title: [A national framework for educational programs in epileptic patients, children and adults].
abstract: Epilepsy is a chronic disease with a wide range of presentations occurring at any age. It affects the patient's quality of life, implying a need for numerous healthcare services. Therapeutic education programs (TEPs) are designed to match patient age, disease course, and individual learning abilities. In France, these programs are proposed by the national health authorities (Superior Health Authority), and authorized by the Regional Health Agencies. Two years ago, a Therapeutic Education Programs Commission (TEPC), supported by the French League against Epilepsy (FLAE), was created. The goal was to bring together representative healthcare professionals in a working group in order to standardize practices. This led to the creation of a national reference of healthcare skills specific for children and adults with epilepsy. Five tables, for five "life periods", outline the framework of this professional reference tool. Program personalization, an essential part of TEPs, is necessary to develop a creative atmosphere. This slow process is specific to the various stages of life and can be influenced by the occurrence of various handicaps. Family and caregivers make key contributions to the process. The national framework for therapeutic education in epilepsy serves as a central crossroad where professions can find essential information to create or adapt their own TEPs. In the near future, regional experiences will be documented and collected for regular updates. This professional therapeutic education network will help promote therapeutic education programs and facilitate standard practices. Finally, several TEP files and tools will be shared on the FLAE website available for professional access. Today, the group's goal is to achieve national deployment of this "referential" framework.
authors.affiliation: Centre hospitalier La Teppe, 25, avenue de la Bouterne, CS 9721, 26602 Tain-l'Hermitage cedex, France.
authors.forename: M
authors.initials: M
authors.lastname: Prévos-Morgant
authors.affiliation: Centre hospitalier La Teppe, 25, avenue de la Bouterne, CS 9721, 26602 Tain-l'Hermitage cedex, France.
authors.forename: J
authors.initials: J
authors.lastname: Petit
authors.affiliation: Hospices de Lyon, 3, quai des Célestins, 69002 Lyon, France.
authors.forename: F
authors.initials: F
authors.lastname: Grisoni
authors.affiliation: Hospices de Lyon, 3, quai des Célestins, 69002 Lyon, France.
authors.forename: N
authors.initials: N
authors.lastname: André-Obadia
authors.affiliation: Hôpital Robert-Debré, 48, boulevard Sérurier, 75019 Paris, France.
authors.forename: S
authors.initials: S
authors.lastname: Auvin
authors.affiliation: CHRU de Lille, 2, avenue Oscar-Lambret, 59000 Lille, France. Electronic address: philippe.derambure@chru-lille.fr.
authors.forename: P
authors.initials: P
authors.lastname: Derambure
mesh_terms: D000328:Adult; D002648:Child; D004827:Epilepsy / Q000628:therapy*; D005602:France; D006801:Humans; D010353:Patient Education as Topic / Q000458:organization & administration*; D017410:Practice Guidelines as Topic; D016730:Program Development
keywords: Adulte; Adults; Children; Enfant; Epilepsy; Therapeutic education; Éducation thérapeutique; Épilepsie