title: Danger and dementia: caregiver experiences and shifting social roles during a highly active hurricane season.
abstract: This study examined disaster preparedness and decision-making by caregivers of community-dwelling persons diagnosed with Alzheimer's or a related dementia (ADRD). Interviews were conducted with 20 caregivers in South Florida. Twelve of these interviews include caregiving experiences during the highly active 2004-2005 hurricane seasons. Results indicate that persons in earlier stages of ADRD can, and often do, remain engaged in the disaster preparation and planning process. However, during the early stages, persons may also resist evacuation, even if the caregiver felt it was necessary. During later stages of the disease, caregivers reported less resistance to disaster-related decisions, however, with the tradeoff of less ability to assist with preparation.
authors.affiliation: a Health Sciences, Palm Beach State College , Lake Worth , Florida , USA.
authors.forename: Janelle J
authors.initials: JJ
authors.lastname: Christensen
authors.forename: Heide
authors.initials: H
authors.lastname: Castañeda
mesh_terms: D000544:Alzheimer Disease / Q000150:complications; D017028:Caregivers / Q000523:psychology*; D055867:Cyclonic Storms; D003704:Dementia / Q000150:complications*; D004189:Disaster Planning / Q000379:methods*; D005260:Female; D005431:Florida; D006801:Humans; D008297:Male; D036301:Qualitative Research; D012917:Social Adjustment
keywords: caregiving; dementia; disaster preparedness; qualitative