Complementary and alternative approaches used by parents of children with epilepsy on epilepsy management.
The aim of this study was to determine the complementary and alternative approaches used by parents of children with epilepsy on epilepsy management. This descriptive study included a total of 304 parents of children with epilepsy aged between 0 and 18years evaluated at the Pediatric Neurology Clinic of Akdeniz University Hospital in Turkey between January and May 2013. Data were collected by using a questionnaire developed by the researchers. It was determined that all the parents use complementary and alternative approaches for their children with epilepsy, and the most common approaches are praying (99.3%); keeping their children away from the effects of smoking (79.8%); feeding their children walnuts (79.6%), butter (59.2%), and bone marrow (58.6%); providing their children with good quality sleep (58.6%); and enabling their children to play games (51%). The approaches commonly applied during seizures include praying (96.2%), comforting their children in their arms and showing affection (55.6%), waiting for seizures to finish at home (45.7%), and laying children on their side (41.1%). Of parents, 98% stated that alternative approaches enable them to control their child's seizures, 100% said that alternative approaches have no adverse effect, and 98.4% stated that they will continue to use these approaches. The children's approaches to cope with epilepsy included looking after pets (72.7%), listening to music (70.1%), watching television (64.5%), playing games (55.3%), praying (51%), and spending time with friends (48.7%). Most of the approaches used by parents and children with epilepsy for the management of illness are determined to consist of complementary approaches that may contribute to management of epilepsy. Knowing the approaches of parents and children with epilepsy that could adversely affect disease management is important for educating parents and children to avoid these potentially harmful interventions.
Akdeniz University, Nursing Faculty, Pediatric Nursing Department, Antalya, Turkey. Electronic address: aisler@akdeniz.edu.tr.
Ayşegül
A
Işler
Akdeniz University, Nursing Faculty, Pediatric Nursing Department, Antalya, Turkey. Electronic address: fatosturan@akdeniz.edu.tr.
Fatma Dilek
FD
Turan
Akdeniz University, Nursing Faculty, Public Health Nursing Department, Antalya, Turkey. Electronic address: sgozum@akdeniz.edu.tr.
Sebahat
S
Gözüm
Akdeniz University, Nursing Faculty, Public Health Nursing Department, Antalya, Turkey. Electronic address: oselma@akdeniz.edu.tr.
Selma
S
Oncel
D000223:Adaptation, Psychological; D002648:Child; D002675:Child, Preschool; D000529:Complementary Therapies / Q000379:methods* / Q000706:statistics & numerical data*; D019468:Disease Management; D004827:Epilepsy / Q000453:epidemiology / Q000523:psychology / Q000628:therapy*; D005260:Female; D006306:Health Surveys; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D010342:Patient Acceptance of Health Care; D010372:Pediatrics; D011795:Surveys and Questionnaires; D014421:Turkey
Child; Complementary and alternative approaches; Epilepsy management; Parent