title: Designing a web-application to support home-based care of childhood CKD stages 3-5: qualitative study of family and professional preferences.
abstract: BACKGROUND
  There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5.
  
  
  METHODS
  Qualitative interviews were undertaken with parents, patients and professionals to explore their views on content of the proposed online parent information and support (OPIS) web-application. Data were analysed using Framework Analysis, guided by the concept of Self-efficacy.
  
  
  RESULTS
  32 parents, 26 patients and 12 professionals were interviewed. All groups wanted an application that explains, demonstrates, and enables parental clinical care-giving, with condition-specific, continously available, reliable, accessible material and a closed communication system to enable contact between families living with CKD. Professionals advocated a regularly updated application to empower parents to make informed health-care decisions. To address these requirements, key web-application components were defined as: (i) Clinical care-giving support (information on treatment regimens, video-learning tools, condition-specific cartoons/puzzles, and a question and answer area) and (ii) Psychosocial support for care-giving (social-networking, case studies, managing stress, and enhancing families' health-care experiences).
  
  
  CONCLUSIONS
  Developing a web-application that meets parents' information and support needs will maximise its utility, thereby augmenting parents' self-efficacy for CKD caregiving, and optimising outcomes. Self-efficacy theory provides a schema for how parents' self-efficacy beliefs about management of their child's CKD could potentially be promoted by OPIS.
authors.affiliation: School of Nursing, Midwifery & Social Work, University of Manchester, University of Manchester, Oxford Road, Manchester M13 9PL, UK. veronica.swallow@manchester.ac.uk.
authors.forename: Veronica M
authors.initials: VM
authors.lastname: Swallow
authors.forename: Andrew G
authors.initials: AG
authors.lastname: Hall
authors.forename: Ian
authors.initials: I
authors.lastname: Carolan
authors.forename: Sheila
authors.initials: S
authors.lastname: Santacroce
authors.forename: Nicholas J A
authors.initials: NJ
authors.lastname: Webb
authors.forename: Trish
authors.initials: T
authors.lastname: Smith
authors.forename: Noreen
authors.initials: N
authors.lastname: Hanif
mesh_terms: D001291:Attitude of Health Personnel; D017028:Caregivers; D002648:Child; D002675:Child, Preschool; D003258:Consumer Behavior; D005260:Female; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D020407:Internet; D008297:Male; D020380:Needs Assessment; D051436:Renal Insufficiency, Chronic / Q000628:therapy*; D012984:Software; D012985:Software Design; D013813:Therapy, Computer-Assisted / Q000379:methods; D006113:United Kingdom