title: ENCCA WP17-WP7 consensus paper on teenagers and young adults (TYA) with bone sarcomas.
abstract: Teenagers and young adults (TYA) cancer contributes substantially to morbidity and mortality in a population with much to offer society. TYA place distinct challenges upon cancer care services, many reporting feeling marginalized and their needs not being met in adult or paediatric cancer services. Bone tumours such as osteosarcoma and Ewing sarcoma, because of their age at presentation and the complexity of their care, are where challenges in managing (TYA) with cancer have often been most readily apparent. Bone sarcomas may be managed by paediatric or medical oncologists, and require fastidious attention to protocol. A lack of recent improvement in survival in TYA with bone tumours may be linked to a lack of specialist care, poor concordance with therapy in some situations and TYA-specific pharmacology. Participation in clinical trials, particularly of young adults, is low, hindering progress. All these requirements may be best met by a concerted effort to create collaborative care between adult and paediatric experts in bone sarcoma, working together to meet TYA patients' needs.
authors: Cooperative Osteosarcoma Study Group (COSS), Pediatrics 5 (Oncology, Hematology, Immunology), Klinikum-Stuttgart Olgahospital, Stuttgart coss@olgahospital-stuttgart.de.
authors: M
authors: M
authors: Wilhelm
authors: Cooperative Ewing Sarcoma Study Group, Pediatric Hematology and Oncology, Hospital Muenster, Westfalian Wilhelms University, Muenster, Germany.
authors: U
authors: U
authors: Dirksen
authors: Cooperative Osteosarcoma Study Group (COSS), Pediatrics 5 (Oncology, Hematology, Immunology), Klinikum-Stuttgart Olgahospital, Stuttgart.
authors: S S
authors: SS
authors: Bielack
authors: Teenage and Young Adult Unit, Department of Oncology, University College Hospital, London.
authors: J S
authors: JS
authors: Whelan
authors: Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
authors: I J
authors: IJ
authors: Lewis
authors: Cooperative Ewing Sarcoma Study Group, Pediatric Hematology and Oncology, Hospital Muenster, Westfalian Wilhelms University, Muenster, Germany.
authors: H
authors: H
authors: Jürgens
authors: Italian Sarcoma Group (ISG), Chemioterapia, Bone Tumor Center, Istituto Rizzoli, Bologna, Italy.
authors: S
authors: S
authors: Ferrari
authors: Scandinavian Sarcoma Group (SSG), Department of Oncology, Oslo University Hospital, Oslo, Norway.
authors: K
authors: K
authors: Sundby Hall
authors: Department of Pathology, Leiden University Medical Centre, Leiden, The Netherlands.
authors: A M
authors: AM
authors: Cleton-Jansen
authors: Department of Medical Oncology, St James's Institute of Oncology, St James's University Hospital Leeds, Leeds, UK.
authors: D
authors: D
authors: Stark
mesh_terms: D000293:Adolescent; D000328:Adult; D017668:Age of Onset; D001859:Bone Neoplasms / Q000453:epidemiology / Q000628:therapy; D006801:Humans; D012516:Osteosarcoma / Q000453:epidemiology / Q000628:therapy; D012512:Sarcoma, Ewing / Q000453:epidemiology / Q000628:therapy; D055815:Young Adult
keywords: Ewing sarcoma; adolescents and young adults (AYA); bone tumours; osteosarcoma; teenage and young adults (TYA)