crisis convulsiva; Diacepam; Diazepam; Epilepsia; Epilepsy; Guidelines; Guías; Medicación de rescate; Midazolam; Rescue medication; School; Seizure