title: Circles of care: should community development redefine the practice of palliative care?
abstract: Specialist palliative care, within hospices in particular, has historically led and set the standard for caring for patients at end of life. The focus of this care has been mostly for patients with cancer. More recently, health and social care services have been developing equality of care for all patients approaching end of life. This has mostly been done in the context of a service delivery approach to care whereby services have become increasingly expert in identifying health and social care need and meeting this need with professional services. This model of patient centred care, with the impeccable assessment and treatment of physical, social, psychological and spiritual need, predominantly worked very well for the latter part of the 20th century. Over the last 13 years, however, there have been several international examples of community development approaches to end of life care. The patient centred model of care has limitations when there is a fundamental lack of integrated community policy, development and resourcing. Within this article, we propose a model of care which identifies a person with an illness at the centre of a network which includes inner and outer networks, communities and service delivery organisations. All of these are underpinned by policy development, supporting the overall structure. Adoption of this model would allow individuals, communities, service delivery organisations and policy makers to work together to provide end of life care that enhances value and meaning for people at end of life, both patients and communities alike.
authors.affiliation: Department of Palliative Care, Weston Area Health Trust and Weston Hospicecare, Weston-super-Mare, UK.
authors.forename: Julian
authors.initials: J
authors.lastname: Abel
authors.forename: Tony
authors.initials: T
authors.lastname: Walter
authors.forename: Lindsay B
authors.initials: LB
authors.lastname: Carey
authors.forename: John
authors.initials: J
authors.lastname: Rosenberg
authors.forename: Kerrie
authors.initials: K
authors.lastname: Noonan
authors.forename: Debbie
authors.initials: D
authors.lastname: Horsfall
authors.forename: Rosemary
authors.initials: R
authors.lastname: Leonard
authors.forename: Bruce
authors.initials: B
authors.lastname: Rumbold
authors.forename: Deborah
authors.initials: D
authors.lastname: Morris
mesh_terms: D003153:Community Health Services / Q000458:organization & administration*; D019058:Community Networks / Q000458:organization & administration; D003299:Cooperative Behavior; D003695:Delivery of Health Care / Q000458:organization & administration; D006291:Health Policy; D006801:Humans; D033183:Interdisciplinary Communication; D009369:Neoplasms / Q000628:therapy*; D010166:Palliative Care / Q000458:organization & administration*; D064872:Patient Care Bundles; D026684:Personal Autonomy; D011209:Power, Psychological; D012922:Social Change; D013727:Terminal Care / Q000458:organization & administration*; D006113:United Kingdom
keywords: Family management; Social care; Supportive care; Terminal care