A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries.
Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 2008. This online open-access database covers data recording, analyzing, and reporting besides enabling knowledge exchange, telemedicine, capacity building, and quality assurance. As of February 2014, over 2400 patients have been registered and 112 BMTs have been performed with outcomes comparable to international standards, but at a fraction of the cost. This approach avoids medical emigration and contributes to local healthcare strengthening and competitiveness. This paper presents the experience and clinical outcomes associated with the use of this platform built using open-source tools and focusing on a locally pertinent tertiary care procedure-BMT.
Jagriti Innovations, Bangalore, Karnataka, India.
Rajat Kumar
RK
Agarwal
Jagriti Innovations, Bangalore, Karnataka, India.
Amit
A
Sedai
Jagriti Innovations, Bangalore, Karnataka, India.
Sunil
S
Dhimal
Jagriti Innovations, Bangalore, Karnataka, India.
Kumari
K
Ankita
Cure2Children Foundation, Florence, Italy.
Luigi
L
Clemente
Cure2Children Foundation, Florence, Italy.
Sulman
S
Siddique
Children's Hospital Pakistan Institute of Medical Sciences (PIMS), Islamabad, Pakistan.
Naila
N
Yaqub
Children's Hospital Pakistan Institute of Medical Sciences (PIMS), Islamabad, Pakistan.
Sadaf
S
Khalid
Children's Hospital Pakistan Institute of Medical Sciences (PIMS), Islamabad, Pakistan.
Fatima
F
Itrat
Children's Hospital Pakistan Institute of Medical Sciences (PIMS), Islamabad, Pakistan.
Anwar
A
Khan
Children's Hospital Pakistan Institute of Medical Sciences (PIMS), Islamabad, Pakistan.
Sarah Khan
SK
Gilani
South East Asia Institute for Thalassemia, Jaipur, Rajasthan, India.
Priya
P
Marwah
South East Asia Institute for Thalassemia, Jaipur, Rajasthan, India.
Rajpreet
R
Soni
Cure2Children Foundation, Florence, Italy.
Mohamed El
ME
Missiry
Cure2Children Foundation, Florence, Italy.
Mohamed Hamed
MH
Hussain
Cure2Children Foundation, Florence, Italy.
Cornelio
C
Uderzo
Cure2Children Foundation, Florence, Italy.
Lawrence
L
Faulkner
D016026:Bone Marrow Transplantation; D003628:Database Management Systems; D016208:Databases, Factual; D003906:Developing Countries; D006801:Humans; D007194:India; D007391:International Cooperation; D007558:Italy; D010154:Pakistan; D011446:Prospective Studies; D012042:Registries; D017086:beta-Thalassemia / Q000628:therapy*
Beta-Thalassemia/Prevention & Control; Beta-Thalassemia/Surgery; Bone Marrow Transplantation; Database Management Systems; Integrated Advanced Information Management Systems; International Cooperation