title: [Adding value to the care at the final stage of chronic diseases].
abstract: There is a growing number of people with advanced chronic health conditions and with palliative care needs who die without their health and social needs satisfied. This is enough to redefine the traditional models of care in order to focus on the person, rather than on the disease. In these new models, the important role of nursing is unquestionably to promote an approach based on comprehensive care, coordination and continuity, and at a social health level appropriate to respond to the care of patients who require complex long-term care. The nurse contribution in the end stages of chronic conditions must be in the value of care. Taking care of someone is to be concerned about them. And this is related to attitude, commitment and responsibility. In the care of patients who live in a situation of extreme vulnerability, it is possible to help them feel warmth, confident, relieve their suffering, respect their autonomy, and help them them find sense and hope, through daily tasks. With gestures, words and facial expressions that go with this care, it is possible to preserve patient dignity.
authors.affiliation: Dirección de Enfermería, Hospital Sant Joan de Déu, Palma de Mallorca, España. Electronic address: mvacas@ohsjd.es.
authors.forename: Mercedes
authors.initials: M
authors.lastname: Vacas Guerrero
mesh_terms: D002908:Chronic Disease / Q000451:nursing*; D006801:Humans; D024802:Nurse's Role; D013727:Terminal Care / Q000592:standards
keywords: Advanced chronic patients; Cuidado al final de la vida; Cuidados de enfermería; Cuidados paliativos; End-of-life care; Enfermedad crónica avanzada; Ethics of care; Nursing care; Palliative care; Ética de los cuidados