title: [Palliative care practices at home: instead of social exclusion of older people in later life?].
abstract: The understanding of palliative care practices at home (PCH) is limited by the lack of available scientific knowledge. This is explained by the fact that its practices are relatively recent and they question our relationship with death and dying individuals. This study aims to contribute to the advancement of knowledge about PCH with the elderly. More specifically, with a perspective of social exclusion, it aims to understand how practices either do or do not produce social exclusion with seniors receiving palliative care. Nineteen participants from two local community services centers were interviewed and six multidisciplinary meetings were attended for observation. This study suggests that positive representations concerning the elderly in palliative care and recognition of their autonomy can avoid social exclusion, including its symbolic and identificatory dimensions. However, standardization of practices seems to contribute to institutional exclusion and foster nonrecognition.
authors.affiliation: Centre de recherche et d'expertise en gérontologie sociale, CSSS Cavendish-CAU.
authors.forename: Marijo
authors.initials: M
authors.lastname: Hébert
authors.affiliation: Centre de recherche et d'expertise en gérontologie sociale, CSSS Cavendish-CAU.
authors.forename: Kareen
authors.initials: K
authors.lastname: Nour
authors.affiliation: Centre de recherche et d'expertise en gérontologie sociale, CSSS Cavendish-CAU.
authors.forename: Patrick
authors.initials: P
authors.lastname: Durivage
authors.affiliation: Université McGill.
authors.forename: Isabelle
authors.initials: I
authors.lastname: Wallach
authors.affiliation: Centre de recherche et d'expertise en gérontologie sociale, CSSS Cavendish-CAU.
authors.forename: Véronique
authors.initials: V
authors.lastname: Billette
authors.affiliation: Centre de recherche et d'expertise en gérontologie sociale, CSSS Cavendish-CAU.
authors.forename: Zelda
authors.initials: Z
authors.lastname: Freitas
mesh_terms: D000375:Aging / Q000523:psychology*; D005260:Female; D006699:Home Care Services / Q000592:standards; D006801:Humans; D008297:Male; D009026:Mortality; D010166:Palliative Care / Q000379:methods / Q000523:psychology* / Q000592:standards; D026684:Personal Autonomy; D012934:Social Isolation