title: Use of a community-based participatory research approach to assess knowledge, attitudes, and beliefs on biospecimen research among Pacific Islanders.
abstract: Objectives. The purpose of this article is to describe a community-based participatory research pilot project conducted to investigate the knowledge, attitudes, and beliefs that Pacific Islanders (PIs) hold toward biospecimen collection, use, and banking, all of which will help drive higher PI participation rates in both medical and behavioral research studies. Method. Academic and community partners worked side by side to develop a conceptual model, study measures, and study protocols. PI community partners screened, recruited, and conducted data collection, which consisted of a paper-and-pencil survey and a 1-hour semistructured interview administered by trained community workers. Results. A total of 60 PI adults representing various PI ethnic groups completed the surveys and interviews. Results showed a general support for biospecimen studies that would benefit the community, and many are willing to provide their biospecimen samples if asked. Conclusion. Due to the established level of trust, community partners were able to successfully recruit and collect data for the study. Many of those interviewed also called for more outreach and education about the importance of biospecimen research in their communities.
authors.affiliation: 1Claremont Graduate University's School of Community & Global Health, Claremont, CA, USA.
authors.forename: Patchareeya P
authors.initials: PP
authors.lastname: Kwan
authors.forename: Greta
authors.initials: G
authors.lastname: Briand
authors.forename: Cevadne
authors.initials: C
authors.lastname: Lee
authors.forename: Jonathan Tana
authors.initials: JT
authors.lastname: Lepule
authors.forename: Jane Ka'ala
authors.initials: JK
authors.lastname: Pang
authors.forename: Melanie
authors.initials: M
authors.lastname: Sabado
authors.forename: Lola
authors.initials: L
authors.lastname: Sablan-Santos
authors.forename: Dorothy
authors.initials: D
authors.lastname: Schmidt-Vaivao
authors.forename: Sora
authors.initials: S
authors.lastname: Tanjasiri
authors.forename: Vanessa
authors.initials: V
authors.lastname: Tui'one
authors.forename: Paula H
authors.initials: PH
authors.lastname: Palmer
mesh_terms: D000328:Adult; D018070:Biological Specimen Banks; D035843:Biomedical Research; D055812:Community-Based Participatory Research; D054521:Cultural Competency; D007722:Health Knowledge, Attitudes, Practice / Q000208:ethnology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D044468:Native Hawaiian or Pacific Islander; D010865:Pilot Projects; D036301:Qualitative Research; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Native Hawaiian; Pacific Islander; cancer prevention and control; community-based participatory research; cultural competence; ethics; health disparities; health research; minority health