title: Linkage methods for connecting children with parents in electronic health record and state public health insurance data.
abstract: The objective of this study was to develop methodologies for creating child-parent 'links' in two healthcare-related data sources. We linked children and parents who were patients in a network of Oregon clinics with a shared electronic health record (EHR), using data that reported the child's emergency contact information or the 'guarantor' for the child's visits. We also linked children and parents enrolled in the Oregon Health Plan (OHP; Oregon's public health insurance programs), using administrative data; here, we defined a 'child' as aged <19 years and identified potential 'parents' from among adults sharing the same OHP household identification (ID) number. In both data sources, parents had to be 12-55 years older than the child. We used OHP individual client ID and EHR patient ID numbers to assess the quality of our linkages through cross-validation. Of the 249,079 children in the EHR dataset, we identified 62,967 who had a 'linkable' parent with patient information in the EHR. In the OHP data, 889,452 household IDs were assigned to at least one child; 525,578 with a household ID had a 'linkable' parent (272,578 households). Cross-validation of linkages revealed 99.8 % of EHR links validated in OHP data and 97.7 % of OHP links validated in EHR data. The ability to link children and their parents in healthcare-related datasets will be useful to inform efforts to improve children's health. Thus, we developed strategies for linking children with their parents in an EHR and a public health insurance administrative dataset.
authors.affiliation: Oregon Health & Science University, Portland, OR, USA, angierh@ohsu.edu.
authors.forename: Heather
authors.initials: H
authors.lastname: Angier
authors.forename: Rachel
authors.initials: R
authors.lastname: Gold
authors.forename: Courtney
authors.initials: C
authors.lastname: Crawford
authors.forename: Jean
authors.initials: J
authors.lastname: P O'Malley
authors.forename: Carrie
authors.initials: C
authors.lastname: J Tillotson
authors.forename: Miguel
authors.initials: M
authors.lastname: Marino
authors.forename: Jennifer E
authors.initials: JE
authors.lastname: DeVoe
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D002675:Child, Preschool; D057286:Electronic Health Records / Q000458:organization & administration*; D005191:Family Characteristics; D005260:Female; D063005:Health Information Systems / Q000458:organization & administration*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007345:Insurance Claim Review; D008297:Male; D008498:Medical Record Linkage / Q000379:methods* / Q000592:standards; D008875:Middle Aged; D009922:Oregon; D010290:Parents; D013221:State Health Plans / Q000458:organization & administration*; D014481:United States; D055815:Young Adult