title: Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic.
abstract: Patient-reported outcomes (PROs) capture how patients perceive their health and their health care; their use in clinical research is longstanding. Today, however, PROs increasingly are being used to inform the care of individual patients, and document the performance of health care entities. We recently wrote and internally distributed an institutional position statement titled "Harmonizing and Consolidating the Measurement of Patient-Reported Outcomes at Mayo Clinic: A Position Statement for the Center for the Science of Health Care Delivery". The statement is meant to educate clinicians, clinical teams, and institutional administrators about the merits of using PROs in a systematic manner for clinical care and quality measurement throughout the institution. The present article summarizes the most important messages from the statement, describing PROs and their use, identifying practical considerations for implementing them in routine practice, elucidating potential barriers to their use, and formulating strategies to overcome these barriers. The lessons learned from our experience - including pitfalls, challenges, and successes - may inform other health care institutions that are interested in systematically using PROs in health care delivery science and practice.
authors.affiliation: Division of Heath Care Policy and Research, Department of Health Sciences Research, Rochester, MN, USA ; Mayo Clinic Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Rochester, MN, USA.
authors.forename: David T
authors.initials: DT
authors.lastname: Eton
authors.affiliation: Division of Heath Care Policy and Research, Department of Health Sciences Research, Rochester, MN, USA ; Mayo Clinic Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Rochester, MN, USA.
authors.forename: Timothy J
authors.initials: TJ
authors.lastname: Beebe
authors.affiliation: Department of Preventive, Occupational, and Aerospace Medicine, Mayo Clinic, Rochester, MN, USA.
authors.forename: Philip T
authors.initials: PT
authors.lastname: Hagen
authors.affiliation: Department of Radiation Oncology, Mayo Clinic, Scottsdale, AZ, USA.
authors.forename: Michele Y
authors.initials: MY
authors.lastname: Halyard
authors.affiliation: Division of Heath Care Policy and Research, Department of Health Sciences Research, Rochester, MN, USA ; Knowledge and Evaluation Research Unit, Rochester, MN, USA.
authors.forename: Victor M
authors.initials: VM
authors.lastname: Montori
authors.affiliation: Division of Heath Care Policy and Research, Department of Health Sciences Research, Rochester, MN, USA ; Mayo Clinic Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Rochester, MN, USA.
authors.forename: James M
authors.initials: JM
authors.lastname: Naessens
authors.affiliation: Division of Biomedical Statistics and Informatics, Department of Health Sciences Research, Rochester, MN, USA.
authors.forename: Jeff A
authors.initials: JA
authors.lastname: Sloan
authors.affiliation: Division of Hematology, Department of Medicine, Rochester, MN, USA.
authors.forename: Carrie A
authors.initials: CA
authors.lastname: Thompson
authors.affiliation: Division of Heath Care Policy and Research, Department of Health Sciences Research, Rochester, MN, USA ; Center for Innovation, Mayo Clinic, Rochester, MN, USA.
authors.forename: Douglas L
authors.initials: DL
authors.lastname: Wood
keywords: health care quality; patient-centered; patient-reported outcomes; quality of life; questionnaire