title: [Primary Spinal Tumor Registry at the National Centre for Spinal Disorders].
abstract: Primary spinal tumors are rare diseases. Primary spinal tumor registry would be useful to help decision making in this complex field of spine surgery. In this article the authors present the latest findings from the Primary Spinal Tumor Registry at the National Centre for Spinal Disorders, Hungary. The registry is based on a novel database management software, the REDCap electronic data capture system. It contains data of 323 patients treated surgically during an 18-year period. Among the 126 malignant tumors, the most frequent was chordoma (61 cases). In the case of benign tumors schwannoma showed the largest prevalence (45 cases). The authors conclude that due to the rarity of the disease and the complexity of the management, multicenter, prospective registries are required to provide high level of evidence. The structure of the Primary Spinal Tumor Registry in the National Centre for Spinal Disorders in Hungary is optimal for user-friendly, fast and secure data collection providing a prospective database for scientific researches and clinical follow-up.
authors.affiliation: Országos Gerincgyógyászati Központ Budapest Királyhágó u. 1-3. 1126.
authors.forename: Zsolt
authors.initials: Z
authors.lastname: Szövérfi
authors.affiliation: Országos Gerincgyógyászati Központ Budapest Királyhágó u. 1-3. 1126.
authors.forename: Aron
authors.initials: A
authors.lastname: Lazáry
authors.affiliation: Országos Gerincgyógyászati Központ Budapest Királyhágó u. 1-3. 1126.
authors.forename: Péter Pál
authors.initials: PP
authors.lastname: Varga
mesh_terms: D002817:Chordoma / Q000453:epidemiology; D006761:Hospitals / Q000706:statistics & numerical data*; D006801:Humans; D006814:Hungary / Q000453:epidemiology; D009442:Neurilemmoma / Q000453:epidemiology; D015995:Prevalence; D012042:Registries; D013120:Spinal Cord Neoplasms / Q000453:epidemiology*; D013125:Spinal Neoplasms / Q000453:epidemiology*
keywords: primary spinal tumors; primer gerincdaganat; registry; regiszter; survival; túlélés