title: Experiences of receiving a diagnosis of autism spectrum disorder: a survey of adults in the United kingdom.
abstract: A total of 128 adults with high-functioning autism spectrum disorders were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40 % of respondents were 'very/quite' dissatisfied, whilst 47 % were 'very/quite' satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Respondents also displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.
authors.affiliation: Goldsmiths, University of London, London, UK.
authors.forename: Lydia
authors.initials: L
authors.lastname: Jones
authors.forename: Lorna
authors.initials: L
authors.lastname: Goddard
authors.forename: Elisabeth L
authors.initials: EL
authors.lastname: Hill
authors.forename: Lucy A
authors.initials: LA
authors.lastname: Henry
authors.forename: Laura
authors.initials: L
authors.lastname: Crane
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D001007:Anxiety / Q000175:diagnosis / Q000453:epidemiology / Q000523:psychology; D002659:Child Development Disorders, Pervasive / Q000175:diagnosis* / Q000453:epidemiology / Q000523:psychology*; D003625:Data Collection / Q000379:methods; D003863:Depression / Q000175:diagnosis / Q000453:epidemiology / Q000523:psychology; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction; D006113:United Kingdom / Q000453:epidemiology; D055815:Young Adult