title: Family building using donated gametes and embryos in the UK: recommendations for policy and practice on behalf of the British Infertility Counselling Association and the British Fertility Society in collaboration with the Association of Clinical Embryologists and the Royal College of Nurses Fertility Nurses Forum.
abstract: The UK Department of Health's consultation on the future of the Human Fertilisation and Embryology Authority (HFEA) presented an opportunity to review current practice in relation to donor conception (DC) and make recommendations for improving services to those seeking fertility treatment, to families with donor conceived children and those of donors, and to those seeking later information. The year 2023 marks the start of post-2005 donor conceived adults having statutory access to identifying information about their donor(s); some adults with pre-2005 donors will have access sooner if the donor(s) re-registers as 'willing to be identified'. This paper examines current practice in UK licensed treatment centres in collecting and disseminating donor information and in supporting donors and prospective parents. Further, it considers current HFEA functions concerning DC including its responsibilities for the Register of Information and Donor Sibling Link and its approach to policy making, regulation and the release of information from these Registers to applicants. Proposals for how these functions could be carried out in the future are set out together with recommendations for national support and intermediary services. The key evidence available to support these recommendations is outlined.
authors: Complete Fertility Centre Southampton, Princess Anne Hospital , Southampton, Hampshire , UK.
authors: Ruth
authors: R
authors: Wilde
authors: Alison
authors: A
authors: McTavish
authors: Marilyn
authors: M
authors: Crawshaw
mesh_terms: D001290:Attitude; D003219:Confidentiality; D030881:Disclosure; D005190:Family; D005260:Female; D033161:Government Regulation; D006291:Health Policy; D006801:Humans; D007246:Infertility / Q000628:therapy*; D033181:Information Dissemination; D009726:Nurses; D018587:Oocyte Donation / Q000941:ethics*; D018579:Patient Selection; D027724:Reproductive Techniques, Assisted / Q000941:ethics; D012958:Societies, Scientific / Q000458:organization & administration*; D014019:Tissue Donors; D006113:United Kingdom