title: Desire for information of people with severe mental illness.
abstract: OBJECTIVE
  To assess (1) the desire of people with severe mental illness for information on their treatment and (2) whether the desire for information is associated with socio-demographic variables, diagnosis, illness duration, therapeutic relationship, needs and symptom severity.
  
  
  METHODS
  588 outpatients with severe mental illness were recruited in six European countries (Germany, Denmark, Hungary, Italy, Switzerland, United Kingdom) during the "Clinical decision making and outcome in routine care of people with severe mental illness (CEDAR)" study (ISRCTN75841675). Desire for information was assessed by the Information subscale of the Clinical Decision Making Style Scale. Study participants with high desire for information were compared with those with moderate or low desire for information.
  
  
  RESULTS
  80 % of study participants (n = 462) wanted to receive information on all aspects of their treatment (management, prognosis, alternative options for care). Participants with a high desire for information had less severe symptoms (OR = 0.988, CI = 0.977-1.000) and a better self-rated therapeutic alliance (OR = 1.304, CI = 1.130-1.508) with their clinician.
  
  
  CONCLUSIONS
  Most, but not all, people with severe mental illness have a high desire for information. Desire for information is associated with variables, such as therapeutic relationship and symptom severity, which are amenable to change during treatment.
authors.affiliation: Department of Psychiatry, Second University of Naples, Largo Madonna delle Grazie, 80138, Naples, Italy, giaccod@gmail.com.
authors.forename: Domenico
authors.initials: D
authors.lastname: Giacco
authors.forename: Mario
authors.initials: M
authors.lastname: Luciano
authors.forename: Valeria
authors.initials: V
authors.lastname: Del Vecchio
authors.forename: Gaia
authors.initials: G
authors.lastname: Sampogna
authors.forename: Mike
authors.initials: M
authors.lastname: Slade
authors.forename: Eleanor
authors.initials: E
authors.lastname: Clarke
authors.forename: Marietta
authors.initials: M
authors.lastname: Nagy
authors.forename: Aniko
authors.initials: A
authors.lastname: Egerhazi
authors.forename: Povl
authors.initials: P
authors.lastname: Munk-Jørgensen
authors.forename: Malene Frøkjaer Krogsgaard
authors.initials: MF
authors.lastname: Bording
authors.forename: Wolfram
authors.initials: W
authors.lastname: Kawohl
authors.forename: Wulf
authors.initials: W
authors.lastname: Rössler
authors.forename: Nadja
authors.initials: N
authors.lastname: Zentner
authors.forename: Bernd
authors.initials: B
authors.lastname: Puschner
authors.forename: Andrea
authors.initials: A
authors.lastname: Fiorillo
mesh_terms: D000328:Adult; D003657:Decision Making; D005060:Europe; D005260:Female; D006801:Humans; D057226:Information Seeking Behavior; D008297:Male; D001523:Mental Disorders / Q000523:psychology*; D008875:Middle Aged; D020380:Needs Assessment; D010817:Physician-Patient Relations; D012720:Severity of Illness Index