title: [Hemophilia camps.]
abstract: We reported the experience of hemophilia camps which was accomplished with patients from hospitals of the Instituto Mexicano del Seguro Social. The aim was to prepare the families and patients regarding the disease treatment, in order to promote the self sufficiency and to know the impact of the program on the course of the disease. Surveys were applied about treatment items and personal opinions were collected. The results of the national hemophilia camp were: group of 56 patients, average 14 years, 2 % women, 51 % severe hemophilia and 43 % had hemophilic brothers. Benefits: patients increased their knowledge about earlier bleeding identification and the self-infusion method; they became aware on their responsibility in self care, timely treatment and duties at home. Hemophilia camps with patients are an option for attitude change before disease complications. Social network creation and the increase in self-sufficiency are other benefits.
authors.affiliation: Departamento de Trabajo Social, Hospital General, Centro Médico Nacional La Raza, Instituto Mexicano del Seguro Social, Distrito Federal, México. julietajs@terra.com.mx.
authors.forename: Julieta
authors.initials: J
authors.lastname: Juárez-Sierra
authors.forename: Laura
authors.initials: L
authors.lastname: Del Pilar Torres-Arreola
authors.forename: Teresa
authors.initials: T
authors.lastname: Marín-Palomares
authors.forename: María Teresa
authors.initials: MT
authors.lastname: Dueñas-González
authors.forename: Martha Patricia
authors.initials: MP
authors.lastname: Monteros-Rincón
authors.forename: Maricela
authors.initials: M
authors.lastname: Osorio-Guzmán
keywords: campamentos; camping; hemofilia; hemophilia