title: Use of an online community to provide support to caregivers of people with dementia.
abstract: One challenge faced by many family members caring for persons with dementia is lack of information about how to take care of others and themselves. This is especially important for persons from ethnic minority groups, because linguistically and culturally appropriate information is often not available. In response to these needs, we developed a web site for Spanish-speaking caregivers. Cuidatecuidador.com provides bilingual information on dementia and caregiver issues. Content was developed and then evaluated by caregivers residing in 3 countries. Findings suggest trends that exposure to information may be related to a higher sense of mastery and a reduction of depressive symptomatology.
authors.affiliation: a Environment & Health Group, Inc. , Cambridge , Massachusetts , USA.
authors.forename: Marta E
authors.initials: ME
authors.lastname: Pagán-Ortiz
authors.forename: Dharma E
authors.initials: DE
authors.lastname: Cortés
authors.forename: Noelle
authors.initials: N
authors.lastname: Rudloff
authors.forename: Patricia
authors.initials: P
authors.lastname: Weitzman
authors.forename: Sue
authors.initials: S
authors.lastname: Levkoff
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000193:education* / Q000523:psychology*; D003704:Dementia / Q000208:ethnology / Q000451:nursing*; D005190:Family / Q000523:psychology*; D005260:Female; D006630:Hispanic or Latino / Q000523:psychology*; D006801:Humans; D020407:Internet; D008297:Male; D008404:Massachusetts; D008875:Middle Aged; D015397:Program Evaluation; D011647:Puerto Rico / Q000208:ethnology; D020377:Self Efficacy; D012944:Social Support
keywords: caregiving; dementia; ethnicity and multicultural issues; mental health and mental illness; mixed methods