title: [Home parenteral nutrition; satisfaction of patients and their caregivers with nutrition unit and pharmacy service].
abstract: BACKGROUND
  Home Parenteral Nutrition (HPN) is a practice in continually growing by the significant advantages involved for the patient and the healthcare system. Today, in the investigation of health outcomes is essential to assess the patient s opinion. Among the measures focused on patients with HPN, several studies about quality of life have been done, but the degree of satisfaction with this treatment modality has not been evaluated.
  
  
  OBJECTIVE
  To evaluate the degree of satisfacion of patients and their caregivers receiving HPN with doctors, pharmacists and nurses in a hospital.
  
  
  METHODS
  An anonymous survey was distributed, which consisted of 48 closed questions to patients and their caregivers receiving HPN who voluntarily answered. With survey responses a database in SPSS with the following variables was created: personal, sociocultural, clinical and related to HPN data and valoration of health personnel involved (nutrition area of the Pharmacy Service and Nursing and Medical Nutrition Units) and hospital facilities related to HPN. Also a section of open response suggestions was included.
  
  
  RESULTS
  24 surveys were distributed, 12 to patients and 12 to caregivers. Response rate was 91.7% in the case of patients and 58.3% in the caregivers. 63.6% of patients and 42.9% of caregivers were women. Mean age was, respectively, 46.1 years (SD: 13.7) and 47.0 years (SD: 3.6). Most of patients (55.6%) and caregivers (60.0%) had secondary studies and were pensoniers (72.7% and 71.4%, respectively). Underlying diseases of patients were: radiation enteritis (27.3%), intestinal obstruction (18.2%), intestinal carcinomatosis (45.5%) and Chron s disease (9.1%). With respect to items assessing satisfaction with physicians, nurses and pharmacists, in general both patients and caregivers were satisfied. Suggestions made were: greater amplitude of delivery schedule of HPN and inclusion of audiovisual information.
  
  
  CONCLUSIONS
  The degree of satisfaction of patients receiving HPN and their caregivers with the care given by doctors, pharmacists and nurses is appropriate, but it s possible to make improvements to optimize the quality of the whole process.
authors.affiliation: Servicio de Farmacia. Hospital General Universitario Gregorio Marañón. Madrid.. paula.arrabal.duran@gmail.com.
authors.forename: Paula
authors.initials: P
authors.lastname: Arrabal Durán
authors.affiliation: Servicio de Farmacia. Hospital General Universitario Gregorio Marañón. Madrid.. rosa.romero@salud.madrid.org.
authors.forename: Rosa María
authors.initials: RM
authors.lastname: Romero Jiménez
authors.affiliation: Unidad de Nutrición Clínica y Dietética. Hospital General Universitario Gregorio Marañón. Madrid. España.. cuerda.cristina@gmail.com.
authors.forename: Cristina
authors.initials: C
authors.lastname: Cuerda Compes
authors.affiliation: Unidad de Nutrición Clínica y Dietética. Hospital General Universitario Gregorio Marañón. Madrid. España.. miguel.camblor@salud.madrid.org.
authors.forename: Miguel
authors.initials: M
authors.lastname: Camblor Álvarez
authors.affiliation: Servicio de Farmacia. Hospital General Universitario Gregorio Marañón. Madrid.. irene.breton@salud.madrid.org.
authors.forename: Irene
authors.initials: I
authors.lastname: Bretón Lesmes
authors.affiliation: Servicio de Farmacia. Hospital General Universitario Gregorio Marañón. Madrid.. ana.lorenzo@salud.madrid.org.
authors.forename: Ana
authors.initials: A
authors.lastname: De Lorenzo Pinto
authors.affiliation: Unidad de Nutrición Clínica y Dietética. Hospital General Universitario Gregorio Marañón. Madrid. España.. sbuendia@salud.madrid.org.
authors.forename: Silvia
authors.initials: S
authors.lastname: Buendía Bravo
authors.affiliation: Unidad de Nutrición Clínica y Dietética. Hospital General Universitario Gregorio Marañón. Madrid. España.. laura.frias@salud.madrid.org.
authors.forename: Laura
authors.initials: L
authors.lastname: Frías Soriano
authors.affiliation: Unidad de Nutrición Clínica y Dietética. Hospital General Universitario Gregorio Marañón. Madrid. España.. pgarciap@salud.madrid.org.
authors.forename: Pilar
authors.initials: P
authors.lastname: García Peris
authors.affiliation: Servicio de Farmacia. Hospital General Universitario Gregorio Marañón. Madrid.. maria.sanjurjo@salud.madrid.org.
authors.forename: María
authors.initials: M
authors.lastname: Sanjurjo Sáez
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology / Q000706:statistics & numerical data*; D005260:Female; D019538:Health Care Surveys; D006801:Humans; D008297:Male; D008875:Middle Aged; D009726:Nurses; D016331:Parenteral Nutrition, Home / Q000523:psychology / Q000706:statistics & numerical data*; D017060:Patient Satisfaction; D010595:Pharmacists; D010607:Pharmacy Service, Hospital / Q000458:organization & administration*; D010820:Physicians; D011795:Surveys and Questionnaires