title: Medicaid personal care services for children with intellectual disabilities: what assistance is provided? When is assistance provided?
abstract: We report on the nature and timing of services provided to children with an intellectual disability (ID) identified by a new comprehensive assessment and care planning tool used to evaluate children's needs for Medicaid Personal Care Services (PCS) in Texas. The new assessment procedure resulted from a legal settlement with the advocacy community. Participants in the study were 1,109 children ages 4-20 with an intellectual disability diagnosis who were assessed between January and April of 2010. The need for assistance is higher on Saturday and Sunday, when school services are not available. We report differences in service patterns for children who vary in ID severity. Finally, we consider the implications of our results for policies and programs that serve families with children with an ID.
authors.forename: Timothy R
authors.initials: TR
authors.lastname: Elliott
authors.forename: Ashweeta
authors.initials: A
authors.lastname: Patnaik
authors.forename: Emily
authors.initials: E
authors.lastname: Naiser
authors.forename: Constance J
authors.initials: CJ
authors.lastname: Fournier
authors.forename: Darcy K
authors.initials: DK
authors.lastname: McMaughan
authors.forename: James A
authors.initials: JA
authors.lastname: Dyer
authors.forename: Charles D
authors.initials: CD
authors.lastname: Phillips
mesh_terms: D000293:Adolescent; D002648:Child; D002662:Child Health Services; D002675:Child, Preschool; D005260:Female; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006801:Humans; D008607:Intellectual Disability / Q000628:therapy*; D008297:Male; D008484:Medicaid; D008605:Mental Health Services; D013781:Texas; D014481:United States; D055815:Young Adult