title: Intentions to donate to a biobank in a national sample of African Americans.
abstract: OBJECTIVE
  Despite the investments being made to develop biobanks, African Americans are under-represented in genomic studies. We identified factors having significant independent associations with intentions to donate personal health information and blood and/or tissue samples to a biobank in a national random sample of African Americans (n = 1,033).
  
  
  METHODS
  We conducted a national survey from October 2010 through February 2011.
  
  
  RESULTS
  Twenty-three percent of respondents reported that it was not at all likely that they would donate to a biobank, 18% reported it was a little likely, 36% reported it was somewhat likely, and 23% reported it was very likely. Respondents who were likely to donate to a biobank had greater positive expectations about participating in cancer genetics research and reported more participation facilitators relative to barriers. Respondents who were distrustful of researchers had a significantly lower likelihood of being willing to donate to a biobank compared to those who were less distrustful.
  
  
  CONCLUSIONS
  African Americans have diverse attitudes about participating in genetics research, and many are likely to donate to a biobank based on expectations of positive outcomes. It may be important to address attitudes about genetics research as part of recruitment to enhance the quality of informed consent for participation in biobanks among African Americans.
authors.affiliation: Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, N.Y., USA.
authors.forename: Jasmine A
authors.initials: JA
authors.lastname: McDonald
authors.forename: Susan
authors.initials: S
authors.lastname: Vadaparampil
authors.forename: Deborah
authors.initials: D
authors.lastname: Bowen
authors.forename: Gayenell
authors.initials: G
authors.lastname: Magwood
authors.forename: Jihad S
authors.initials: JS
authors.lastname: Obeid
authors.forename: Melanie
authors.initials: M
authors.lastname: Jefferson
authors.forename: Richard
authors.initials: R
authors.lastname: Drake
authors.forename: Mulugeta
authors.initials: M
authors.lastname: Gebregziabher
authors.forename: Chanita
authors.initials: C
authors.lastname: Hughes Halbert
mesh_terms: D000328:Adult; D001741:Black or African American / Q000523:psychology*; D000367:Age Factors; D018070:Biological Specimen Banks; D003625:Data Collection; D005260:Female; D036281:Genetic Research; D007722:Health Knowledge, Attitudes, Practice / Q000208:ethnology*; D006801:Humans; D007258:Informed Consent; D033182:Intention; D008297:Male; D008913:Minority Groups / Q000523:psychology / Q000706:statistics & numerical data; D009042:Motivation; D009369:Neoplasms; D014019:Tissue Donors / Q000523:psychology* / Q000706:statistics & numerical data; D035502:Trust