title: A shared e-decision support portal for pediatric asthma.
abstract: We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.
authors.affiliation: Pediatric Research Consortium (PeRC) (Drs Fiks and Grundmeier), Center for Biomedical Informatics (Drs Fiks and Grundmeier and Mr Karavite), PolicyLab (Dr Fiks and Mss Mayne and DeBartolo), and The Center for Pediatric Clinical Effectiveness (Dr Fiks and Mss Mayne and DeBartolo), The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia (Drs Fiks and Grundmeier).
authors.forename: Alexander G
authors.initials: AG
authors.lastname: Fiks
authors.forename: Stephanie
authors.initials: S
authors.lastname: Mayne
authors.forename: Dean J
authors.initials: DJ
authors.lastname: Karavite
authors.forename: Elena
authors.initials: E
authors.lastname: DeBartolo
authors.forename: Robert W
authors.initials: RW
authors.lastname: Grundmeier
mesh_terms: D000328:Adult; D001249:Asthma / Q000628:therapy*; D002648:Child; D002675:Child, Preschool; D003142:Communication; D003657:Decision Making; D020000:Decision Support Systems, Clinical; D057286:Electronic Health Records; D006801:Humans; D010358:Patient Participation; D061214:Patient Safety; D010414:Pennsylvania