title: The ADVANCE network: accelerating data value across a national community health center network.
abstract: The ADVANCE (Accelerating Data Value Across a National Community Health Center Network) clinical data research network (CDRN) is led by the OCHIN Community Health Information Network in partnership with Health Choice Network and Fenway Health. The ADVANCE CDRN will 'horizontally' integrate outpatient electronic health record data for over one million federally qualified health center patients, and 'vertically' integrate hospital, health plan, and community data for these patients, often under-represented in research studies. Patient investigators, community investigators, and academic investigators with diverse expertise will work together to meet project goals related to data integration, patient engagement and recruitment, and the development of streamlined regulatory policies. By enhancing the data and research infrastructure of participating organizations, the ADVANCE CDRN will serve as a 'community laboratory' for including disadvantaged and vulnerable patients in patient-centered outcomes research that is aligned with the priorities of patients, clinics, and communities in our network.
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA Department of Medical Informatics and Clinical Epidemiology, Oregon Health and Science University, Portland, Oregon, USA.
authors.forename: Jennifer E
authors.initials: JE
authors.lastname: DeVoe
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA Kaiser Permanente Northwest Center for Health Research, Portland, Oregon, USA.
authors.forename: Rachel
authors.initials: R
authors.lastname: Gold
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA Health Choice Network, Miami, Florida, USA.
authors.forename: Erika
authors.initials: E
authors.lastname: Cottrell
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Vance
authors.initials: V
authors.lastname: Bauer
authors.affiliation: Health Choice Network, Miami, Florida, USA.
authors.forename: Andrew
authors.initials: A
authors.lastname: Brickman
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Jon
authors.initials: J
authors.lastname: Puro
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Christine
authors.initials: C
authors.lastname: Nelson
authors.affiliation: The Fenway Institute, Boston, Massachusetts, USA Harvard Medical School, Boston, Massachusetts, USA HIV Prevention Research, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.
authors.forename: Kenneth H
authors.initials: KH
authors.lastname: Mayer
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Abigail
authors.initials: A
authors.lastname: Sears
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA Department of Medical Informatics and Clinical Epidemiology, Oregon Health and Science University, Portland, Oregon, USA.
authors.forename: Tim
authors.initials: T
authors.lastname: Burdick
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Jonathan
authors.initials: J
authors.lastname: Merrell
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA.
authors.forename: Paul
authors.initials: P
authors.lastname: Matthews
authors.affiliation: OCHIN, Inc, Portland, Oregon, USA Department of Family Medicine, Oregon Health and Science University, Portland, Oregon, USA.
authors.forename: Scott
authors.initials: S
authors.lastname: Fields
mesh_terms: D003151:Community Health Centers / Q000458:organization & administration; D003195:Computer Communication Networks; D057286:Electronic Health Records / Q000458:organization & administration*; D006801:Humans; D033181:Information Dissemination; D008498:Medical Record Linkage; D017063:Outcome Assessment, Health Care / Q000458:organization & administration*; D010358:Patient Participation; D018802:Patient-Centered Care; D014481:United States
keywords: Addressing Disparities; Comparative Effectiveness Research; Federally Qualified Health Centers; Health Information Technology; Patient Centered Clinical Research Network; Patient Centered Outcomes Research