TMI! ethical challenges in managing and using large patient data sets.
The advent and expansion of electronic medical record systems and open-access databases are creating a "data tsunami." As this wave descends, we must anticipate and address several ethical and social risks: threats to patient privacy, threats to the reputations of various social groups, and threats to public trust in biomedical research.
Center for Bioethics, Durham, NC, USA; Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. ejuengst@med.unc.edu.
Eric T
ET
Juengst
D035843:Biomedical Research / Q000941:ethics; D003219:Confidentiality / Q000941:ethics*; D003628:Database Management Systems / Q000941:ethics*; D004992:Ethics, Medical; D032984:Ethics, Research; D063025:Health Information Management / Q000941:ethics*; D006801:Humans; D008491:Medical Informatics Applications; D011639:Public Opinion; D035502:Trust; D014481:United States