title: "Grey matters".
abstract: It's common in this world, for diagnoses to be confused. This grey, oblique world is the "World of Brain Tumors" from which these narratives are written, a world I entered when a tangerine-sized tumor was found on my temporal lobe. Each narrative illustrates this world in which everything is covered in a thick film rendering things once obvious, now unknown. Parents are asked to choose treatment plans for their children, plans that will inevitably alter their child's quality of life but in ways they cannot determine or even imagine. Parents are asked to play God. Most of the parents who share their stories in this collection, parents of PBT (pediatric brain tumor) patients have to walk the line of trying to not disrupt their relationships with their physicians, wanting the best for their child, and facing the decision to follow their gut or go with advised treatment plans.
authors.forename: Katie
authors.initials: K
authors.lastname: Rose
mesh_terms: D000293:Adolescent; D000739:Anecdotes as Topic; D001932:Brain Neoplasms / Q000523:psychology* / Q000628:therapy; D003657:Decision Making; D004644:Emotions; D005195:Family Relations; D006801:Humans; D033262:Narration; D010290:Parents / Q000523:psychology; D012017:Referral and Consultation; D012640:Seizures / Q000523:psychology; D057832:Watchful Waiting