title: Development of interactive empowerment services in support of personalised medicine.
abstract: In an epoch where shared decision making is gaining importance, a patient's commitment to and knowledge about his/her health condition is becoming more and more relevant. Health literacy is one of the most important factors in enhancing the involvement of patients in their care. Nevertheless, other factors can impair patient processing and understanding of health information: psychological aspects and cognitive style may affect the way patients approach, select, and retain information. This paper describes the development and validation of a short and easy to fill-out questionnaire that measures and collects psycho-cognitive information about patients, named ALGA-C. ALGA-C is a multilingual, multidevice instrument, and its validation was carried out in healthy people and breast cancer patients. In addition to the aforementioned questionnaire, a patient profiling mechanism has also been developed. The ALGA-C Profiler enables physicians to rapidly inspect each patient's individual cognitive profile and see at a glance the areas of concern. With this tool, doctors can modulate the language, vocabulary, and content of subsequent discussions with the patient, thus enabling easier understanding by the patient. This, in turn, helps the patient formulate questions and participate on an equal footing in the decision-making processes. Finally, a preview is given on the techniques under consideration for exploiting the constructed patient profile by a personal health record (PHR). Predefined rules will use a patient's profile to personalise the contents of the information presented and to customise ways in which users complete their tasks in a PHR system. This optimises information delivery to patients and makes it easier for the patient to decide what is of interest to him/her at the moment.
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece.
authors.forename: Haridimos
authors.initials: H
authors.lastname: Kondylakis
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece.
authors.forename: Eleni
authors.initials: E
authors.lastname: Kazantzaki
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece.
authors.forename: Lefteris
authors.initials: L
authors.lastname: Koumakis
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece.
authors.forename: Irini
authors.initials: I
authors.lastname: Genitsaridi
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece.
authors.forename: Kostas
authors.initials: K
authors.lastname: Marias
authors.affiliation: Department of Decision Sciences, Bocconi University, Milan 20136, Italy and Cancer Intelligence Ltd, 154 Cheltenham Road, Bristol, BS6 5RL, UK.
authors.forename: Alessandra
authors.initials: A
authors.lastname: Gorini
authors.affiliation: Department of Decision Sciences, Bocconi University, Milan 20136, Italy and Cancer Intelligence Ltd, 154 Cheltenham Road, Bristol, BS6 5RL, UK.
authors.forename: Ketti
authors.initials: K
authors.lastname: Mazzocco
authors.affiliation: Department of Decision Sciences, Bocconi University, Milan 20136, Italy and Cancer Intelligence Ltd, 154 Cheltenham Road, Bristol, BS6 5RL, UK.
authors.forename: Gabriella
authors.initials: G
authors.lastname: Pravettoni
authors.affiliation: Department of Decision Sciences, Bocconi University, Milan 20136, Italy and Cancer Intelligence Ltd, 154 Cheltenham Road, Bristol, BS6 5RL, UK.
authors.forename: Danny
authors.initials: D
authors.lastname: Burke
authors.affiliation: Department of Decision Sciences, Bocconi University, Milan 20136, Italy and Cancer Intelligence Ltd, 154 Cheltenham Road, Bristol, BS6 5RL, UK.
authors.forename: Gordon
authors.initials: G
authors.lastname: McVie
authors.affiliation: Computational Medicine Laboratory, FORTH-ICS, Heraklio, Crete GR-71110, Greece ; Department of Applied Informatics and Multimedia, Technological Educational Institute, Heraklion, Crete GR-71004, Greece.
authors.forename: Manolis
authors.initials: M
authors.lastname: Tsiknakis
keywords: patient empowerment; personal health record; psycho-cognitive models