Quality of cancer care in Spain: recommendations of a patients' jury.
The aim of the study was to evaluate quality of cancer care in Spain through patient's views, experiences and perceptions; with the purpose of making recommendations to improve cancer care. A modified citizen's jury was organised with the participation of 30 members and four experts as witnesses. For 1 day jurors representing 13 of 17 Spanish Autonomous Communities were met to make recommendations for improving the quality of cancer care in Spain. Concerns were identified regarding care fragmentation, test delays, duplications and poor social and emotional support. Some recommendations highlighted the need to improve the access to psycho-oncology care as well as support in social care and counselling, addressing patients to specific care. Some strategies proposed by the jury included a 24-h call centre, continuity in palliative care and appropriate follow-up and support after the end of therapy. In conclusion, the experience of cancer should include access to multiple specialists, effective coordination of care, accurate information about the disease and treatment options, and timely attention to symptoms and psychosocial needs.
Global Institute of Health Policy and Public Health, Universitat Internacional de Catalunya, Barcelona, Spain; Basic and Educational Psychology Department, Autonomous University of Barcelona, Barcelona, Spain.
E
E
Arrighi
S
S
Blancafort
A J
AJ
Jovell
M D
MD
Navarro Rubio
D003266:Continuity of Patient Care / Q000592:standards; D006297:Health Services Accessibility / Q000592:standards; D006801:Humans; D008403:Mass Screening / Q000592:standards; D009369:Neoplasms / Q000175:diagnosis / Q000517:prevention & control / Q000628:therapy*; D010166:Palliative Care / Q000592:standards; D011314:Preventive Health Services / Q000592:standards; D011639:Public Opinion; D011787:Quality of Health Care / Q000592:standards*; D012944:Social Support; D013030:Spain
patient information; patient satisfaction; quality of life