title: The development and deployment of integrated electronic care records in a regional adult and paediatric cystic fibrosis unit.
abstract: BACKGROUND
  Electronic care records (ECRs) for cystic fibrosis (CF) provide a basis for accurate, reliable capture of clinical measures and interventions, and epidemiological trends, providing the basis for improved efficiency and patient safety.
  
  
  METHODS
  A primary care system was modified for hospital use and clinical codes devised for all aspects of CF care. Performance and usability were assessed.
  
  
  RESULTS
  Of a total of 620 patients 619 consented to their data being recorded in the system. Five hundred and twenty three new codes were created and embedded behind 60 new templates. Following introduction of ECR, completion of annual assessments increased from 43% to 92%, retrieval of drug costs rose significantly and time to correspondence with primary care fell from 34days to <2days. Staff satisfaction was high.
  
  
  CONCLUSIONS
  The system is fully operational allowing the unit to function as a paperless service. Efficiencies of staffing activity, process management and cost retrievals are evident. Sharing of coding structures is important in future care.
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: D
authors.initials: D
authors.lastname: Peckham
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: C
authors.initials: C
authors.lastname: Etherington
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: H
authors.initials: H
authors.lastname: White
authors.affiliation: Division of Maternal & Child Health Sciences, University of Dundee, DD1 4HN, UK.
authors.forename: A
authors.initials: A
authors.lastname: Mehta
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: N
authors.initials: N
authors.lastname: Shaw
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: A
authors.initials: A
authors.lastname: Morton
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: K
authors.initials: K
authors.lastname: Pollard
authors.affiliation: Paediatric CF Unit, Leeds General Infirmary, Leeds, LS1 3EX, UK.
authors.forename: T
authors.initials: T
authors.lastname: Lee
authors.affiliation: Paediatric CF Unit, Leeds General Infirmary, Leeds, LS1 3EX, UK.
authors.forename: K
authors.initials: K
authors.lastname: Brownlee
authors.affiliation: Paediatric CF Unit, Leeds General Infirmary, Leeds, LS1 3EX, UK.
authors.forename: J
authors.initials: J
authors.lastname: Taylor
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK.
authors.forename: P
authors.initials: P
authors.lastname: Whitaker
authors.affiliation: Adult CF Unit, St. James's Hospital, Leeds, LS9 7TF, UK; Paediatric CF Unit, Leeds General Infirmary, Leeds, LS1 3EX, UK.
authors.forename: S
authors.initials: S
authors.lastname: Conway
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D002648:Child; D003550:Cystic Fibrosis; D057286:Electronic Health Records / Q000458:organization & administration*; D005568:Forms and Records Control / Q000458:organization & administration; D006757:Hospital Units; D006801:Humans; D016730:Program Development; D012041:Regional Medical Programs
keywords: Codes; Cystic fibrosis; Electronic care records