MEMENTA-'Mental healthcare provision for adults with intellectual disability and a mental disorder'. A cross-sectional epidemiological multisite study assessing prevalence of psychiatric symptomatology, needs for care and quality of healthcare provision for adults with intellectual disability in Germany: a study protocol.
BACKGROUND
The study 'Mental healthcare provision for adults with intellectual disability and a mental disorder' (MEMENTA) is a cross-sectional epidemiological study carried out in three different regions of Germany. Its main aim is to assess the prevalence of mental disorders in adults with intellectual disability (ID) as well as quality of mental healthcare for this population.


METHODS
The target population are persons aged between 18 and 65 years with a mild or moderate ID. The study population will be recruited through service providers. A representative sample is realised by two-stage sampling. First, institutions providing services for people with ID (sheltered workshops) are selected in a stratified cluster sampling, with strata being (1) types of service-providing non-governmental organisations and (2) sizes of their sheltered workshops. Then persons working in selected sheltered workshops are selected by simple random sampling. An estimated number of 600 adults with ID will be included. Information will be obtained from the group leaders in the sheltered workshops, informal carers or staff members in sheltered housing institutions and the person with ID. Besides the main outcome parameter of psychiatric symptomatology and problem behaviour, other outcome parameters such as needs for care, quality of life, caregiver burden, health services utilisation and costs for care are assessed using well-established standardised instruments. If a comorbid mental disorder is diagnosed, quality of mental healthcare will be assessed with open questions to all interview partners and, in addition, problem-focused interviews with a small subgroup. Analyses will be carried out using quantitative and qualitative methods.


BACKGROUND
Approval of all three local ethics committees was obtained. Research findings will add much needed empirical information in order to improve services provided to this vulnerable group of patients.


BACKGROUND
NCT01695395.
Department of Psychiatry and Psychotherapy, Technische Universität Dresden, University Hospital Carl Gustav Carus, Dresden, Germany.
Andrea
A
Koch
Department of Psychiatry and Psychotherapy, Technische Universität Dresden, University Hospital Carl Gustav Carus, Dresden, Germany.
Anke
A
Vogel
Department of Psychiatry and Psychotherapy, Technische Universität Dresden, University Hospital Carl Gustav Carus, Dresden, Germany.
Marco
M
Holzmann
Department of Psychiatry and Psychotherapy, Technische Universität Dresden, University Hospital Carl Gustav Carus, Dresden, Germany.
Andrea
A
Pfennig
Central Institute of Mental Health, Medical Faculty Mannheim/Heidelberg University, Germany.
Hans Joachim
HJ
Salize
Department of Psychiatry II, Ulm University, Bezirkskrankenhaus Günzburg, Germany.
Bernd
B
Puschner
Department of Psychiatry and Psychotherapy, Technische Universität Dresden, University Hospital Carl Gustav Carus, Dresden, Germany.
Matthias
M
Schützwohl
D000293:Adolescent; D000328:Adult; D000368:Aged; D003430:Cross-Sectional Studies; D005858:Germany; D006282:Health Personnel; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data*; D066086:Health Services for Persons with Disabilities; D006801:Humans; D008607:Intellectual Disability / Q000628:therapy; D001523:Mental Disorders / Q000453:epidemiology / Q000628:therapy; D008605:Mental Health Services; D008875:Middle Aged; D015995:Prevalence; D011787:Quality of Health Care; D012107:Research Design; D055815:Young Adult
Health Care Provision; Intellectual Disability; Mental Disorder