title: 'You have to die first': Exploring the thoughts and feelings on organ donation of British women who have not signed up to be donors.
abstract: Four White British women who had not signed up to be organ donors were interviewed in depth to investigate their feelings on organ donation. Transcripts were analysed using Interpretative Phenomenological Analysis to reveal how the ability to detach from the body affects the acceptance of organ donation, how organ donation can trigger difficult thoughts and how the family can be used to explain not having signed up. The findings confirm previous empirical evidence but also offer original insight on the discrepancy between attitudes and behaviours, how fears can inhibit action and the importance of communicating organ donation wishes to family.
authors.affiliation: Birkbeck University of London, UK isabella.nizza@btinternet.com.
authors.forename: Isabella E
authors.initials: IE
authors.lastname: Nizza
authors.affiliation: Birkbeck University of London, UK.
authors.forename: Heather P
authors.initials: HP
authors.lastname: Britton
authors.affiliation: Birkbeck University of London, UK.
authors.forename: Jonathan A
authors.initials: JA
authors.lastname: Smith
mesh_terms: D000328:Adult; D001290:Attitude; D001293:Attitude to Death; D004644:Emotions; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D014019:Tissue Donors / Q000523:psychology*; D009927:Tissue and Organ Procurement; D006113:United Kingdom
keywords: Interpretative Phenomenological Analysis; attitudes; lived experience; organ donation; transplantation