title: Young onset dementia: the impact of emergent age-based factors upon personhood.
abstract: This paper evaluates how emergent age-based factors may impact upon the experience of dementia. A review of selected literature is undertaken to explore how personhood has been conceptualised in relation to dementia. It is then highlighted that very little literature explicitly addresses personhood with reference to young onset dementia. Young onset dementia is defined, and evaluation is then undertaken of the distinctive age-based factors that might shape the experience of the condition. It is noted that whilst there are separate literatures on both personhood and young onset dementia, there appears to be little endeavour to draw these two strands of thought together. The distinctive factors that shape young onset dementia suggest that a more heterogeneous perspective should be developed that accounts more appropriately for how personal characteristics shape the lived experience of dementia. The paper concludes that further research should be undertaken that has an explicit focus on personhood and young onset dementia.
authors.affiliation: Staffordshire University, UK.
authors.forename: Edward
authors.initials: E
authors.lastname: Tolhurst
authors.forename: Sarmishtha
authors.initials: S
authors.lastname: Bhattacharyya
authors.forename: Paul
authors.initials: P
authors.lastname: Kingston
mesh_terms: D000367:Age Factors; D017668:Age of Onset; D003704:Dementia / Q000453:epidemiology* / Q000523:psychology*; D006801:Humans; D028723:Personhood
keywords: age; person-centred care; personhood; psychosocial factors; social constructionism; young onset dementia