Needs assessments of memory disorder patients.
BACKGROUND
Previous research shows that informal caregivers of individuals with a memory disorder experience financial strain, declining physical health, and psychological distress. Various resources and services have been developed to address and/or prevent these potential outcomes, yet caregivers continue to be negatively affected by the demands of caregiving. We hypothesize that better identification and clarification of concrete patient and caregiver needs will aid in the modification and improvement of the available resources. The purpose of this study is to determine the psychosocial needs of the cognitively impaired population and their caregivers.


METHODS
A one-page Needs Assessment was created to address areas of potential concern for the individual with a memory disorder and the caregiver. This assessment was administered during visits to an outpatient clinic in Philadelphia.


RESULTS
A total of 204 Needs Assessments were collected. The significant needs found in our study cohort include sleep, exercise, clinical trials, education, and assistance with ADLs and IADLs.


CONCLUSIONS
This study satisfied the initial identification of caregiver and patient needs; now each must be explored further to determine how to successfully meet such needs. If the primary needs of the patient can be met by a focused service, the caregiver will no longer be the sole provider of meeting the specific need. This will decrease the involved role of the caregiver, maximize patient homecare, minimize caregiver stress, and increase the quality of life for both the patient and caregiver.
Department of Neurology, Drexel University College of Medicine, Philadelphia, PA, USA kbowen@drexelmed.edu.
Kate J
KJ
Bowen
College of Nursing & Health Professions, Drexel University, Philadelphia, PA, USA.
Elizabeth W
EW
Gonzalez
Department of Neurology, Drexel University College of Medicine, Philadelphia, PA, USA.
Carolyn Y
CY
Edwards
Department of Neurology, Drexel University College of Medicine, Philadelphia, PA, USA.
Carol F
CF
Lippa
D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000451:nursing* / Q000503:physiopathology / Q000523:psychology; D017028:Caregivers / Q000193:education / Q000523:psychology*; D002986:Clinical Trials as Topic; D015331:Cohort Studies; D003704:Dementia / Q000451:nursing / Q000503:physiopathology / Q000523:psychology; D015444:Exercise; D005260:Female; D006801:Humans; D008297:Male; D008569:Memory Disorders / Q000451:nursing* / Q000503:physiopathology / Q000523:psychology; D008875:Middle Aged; D020380:Needs Assessment; D010353:Patient Education as Topic; D012720:Severity of Illness Index; D012890:Sleep
Alzheimer’s disease; Needs Assessment; caregiving; dementia; psychosocial