title: An evaluation of the Head and Neck Cancer Patient Concerns Inventory across the Merseyside and Cheshire Network.
abstract: The Patient Concerns Inventory (PCI-H&N) is a carefully designed 57-item checklist specifically for use in routine follow-up clinics for patients with head and neck cancer. Although developmental work at one hospital has been very positive, its use had not been evaluated across a wider network. The aim of this project was to evaluate use of the inventory across the Merseyside and Cheshire cancer network. Patients from 5 hospitals were included and 66 patients, 8 doctors, and 6 nurse specialists took part. Almost all patients found the inventory easy or very easy to complete and it caused no notable problems with the running of appointments. Two-thirds felt that all or most of the items mentioned were talked about in the consultations and no patient felt that the consultation had been made worse. Two-thirds felt that it had helped them communicate with the doctor, while some felt that communication was already excellent and beyond improvement. Only a small minority (12%) thought that it could or definitely would lead to disappointment because needs might not be met. Most patients definitely wanted to continue using the inventory and only 5% definitely did not. Most of the doctors and specialist nurses saw its potential benefit in clinical practice. However, some practical, administrative, and educational aspects need to be addressed before it can be used more widely. It is likely that the inventory will be incorporated into practice at each clinic and locality in different ways.
authors.affiliation: Regional Maxillofacial Unit, University Hospital Aintree, Liverpool, United Kingdom; Edge Hill University, Liverpool and Evidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, St. Helens Road, Ormskirk, United Kingdom. Electronic address: snrogers.aintree@gmail.com.
authors.forename: Simon N
authors.initials: SN
authors.lastname: Rogers
authors.affiliation: Regional Maxillofacial Unit, University Hospital Aintree, Liverpool, United Kingdom; Edge Hill University, Liverpool and Evidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, St. Helens Road, Ormskirk, United Kingdom. Electronic address: astraglobeltd@btconnect.com.
authors.forename: Derek
authors.initials: D
authors.lastname: Lowe
mesh_terms: D000368:Aged; D001294:Attitude to Health; D003142:Communication; D004739:England; D005221:Fatigue / Q000523:psychology; D005239:Fear / Q000523:psychology; D005260:Female; D005500:Follow-Up Studies; D006258:Head and Neck Neoplasms / Q000523:psychology* / Q000601:surgery; D006301:Health Services Needs and Demand; D006801:Humans; D007822:Laryngeal Neoplasms / Q000523:psychology / Q000601:surgery; D008297:Male; D008409:Mastication / Q000502:physiology; D008875:Middle Aged; D009062:Mouth Neoplasms / Q000523:psychology / Q000601:surgery; D009364:Neoplasm Recurrence, Local / Q000523:psychology; D009367:Neoplasm Staging; D009723:Nurse-Patient Relations; D009909:Oral Health; D009959:Oropharyngeal Neoplasms / Q000523:psychology / Q000601:surgery; D010555:Personality Inventory; D010817:Physician-Patient Relations; D012472:Salivation / Q000502:physiology; D014987:Xerostomia / Q000523:psychology
keywords: Checklist; Head and Neck Cancer; Holistic Needs Assessment; Patient Concerns Inventory; Patient Reported Outcomes