title: National surveillance for hemophilia inhibitors in the United States: Summary report of an expert meeting.
abstract: On March 12, 2012, the Centers for Disease Control and Prevention (CDC) held a meeting of its partners in hemophilia treatment, community-based organizations, industry, and government to review data and discuss implementation issues relevant to planned United States (U.S.) national inhibitor surveillance. Issues discussed included the current status of inhibitor surveillance in the United Kingdom (UK) and the US, the results of a US inhibitor surveillance feasibility study, proposed national surveillance schemes, laboratory testing and reporting issues and potential opportunities for future inhibitor-related research. It was concluded that implementation of a national program of inhibitor surveillance using standardized testing through an established public health registry along with patient and care provider education and targeted research provide the best opportunity to inform efforts to develop and evaluate effective prevention strategies.
authors.affiliation: National Centers for Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, Georgia.
authors.forename: J Michael
authors.initials: JM
authors.lastname: Soucie
authors.forename: Connie H
authors.initials: CH
authors.lastname: Miller
authors.forename: Fiona M
authors.initials: FM
authors.lastname: Kelly
authors.forename: Diane
authors.initials: D
authors.lastname: Aschman
authors.forename: Donna
authors.initials: D
authors.lastname: DiMichele
authors.forename: Barbara A
authors.initials: BA
authors.lastname: Konkle
authors.forename: Roshni
authors.initials: R
authors.lastname: Kulkarni
authors.forename: Paul E
authors.initials: PE
authors.lastname: Monahan
mesh_terms: D001323:Autoantibodies / Q000097:blood*; D002487:Centers for Disease Control and Prevention, U.S.; D062665:Epidemiological Monitoring; D006467:Hemophilia A / Q000097:blood / Q000276:immunology*; D006801:Humans; D014481:United States
chemical_list: D001323:Autoantibodies