title: Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers.
abstract: The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers' and professionals' experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals. This may be helpful for professionals and policy makers to consider when planning end-of-life care strategies for people with dementia and insights drawn from hearing directly from carers may be powerful learning tools.
authors.affiliation: University College London, UK.
authors.forename: Mareeni
authors.initials: M
authors.lastname: Raymond
authors.forename: Alex
authors.initials: A
authors.lastname: Warner
authors.forename: Nathan
authors.initials: N
authors.lastname: Davies
authors.forename: Steve
authors.initials: S
authors.lastname: Iliffe
authors.forename: Jill
authors.initials: J
authors.lastname: Manthorpe
authors.forename: Sam
authors.initials: S
authors.lastname: Ahmedzhai
mesh_terms: D001291:Attitude of Health Personnel; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000451:nursing*; D006801:Humans; D010166:Palliative Care / Q000523:psychology*; D013727:Terminal Care / Q000523:psychology*
keywords: Alzheimer's; carer; caring; dementia; narrative; palliative care; review