title: Nursing and genetic biobanks.
abstract: Biobanks function as vital components in genetic research, which often requires large disease-based or population-based biospecimens and clinical data to study complex or rare diseases. Genetic biobanks aim to provide resources for translational research focusing on rapidly moving scientific findings from the laboratory into health care practice. The nursing profession must evolve as genetic biobanking practices advance. Nursing involvement in genetic biobanking practices comes with a distinct set of educational, ethical, and practice competencies. In response to these growing competency standards, nursing science developed a conceptual framework and continues to study ethical considerations to guide genetic biobanking initiatives.
authors.affiliation: School of Nursing, The University of Texas Health Science Center at Houston, 6901 Bertner Avenue, Suite 612, Houston, TX 77030, USA. Electronic address: Jennifer.E.Sanner@uth.tmc.edu.
authors.forename: Jennifer E
authors.initials: JE
authors.lastname: Sanner
authors.forename: Erica
authors.initials: E
authors.lastname: Yu
authors.forename: Malini
authors.initials: M
authors.lastname: Udtha
authors.forename: Pamela Holtzclaw
authors.initials: PH
authors.lastname: Williams
mesh_terms: D018070:Biological Specimen Banks / Q000458:organization & administration*; D036281:Genetic Research; D005826:Genetics, Medical / Q000458:organization & administration*; D006301:Health Services Needs and Demand; D006801:Humans; D024802:Nurse's Role; D009736:Nursing Process / Q000458:organization & administration*; D057184:Practice Patterns, Nurses' / Q000458:organization & administration*; D035583:Rare Diseases / Q000628:therapy
keywords: Biobanking; Biobanks; Genetics; Nursing; Research