title: Increasing specialty care access through use of an innovative home telehealth-based spinal cord injury disease management protocol (SCI DMP).
abstract: BACKGROUND
  A spinal cord injury disease management protocol (SCI DMP) was developed to address the unique medical, physical, functional, and psychosocial needs of those living with spinal cord injuries and disorders (SCI/D). The SCI DMP was piloted to evaluate DMP clinical content and to identify issues for broader implementation across the Veterans Affairs (VA) SCI System of Care.
  
  
  METHODS
  Thirty-three patients with SCI/D from four VA SCI centers participated in a 6-month pilot. Patients received customized SCI DMP questions through a data messaging device (DMD). Nurse home telehealth care coordinators (HTCC) monitored responses and addressed clinical alerts daily. One site administered the Duke Severity of Illness (DUSOI) Checklist and Short Form-8 (SF-8™) to evaluate the changes in comorbidity severity and health-related quality of life while on the SCI DMP.
  
  
  RESULTS
  Patients remained enrolled an average of 116 days, with a mean response rate of 56%. The average distance between patient's home and their VA SCI center was 59 miles. Feedback on SCI DMP content and the DMD included requests for additional clinical topics, changes in administration frequency, and adapting the DMD for functional impairments. Improvement in clinical outcomes was seen in a subset of patients enrolled on the SCI DMP.
  
  
  CONCLUSIONS
  SCI HTCCs and patients reported that the program was most beneficial for newly injured patients recently discharged from acute rehabilitation that live far from specialty SCI care facilities. SCI DMP content changes and broader implementation strategies are currently being evaluated based on lessons learned from the pilot.
authors.forename: Christine
authors.initials: C
authors.lastname: Woo
authors.forename: Jacinta M
authors.initials: JM
authors.lastname: Seton
authors.forename: Monique
authors.initials: M
authors.lastname: Washington
authors.forename: Suk C
authors.initials: SC
authors.lastname: Tomlinson
authors.forename: Douangmala
authors.initials: D
authors.lastname: Phrasavath
authors.forename: Karen R
authors.initials: KR
authors.lastname: Farrell
authors.forename: Barry
authors.initials: B
authors.lastname: Goldstein
mesh_terms: D000328:Adult; D000368:Aged; D002985:Clinical Protocols; D019468:Disease Management; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D013119:Spinal Cord Injuries / Q000534:rehabilitation*; D017216:Telemedicine / Q000379:methods*
keywords: Home telehealth; Nursing; Spinal cord injury