[Research with participants suffering from dementia. Ethical and legal considerations in research involving human subjects].
Using case reports from the health services research project Action Alliance Pain-Free City Muenster, fundamental issues of research ethics, data protection and legal guardianship are shown and explained. A plan of important aspects to be considered while planning, conducting and recruiting for research with nursing home inhabitants suffering from dementia in a legally correct and safe manner is presented.
Paracelsus Medizinische Privatuniversität Salzburg, Institut für Pflegewissenschaft und -praxis, Aktionsbündnis Schmerzfreie Stadt Münster, Münster, Deutschland.
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D035843:Biomedical Research / Q000941:ethics* / Q000331:legislation & jurisprudence*; D003704:Dementia / Q000175:diagnosis* / Q000628:therapy*; D032984:Ethics, Research; D005858:Germany; D006801:Humans; D007872:Legal Guardians / Q000331:legislation & jurisprudence*; D009735:Nursing Homes / Q000941:ethics / Q000331:legislation & jurisprudence*; D018579:Patient Selection / Q000941:ethics*