title: Developing an item bank to measure economic quality of life for individuals with disabilities.
abstract: OBJECTIVE
  To develop and evaluate the psychometric properties of an item set measuring economic quality of life (QOL) for use by individuals with disabilities.
  
  
  METHODS
  Survey.
  
  
  METHODS
  Community settings.
  
  
  METHODS
  Individuals with disabilities completed individual interviews (n=64), participated in focus groups (n=172), and completed cognitive interviews (n=15). Inclusion criteria included the following: traumatic brain injury, spinal cord injury, or stroke; age ≥18 years; and ability to read and speak English. We calibrated the items with 305 former rehabilitation inpatients.
  
  
  METHODS
  None.
  
  
  METHODS
  Economic QOL.
  
  
  RESULTS
  Confirmatory factor analysis showed acceptable fit indices (comparative fit index=.939, root mean square error of approximation=.089) for the 37 items. However, 3 items demonstrated local item dependence. Dropping 9 items improved fit and obviated local dependence. Rasch analysis of the remaining 28 items yielded a person reliability of .92, suggesting that these items discriminate about 4 economic QOL levels.
  
  
  CONCLUSIONS
  We developed a 28-item bank that measures economic aspects of QOL. Preliminary confirmatory factor analysis and Rasch analysis results support the psychometric properties of this new measure. It fills a gap in health-related QOL measurement by describing the economic barriers and facilitators of community participation. Future development will make the item bank available as a computer adaptive test.
authors.affiliation: New York University Langone Medical Center, New York, NY; Kessler Foundation Research Center, West Orange, NJ. Electronic address: David.Tulsky@nyumc.org.
authors.forename: David S
authors.initials: DS
authors.lastname: Tulsky
authors.affiliation: New York University Langone Medical Center, New York, NY.
authors.forename: Pamela A
authors.initials: PA
authors.lastname: Kisala
authors.affiliation: Feinberg School of Medicine, Northwestern University, Chicago, IL.
authors.forename: Jin-Shei
authors.initials: JS
authors.lastname: Lai
authors.affiliation: University of Michigan Medical School, Ann Arbor, MI.
authors.forename: Noelle
authors.initials: N
authors.lastname: Carlozzi
authors.affiliation: University of Illinois at Chicago, Chicago, IL.
authors.forename: Joy
authors.initials: J
authors.lastname: Hammel
authors.affiliation: Feinberg School of Medicine, Northwestern University, Chicago, IL; Rehabilitation Institute of Chicago, Chicago, IL.
authors.forename: Allen W
authors.initials: AW
authors.lastname: Heinemann
mesh_terms: D000328:Adult; D001930:Brain Injuries / Q000191:economics / Q000523:psychology; D006233:Persons with Disabilities / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D012959:Socioeconomic Factors; D013119:Spinal Cord Injuries / Q000191:economics / Q000523:psychology; D020521:Stroke / Q000191:economics / Q000523:psychology
keywords: Economics; Outcome assessment (health care); Psychometrics; Quality of life; Rehabilitation
references.citation: Arch Phys Med Rehabil. 2015 Apr;96(4):578-88
references.pmid: 25813890
references.citation: Qual Life Res. 2006 Sep;15(7):1179-90
references.pmid: 17001438
references.citation: Qual Health Res. 2001 Nov;11(6):795-811
references.pmid: 11710078
references.citation: Schizophr Res. 2001 Sep 1;51(2-3):171-80
references.pmid: 11518637
references.citation: Rehabil Nurs. 2012 Mar-Apr;37(2):74-9
references.pmid: 22434617
references.citation: J Neurotrauma. 2012 Jul 20;29(11):2038-49
references.pmid: 22414023
references.citation: J Pediatr Orthop. 2008 Jul-Aug;28(5):584-92
references.pmid: 18580377
references.citation: Neurosurgery. 1990 Sep;27(3):422-8
references.pmid: 2234336
references.citation: Arch Phys Med Rehabil. 2004 Apr;85(4 Suppl 2):S3-12
references.pmid: 15083417
references.citation: Oncology (Williston Park). 1990 May;4(5):29-38; discussion 69
references.pmid: 2143408
references.citation: Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S44-51
references.pmid: 21958922
references.citation: Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S20-7
references.pmid: 21958919
references.citation: Semin Dial. 2005 Mar-Apr;18(2):119-23
references.pmid: 15771655
references.citation: Rehabil Nurs. 1993 Nov-Dec;18(6):364-7, 374
references.pmid: 7938891
references.citation: Proc Natl Acad Sci U S A. 2010 Sep 21;107(38):16489-93
references.pmid: 20823223
references.citation: Dev Med Child Neurol. 2002 Jul;44(7):468-76
references.pmid: 12162384
references.citation: Childs Nerv Syst. 2007 Jan;23(1):47-57
references.pmid: 16960733
references.citation: Am J Gastroenterol. 2003 Jan;98(1):128-34
references.pmid: 12526948
references.citation: Paraplegia. 1989 Dec;27(6):480-9
references.pmid: 2608301
references.citation: Cancer Invest. 1993;11(3):327-36
references.pmid: 8485655
references.citation: J Adv Nurs. 1997 Oct;26(4):765-71
references.pmid: 9354990
references.citation: J Pediatr Hematol Oncol. 2007 Jul;29(7):471-9
references.pmid: 17609625
references.citation: J Pediatr Orthop. 1995 Mar-Apr;15(2):244-53
references.pmid: 7745102
references.citation: J Head Trauma Rehabil. 2000 Apr;15(2):767-82
references.pmid: 10739966
references.citation: J Pediatr Orthop. 2007 Mar;27(2):233-40
references.pmid: 17314653
references.citation: Oncology. 2006;70(3):190-202
references.pmid: 16809938
references.citation: Arch Phys Med Rehabil. 2015 Apr;96(4):589-95
references.pmid: 24378804
references.citation: J Natl Cancer Inst. 1993 Mar 3;85(5):365-76
references.pmid: 8433390
references.citation: J Appl Meas. 2000;1(2):199-218
references.pmid: 12029178
references.citation: Qual Life Res. 1993 Aug;2(4):239-51
references.pmid: 8220359
references.citation: J Pediatr Orthop. 2008 Mar;28(2):259-64
references.pmid: 18388726
references.citation: Spinal Cord. 2008 Oct;46(10):684-9
references.pmid: 18317485
references.citation: J Appl Meas. 2010;11(3):315-30
references.pmid: 20847478
references.citation: Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S52-60
references.pmid: 21958923
references.citation: J Palliat Med. 2003 Jun;6(3):417-24
references.pmid: 14509487
references.citation: J Pediatr Psychol. 2011 Aug;36(7):766-79
references.pmid: 21378106
references.citation: Eur Urol. 2001 Jan;39(1):107-13
references.pmid: 11173948