title: [Trapped in the body - lived experience and coping of individuals having Parkinson and their relatives with changed movement pattern caused by the disease].
abstract: People with Parkinson's disease suffer from various symptoms. Changed movement patterns frequently represent the prevailing symptom experience and influence the everyday life of the affected persons and their relatives. This qualitative study explores how persons with Parkinson's disease and their relatives experience the changed movement patterns and how they manage the consequential problems in their daily life. Eight persons with Parkinson's disease and six partners were interviewed. The interviews were analysed by means of content analysis according to Mayring. The qualitative analysis resulted in two main categories: "effects on the changed movement patterns on everyday life" and "coping skills for dealing with changed movement patterns". The experience of the affected person can be characterised by "being trapped in the body" as well as by a constantly slowing down daily life. The coping strategies are diverse, but all respondents seek to maintain mobility. Partners naturally support the affected persons and take over many tasks. This is associated with elevated distress and the feeling of having to be permanently present. Various coping strategies have to be promoted and included in daily care for people with Parkinson's disease. Consideration of the individual experience of the changed movement patterns is very important in the development of strategies and also the support of the affected persons and relatives that they can keep up with their movements.
authors.affiliation: Institut für Angewandte Pflegewissenschaft FHS St. Gallen.
authors.forename: Myrta
authors.initials: M
authors.lastname: Kohler
authors.affiliation: Institut für Angewandte Pflegewissenschaft FHS St. Gallen.
authors.forename: Susi
authors.initials: S
authors.lastname: Saxer
authors.affiliation: Institut für Angewandte Pflegewissenschaft FHS St. Gallen.
authors.forename: André
authors.initials: A
authors.lastname: Fringer
authors.affiliation: Institut für Angewandte Pflegewissenschaft FHS St. Gallen.
authors.forename: Virpi
authors.initials: V
authors.lastname: Hantikainen
mesh_terms: D000203:Activities of Daily Living / Q000145:classification / Q000523:psychology; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D007406:Interview, Psychological; D008297:Male; D008875:Middle Aged; D051346:Mobility Limitation; D010300:Parkinson Disease / Q000451:nursing* / Q000523:psychology* / Q000534:rehabilitation; D036301:Qualitative Research; D012803:Sick Role; D013315:Stress, Psychological / Q000150:complications; D013557:Switzerland
keywords: Bewegung; Bewältigung; Erleben; Parkinson; Parkinson's disease; coping skills; life experiences; movement; qualitative Studie; qualitative research