title: Adaptation of the chronic disease self-management program for cancer survivors: feasibility, acceptability, and lessons for implementation.
abstract: Self-management in chronic disease has been shown to improve patient-reported and health care-related outcomes. However, relatively little information about its utility in cancer survivorship is known. We evaluated the feasibility and acceptability of the delivery of an adaptation of the evidence-based Chronic Disease Self-management Program (Stanford) called Cancer Thriving and Surviving (CTS). Triangulated mixed methods were used to capture baseline characteristics and post-program experiences using a combination of closed- and open-ended survey items; emergent coding and simple descriptive statistics were used to summarize the data. Twenty-seven workshops were delivered by 22 CTS leaders to 244 participants between August 2011 and January 2013 in a variety of settings (48 % community, 30 % health care, 22 % regional/community cancer center). Representing a variety of cancer types, about half the participants were 1-3 years post-diagnosis and 45 % were 4 or more years from diagnosis. Program attendance was high with 84 % of participants attending four or more of the six sessions in the workshop. Overall, 95 % of the participants were satisfied with the program content and leaders, and would recommend the program to friends and family. These results confirm the feasibility and acceptability of delivery of a high-fidelity, peer-led model for self-management support for cancer survivors. Expansion of the CTS represents a powerful tool toward improving health-related outcomes in this at-risk population.
authors.affiliation: Community and Behavioral Health, Colorado School of Public Health, University of Colorado Cancer Center, 13001 E. 17th Street, MS F538, Aurora, CO, 80045, USA, betsy.risendal@ucdenver.edu.
authors.forename: B
authors.initials: B
authors.lastname: Risendal
authors.forename: A
authors.initials: A
authors.lastname: Dwyer
authors.forename: R
authors.initials: R
authors.lastname: Seidel
authors.forename: K
authors.initials: K
authors.lastname: Lorig
authors.forename: C
authors.initials: C
authors.lastname: Katzenmeyer
authors.forename: L
authors.initials: L
authors.lastname: Coombs
authors.forename: Y
authors.initials: Y
authors.lastname: Kellar-Guenther
authors.forename: L
authors.initials: L
authors.lastname: Warren
authors.forename: A
authors.initials: A
authors.lastname: Franco
authors.forename: M
authors.initials: M
authors.lastname: Ory
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D002908:Chronic Disease / Q000517:prevention & control / Q000523:psychology* / Q000534:rehabilitation; D019468:Disease Management; D005240:Feasibility Studies; D005260:Female; D005500:Follow-Up Studies; D007722:Health Knowledge, Attitudes, Practice; D006284:Health Plan Implementation; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000517:prevention & control / Q000523:psychology* / Q000534:rehabilitation; D010353:Patient Education as Topic; D010358:Patient Participation; D018802:Patient-Centered Care; D015397:Program Evaluation; D012648:Self Care / Q000379:methods*; D017741:Survivors