title: [Data protection in rehabilitation research].
abstract: Data protection is regulated by legislation and has to be adhered to by scientists, too. This overview shows where aspects of data protection have to be considered in rehabilitation research. Important legal sources are the code of social law X, the German Federal Data Protection Act and the data protection acts of the German states. Specific recommendations about patient information sheet and written informed consent are given for research based on interviews with study participants. Furthermore, operations such as collecting, processing, using, storing, publishing and archiving of personal data are explained, taking into account the requirements of data protection. A practical example (URL: www.thieme-connect.de/ejournals/toc/rehabilitation) shows how to separate personal data and research data using the services of an external data custodian.
authors.affiliation: Fakultät für Gesundheitswissenschaften, AG3 - Epidemiologie & International Public Health, Universität Bielefeld.
authors.forename: A K
authors.initials: AK
authors.lastname: Exner
authors.affiliation: Deutsche Rentenversicherung Bund, Referat für Datenschutz, Berlin.
authors.forename: H
authors.initials: H
authors.lastname: Gerold
authors.affiliation: Fakultät für Gesundheitswissenschaften, AG3 - Epidemiologie & International Public Health, Universität Bielefeld.
authors.forename: J
authors.initials: J
authors.lastname: Breckenkamp
authors.affiliation: Institut für Rehabilitationsforschung Norderney, Abteilung Sozialmedizin - Deutsche Rentenversicherung Westfalen, Münster.
authors.forename: J
authors.initials: J
authors.lastname: Bahmer
authors.affiliation: Centre for Learning Science and Technology, Open Universiteit Nederland, Heerlen, Niederlande.
authors.forename: R
authors.initials: R
authors.lastname: Klemke
authors.affiliation: Unit for Health Promotion Research, University of Southern Denmark, Esbjerg, Dänemark.
authors.forename: G
authors.initials: G
authors.lastname: Berg-Beckhoff
authors.affiliation: Institut für Rehabilitationsforschung Norderney, Abteilung Sozialmedizin - Deutsche Rentenversicherung Westfalen, Münster.
authors.forename: A
authors.initials: A
authors.lastname: Horschke
authors.affiliation: Fakultät für Gesundheitswissenschaften, AG3 - Epidemiologie & International Public Health, Universität Bielefeld.
authors.forename: O
authors.initials: O
authors.lastname: Razum
mesh_terms: D035843:Biomedical Research / Q000331:legislation & jurisprudence*; D016494:Computer Security / Q000331:legislation & jurisprudence*; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D057286:Electronic Health Records / Q000331:legislation & jurisprudence*; D005858:Germany; D055991:Health Records, Personal; D012046:Rehabilitation / Q000331:legislation & jurisprudence*