title: Development of a web-based glaucoma registry at King Khaled Eye Specialist Hospital, Saudi Arabia: a cost-effective methodology.
abstract: In this brief communication, we present the steps used to establish a web-based congenital glaucoma registry at our institution. The contents of a case report form (CRF) were developed by a group of glaucoma subspecialists. Information Technology (IT) specialists used Lime Survey softwareTM to create an electronic CRF. A MY Structured Query Language (MySQL) server was used as a database with a virtual machine operating system. Two ophthalmologists and 2 IT specialists worked for 7 hours, and a biostatistician and a data registrar worked for 24 hours each to establish the electronic CRF. Using the CRF which was transferred to the Lime survey tool, and the MYSQL server application, data could be directly stored in spreadsheet programs that included Microsoft Excel, SPSS, and R-Language and queried in real-time. In a pilot test, clinical data from 80 patients with congenital glaucoma were entered into the registry and successful descriptive analysis and data entry validation was performed. A web-based disease registry was established in a short period of time in a cost-efficient manner using available resources and a team-based approach.
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Babar
authors.initials: B
authors.lastname: Zaman
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Rajiv
authors.initials: R
authors.lastname: Khandekar
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Sami
authors.initials: S
authors.lastname: Al Shahwan
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia ; Department of Wilmer Eye Institute, Johns Hopkins University, School of Medicine, Baltimore, Maryland, United States of America.
authors.forename: Jonathan
authors.initials: J
authors.lastname: Song
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Ibrahim
authors.initials: I
authors.lastname: Al Jadaan
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Leyla
authors.initials: L
authors.lastname: Al Jiasim
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Ohood
authors.initials: O
authors.lastname: Owaydha
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Nasira
authors.initials: N
authors.lastname: Asghar
authors.affiliation: Department of Information Technology, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia.
authors.forename: Amar
authors.initials: A
authors.lastname: Hijazi
authors.affiliation: Department of Research, King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia ; Department of Wilmer Eye Institute, Johns Hopkins University, School of Medicine, Baltimore, Maryland, United States of America.
authors.forename: Deepak P
authors.initials: DP
authors.lastname: Edward
mesh_terms: D003365:Costs and Cost Analysis; D005901:Glaucoma / Q000151:congenital / Q000191:economics / Q000453:epidemiology*; D006801:Humans; D020407:Internet / Q000191:economics / Q000706:statistics & numerical data; D011446:Prospective Studies; D012042:Registries / Q000706:statistics & numerical data*; D012529:Saudi Arabia / Q000453:epidemiology; D012984:Software; D011795:Surveys and Questionnaires
keywords: Congenital Glaucoma; Health Register; Web-Based Registry