title: Stewardship practices of U.S. biobanks.
abstract: Biobanks require new governance models that address their ethical and regulatory challenges. One model relies on stewardship of specimens throughout their life course. Here, we discuss findings from our survey of 456 U.S. biobank managers that addressed whether and how biobanks steward their specimens. The findings reveal that most biobanks do not create ongoing relationships with contributors but do practice stewardship over storing and sharing of specimens. Biobanks now need guidance to fully articulate stewardship practices that ensure respect for contributors while facilitating research.
authors: Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA.
authors: Gail E
authors: GE
authors: Henderson
authors: Teresa P
authors: TP
authors: Edwards
authors: R Jean
authors: RJ
authors: Cadigan
authors: Arlene M
authors: AM
authors: Davis
authors: Catherine
authors: C
authors: Zimmer
authors: Ian
authors: I
authors: Conlon
authors: Bryan J
authors: BJ
authors: Weiner
mesh_terms: D018070:Biological Specimen Banks / Q000941:ethics* / Q000458:organization & administration*; D035843:Biomedical Research / Q000941:ethics*; D032984:Ethics, Research; D006801:Humans; D035844:Researcher-Subject Relations; D013048:Specimen Handling / Q000941:ethics; D014481:United States