title: Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice.
abstract: This article focuses on conceptual and practical considerations in family-centered care for children with cerebral palsy and their families. In the last 5 years, there have been important advances in our understanding of the components of family-centered care, and initial attempts to understand the client change processes at play. Recent research elaborates on family-centered care by delving into aspects of family-provider partnership, and applying family-centered principles to organizational service delivery to bring about organizational cultures of family-centered care. Recent research has also begun to consider mediators of client change, and new practice models have been proposed that embrace family-centered principles and illustrate the "art" of practice. Future research directions are discussed, including explorations of causal relationships between family-centered care principles, elements of caregiving practice, client change processes, and child and family outcomes. The meaning of the recent literature for pediatric neurology practice is considered.
authors.affiliation: Bloorview Research Institute and University of Toronto, Toronto, Ontario, Canada gking27@uwo.ca.
authors.forename: Gillian
authors.initials: G
authors.lastname: King
authors.affiliation: Drexel University, Philadelphia, PA, USA.
authors.forename: Lisa
authors.initials: L
authors.lastname: Chiarello
mesh_terms: D002547:Cerebral Palsy / Q000451:nursing* / Q000534:rehabilitation; D002648:Child; D003695:Delivery of Health Care; D019988:Children with Disabilities / Q000534:rehabilitation*; D005190:Family; D006801:Humans
keywords: childhood; disability; family-centered care; pediatric neurology; service delivery