title: Assessment of the need for palliative care for children in South Africa.
abstract: UNICEF and the International Children's Palliative Care Network undertook a joint analysis in three sub-Saharan countries-Zimbabwe, South Africa, and Kenya-to estimate the palliative care need among their children and to explore these countries' capacities to deliver children's palliative care (CPC). This report concerns the findings from South Africa. The study adopted a cross-sectional mixed-methods approach using both quantitative and qualitative data obtained from primary and secondary sources. CPC need was estimated using prevalence and mortality statistics. The response to the need and existing gaps were analysed using data obtained from a literature review, interviews with key persons, and survey data from service providers.The findings show very limited CPC service coverage for children in the public sector. In addition, services are mainly localised, with minimal reach. Less than 5% of the children needing care in South Africa are receiving it, with those receiving it being closer to the end of life. Barriers to the delivery of CPC include fear of opioid use, lack of education on CPC, lack of integration into the primary care system, lack of policies on CPC, and lack of community and health professional awareness of CPC needs and services. Estimating the need for CPC is a critical step in meeting the needs of children with life-threatening conditions and provides a sound platform to advocate for closure of the unacceptably wide gaps in coverage.
authors.affiliation: International Palliative Care Consultant, Open Society Foundations, New York, USA, and Senior Fellow, Worldwide Palliative Care Alliance, London, UK.
authors.forename: Stephen
authors.initials: S
authors.lastname: Connor
authors.affiliation: Managing Consultant, Psychosocial Support, Research and Training Centre, Harare, Zimbabwe.
authors.forename: Chenjari
authors.initials: C
authors.lastname: Sisimayi
authors.affiliation: Education and Research Consultant, International Childrens Palliative Care Network, London, UK.
authors.forename: Julia
authors.initials: J
authors.lastname: Downing
authors.affiliation: Consultant, HIV and AIDS Section, UNICEF Headquarters, New York, USA.
authors.forename: Evelyn
authors.initials: E
authors.lastname: King
authors.affiliation: Specialist, Protection, Care and Support, HIV and AIDS Section, UNICEF Headquarters.
authors.forename: Patricia
authors.initials: P
authors.lastname: Lim Ah Ken
authors.affiliation: formerly Senior Advisor, Protection, Care and Support, HIV and AIDS Section, UNICEF Headquarters.
authors.forename: Rachel
authors.initials: R
authors.lastname: Yates
authors.affiliation: Chief Executive Officer, International Childrens Palliative Care Network, Bloemfontein, South Africa.
authors.forename: Joan
authors.initials: J
authors.lastname: Marston
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D010166:Palliative Care / Q000706:statistics & numerical data*; D013019:South Africa; D055815:Young Adult