title: Public perceptions of cohort studies and biobanks in Germany.
abstract: Cohort studies and biobank projects have led to public discussions in several European countries in the past. In Germany, many medium-sized studies are currently running successfully in terms of respondent rates. However, EU-wide research on general public perceptions of biobanks and cohort studies have shown that Germany is among those countries where people express the highest reluctance for providing body material and other data for research purposes. Because of early efforts of the just-initiated German National Cohort Study, we are able to begin to investigate in greater detail how various groups of people across Germany reflect and discuss the ongoing implementation of cohort studies and biobanking in Germany. Our research is based on 15 focus group discussions in four German regions, as well as on Eurobarometer poll data on biobanking.
authors.affiliation: 1 Friedrich Alexander University Erlangen-Nuremberg , Section for Systematic Theology II (Ethics), Nuremberg, Germany .
authors.forename: Johannes
authors.initials: J
authors.lastname: Starkbaum
authors.forename: Herbert
authors.initials: H
authors.lastname: Gottweis
authors.forename: Ursula
authors.initials: U
authors.lastname: Gottweis
authors.forename: Christina
authors.initials: C
authors.lastname: Kleiser
authors.forename: Jakob
authors.initials: J
authors.lastname: Linseisen
authors.forename: Christa
authors.initials: C
authors.lastname: Meisinger
authors.forename: Panagiotis
authors.initials: P
authors.lastname: Kamtsiuris
authors.forename: Susanne
authors.initials: S
authors.lastname: Moebus
authors.forename: Karl-Heinz
authors.initials: KH
authors.lastname: Jöckel
authors.forename: Sonja
authors.initials: S
authors.lastname: Börm
authors.forename: H-Erich
authors.initials: HE
authors.lastname: Wichmann
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D018070:Biological Specimen Banks; D015331:Cohort Studies; D004989:Ethics; D005260:Female; D017144:Focus Groups; D005858:Germany; D006801:Humans; D008297:Male; D008875:Middle Aged; D010465:Perception; D018907:Privacy / Q000523:psychology; D055815:Young Adult