Content analysis of neurodegenerative and mental diseases social groups.
This article aims to characterize the different types of Facebook and Twitter groups for different mental diseases, their purposes, and their functions. We focused the search on depressive disorders, dementia, and Alzheimer's and Parkinson's diseases and examined the Facebook (www.facebook.com) and Twitter (www.twitter.com) groups. We used four assessment criteria: (1) purpose, (2) type of creator, (3) telehealth content, and (4) free-text responses in surveys and interviews. We observed a total of 357 Parkinson groups, 325 dementia groups, 853 Alzheimer groups, and 1127 depression groups on Facebook and Twitter. Moreover, we analyze the responses provided by different users. The survey and interview responses showed that many people were interested in using social networks to support and help in the fight against these diseases. The results indicate that social networks are acceptable by users in terms of simplicity and utility. People use them for finding support, information, self-help, advocacy and awareness, and for collecting funds.
University of Valladolid, Spain.
Borja
B
Martínez-Pérez
University of Valladolid, Spain isator@tel.uva.es.
Isabel
I
de la Torre-Díez
University of Valladolid, Spain.
Beatriz
B
Bargiela-Flórez
University of Valladolid, Spain.
Miguel
M
López-Coronado
University of Beira Interior, Portugal.
Joel J P C
JJ
Rodrigues
D006801:Humans; D033181:Information Dissemination / Q000379:methods*; D020407:Internet / Q000706:statistics & numerical data; D008605:Mental Health Services / Q000706:statistics & numerical data*; D019636:Neurodegenerative Diseases / Q000523:psychology / Q000628:therapy*; D012657:Self-Help Groups / Q000592:standards / Q000706:statistics & numerical data; D061108:Social Media / Q000706:statistics & numerical data; D011795:Surveys and Questionnaires
Alzheimer; Parkinson; dementia; depression; social groups