title: Experiences and concerns of family caregivers providing support to people with dementia: a cross-cultural perspective.
abstract: We examined experiences and concerns among caregivers of community-dwelling people with dementia from two ethnic groups. We conducted a thematic analysis of responses to the question, 'What is your life like as a caregiver?' in nine focus groups (n = 75) with Filipino and non-Hispanic White caregivers. Constant comparison methods identified themes by ethnicity. Experiences and concerns expressed across groups were related to care recipient symptoms commonly associated with dementia, including severe memory loss and behavioral changes. Participants in both ethnic groups described strategies that help them cope, such as receiving help from family and friends, receiving respite support, and participating in support groups. Filipino caregivers more often emphasized positive aspects of caregiving, whereas Whites often expressed that others do not understand the daily experiences of caregiving. Filipinos more commonly described caregivers as a 'good person' or 'saint' and emphasized that caregiving made them stronger.
authors: University of California, Berkeley, USA.
authors: Susan L
authors: SL
authors: Ivey
authors: Sarah B
authors: SB
authors: Laditka
authors: Anna E
authors: AE
authors: Price
authors: Winston
authors: W
authors: Tseng
authors: Renée L
authors: RL
authors: Beard
authors: Rui
authors: R
authors: Liu
authors: David
authors: D
authors: Fetterman
authors: Bei
authors: B
authors: Wu
authors: Rebecca G
authors: RG
authors: Logsdon
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D000544:Alzheimer Disease / Q000451:nursing / Q000523:psychology; D044466:Asian People / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D003431:Cross-Cultural Comparison; D003704:Dementia / Q000451:nursing / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010679:Philippines / Q000208:ethnology; D036301:Qualitative Research; D044465:White People / Q000523:psychology*
keywords: Alzheimer’s disease; Filipinos; aging; focus groups; qualitative research