title: Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies.
abstract: It is essential to understand the experience of living with dementia from the perspective of the person with dementia so that services can be appropriately constructed. This review paper, drawing on prior work, identifies key strategies for the meaningful inclusion of persons with dementia within qualitative research studies, it examines the articulation of these strategies and shares how these strategies were operationalised within one national research study in Ireland. Strategies within the literature were categorised and then synthesized into a guide consisting of four main areas; gaining COnsent, maximizing Responses, Telling the story, and Ending on a high (CORTE). The CORTE guideline was used to as a tool for analysing relevant research reports. CORTE is a synthesized account of grouped strategies that could be used to maximize the meaningful involvement of persons with dementia and can also provide a guide for reporting the strategies used so that researchers can learn from each other.
authors.affiliation: School of Nursing and Midwifery, Aras Moyola, NUI, Galway, Ireland kathy.murphy@nuigalway.ie.
authors.forename: Kathy
authors.initials: K
authors.lastname: Murphy
authors.affiliation: School of Nursing and Midwifery, NUI, Galway, Ireland.
authors.forename: Fionnuala
authors.initials: F
authors.lastname: Jordan
authors.affiliation: School of Nursing and Midwifery, NUI, Galway, Ireland.
authors.forename: Andrew
authors.initials: A
authors.lastname: Hunter
authors.affiliation: School of Nursing and Midwifery, NUI, Galway, Ireland.
authors.forename: Adeline
authors.initials: A
authors.lastname: Cooney
authors.affiliation: School of Nursing and Midwifery, NUI, Galway, Ireland.
authors.forename: Dympna
authors.initials: D
authors.lastname: Casey
mesh_terms: D003704:Dementia; D006801:Humans; D007258:Informed Consent; D007407:Interviews as Topic; D007494:Ireland; D010358:Patient Participation; D036301:Qualitative Research; D012107:Research Design
keywords: dementia; interviews; people with dementia; persons with dementia; qualitative research; strategies for inclusion