Patient-centered care or cultural competence: negotiating palliative care at home for Chinese Canadian immigrants.
The literature about Chinese attitudes toward death and dying contains frequent references to strong taboos against open discussion about death; consequently, there is an assumption that dying at home is not the preferred option. This focused ethnographic study examined the palliative home care experiences of 4 Chinese immigrants with terminal cancer, their family caregivers, and home care nurses and key informant interviews with 11 health care providers. Three main themes emerged: (1) the many facets of taboo; (2) discursive tensions between patient-centered care and cultural competence; and (3) rethinking language barriers. Thus, training on cultural competence needs to move away from models that portray cultural beliefs as shared, fixed patterns, and take into account the complicated reality of everyday care provision at end of life in the home.
School of Nursing, York University, North York, Ontario, Canada lisaseto@yorku.ca.
Lisa Seto
LS
Nielsen
Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Jan E
JE
Angus
Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada Ontario Cancer Institute, Princess Margaret Hospital, Toronto, Ontario, Canada.
Doris
D
Howell
Temmy Latner Centre for Palliative Care, Mount Sinai Hospital, Toronto, Ontario, Canada.
Amna
A
Husain
Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Denise
D
Gastaldo
D000368:Aged; D000369:Aged, 80 and over; D002170:Canada / Q000453:epidemiology; D017028:Caregivers; D002681:China / Q000208:ethnology; D054521:Cultural Competency; D054242:Emigrants and Immigrants; D005260:Female; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms; D010166:Palliative Care / Q000458:organization & administration*; D000070659:Patient Comfort; D018802:Patient-Centered Care / Q000458:organization & administration*
Chinese immigrants; cultural competence; home care; hybridity; negotiation; palliative care; patient-centered care; postcolonial theory