title: International spinal cord injury upper extremity basic data set.
abstract: OBJECTIVE
  To develop an International Spinal Cord Injury (SCI) Upper Extremity Basic Data Set as part of the International SCI Data Sets, which facilitates consistent collection and reporting of basic upper extremity findings in the SCI population.
  
  
  METHODS
  International.
  
  
  METHODS
  A first draft of a SCI Upper Extremity Data Set was developed by an international working group. This was reviewed by many different organisations, societies and individuals over several months. A final version was created.
  
  
  METHODS
  The final version of the International SCI Upper Extremity Data Set contains variables related to basic hand-upper extremity function, use of assistive devices, SCI-related complications to upper extremity function and upper extremity/hand reconstructive surgery. Instructions for data collection and the data collection form are freely available on the ISCoS website (www.iscos.org.uk).
  
  
  CONCLUSIONS
  The International SCI Upper Extremity Basic Data Set will facilitate consistent collection and reporting of basic upper extremity findings in the SCI population.
authors.affiliation: Department for Spinal Cord Injuries, Glostrup Hospital, University of Copenhagen, Copenhagen, Denmark.
authors.forename: F
authors.initials: F
authors.lastname: Biering-Sørensen
authors.affiliation: The Cleveland FES Center/Case Western Reserve University, Cleveland, OH, USA.
authors.forename: A
authors.initials: A
authors.lastname: Bryden
authors.affiliation: Spinal Cord Injury Center, University of Zurich and University Hospital Balgrist, Zurich, Switzerland.
authors.forename: A
authors.initials: A
authors.lastname: Curt
authors.affiliation: Department of Hand Surgery, Institute of Clinical Sciences, Sahlgrenska University Hospital and University of Gothenburg, Gothenburg, Sweden.
authors.forename: J
authors.initials: J
authors.lastname: Friden
authors.affiliation: Rehabilitation Studies Unit, Northern Clinical School, Sydney School of Medicine, University of Sydney, Sydney, New South Wales, Australia.
authors.forename: L A
authors.initials: LA
authors.lastname: Harvey
authors.affiliation: Jefferson School of Health Professions, Thomas Jefferson University, Philadelphia, PA, USA.
authors.forename: M J
authors.initials: MJ
authors.lastname: Mulcahey
authors.affiliation: Institute of Biomaterials and Biomedical Engineering, University of Toronto, Toronto, Ontario, Canada.
authors.forename: M R
authors.initials: MR
authors.lastname: Popovic
authors.affiliation: Division of Neuroscience, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: A
authors.initials: A
authors.lastname: Prochazka
authors.affiliation: Burwood Academy of Independent Living, Burwood Hospital, and Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand.
authors.forename: K A
authors.initials: KA
authors.lastname: Sinnott
authors.affiliation: Roessingh Rehabilitation Center, Enschede, The Netherlands.
authors.forename: G
authors.initials: G
authors.lastname: Snoek
mesh_terms: D003625:Data Collection; D016208:Databases, Factual; D006801:Humans; D007391:International Cooperation; D013119:Spinal Cord Injuries / Q000150:complications* / Q000503:physiopathology*; D034941:Upper Extremity / Q000503:physiopathology*