title: Is the Give Youth a Voice questionnaire an appropriate measure of teen-centred care in paediatric oncology: a Rasch measurement theory analysis.
abstract: BACKGROUND
  Adolescents have their own views about the cancer care they receive and how they feel they are treated, but their opinions are rarely solicited.
  
  
  OBJECTIVE
  To determine whether the 56-item Give Youth a Voice (GYV-56), its subscales and its 20-item short-form, are clinically meaningful and psychometrically sound instruments that can be used to measure teen-centred care (TCC) in paediatric oncology.
  
  
  METHODS
  Qualitative interviews and a questionnaire survey.
  
  
  METHODS
  Qualitative interviews with 38 childhood cancer survivors. GYV-56 data collected from 200 paediatric cancer patients and survivors.
  
  
  METHODS
  The GYV-56, which measures the following four aspects of service delivery: Supportive and respectful relationships; Information sharing and communication; Supporting independence; and Teen-centred services.
  
  
  RESULTS
  Qualitative data provided broad support for the TCC conceptual framework and GYV-56 items. After post-hoc reduction of the response options from 7 to 3 (to correct for disordered thresholds), fit to the Rasch model was good, most items showed acceptable fit residuals and chi-square P-values, scale reliability were supported and item locations defined a continuum for TCC that was well-targeted to the sample. By calibrating the items for each subscale and the short-form to the full scale, the scores obtained on each measure are directly comparable.
  
  
  CONCLUSIONS
  Our study found initial support for use of the GYV with a reduced response option format for examining TCC in the adolescent oncology patients. in this paediatric population. Further research using the GYV is needed to elaborate upon our findings.
authors.affiliation: Department of Pediatrics, McMaster University, Hamilton, ON, Canada.
authors.forename: Anne F
authors.initials: AF
authors.lastname: Klassen
authors.affiliation: Clinical Neurology Research Group, Plymouth University Peninsula Schools of Medicine and Dentistry, Plymouth, UK.
authors.forename: Stefan J
authors.initials: SJ
authors.lastname: Cano
authors.affiliation: Department of Pediatrics, University of Saskatchewan, Saskatoon, SK, Canada.
authors.forename: Roona
authors.initials: R
authors.lastname: Sinha
authors.affiliation: University of Ottawa, Ottawa, ON, Canada.
authors.forename: Areej
authors.initials: A
authors.lastname: Shahbaz
authors.affiliation: Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada.
authors.forename: Robert
authors.initials: R
authors.lastname: Klaassen
authors.affiliation: Department of Pediatrics, University of British Columbia, Vancouver, BC, Canada.
authors.forename: David
authors.initials: D
authors.lastname: Dix
mesh_terms: D000293:Adolescent; D002648:Child; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008495:Medical Oncology; D015233:Models, Statistical; D018802:Patient-Centered Care; D010372:Pediatrics; D011369:Professional-Patient Relations; D011594:Psychometrics / Q000379:methods*; D036301:Qualitative Research; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires
keywords: Rasch measurement theory; adolescents; family-centered care; neoplasm; processes of care; quality improvement