title: The impact of a web-based educational and support intervention on parents' perception of their children's cancer quality of life: an exploratory study.
abstract: The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess the favorability of the website, and whether there was any impact on the cancer communication aspect of the quality of life instrument. In the study, 38 persons participated-15 mothers, 12 fathers, and 11 children. The favorability score of the website was found to be very high. The mothers rated the website most favorable, followed closely by the fathers. Furthermore, even though it was not significant, an increase was found in the mothers' evaluation of cancer communication based on the Pediatric Quality of Life Questionnaire (PedsQL) after the intervention as compared with before. The findings suggest that the use of an evidence-based website is feasible, appears to enhance cancer knowledge and might, in that way, contribute to better management of the cancer situation for the families.
authors.affiliation: 1Landspitali-The National University Hospital, Reykjavik, Iceland.
authors.forename: Anna Olafia
authors.initials: AO
authors.lastname: Sigurdardottir
authors.forename: Erla Kolbrun
authors.initials: EK
authors.lastname: Svavarsdottir
authors.forename: Mary Kay
authors.initials: MK
authors.lastname: Rayens
authors.forename: Yevgeniya
authors.initials: Y
authors.lastname: Gokun
mesh_terms: D000328:Adult; D002648:Child; D006801:Humans; D020407:Internet; D009369:Neoplasms / Q000503:physiopathology* / Q000523:psychology; D010290:Parents / Q000523:psychology*; D011788:Quality of Life
keywords: cancer education; families; pediatric oncology; social support; website