title: Stability and change in sustainability of daily routines and social networks in families of children with profound intellectual and multiple disabilities.
abstract: BACKGROUND
  Children with profound intellectual and multiple disabilities (PIMD) demand intense family accommodations from birth and onwards. This study used an exploratory and qualitative study design to investigate stability and change in sustainability of daily routines and social networks of Swedish families of children with PIMD.
  
  
  METHODS
  Eight families participated over two years in eco-cultural family interviews and social networks interviews collected at home visits. Data were analyzed descriptively and by manifest contents analysis.
  
  
  RESULTS
  Results showed variations in sustainability of daily routines over time across families. The sustainability was linked to fathers' involvement, couples' connectedness and emotional support. Stability and change of social networks were characterized by low overlap between the child and family networks, the children's communicative dependency and low density of able communication partners.
  
  
  CONCLUSIONS
  The results indicate that patterns of stability and change were linked both to family resources and child characteristics.
authors.affiliation: BUSS School of Education, Culture and Communication, Mälardalen University, Vasteras, Sweden.
authors.forename: Jenny
authors.initials: J
authors.lastname: Wilder
authors.forename: Mats
authors.initials: M
authors.lastname: Granlund
mesh_terms: D002648:Child; D019988:Children with Disabilities / Q000523:psychology*; D005195:Family Relations; D006801:Humans; D008607:Intellectual Disability; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D012423:Rural Health; D012944:Social Support; D013315:Stress, Psychological; D011795:Surveys and Questionnaires; D013548:Sweden; D014504:Urban Health
keywords: accommodations; children with profound intellectual and multiple disabilities; daily routines; families; social networks; sustainability