title: From policy making to service use. Down's syndrome antenatal screening in England, France and the Netherlands.
abstract: In industrialised countries, certain biomedical innovations have come into general use, but the ways they are used vary considerably. Prenatal screening techniques for Down's syndrome are a perfect example of this. In 2010, screening rates stood at 61% in England and 84% in France; the previous year the rate was 26% in the Netherlands. The objective of our research, which took place in these three countries between 2008 and 2011, was to explain these differences. In these countries, public authorities focus on women's free access to innovations and on receiving their informed consent. But other aspects of screening policy vary, as do the health systems in which they are implemented. Our study shows that the sociotechnical settings which vary from country to country affected the interactions during the consultations we observed and thus impacted the decision of whether or not to screen.
authors.affiliation: Université Paris 13, Sorbonne Paris Cité, IRIS, EHESS, CNRS, UMR 8156, INSERM U997, 74 rue Marcel Cachin, F-93000 Bobigny, France. Electronic address: c.vassy@iname.com.
authors.forename: Carine
authors.initials: C
authors.lastname: Vassy
authors.affiliation: Inserm U750-Cermes, Site CNRS, 7 rue Guy Môquet, F-94801 Villejuif Cedex, France. Electronic address: rosman@vjf.cnrs.fr.
authors.forename: Sophia
authors.initials: S
authors.lastname: Rosman
authors.affiliation: Université Paris 13, Sorbonne Paris Cité, IRIS, EHESS, CNRS, UMR 8156, INSERM U997, 74 rue Marcel Cachin, F-93000 Bobigny, France. Electronic address: benedicte.rousseau@yahoo.fr.
authors.forename: Bénédicte
authors.initials: B
authors.lastname: Rousseau
mesh_terms: D004314:Down Syndrome / Q000175:diagnosis*; D004739:England; D005260:Female; D005602:France; D006291:Health Policy; D006801:Humans; D009426:Netherlands; D011050:Policy Making; D011247:Pregnancy; D011296:Prenatal Diagnosis / Q000706:statistics & numerical data*
keywords: Down's syndrome; England; France; Informed consent; Netherlands; Policy; Screening