title: Recommended strategies for epidermolysis bullosa management in romania.
abstract: BACKGROUND
  There are 72 families with epidermolysis bullosa (EB) in Romania. Since 2012 a National Program for the treatment of these patients is run by the Ministry of Health.The objectives of the strategies for EB patients are to optimize the management (diagnosis, treatment, monitoring) and to provide actual information on classification and patho-physiology which dictate the course of the disease.
  
  
  METHODS
  An international expert panel of specialists produced by consensus the recommendations for the management of EB cases in Romania taking into account the local possibilities. Patient association proposals were included. A review of the literature was performed to up-date the information.
  
  
  RESULTS
  A strategy for diagnosis, treatment and follow-up of the patients with EB was elaborated in clear steps. Pharmacological treatments and wound care indications are provided together with a useful score for patient evaluation.
  
  
  CONCLUSIONS
  These recommended strategies are allowing dermatologists to generate an individualized care plan for patients with EB.
authors.affiliation: Colentina Dermatology Clinic 2, "Carol Davila" University of Medicine and Pharmacy Bucharest, Romania.
authors.forename: Carmen Maria
authors.initials: CM
authors.lastname: Salavastru
authors.affiliation: Tel Aviv Sourasky Medical Center, Department of Dermatology, Tel Aviv, Israel.
authors.forename: Eli
authors.initials: E
authors.lastname: Sprecher
authors.affiliation: Medlife Hyperclinic, Bucharest, Romania.
authors.forename: Mihaela
authors.initials: M
authors.lastname: Panduru
authors.affiliation: Universitätsklinik für Dermatologie, Salzburg, Austria.
authors.forename: Johann
authors.initials: J
authors.lastname: Bauer
authors.affiliation: Dermatology Clinic, "Victor Babeş" University of Medicine and Pharmacy, Timişoara, Romania.
authors.forename: Caius Silviu
authors.initials: CS
authors.lastname: Solovan
authors.affiliation: Dermatology Clinic, University of Medicine and Pharmacy, Craiova, Romania.
authors.forename: Virgil
authors.initials: V
authors.lastname: Patrascu
authors.affiliation: Dermatology Clinic, University of Medicine and Pharmacy Târgu Mureş, Romania.
authors.forename: Horia Silviu
authors.initials: HS
authors.lastname: Morariu
authors.affiliation: Dermatology Clinic 2, "Colentina" Clinical Hospital, Bucharest, Romania.
authors.forename: Anca
authors.initials: A
authors.lastname: Tudorache
authors.affiliation: University of Rome "G.Marconi", Rome, Italy.
authors.forename: Torello
authors.initials: T
authors.lastname: Lotti
authors.affiliation: Direzione Scientifica, Area di Ricerca Innovazioni Clinico-Tecnologiche, Ospedale Pediatrico Bambino Gesù, IRCCS, Rome, Italy.
authors.forename: Irene
authors.initials: I
authors.lastname: Tagliente
authors.affiliation: Dipartimento di Medicina Pediatrica UOC di Dermatologia, Ospedale Pediatrico Bambino Gesù, IRCCS, Rome, Italy.
authors.forename: Annalisa
authors.initials: A
authors.lastname: Ciasulli
authors.affiliation: Dipartimento di Medicina Pediatrica,UOC di Pediatria Generale e Malattie Infettive, Ospedale Pediatrico Bambino Gesù, IRCCS, Rome, Italy.
authors.forename: Maria Rosaria
authors.initials: MR
authors.lastname: Marchili
authors.affiliation: Direzione Scientifica, Area di Ricerca Malattie Genetiche e Rare, UOC Broncopneumologia, Ospedale Pediatrico Bambino Gesù, IRCCS, Rome, Italy.
authors.forename: Giuseppe
authors.initials: G
authors.lastname: Sabatino
authors.affiliation: MiniDebra, Cluj, Romania.
authors.forename: Erika
authors.initials: E
authors.lastname: Burciu
authors.affiliation: Dermatology clinic, "Iuliu Hatieganu" University of medicine and Pharmacy Cluj Napoca, Romania.
authors.forename: Rodica
authors.initials: R
authors.lastname: Cosgarea
authors.affiliation: Dermatology Clinic, Landau, Germany.
authors.forename: Klaus
authors.initials: K
authors.lastname: Fritz
authors.affiliation: Colentina Dermatology Clinic 2, "Carol Davila" University of Medicine and Pharmacy Bucharest, Romania.
authors.forename: George-Sorin
authors.initials: GS
authors.lastname: Tiplica
keywords: dressings; epidermolysis bullosa monitoring; epidermolysis bullosa therapy; wound care