title: [Development of a decision aid on post mortem organ donation - somewhere between evidence uncertainty, fears, and ethical and moral values].
abstract: The recently revised German transplantation law provides that people are to be supported to make informed decisions on post-mortem organ donation by implementing broad education campaigns. A comprehensive web-based decision aid "organ donation after death" was developed, evaluated and optimised utilising multiple methodological phases. The decision aid comprises 1) factual information in a question-answer format, 2) tools for the individual assessment of this information, and 3) narratives addressing attitudes and emotional aspects. The website content was compiled by participating experts and potential users of the decision aid. Potential users also participated in the usability evaluation. Version 1.0 was made publicly available on the Internet in April 2012. Currently, version 2.0 of the decision aid is being updated step-by-step, based on the results of the evaluation.
authors: Tanja
authors: T
authors: Richter
authors: Susanne
authors: S
authors: Buhse
authors: Ramona
authors: R
authors: Kupfer
authors: Anja
authors: A
authors: Gerlach
authors: Ingrid
authors: I
authors: Mühlhauser
authors: Matthias
authors: M
authors: Lenz
mesh_terms: D003661:Decision Support Techniques; D004992:Ethics, Medical; D005239:Fear; D005858:Germany; D006266:Health Education / Q000941:ethics; D006801:Humans; D020407:Internet; D028681:Moral Obligations; D015397:Program Evaluation; D009927:Tissue and Organ Procurement / Q000941:ethics*; D035501:Uncertainty
keywords: Deutschland; Entscheidungshilfe; Germany; Informationsverbreitung; Organspende; Verbraucher- und Gesundheitsinformationen; consumer health information; decision aid; information dissemination; internet-based; internetbasiert; organ donation