title: [Cultural adaptation and initial psychometric properties of the DISABKIDS ® - Cystic Fibrosis Module - Brazilian version].
abstract: This study aimed to perform the cultural adaptation and describe the initial psychometric properties of the DISABKIDS®-Cystic Fibrosis Module instrument to measure health-related quality of life for children and adolescents and their parents/caregivers. Methodological study of sequential development, including 126 participants in four Brazilian states. Involved translation and back translation of items, semantic and conceptual equivalence, face validity and description of the initial psychometric properties related to the construct and reliability. For semantic equivalence of the adapted version, there were adjustments in the phrasing of an item. The instrument showed satisfactory internal consistency with Cronbach's alpha values between 0.70 and 0.85, convergent validity with correlation values above 0.40 in 85% of the items and divergent validity with scale fit higher than 75%. The Brazilian version of DISABKIDS® - CFM will certainly constitute a valid and reliable instrument for measuring the quality of life of Brazilian children and adolescents with cystic fibrosis.
authors.affiliation: Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Brasil, Ribeirão PretoSP, Doutoranda, Escola de Enfermagem de Ribeirão Preto , Universidade de São Paulo , Ribeirão Preto , SP , Brasil .dani.farma84@gmail.com.
authors.forename: Danielle Maria de Souza
authors.initials: DM
authors.lastname: Serio dos Santos
authors.affiliation: Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Brasil, Ribeirão PretoSP, Doutoranda, Escola de Enfermagem de Ribeirão Preto , Universidade de São Paulo , Ribeirão Preto , SP , Brasil .
authors.forename: Keila Cristiane
authors.initials: KC
authors.lastname: Deon
authors.affiliation: Universidade Federal de São Paulo, Brasil, São PauloSP, Professora Adjunta, Universidade Federal de São Paulo , São Paulo , SP , Brasil .
authors.forename: Claudia
authors.initials: C
authors.lastname: Fegadolli
authors.affiliation: Departamento de Odontologia Preventiva e Social, Universidade Federal do Rio Grande do Sul, Brasil, Porto AlegreRS, Professora Adjunta, Departamento de Odontologia Preventiva e Social , Universidade Federal do Rio Grande do Sul , Porto Alegre , RS , Brasil .
authors.forename: Roberta Alvarenga
authors.initials: RA
authors.lastname: Reis
authors.affiliation: Unidade de Pneumologia Pediátrica, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo, Brasil, São PauloSP, Chefe da Unidade de Pneumologia Pediátrica , Hospital das Clínicas , Faculdade de Medicina , Universidade de São Paulo , São Paulo , SP , Brasil.
authors.forename: Lidia Alice Gomes Monteiro Marin
authors.initials: LA
authors.lastname: Torres
authors.affiliation: Universitätsklinikim Hambug-Eppendorf, Alemanha, UKE, Professora Doutora da Universitätsklinikim Hambug-Eppendorf , UKE , Alemanha .
authors.forename: Monika
authors.initials: M
authors.lastname: Bullinger
authors.affiliation: Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Brasil, Ribeirão PretoSP, Professora Associada, Escola de Enfermagem de Ribeirão Preto , Universidade de São Paulo , Ribeirão Preto , SP , Brasil .
authors.forename: Claudia
authors.initials: C
authors.lastname: Benedita dos Santos
mesh_terms: D000293:Adolescent; D001938:Brazil; D002648:Child; D003430:Cross-Sectional Studies; D003466:Cultural Characteristics; D003550:Cystic Fibrosis / Q000175:diagnosis; D005260:Female; D006801:Humans; D008297:Male; D011594:Psychometrics; D011788:Quality of Life; D011795:Surveys and Questionnaires