Sustainability of cancer registration in the Kilimanjaro Region of Tanzania--a qualitative assessment.
The projected cancer burden in Africa demands a comprehensive surveillance strategy. Kilimanjaro Christian Medical Centre (KCMC) is developing a population-based cancer registry, and understanding stakeholders' perceptions of factors impacting cancer registration sustainability is critical to its long-term success. We conducted 11 semi-structured qualitative interviews with clinicians and administrators. Interviews were double-coded and evaluated for predetermined and emerging themes. Nearly half (45%) of participants discussed change commitment, stating that the cancer registry would benefit KCMC and that they were committed to it. However, change efficacy was low - participants were not confident in their shared ability to sustain the registry. Most participants (73%) discussed the importance of resource availability and administration support. Several themes emerged across interviews: (i) lack of cancer registry awareness, (ii) ambiguity about its purpose, (iii) the importance of training, (iv) the importance of outcome data, and (v) the importance of international partners. These findings may facilitate cancer registry development and sustainability in similar settings.
Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill; Chapel Hill, NC; Health Services Research and Development, Durham Veterans Affairs Medical Center; Durham, NC.
Leah L
LL
Zullig
Duke Global Health Institute, Duke University; Durham, NC.
Sky B
SB
Vanderburg
Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill; Chapel Hill, NC; Duke Global Health Institute, Duke University; Durham, NC, USA.
Charles
C
Muiruri
Duke Cancer Institute, Duke University; Durham, NC, USA.
Amy
A
Abernethy
Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill; Chapel Hill, NC.
Bryan J
BJ
Weiner
Duke Global Health Institute, Duke University; Durham, NC.
John
J
Bartlett
D001364:Awareness; D003142:Communication; D005260:Female; D006801:Humans; D007318:Inservice Training; D007857:Leadership; D008297:Male; D008962:Models, Theoretical; D009369:Neoplasms / Q000453:epidemiology*; D011159:Population Surveillance; D036301:Qualitative Research; D012042:Registries; D013636:Tanzania / Q000453:epidemiology