title: Evaluation of patients' questions to identify gaps in information provision to infertile patients.
abstract: The objective of this observational study was to identify gaps in written patient information at an infertility clinic, by systematically analysing the questions raised by infertile patients in a forum or during 'phone and group consultations. This was done (1) by identifying themes raised by patients undergoing Medically Assisted Reproduction and (2) by determining to what extent the questions asked by patients were absent from information leaflets provided by the clinic. A total of 193 questions were included and 24 different themes identified (e.g. blood loss during treatment, use of and side-effects of medication). Half of the patients' questions could not or could only partially be answered using the conventional patient information leaflets (51%). Healthcare providers should be aware that the information they provide does not necessarily cover all information needs. The involvement of patients in the creation of information, for instance through an approach such as that described in the paper, can provide insight into the informational needs of patients, and help healthcare providers keep their information up-to-date and patient-centred.
authors.affiliation: Division of Reproductive Medicine, Department of Obstetrics and Gynaecology, Radboud University Medical Centre , Nijmegen , the Netherlands.
authors.forename: Tom H
authors.initials: TH
authors.lastname: Van De Belt
authors.forename: Arnolf F W
authors.initials: AF
authors.lastname: Hendriks
authors.forename: Johanna W M
authors.initials: JW
authors.lastname: Aarts
authors.forename: Jan A M
authors.initials: JA
authors.lastname: Kremer
authors.forename: Marjan J
authors.initials: MJ
authors.lastname: Faber
authors.forename: Willanne L D M
authors.initials: WL
authors.lastname: Nelen
mesh_terms: D003142:Communication; D005260:Female; D006801:Humans; D007246:Infertility / Q000523:psychology* / Q000628:therapy*; D008297:Male; D020380:Needs Assessment; D009426:Netherlands; D010353:Patient Education as Topic / Q000592:standards*; D027724:Reproductive Techniques, Assisted / Q000523:psychology*
keywords: information leaflets; patient education; patient information