title: Psychological wellbeing, health related quality of life and memories of intensive care and a specialised weaning centre reported by survivors of prolonged mechanical ventilation.
abstract: OBJECTIVE
  To compare memories and recall of intensive care unit and specialised weaning centre admission, characterise health-related quality of life and psychological morbidity, and examine the relationship between delusional memories and psychological outcomes.
  
  
  METHODS
  We recruited participants following hospitalisation that included ICU admission and subsequent weaning in a specialised centre. We administered validated questionnaires to assess memory and recall of both care locations, anxiety, depression, post-traumatic stress symptomatology and health-related quality of life.
  
  
  RESULTS
  Of 53 eligible patients discharged from the weaning centre over seven years, we recruited 27 participants. Participants had similar numbers of factual and feeling memories but reported more delusional memories for ICU than the weaning centre (1.6 vs. 0.7, P=0.004). Nine (39%) participants scored ≥ 11 on the hospital anxiety and depression scale (anxiety) and were more likely to experience delusional memories (P=0.008). Thirst (70%), no control (70%), noise (65%) were most frequently recalled ICU experiences. Procedures (83%), night awakening (70%), inability to sleep (70%) most frequently recalled from the weaning centre.
  
  
  CONCLUSIONS
  Delusional memories and anxiety disorder were prevalent and associated suggesting interventions to ameliorate delusional memories may reduce anxiety. Difficulty sleeping and thirst were common experiences.
authors.affiliation: Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, 155 College Street, Room 276, Toronto, ON, Canada M5T IP8; Provincial Centre of Weaning Excellence/Prolonged Ventilation Weaning Centre, Toronto East General Hospital, 825 Coxwell Avenue, Toronto, ON, Canada M4C 3E7; Mt Sinai Hospital and the Li Ka Shing Knowledge Institute, St Michael's Hospital, Canada. Electronic address: louise.rose@utoronto.ca.
authors.forename: Louise
authors.initials: L
authors.lastname: Rose
authors.affiliation: Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, 155 College Street, Room 276, Toronto, ON, Canada M5T IP8. Electronic address: nonoyama@utoronto.ca.
authors.forename: Mika
authors.initials: M
authors.lastname: Nonoyama
authors.affiliation: Provincial Centre of Weaning Excellence/Prolonged Ventilation Weaning Centre, Toronto East General Hospital, 825 Coxwell Avenue, Toronto, ON, Canada M4C 3E7. Electronic address: shrez@tegh.on.ca.
authors.forename: Shaghayegh
authors.initials: S
authors.lastname: Rezaie
authors.affiliation: Provincial Centre of Weaning Excellence/Prolonged Ventilation Weaning Centre, Toronto East General Hospital, 825 Coxwell Avenue, Toronto, ON, Canada M4C 3E7; Division of Respirology, Faculty of Medicine, University of Toronto, Canada. Electronic address: ifras@tegh.on.ca.
authors.forename: Ian
authors.initials: I
authors.lastname: Fraser
mesh_terms: D000368:Aged; D003422:Critical Care / Q000523:psychology*; D064648:Critical Care Nursing; D005260:Female; D006801:Humans; D007362:Intensive Care Units; D008297:Male; D011939:Mental Recall; D008875:Middle Aged; D011788:Quality of Life; D012121:Respiration, Artificial / Q000523:psychology*; D012893:Sleep Wake Disorders / Q000453:epidemiology; D014139:Tracheostomy; D015300:Ventilator Weaning
keywords: Critical care; Memory; Patient experience; Prolonged mechanical ventilation; Recall