title: Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities.
abstract: BACKGROUND
  Audio computer-assisted self-interviews (ACASIs) have safely and effectively obtained sensitive research data from the general public and have been recommended for use with people with disabilities. However, few studies have used ACASIs with people with disabilities and ACASIs have not been used to investigate the relationship between disability, interpersonal violence (IPV), and physical and psychological health among people with developmental disabilities (PWDD).
  
  
  OBJECTIVE
  We developed an accessible ACASI specifically designed to allow PWDD to answer questions independently, while privately and securely collecting anonymous data related to their disability, IPV experiences, and physical and psychological health.
  
  
  METHODS
  We used a safety protocol to apply community based participatory research (CBPR) principles and an iterative process to create, test, and administer a cross-sectional ACASI survey to 350 adults with developmental disabilities in urban and rural locales.
  
  
  RESULTS
  Most participants completed the ACASI independently and reported that its accessibility features allowed them to do so. Most also agreed that the ACASI was easy to use, its questions were easy to understand, and that they would prefer using an ACASI to answer IPV and health-related questions rather than in a face-to-face interview. The majority agreed that health and safety were critical issues to address.
  
  
  CONCLUSIONS
  ACASI technology has the potential to maximize the independent and private participation of PWDD in research on sensitive topics. We recommend further exploration into accessibility options for ACASI technology, including hardware and Internet applications.
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA. Electronic address: oschwald@pdx.edu.
authors.forename: Mary
authors.initials: M
authors.lastname: Oschwald
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA.
authors.forename: Sandy
authors.initials: S
authors.lastname: Leotti
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA; Autistic Self Advocacy Network, Portland, OR, USA; Self-Advocacy Coalition of Oregon (formerly Self Advocates as Leaders), Portland, OR, USA.
authors.forename: Dora
authors.initials: D
authors.lastname: Raymaker
authors.affiliation: The Rural Institute, University of Montana, Missoula, MT, USA; Missoula People First, Missoula, MT, USA.
authors.forename: Marsha
authors.initials: M
authors.lastname: Katz
authors.affiliation: The Rural Institute, University of Montana, Missoula, MT, USA.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Goe
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA.
authors.forename: Mark
authors.initials: M
authors.lastname: Harviston
authors.affiliation: Self-Advocacy Coalition of Oregon (formerly Self Advocates as Leaders), Portland, OR, USA.
authors.forename: Annie
authors.initials: A
authors.lastname: Wallington
authors.affiliation: Bitterroot Valley People First Aktion Club, Hamilton, MT, USA.
authors.forename: Lisa
authors.initials: L
authors.lastname: Howard
authors.affiliation: The Rural Institute, University of Montana, Missoula, MT, USA.
authors.forename: Leanne
authors.initials: L
authors.lastname: Beers
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA; Department of Medicine, Oregon Health & Science University, USA; Department of Public Health & Preventive Medicine, Oregon Health & Science University, OR, USA.
authors.forename: Christina
authors.initials: C
authors.lastname: Nicolaidis
authors.affiliation: Center for Research on Women with Disabilities, Baylor College of Medicine, Houston, TX, USA.
authors.forename: Susan
authors.initials: S
authors.lastname: Robinson-Whelen
authors.affiliation: The Rural Institute, University of Montana, Missoula, MT, USA.
authors.forename: Rosemary B
authors.initials: RB
authors.lastname: Hughes
authors.affiliation: The Rural Institute, University of Montana, Missoula, MT, USA.
authors.forename: Emily
authors.initials: E
authors.lastname: Lund
authors.affiliation: Regional Research Institute for Human Services, School of Social Work, Portland State University, Portland, OR, USA.
authors.forename: Laurie E
authors.initials: LE
authors.lastname: Powers
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003201:Computers; D003430:Cross-Sectional Studies; D002658:Developmental Disabilities; D006233:Persons with Disabilities; D005260:Female; D006262:Health; D006306:Health Surveys / Q000379:methods*; D006801:Humans; D007407:Interviews as Topic / Q000379:methods; D008297:Male; D008875:Middle Aged; D012449:Safety; D014754:Violence; D055815:Young Adult
keywords: Audio computer-assisted self-interview (ACASI); Community-based participatory research (CBPR); Disability; Violence