title: Common data items in seven European oesophagogastric cancer surgery registries: towards a European upper GI cancer audit (EURECCA Upper GI).
abstract: OBJECTIVE
  Seven countries (Denmark, France, Ireland, the Netherlands, Poland, Sweden, United Kingdom) collaborated to initiate a EURECCA (European Registration of Cancer Care) Upper GI project. The aim of this study was to identify a core dataset of shared items in the different data registries which can be used for future collaboration between countries.
  
  
  METHODS
  Item lists from all participating Upper GI cancer registries were collected. Items were scored 'present' when included in the registry, or when the items could be deducted from other items in the registry. The definition of a common item was that it was present in at least six of the seven participating countries.
  
  
  RESULTS
  The number of registered items varied between 40 (Poland) and 650 (Ireland). Among the 46 shared items were data on patient characteristics, staging and diagnostics, neoadjuvant treatment, surgery, postoperative course, pathology, and adjuvant treatment. Information on non-surgical treatment was available in only 4 registries.
  
  
  CONCLUSIONS
  A list of 46 shared items from seven participating Upper GI cancer registries was created, providing a basis for future quality assurance and research in Upper GI cancer treatment on a European level.
authors.affiliation: Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: W O
authors.initials: WO
authors.lastname: de Steur
authors.affiliation: Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: D
authors.initials: D
authors.lastname: Henneman
authors.affiliation: Department of Surgery, The Royal Marsden Hospital, London, United Kingdom.
authors.forename: W H
authors.initials: WH
authors.lastname: Allum
authors.affiliation: Department of Surgery, Medical Center Haaglanden, The Hague, The Netherlands.
authors.forename: J L
authors.initials: JL
authors.lastname: Dikken
authors.affiliation: Department of Surgery, Antoni van Leeuwenhoek Ziekenhuis, Amsterdam, The Netherlands.
authors.forename: J W
authors.initials: JW
authors.lastname: van Sandick
authors.affiliation: Department of Surgery, St James's Hospital and Trinity College, Dublin, Ireland.
authors.forename: J
authors.initials: J
authors.lastname: Reynolds
authors.affiliation: Department of Digestive and Oncological Surgery, University Hospital C Huriez, Lille, France.
authors.forename: C
authors.initials: C
authors.lastname: Mariette
authors.affiliation: Department of Surgical Gastroenterology, Aarhus, Denmark.
authors.forename: L
authors.initials: L
authors.lastname: Jensen
authors.affiliation: Department of Surgical Oncology, Lund University Hospital, Sweden.
authors.forename: J
authors.initials: J
authors.lastname: Johansson
authors.affiliation: Department of Surgery, Jegiellonian University, Krakow, Poland.
authors.forename: P
authors.initials: P
authors.lastname: Kolodziejczyk
authors.affiliation: Cambridge Oesophago-Gastric Centre, Addenbrookes Hospital, Cambridge, United Kingdom.
authors.forename: R H
authors.initials: RH
authors.lastname: Hardwick
authors.affiliation: Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands. Electronic address: c.j.h.van_de_velde@lumc.nl.
authors.forename: C J H
authors.initials: CJ
authors.lastname: van de Velde
mesh_terms: D019992:Databases as Topic; D003718:Denmark; D004938:Esophageal Neoplasms / Q000401:mortality / Q000473:pathology / Q000601:surgery*; D004943:Esophagogastric Junction / Q000473:pathology / Q000601:surgery*; D005062:European Union; D005260:Female; D005602:France; D006801:Humans; D007391:International Cooperation; D008297:Male; D008485:Medical Audit; D009426:Netherlands; D011044:Poland; D011785:Quality Assurance, Health Care; D012042:Registries / Q000592:standards*; D013274:Stomach Neoplasms / Q000401:mortality / Q000473:pathology / Q000601:surgery*; D013548:Sweden; D006113:United Kingdom
keywords: EURECCA; Esophgeal cancer; Gastric cancer; Quality assurance; Upper gastro intestinal surgery