title: SSc management--In person appointments and remote therapy (SMART): a framework for management of chronic hand conditions.
abstract: The changing health care climate poses unique challenges to managing a chronic and progressive disease like systemic sclerosis (SSc). At our institution, we employ a new model for SSc management that combines "in person" appointments and "remote" therapy (SMART). This program fosters an understanding of the disease process with the goal of improving skills and confidence for self-management and empowering individuals by providing a means of daily self-assessment. Technology is utilized as a means to remotely monitor and assess progress. We present our approach as a framework for long term management of chronic hand conditions. Evidence from a variety of disciplines is cited to support the design and parameters of this model.
authors: Leon Root Motion Analysis Laboratory, Department of Rehabilitation, Hospital for Special Surgery, 535 East 70th Street, New York, NY 10021, USA; Hand Therapy Center, Department of Rehabilitation, Hospital for Special Surgery, 535 East 70th Street, New York, NY 10021, USA. Electronic address: wolffa@hss.edu.
authors: Aviva
authors: A
authors: Wolff
authors: Hand Therapy Center, Department of Rehabilitation, Hospital for Special Surgery, 535 East 70th Street, New York, NY 10021, USA.
authors: Gwen
authors: G
authors: Weinstock-Zlotnick
authors: Scleroderma and Vasculitis Center, Hospital for Special Surgery, 535 East 70th Street, New York, NY 10021, USA.
authors: Jessica
authors: J
authors: Gordon
mesh_terms: D001071:Appointments and Schedules; D002908:Chronic Disease; D015331:Cohort Studies; D005081:Exercise Therapy / Q000379:methods; D005260:Female; D005500:Follow-Up Studies; D005544:Forecasting; D006225:Hand; D006801:Humans; D009819:Office Visits / Q000706:statistics & numerical data*; D010353:Patient Education as Topic / Q000379:methods / Q000639:trends; D016032:Randomized Controlled Trials as Topic; D020127:Recovery of Function; D019114:Remote Consultation / Q000379:methods; D012595:Scleroderma, Systemic / Q000175:diagnosis / Q000628:therapy*; D012648:Self Care / Q000379:methods* / Q000639:trends; D012720:Severity of Illness Index; D017216:Telemedicine / Q000379:methods* / Q000706:statistics & numerical data; D016896:Treatment Outcome; D014481:United States
keywords: Chronic hand conditions; Patient centered treatment; Systemic sclerosis