German translation of the caregiver priorities and child health index of life with disabilities questionnaire: test-retest reliability and correlation with gross motor function in children with cerebral palsy.
We aimed to translate the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire into German and to evaluate its reliability and validity by studying the association between CPCHILD scores and gross motor function as measured by the gross motor function classification system (GMFCS) in children with cerebral palsy (CP). The original CPCHILD questionnaire and manual were translated and back translated. It was administered to primary caregivers of persons with CP (GMFCS levels III-V) and was completed a second time 2 weeks after the first to measure test-retest reliability (n = 17). Primary caregivers of 68 children with CP; GMFCS level III (n = 14), level IV (n = 28), and level V (n = 26) completed the questionnaire. Mean total CPCHILD scores across GMFCS levels were 67.1 ± 14.9 for GMFCS level III, 56.6 ± 11.8 for level IV, and 44.3 ± 12.9 for level V. Good correlation (r =  - 0.56) was observed between GMFCS and total scores test-retest reliability showed intraclass correlation coefficients between 0.4 and 0.9. The German CPCHILD yielded similar test-retest reliability and score distributions across the GMFCS level as the original version. The best correlations were observed for domains that are close to the functional deficits.
Department of Pediatrics, Technische Universität München, Kinderzentrum München gemeinnützige GmbH, Munich, Germany.
Nikolai H
NH
Jung
Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany.
Olga
O
Brix
Schön Klinik Harlaching, Clinic for Pediatric Orthopedics, Munich, Germany.
Peter
P
Bernius
Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany.
A Sebastian
AS
Schroeder
Schön Klinik Vogtareuth, Clinic for Neuropediatrics and Neurorehabilitation, Vogtareuth, Germany.
Gerhard J
GJ
Kluger
Institute of Diabetes Research, Helmholtz Zentrum München, Munich, Germany, and Forschergruppe Diabetes der Technischen Universität München, Munich, Germany.
Andreas
A
Beyerlein
Division of Orthopedic Surgery, The Hospital for Sick Children, University of Toronto, Toronto, Canada.
Shannon
S
Weir
Institute for Social Pediatrics and Adolescent Medicine, Ludwig-Maximilians-Universität, Munich, Germany.
Rudiger
R
von Kries
Division of Orthopedic Surgery, The Hospital for Sick Children, University of Toronto, Toronto, Canada.
Unni G
UG
Narayanan
Department of Pediatrics, Technische Universität München, Kinderzentrum München gemeinnützige GmbH, Munich, Germany.
Volker
V
Mall
Department of Pediatric Neurology and Developmental Medicine, Hauner Children's Hospital, University of Munich, Munich, Germany.
Steffen
S
Berweck
D000203:Activities of Daily Living / Q000523:psychology*; D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002547:Cerebral Palsy / Q000150:complications / Q000175:diagnosis / Q000451:nursing; D002648:Child; D002675:Child, Preschool; D002658:Developmental Disabilities / Q000209:etiology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D014177:Translations; D055815:Young Adult