title: A pathway to empowerment: evaluating a cancer education and support programme in New Zealand.
abstract: Support programmes often benefit cancer patients and their families. This study evaluates how the Living Well Cancer Education Programme (LWCEP), from the Cancer Society of New Zealand, meets the needs of its clients. A purposeful sample of 21 participants representing the normal range of demographic characteristics (age, gender, diagnosis and geographical location) for the programme, participated in semi-structured interviews. Demographic data were subjected to a frequency analysis. Main data were collected and analysed using a constructivist grounded theory approach regarding the experiences of the participants with being on the programme and recommendations for future development. Of the 21 participants, 14 were cancer patients (eight women and six men) and seven were support people (five women and two men). The LWCEP was described as a safe, supportive and stimulating environment, provided a powerful sense of belonging, empowered participants to gain perspective, enhance their confidence and communication skills and make increasingly informed choices. Consistent with a previous evaluation focussing on the facilitators of the LWCEP, there was a strong desire for better promotion of the programme to the wider community, establishment of a better referral pathway and the potential to offer two separate programmes depending on the stage of a patient's journey.
authors.affiliation: Department of Radiation Therapy, School of Medicine and Health Science, University of Otago Wellington, Wellington South, New Zealand.
authors.forename: P
authors.initials: P
authors.lastname: Kane
authors.forename: M
authors.initials: M
authors.lastname: Jasperse
authors.forename: P
authors.initials: P
authors.lastname: Boland
authors.forename: P
authors.initials: P
authors.lastname: Herst
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D009520:New Zealand; D010353:Patient Education as Topic / Q000379:methods*; D017060:Patient Satisfaction; D011209:Power, Psychological; D015397:Program Evaluation; D012017:Referral and Consultation; D012944:Social Support; D011795:Surveys and Questionnaires
keywords: cancer; evaluation; patient education; patient information; supportive care