Naming and framing in genomic testing.
What's in a name? Terminology has the power to shape the ethical and regulatory debate surrounding commercially offered genomic testing. This article discusses the normative effects of naming and framing, and proposes that the medical frame, with its focus on the reduction of harm, should be used in the evaluation and regulation of predictive genomic testing.
Department of Medical Ethics and Philosophy of Medicine, Erasmus MC, University Medical Center Rotterdam, Room Na 21.02, PO Box 2400, 3000 CA Rotterdam, The Netherlands. Electronic address: e.bunnik@erasmusmc.nl.
Eline M
EM
Bunnik
Department of Medical Ethics and Philosophy of Medicine, Erasmus MC, University Medical Center Rotterdam, Room Na 21.02, PO Box 2400, 3000 CA Rotterdam, The Netherlands.
Maartje H N
MH
Schermer
Department of Epidemiology, Erasmus MC, University Medical Center Rotterdam, PO Box 2400, 3000 CA Rotterdam, The Netherlands; Department of Epidemiology, Rollins School of Public Health, Emory University, 1518 Clifton Road, CNR 3025, Atlanta, GA 30322, USA.
A Cecile J W
AC
Janssens
D005820:Genetic Testing / Q000941:ethics / Q000331:legislation & jurisprudence / Q000379:methods; D023281:Genomics / Q000941:ethics / Q000331:legislation & jurisprudence / Q000379:methods; D006801:Humans
ethical issues; frame analysis; genomic testing; personal genome testing; regulation