Transforming children's palliative care-from ideas to action: highlights from the first ICPCN conference on children's palliative care.
The International Children's Palliative Care Network (ICPCN) held its first international conference on children's palliative care, in conjunction with Tata Memorial Centre, in Mumbai, India, from 10-12 February 2014. The theme of the conference, Transforming children's palliative care-from ideas to action, reflected the vision of the ICPCN to live in a world where every child who needs it, can access palliative care, regardless of where they live. Key to this is action, to develop service provision and advocate for children's palliative care. Three pre-conference workshops were held on 9 February, aimed at doctors, nurses, social workers, and volunteers, and focused around the principles of children's palliative care, and in particular pain and symptom management. The conference brought together 235 participants representing 38 countries. Key themes identified throughout the conference included: the need for advocacy and leadership; for education and research, with great strides having been taken in the development of an evidence base for children's palliative care, along with the provision of education; the importance of communication and attention to spirituality in children, and issues around clinical care, in particular for neonates. Delegates were continually challenged to transform children's palliative care in their parts of the world and the conference culminated in the signing of the ICPCN Mumbai Declaration. The Declaration calls upon governments around the world to improve access to quality children's palliative care services and made a call on the Belgian government not to pass a bill allowing children to be euthanised in that country. The conference highlighted many of the ongoing developments in children's palliative care around the world, and as she closed the conference, Joan Marston (ICPCN CEO) challenged participants to take positive action and be the champions that the children need, thus transforming children's palliative care.
International Children's Palliative Care Network and Makerere University, PO Box 72518, Kampala, Uganda.
J
J
Downing
ICPCN, Bleomfontein 9301, South Africa.
J
J
Marston
Department of Palliative Medicine, Tata Memorial Centre, Mumbai, Maharashta 400012, India.
Ma
M
Muckaden
ICPCN, Durban 4000, South Africa.
S
S
Boucher
Children's Palliative Care Project, Indian Association of Palliative Care, Mumbai, Maharashta 400012, India.
M
M
Cardoz
ICPCN, Johannesburg 2000, South Africa.
B
B
Nkosi
ICPCN, Durban 4000, South Africa.
B
B
Steel
Children's Palliative Care Project, Indian Association of Palliative Care, Mumbai, Maharashta 400012, India.
P
P
Talawadekar
Department of Palliative Medicine, Tata Memorial Centre, Mumbai, Maharashta 400012, India.
P
P
Tilve
children; declaration; education; integration; international; palliative care; research