title: Advance care planning for Māori, Pacific and Asian people: the views of New Zealand healthcare professionals.
abstract: Despite the benefits of advance care planning (ACP), international research has suggested that in pluralistic and multicultural societies such as New Zealand, significant differences exist in the uptake of ACP between European-based populations and other cultural groups [Crawley (2005)]. The purpose of this study was to therefore explore the views of generalist palliative care providers in both the community and hospital settings regarding the barriers to ACP adoption as well as methods to increase knowledge about ACP among Māori, Pacific and Asian cultural groups within New Zealand society. Eleven individual interviews, two joint interviews and three focus groups were conducted with health and social care professionals with a wide range of knowledge and experience in palliative care. Challenges were related to a number of issues based on culture, including family decision-making style, a need to 'do everything' and a reluctance to discuss issues surrounding dying and death. Suggestions to increase the knowledge of ACP included techniques to improve information access and the utilisation of shared norms and values to assist with discussions between Māori, Pacific and Asian health professionals and their patients and families/whānau. Findings indicate a need for more family/whānau-centred models of ACP, addressed much earlier in the healthcare process and within the community setting.
authors: School of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
authors: Rosemary
authors: R
authors: Frey
authors: Deborah
authors: D
authors: Raphael
authors: Gary
authors: G
authors: Bellamy
authors: Merryn
authors: M
authors: Gott
mesh_terms: D000328:Adult; D032722:Advance Care Planning; D001291:Attitude of Health Personnel; D001293:Attitude to Death / Q000208:ethnology; D003469:Culture; D003657:Decision Making; D017144:Focus Groups; D006282:Health Personnel / Q000523:psychology / Q000706:statistics & numerical data; D006801:Humans; D007407:Interviews as Topic; D008875:Middle Aged; D009520:New Zealand; D055815:Young Adult
keywords: advance care planning; culture; end-of-life; generalist; palliative care