title: The concept of a toolbox of outcome measures for children with cerebral palsy: why, what, and how to use?
abstract: Accurate and well-targeted measurement of a child's abilities and participation in daily activities pre- and post-intervention is essential to understanding the effects of therapies provided by pediatric practitioners. There is growing interest in identification of outcome core sets for specified client groups. This article elaborates on the concepts to consider when selecting and interpreting measures from an outcomes toolbox for children with cerebral palsy. Principles discussed include use of self-report measures to open a dialogue with the child/parent; a holistic assessment approach to identify a child's challenges, strengths, and contextual factors that can influence functioning; links between measurement and heightened engagement of the child/family in the rehabilitation process and goals; and the need to plan the evaluation and dialogue aspects of the assessment process. If clinicians across the international rehabilitation community draw from the same toolbox, the end result could be a cohesive approach and common language to outcome measurement.
authors.affiliation: Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada Department of Physical Therapy, University of Toronto, Toronto, Canada vwright@hollandbloorview.ca.
authors.forename: F Virginia
authors.initials: FV
authors.lastname: Wright
authors.affiliation: School of Physical & Occupational Therapy, McGill University, Montréal, Quebec, Canada Montreal Children's Hospital-McGill University Health Centre, Montréal, Quebec, Canada.
authors.forename: Annette
authors.initials: A
authors.lastname: Majnemer
mesh_terms: D002547:Cerebral Palsy / Q000150:complications / Q000175:diagnosis / Q000628:therapy; D002648:Child; D002658:Developmental Disabilities / Q000175:diagnosis / Q000209:etiology; D006801:Humans; D009042:Motivation; D017063:Outcome Assessment, Health Care; D010372:Pediatrics
keywords: cerebral palsy; core sets of measures; family-centered care; outcome measures; pediatrics