title: Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy.
abstract: OBJECTIVE
  To assess the reliability and validity of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)-Dutch Version, a proxy measure of health status and well-being of non-ambulatory children with cerebral palsy (CP).
  
  
  METHODS
  Parents (n = 66) of 47 boys/19 girls between 5 and 18 years with CP (GMFCS IV-V) participated. To assess the reliability each domain and the total measure was tested for internal consistency, test-retest and inter-rater reliability. Known-groups validity of the CPCHILD-DV was assessed by comparing mean scores of clinically distinct subgroups and convergent validity by correlating the CPCHILD-DV with the TNO-AZL Preschool Children Quality of Life (TAPQOL).
  
  
  RESULTS
  The mean CPCHILD-DV total score was 52.0 (SD11.5). Test-retest reliability of the total score as assessed by intraclass correlations (ICC) was 0.73 (domains: 0.55-0.80). For the inter-rater reliability the ICC was 0.64 (domains: 0.58-0.90); the Cronbach's alpha's ranged from 0.60 to 0.95. The CPCHILD score could differentiate between GMFCS levels and between subgroups of cognitive level in the domain "communication and social interaction". There were moderate significant correlations (range r(s): 0.31-0.50) between sections of CPCHILD-DV and TAPQOL.
  
  
  CONCLUSIONS
  The CPCHILD-DV has sufficient reliability and validity as a proxy measure of health status and well-being of non-ambulatory children with CP.
authors.affiliation: Stichting Omega , Amsterdam , the Netherlands .
authors.forename: Trees A L
authors.initials: TA
authors.lastname: Zalmstra
authors.forename: Agnes
authors.initials: A
authors.lastname: Elema
authors.forename: Anne M
authors.initials: AM
authors.lastname: Boonstra
authors.forename: Karel G B
authors.initials: KG
authors.lastname: Maathuis
authors.forename: Unni G
authors.initials: UG
authors.lastname: Narayanan
authors.forename: Annette A J
authors.initials: AA
authors.lastname: v d Putten
authors.forename: Heleen A
authors.initials: HA
authors.lastname: Reinders-Messelink
authors.forename: Carla
authors.initials: C
authors.lastname: Vlaskamp
authors.forename: Robert
authors.initials: R
authors.lastname: Lindeboom
mesh_terms: D000293:Adolescent; D000328:Adult; D017028:Caregivers; D002547:Cerebral Palsy / Q000453:epidemiology*; D002648:Child; D002669:Child Welfare; D002675:Child, Preschool; D019988:Children with Disabilities; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D010290:Parents; D011788:Quality of Life; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires
keywords: Caregiver Priorities and Child Health Index of Life with Disabilities; children; health related quality of life; non-ambulatory children with cerebral palsy; validation