title: A qualitative analysis of information sharing for children with medical complexity within and across health care organizations.
abstract: BACKGROUND
  Children with medical complexity (CMC) are characterized by substantial family-identified service needs, chronic and severe conditions, functional limitations, and high health care use. Information exchange is critically important in high quality care of complex patients at high risk for poor care coordination. Written care plans for CMC are an excellent test case for how well information sharing is currently occurring. The purpose of this study was to identify the barriers to and facilitators of information sharing for CMC across providers, care settings, and families.
  
  
  METHODS
  A qualitative study design with data analysis informed by a grounded theory approach was utilized. Two independent coders conducted secondary analysis of interviews with parents of CMC and health care professionals involved in the care of CMC, collected from two studies of healthcare service delivery for this population. Additional interviews were conducted with privacy officers of associated organizations to supplement these data. Emerging themes related to barriers and facilitators to information sharing were identified by the two coders and the research team, and a theory of facilitators and barriers to information exchange evolved.
  
  
  RESULTS
  Barriers to information sharing were related to one of three major themes; 1) the lack of an integrated, accessible, secure platform on which summative health care information is stored, 2) fragmentation of the current health system, and 3) the lack of consistent policies, standards, and organizational priorities across organizations for information sharing. Facilitators of information sharing were related to improving accessibility to a common document, expanding the use of technology, and improving upon a structured communication plan.
  
  
  CONCLUSIONS
  Findings informed a model of how various barriers to information sharing interact to prevent optimal information sharing both within and across organizations and how the use of technology to improve communication and access to information can act as a solution.
authors: Laura
authors: L
authors: Quigley
authors: Ashley
authors: A
authors: Lacombe-Duncan
authors: Sherri
authors: S
authors: Adams
authors: Charlotte Moore
authors: CM
authors: Hepburn
authors: Division of Paediatric Medicine and Child Health Evaluative Sciences, The Hospital for Sick Children, 555 University Avenue, Toronto, ON M5G 1X8, Canada. eyal.cohen@sickkids.ca.
authors: Eyal
authors: E
authors: Cohen
mesh_terms: D001291:Attitude of Health Personnel; D002648:Child; D002662:Child Health Services; D006801:Humans; D033181:Information Dissemination; D033183:Interdisciplinary Communication; D008498:Medical Record Linkage; D010290:Parents / Q000523:psychology; D010347:Patient Care Planning; D010372:Pediatrics; D036301:Qualitative Research