title: Early-onset dementia: the impact on family care-givers.
abstract: People with early-onset dementia (EOD) and their family carers remain an overlooked population within the policy and practice priorities of community health care. No standard provision of care or support currently exists for those with EOD and the family carer. Yet family members provide the majority of the full-time care required for this progressive, irreversible illness. The aim of this research was to explore the impact of care-giving on family members caring for a relative with EOD. The care-giving experiences identified in this study emphasise the need for improvement in the provision of community and specialised services for people with EOD and family carers. The key themes of this qualitative study were diagnostic problems, impact of care-giving, relationship change and lack of resources. These findings provide key directives for improving community practice, services and support for people with EOD and their family carers.
authors: PhD student, Faculty of Nursing, University of Alberta, Canada.
authors: Rachel
authors: R
authors: Flynn
authors: College Lecturer, University College of Cork, Republic of Ireland.
authors: Helen
authors: H
authors: Mulcahy
mesh_terms: D000293:Adolescent; D000328:Adult; D017668:Age of Onset; D000368:Aged; D017028:Caregivers / Q000523:psychology; D017281:Cost of Illness; D003704:Dementia / Q000175:diagnosis / Q000191:economics / Q000523:psychology; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D007494:Ireland; D008297:Male; D008875:Middle Aged; D033262:Narration; D036301:Qualitative Research