title: Evaluation of hospice care by family members of Hispanic and non-Hispanic patients.
abstract: The Hispanic older adult population is increasing rapidly and past research suggests that this demographic group underutilizes hospice services, highlighting the need to improve our understanding of their needs in end of life. This study relied upon information from the family evaluation of hospice care survey provided by 2980 caregivers, 152 of whom cared for a Hispanic patient and 2828 who cared for a non-Hispanic patient. Caregivers of Hispanic patients were more likely to report that hospice was inconsistent with the patient's wishes, and that they received more attention than desired for emotional issues. Caregivers of Hispanic patients were also more likely to express that emotional/spiritual forms of support were insufficient. Similar levels of satisfaction were reported for caregivers of Hispanics and non-Hispanics regarding dignity/respect, information received, care coordination, and overall satisfaction.
authors.affiliation: School of Social Work, University of Nevada, Las Vegas, NV, USA abbie.kirkendall@unlv.edu.
authors.forename: Abbie
authors.initials: A
authors.lastname: Kirkendall
authors.affiliation: Department of Psychology, University of Nevada, Las Vegas, NV, USA.
authors.forename: Jason M
authors.initials: JM
authors.lastname: Holland
authors.affiliation: Department of Sociology, University of Nevada, Las Vegas, NV, USA.
authors.forename: Jennifer R
authors.initials: JR
authors.lastname: Keene
authors.affiliation: Nathan Adelson Hospice, Las Vegas, NV, USA.
authors.forename: Nora
authors.initials: N
authors.lastname: Luna
mesh_terms: D000367:Age Factors; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D006630:Hispanic or Latino / Q000523:psychology*; D017051:Hospice Care / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction; D012737:Sex Factors; D012959:Socioeconomic Factors
keywords: Hispanic; caregivers; emotional support; end of life; hospice; satisfaction