title: Siblings caring for and about pediatric palliative care patients.
abstract: BACKGROUND
  The experiences of young people who have siblings with life-limiting illnesses are not well understood.
  
  
  OBJECTIVE
  The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients.
  
  
  METHODS
  Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis.
  
  
  METHODS
  Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area.
  
  
  RESULTS
  The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care.
  
  
  CONCLUSIONS
  Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.
authors: 1 Health Sciences Research Institute, University of California , Merced, California.
authors: Erin M
authors: EM
authors: Gaab
authors: Glynn R
authors: GR
authors: Owens
authors: Roderick D
authors: RD
authors: MacLeod
mesh_terms: D000293:Adolescent; D059031:Anticipation, Psychological; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D003142:Communication; D005260:Female; D006117:Grief; D006801:Humans; D008297:Male; D009520:New Zealand; D010166:Palliative Care / Q000523:psychology*; D036301:Qualitative Research; D035781:Siblings / Q000523:psychology*; D019452:Terminally Ill / Q000523:psychology*; D055815:Young Adult