title: Development of a state-wide pediatric palliative care service in Australia: referral and outcomes over two years.
abstract: BACKGROUND
  Pediatric palliative care is an evolving specialty that aims to improve the lives of children with a life-limiting condition. As an emerging specialty, there is much to be learned about service provision and the expected outcomes that can be achieved. Additionally, quantification of the needs for pediatric palliative care is complicated by the uncertainty of defining the population that requires care.
  
  
  OBJECTIVE
  Our aim was to define the characteristics of the population cared for by a newly formed state-wide service in Queensland, Australia, and describe the development of the service over a 24-month period.
  
  
  METHODS
  Data on all referrals and outcomes were collected. Descriptive statistics were used to describe patterns including the variation in outcomes between children with oncology and non-oncology diagnoses. Other factors influencing the development of the service including involved health professionals and the model of the Australian health care system are also described.
  
  
  RESULTS
  Over a 24-month period, 150 patients were referred of whom 117 subsequently died. There was a wide range of diseases and ages, and significantly, 58% of children were from regional or rural locations where there are can be limited access to specialist pediatric services. The average length of service was 83 days. A variety of factors were identified as being important for providing optimal care including ensuring equity in access, timing of referral, and continuity of care.
  
  
  CONCLUSIONS
  The importance of a population-based approach to pediatric palliative care in a state that is geographically large and diverse like Queensland is highlighted. This article may provide valuable information to other health care providers who care for children with life-limiting illnesses.
authors: 1 Peadiatric Palliative Care Service, Royal Children's Hospital , Queensland, Australia .
authors: Anthony
authors: A
authors: Herbert
authors: Natalie
authors: N
authors: Bradford
authors: Leigh
authors: L
authors: Donovan
authors: Lee-Anne
authors: LA
authors: Pedersen
authors: Helen
authors: H
authors: Irving
mesh_terms: D002648:Child; D002675:Child, Preschool; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D007223:Infant; D008297:Male; D020416:Outsourced Services; D010166:Palliative Care; D010372:Pediatrics / Q000458:organization & administration*; D016730:Program Development / Q000379:methods*; D011793:Queensland; D012017:Referral and Consultation