Perceived met and unmet health-care needs in a community population with multiple sclerosis.
Community-based studies are required to accurately describe the supportive services needed by people with multiple sclerosis (MS). Characteristics that influence (or result from) care-seeking may introduce bias into other types of studies. The Participation and Activity Limitation Survey (PALS) was a post-census survey conducted by Statistics Canada in association with a 2006 national census. The PALS collected data from a sample of 22,513 respondents having health-related impairments according to their census forms. The survey collected self-reported diagnostic data and obtained ratings for items assessing impairment as well as perceived met and unmet needs for care and support. It identified 245 individuals with MS, leading to an estimated (weighted) population prevalence of 0.2% (200 per 100,000). As expected, those with MS reported more-severe health problems than did those with other types of disability, particularly in the areas of mobility, dexterity, and cognition; they were also more likely to report having multiple caregivers. People with MS also reported more unmet health-care needs than did those with other forms of disability, particularly with respect to meal preparation, housework, shopping, and chores. Despite their more negative health status and greater reliance on caregivers, people with MS reported participation in society comparable to that of people without MS. Thus, people with MS report greater needs than do people with other forms of health-related disability and utilize supportive services more often. However, they also report higher levels of unmet needs. The substantial needs of people with MS are only partially addressed by existing services.
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Scott B
SB
Patten
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Jeanne V A
JV
Williams
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Dina H
DH
Lavorato
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
David
D
Terriff
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Luanne M
LM
Metz
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Sandy
S
Berzins
Departments of Community Health Sciences (SBP, JVAW, DHL, SB, AGMB), Psychiatry (DT), and Clinical Neurosciences (LMM) and the Mental Health Centre for Research and Education, Hotchkiss Brain Institute (SBP, LMM, AGMB), University of Calgary, Calgary, Alberta, Canada.
Andrew G M
AG
Bulloch