title: Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study.
abstract: OBJECTIVE
  To collect the views of experts to inform the development of an education package for multidisciplinary adult specialist palliative care (SPC) teams caring for young people with life-limiting conditions.
  
  
  METHODS
  A modified online Delphi process collated expert opinion on format, delivery and content of an education package to up-skill adult SPC teams. Round 1 participants (n=44) answered free-text questions, generating items for Round 2. In Round 2, 68 participants rated the extent to which they agreed/disagreed with the items on 5-point Likert-type scales. Median and mean scores assessed the importance of each item. IQR scores assessed level of consensus for each item; items lacking consensus were rerated by 35 participants in Round 3.
  
  
  RESULTS
  In the Delphi, consensus was reached on a range of suggested formats, on who should deliver the training, and on several clinical, psychosocial and practical topics.
  
  
  CONCLUSIONS
  Development of a continuous/rolling programme of education, tailored for content and mode of delivery and incorporated into working practice is recommended. As a direct outcome of the results of this study, a series of six linked study days has been established, focusing specifically on the issues around caring for young adults with life-limiting conditions and palliative care needs.
authors.affiliation: Marie Curie Palliative Care Research Centre, Institute for Translation, Innovation, Methodology and Engagement (TIME), Cardiff University School of Medicine, Cardiff, Wales, UK.
authors.forename: Stephanie
authors.initials: S
authors.lastname: Sivell
authors.affiliation: University Hospital of Wales, Cardiff and Vale University Health Board, Cardiff, Wales, UK.
authors.forename: Victoria
authors.initials: V
authors.lastname: Lidstone
authors.affiliation: Velindre Cancer Centre, Velindre NHS Trust, Cardiff, Wales, UK Cardiff and Vale University Health Board, Cardiff, Wales, UK.
authors.forename: Mark
authors.initials: M
authors.lastname: Taubert
authors.affiliation: Ty^ Hafan Children's Hospice, Sully, Wales, UK.
authors.forename: Catherine
authors.initials: C
authors.lastname: Thompson
authors.affiliation: Marie Curie Palliative Care Research Centre, Institute for Translation, Innovation, Methodology and Engagement (TIME), Cardiff University School of Medicine, Cardiff, Wales, UK.
authors.forename: Annmarie
authors.initials: A
authors.lastname: Nelson
mesh_terms: D000328:Adult; D032921:Consensus; D003697:Delphi Technique; D006801:Humans; D007400:Interprofessional Relations; D065126:Palliative Medicine / Q000193:education*; D010348:Patient Care Team / Q000592:standards*; D013038:Specialization; D013727:Terminal Care / Q000592:standards*; D055815:Young Adult
keywords: Palliative care; education and training