title: What patients want from the treatment of Dupuytren's disease--is the Unité Rhumatologique des Affections de la Main (URAM) scale relevant?
abstract: Patients awaiting surgery for Dupuytren's contractures listed the problems from their Dupuytren's disease that had led them to request surgery and their relative priorities of the results of surgery. The listed problems were compared with the nine items comprising the Unité Rhumatologique des Affections de la Main (URAM) Dupuytren's disease-specific outcome measure. One hundred and ten patients reported 278 problems. Ninety-four different combinations of problems were provided by patients, and over half (55%) of the problems were not captured by items in the URAM scale. The long-term outcome from surgery was relatively more important to patients than speed of recovery. The URAM tool may not be relevant to patients in the UK, and further assessment of its face validity is required before it is used.
authors.affiliation: Division of Orthopaedic & Accident Surgery, University of Nottingham & Nottingham University Hospitals NHS Trust, Queen's Medical Centre, Nottingham, UK j.n.rodrigues@doctors.org.uk.
authors.forename: J N
authors.initials: JN
authors.lastname: Rodrigues
authors.affiliation: Division of Academic Rheumatology, University of Nottingham, Clinical Sciences Building, City Hospital, Nottingham, UK.
authors.forename: W
authors.initials: W
authors.lastname: Zhang
authors.affiliation: Division of Orthopaedic & Accident Surgery, University of Nottingham & Nottingham University Hospitals NHS Trust, Queen's Medical Centre, Nottingham, UK.
authors.forename: B E
authors.initials: BE
authors.lastname: Scammell
authors.affiliation: Division of Orthopaedic & Accident Surgery, University of Nottingham & Nottingham University Hospitals NHS Trust, Queen's Medical Centre, Nottingham, UK.
authors.forename: T R C
authors.initials: TR
authors.lastname: Davis
mesh_terms: D004185:Disability Evaluation; D004387:Dupuytren Contracture / Q000601:surgery*; D006801:Humans; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D011446:Prospective Studies; D011795:Surveys and Questionnaires
keywords: Dupuytren’s disease; URAM; goals; outcome; patient-reported outcome measure