title: Patient perspectives on radiation dose.
abstract: People with genetic cancer syndromes have a special interest in imaging. They also have special risk factors with respect to radiation. They need to utilize the potential of imaging while keeping in mind concerns about cumulative radiation exposure. Before imaging, early detection of problems was limited. With imaging, issues can be identified when they are small and a good plan of action can be developed early. Operations can be planned and metastatic cancer avoided. The positive contribution of imaging to the care of these patients can be profound. However, this additional surveillance is not without cost. An average patient with 1 of these syndromes will undergo 100 or more scans in their lifetime. Imaging professionals should be able to describe the risks and benefits of each scan in terms that the patient and the ordering physician can understand to make smart decisions about the ordering of scans. Why CT versus MRI? When are x-ray or ultrasound appropriate, and when are they not? What are the costs and the medical risks for the patient? What value does this picture add for the physician? Is there a way to answer the medical question with a test other than a scan? Medicine is a team sport, and the patient is an integral member of the team.
authors.affiliation: VHL Alliance, Powerful Patient Inc., Brookline, Massachusetts. Electronic address: joyce@powerfulpatient.org.
authors.forename: Joyce
authors.initials: J
authors.lastname: Graff
mesh_terms: D006801:Humans; D007258:Informed Consent; D009369:Neoplasms / Q000000981:diagnostic imaging* / Q000235:genetics / Q000532:radiotherapy*; D010358:Patient Participation / Q000379:methods*; D011829:Radiation Dosage; D011835:Radiation Protection / Q000379:methods*; D018570:Risk Assessment; D014057:Tomography, X-Ray Computed; D014481:United States
keywords: Genetics; lifetime risk; patients as partners; radiation