title: Evaluation of a clinical genetics service--a quality initiative.
abstract: Paper-based surveys are an effective means of evaluating the quality of a clinical service. As part of ongoing quality improvement initiatives within our Genetics Program, new patients were invited to participate in a paper-based survey. Issues related to the quality of counseling based on educational/informational aspects (e.g. whether testing was explained fully, testing options, the meaning of normal/abnormal testing), competency, respect and nondirectiveness of counseling in addition to clinical environment/setting were evaluated. Data related to demographics, discipline seen within the program and whether the patient was seen by a physician or genetic counselor were also captured. Five hundred questionnaires were distributed. One hundred and forty-seven questionnaires were returned, with a response rate of 29.4 %. The majority of patients seen were prenatal (pregnant) patients and comprised a heterogeneous group including those seen for advanced maternal age and abnormal maternal serum screening. Overall, 98.6 % of respondents felt their appointment in genetics was a positive experience. Issues related to confidentiality, pros and cons of testing, meaning of an abnormal test result and time allotted for decision making were significantly different in some disciplines between genetic counselor and geneticist. However, when controlling for referral indication, these differences lost significance with the exception of issues relating to confidentiality and perceived time allotted to organize thoughts and questions. This survey provided valuable information to allow for improvement in the quality of the provision of service.
authors.affiliation: WRHA Program of Genetics and Metabolism, University of Manitoba, FE229 CSB Health Sciences Centre, 820 Sherbrook Street, Winnipeg, MB, R3A 1R9, Canada, aelliott@hsc.mb.ca.
authors.forename: Alison M
authors.initials: AM
authors.lastname: Elliott
authors.forename: Bernard N
authors.initials: BN
authors.lastname: Chodirker
authors.forename: Patricia
authors.initials: P
authors.lastname: Bocangel
authors.forename: Aizeddin A
authors.initials: AA
authors.lastname: Mhanni
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D005826:Genetics, Medical / Q000592:standards*; D006801:Humans; D008297:Male; D008875:Middle Aged; D011787:Quality of Health Care; D055815:Young Adult