title: Ethnic minority, young onset, rare dementia type, depression: A case study of a Muslim male accessing UK dementia health and social care services.
abstract: A case study comprised of formal interviews, formal observations and informal discussions investigated the motivations and experiences accessing dementia care health and social care services for a Muslim, Pakistani male with dementia. Motivations derived from 'desperation' and an inability to access support from family or religious community. Experiences of accessing services were mostly negative. Dementia services were ill-informed about how to support persons with young onset dementia, with pre-existing mental health conditions, from an ethnic minority. Education and training to remove barriers to all dementia care services is required for persons with dementia, their families and within dementia services and religious communities.
authors.affiliation: Faculty of Public Health and Policy, London School of Hygiene and Tropical Medicine, London, UK jemma.regan@lshtm.ac.uk.
authors.forename: Jemma L
authors.initials: JL
authors.lastname: Regan
mesh_terms: D044466:Asian People / Q000208:ethnology; D054521:Cultural Competency; D003704:Dementia / Q000208:ethnology* / Q000523:psychology* / Q000628:therapy*; D005006:Ethnicity; D007722:Health Knowledge, Attitudes, Practice / Q000208:ethnology; D006297:Health Services Accessibility; D054625:Healthcare Disparities / Q000208:ethnology; D006801:Humans; D007514:Islam / Q000523:psychology; D008297:Male; D008875:Middle Aged; D008913:Minority Groups; D009042:Motivation; D010154:Pakistan / Q000208:ethnology; D012944:Social Support; D012947:Social Work; D006113:United Kingdom / Q000208:ethnology
keywords: Muslim; barriers; dementia; ethnic minority; health and social care services; service access