title: Chinese Hemophilia Joint Health Score 2.1 reliability study.
abstract: To meet the rapidly expanding need for musculoskeletal (MSK) specialists [physiotherapists (PTs), physiatrists] in haemophilia care in China, a 4-day Train the Trainer workshop was conducted in July/August 2009 in Beijing. A key focus was to train the participants to administer the Hemophilia Joint Health Score (HJHS) version 2.1 for effectively evaluating the MSK health of boys <18 years of age with haemophilia. The aim of this study was to test the HJHS version 2.1 inter- and intra-rater reliability in a group of Chinese PTs and physiatrists with limited experience in haemophilia care. Each of the trained Chinese physiatrists and PTs examined eight boys 4-17 years old with moderate and severe haemophilia on day 1 and repeated the examination on the same patients the next day using the HJHS version 2.1. The boys had a wide range of target joint involvement and arthropathy. The HJHS score sheet, work sheets and manual had been translated into simple Chinese prior to the study. The interrater (ICC 0.90) and intra-rater (ICC 0.91) reliability was excellent. The internal consistency of the HJHS items was also excellent with Cronbach's alpha of 0.86. With basic training in the administration of the HJHS version 2.1, the tool was reliably administered by Chinese PTs and physiatrists with limited haemophilic experience.
authors: Hematology Department, Nanfang Hospital, Southern Medical University, Guangzhou, China.
authors: J
authors: J
authors: Sun
authors: P E
authors: PE
authors: Hilliard
authors: B M
authors: BM
authors: Feldman
authors: N
authors: N
authors: Zourikian
authors: L
authors: L
authors: Chen
authors: V S
authors: VS
authors: Blanchette
authors: K H
authors: KH
authors: Luke
authors: M C
authors: MC
authors: Poon
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D002681:China; D006467:Hemophilia A / Q000175:diagnosis* / Q000503:physiopathology / Q000628:therapy*; D006801:Humans; D008297:Male; D026761:Physical Therapy Specialty / Q000193:education; D015203:Reproducibility of Results; D012720:Severity of Illness Index
keywords: haemophilia; musculoskeletal; reliability