title: Effect of a new social support program by voluntary organization in pediatric oncology department in a developing country.
abstract: Comprehensive childhood cancer treatment in the modern era means not only strenuous treatment regimens and meticulous nursing care, it also implies attention to social, psychological, and financial aspects of disease and treatment. In a developing country like ours, though it is possible to provide good medical and nursing care in government set-up, there is always shortage of workforce and financial support, leading to nonadherence to treatment regimens by patients and parents, resulting in suboptimal treatment outcomes. Overcrowding of pediatric cancer patients along with general patients for lab tests and other hospital services, poor drug compliance, treatment abandonment, and lost to follow-up, lack of funding to meet nonmedical expenses and inadequate facility for providing psychological support were some of the major reasons we could identify as lacunae in our pediatric oncology division (POD). We introduced a new social support program with the help of additional staff supported by a nongovernmental agency, and new quality improvement services were introduced. The impact was demonstrable as reduction in waiting time in the hospital, allayed anxiety of painful procedures, better drug compliance, less treatment abandonment, and improved follow-up. This can be emulated in similar other resource-limited centers.
authors.affiliation: Department of Pediatric Oncology, Regional Cancer Centre, Medical College Campus, Trivandrum, India.
authors.forename: Manjusha
authors.initials: M
authors.lastname: Nair
authors.forename: Kusumakumary
authors.initials: K
authors.lastname: Parukkutty
authors.forename: Sheethal
authors.initials: S
authors.lastname: Kommadath
mesh_terms: D002648:Child; D003906:Developing Countries; D006293:Health Promotion; D006776:Hospitals, Pediatric; D006801:Humans; D008495:Medical Oncology; D009369:Neoplasms / Q000175:diagnosis / Q000191:economics / Q000517:prevention & control*; D012944:Social Support; D035141:Voluntary Programs / Q000458:organization & administration*