title: European Reference Networks for Rare Diseases: the vision of patients.
authors.affiliation: European Organisation for Rare Diseases (EURORDIS), Paris, France.
authors.forename: Terkel
authors.initials: T
authors.lastname: Andersen
authors.affiliation: European Organisation for Rare Diseases (EURORDIS), Paris, France.
authors.forename: Yann
authors.initials: Y
authors.lastname: Le Cam
authors.affiliation: European Organisation for Rare Diseases (EURORDIS), Paris, France.
authors.forename: Ariane
authors.initials: A
authors.lastname: Weinman
mesh_terms: D019058:Community Networks; D003695:Delivery of Health Care; D005060:Europe / Q000453:epidemiology; D005260:Female; D006801:Humans; D008297:Male; D017410:Practice Guidelines as Topic; D035583:Rare Diseases / Q000453:epidemiology* / Q000628:therapy*