title: Parental quality of life: caring for an infant or toddler with a tracheostomy at home.
abstract: OBJECTIVE
  To explore the relationships between stress, coping, duration of tracheostomy, and quality of life (QOL) of parental caregivers who care for a child with a tracheostomy at home.
  
  
  METHODS
  A cross-sectional correlational design was used to study parents who care for a child with a tracheostomy at home. Family Inventory of Life Events, Family Crisis Oriented Personal Evaluation Scale, and Psychological General Well-Being Index were used to measure stress, coping, and QOL, respectively. Data were collected using both online and paper-pencil format.
  
  
  METHODS
  quality of life.
  
  
  RESULTS
  Parents who care for their infants/toddlers with a tracheostomy at home were found to be in moderate distress. Mean age of the participants was 33 years (N = 71), and the average duration of the child's tracheotomy was 18.22 (SD = 9.59) months. Multivariate analysis showed a significant inverse relationship between QOL and stress. QOL was significantly associated with coping, B = 19.91, β = .43, p <.001.
authors.forename: Rachel A
authors.initials: RA
authors.lastname: Joseph
authors.forename: Linda M
authors.initials: LM
authors.lastname: Goodfellow
authors.forename: Lynn M
authors.initials: LM
authors.lastname: Simko
mesh_terms: D000223:Adaptation, Psychological; D017028:Caregivers; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D010290:Parents; D011788:Quality of Life; D014139:Tracheostomy / Q000451:nursing*
keywords: QOL; coping; parental caregivers; quality of life; stress