title: Can joined-up data lead to joined-up thinking? The Western Australian developmental pathways project.
abstract: Modern societies are challenged by "wicked problems" - by definition, those that are difficult to define, multi-causal and hard to treat. Problems such as low birth weight, obesity, mental ill health, teenage pregnancy, educational difficulties and juvenile crime fit this category. Given the complex nature of these problems, they require the best data in order to measure them, guide policy frameworks and evaluate whether the steps taken to address them are actually making a difference. What such problems really require are joined-up approaches to enable effective solutions. In this paper, we describe a unique initiative to encourage a more preventive, whole-of-government approach to these problems - the Developmental Pathways Project, which has enabled the linkage of a large number of de-identified administrative databases in order to explore the pathways into and out of the negative outcomes affecting our children and youth. This project has not only enabled the linkage of agency data, but also of agency personnel, in order to improve and promote cross-agency research, policy and preventive solutions. Through the use of these linkages we are attempting to shift the paradigm to encourage agencies to appreciate that these "wicked problems" demand a preventive approach, as well as the provision of effective services for those already affected.
authors.affiliation: Director, Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Perth, Western Australia.
authors.forename: Fiona
authors.initials: F
authors.lastname: Stanley
authors.affiliation: Project Manager, Developmental Pathways Project, Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Perth, Western Australia.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Glauert
authors.affiliation: Consumer Research Liaison Officer, Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Perth, Western Australia.
authors.forename: Anne
authors.initials: A
authors.lastname: McKenzie
authors.affiliation: ARC Research Fellow, Telethon Institute for Child Health Research, Centre for Child Health Research, University of Western Australia, Crawley, Western Australia.
authors.forename: Melissa
authors.initials: M
authors.lastname: O'Donnell