title: Quality of end-of-life care for those who die at home: views and experiences of bereaved relatives and carers.
abstract: Little is known about the quality of the end-of-life care patients receive at home. This paper reports findings from a study that explored bereaved relatives' and carers' experiences of end-of-life care at home using the Care of the Dying Evaluation (CODE) questionnaire. Narrative data from questionnaires completed by 72 carers of patients who had died at home in the North West of England underwent qualitative analysis. In general good quality care was provided, but there were times when adequate support was not evident in relation to pain control and what to expect when death was imminent. The study provides useful information for those who provide end-of-life care at home.
authors.affiliation: Quality Standards and Research Manager, Liverpool Community Health NHS Trust, 2nd Floor, Liverpool Innovation Park, Digital Way, Liverpool, L7 9NJ, England.
authors.forename: Carolyn
authors.initials: C
authors.lastname: Lees
authors.affiliation: Consultant in Palliative Medicine, Aintree University Hospitals NHS Trust, and Senior Researcher, Marie Curie Palliative Care Institute, University of Liverpool.
authors.forename: Catriona
authors.initials: C
authors.lastname: Mayland
authors.affiliation: Professional Lead for Counselling, Liverpool John Moores University.
authors.forename: Angela
authors.initials: A
authors.lastname: West
authors.affiliation: Senior Counsellor, Liverpool Institute for Palliative Medicine.
authors.forename: Alison
authors.initials: A
authors.lastname: Germaine
mesh_terms: D000328:Adult; D001601:Bereavement; D017028:Caregivers / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D006291:Health Policy; D006699:Home Care Services / Q000592:standards*; D006801:Humans; D008297:Male; D010166:Palliative Care / Q000592:standards*; D011795:Surveys and Questionnaires; D013727:Terminal Care / Q000592:standards*; D006113:United Kingdom