title: Clinical perspective: Linking psychosocial care to the disease continuum in patients with multiple myeloma.
abstract: OBJECTIVE
  A model of psychosocial care specific for patients with multiple myeloma and their caregivers has not yet been proposed. We sought to develop a model of care that considers the specific profile of this disease.
  
  
  METHODS
  The authors, representing a multidisciplinary care team, met in December of 2012 to identify a model of psychosocial care for patients with multiple myeloma and their caregivers. This model was determined by consensus during the meeting and via total agreement following the meeting. The meeting was sponsored by Onyx Pharmaceuticals.
  
  
  RESULTS
  The need for targeted psychosocial care for the multiple myeloma patient and caregiver throughout the disease process is essential to ensure quality of life and optimal treatment outcomes. We propose herein the first known model of care for the treatment of multiple myeloma that engages both the patient and their caregivers.
  
  
  CONCLUSIONS
  Innovative partnerships between psychosocial providers and other entities such as pharmaceutical companies can maximize resources for comprehensive program development. This manuscript proposes a model of care that promotes active engagement in therapies for multiple myeloma while engaging the individual patient and their family caregivers. This treatment approach must be evidence based in terms of distress screening tools, comprehensive psychosocial assessments, and, most importantly, in the interventions and measurements of response that clinicians apply to this population.
authors: Life with Cancer,Inova Health System,Fairfax,Virginia.
authors: James
authors: J
authors: Zabora
authors: Cancer Support Community,Washington,DC.
authors: Joanne
authors: J
authors: Buzaglo
authors: Cancer Support Community,Washington,DC.
authors: Vicki
authors: V
authors: Kennedy
authors: MD Anderson Cancer Center,Houston,Texas.
authors: Tiffany
authors: T
authors: Richards
authors: University of Louisville School of Medicine,Louisville,Kentucky.
authors: Tara
authors: T
authors: Schapmire
authors: University of Michigan School of Social Work,Ann Arbor,Michigan.
authors: Brad
authors: B
authors: Zebrack
authors: Dana-Farber Cancer Institute, Harvard Medical School,Boston,Massachusetts.
authors: Irene M
authors: IM
authors: Ghobrial
mesh_terms: D017028:Caregivers / Q000523:psychology*; D006801:Humans; D009101:Multiple Myeloma / Q000523:psychology* / Q000628:therapy; D011584:Psychology / Q000379:methods* / Q000592:standards; D011613:Psychotherapy / Q000379:methods*; D011788:Quality of Life / Q000523:psychology*; D059039:Standard of Care
keywords: Distress; Multiple myeloma; Psychosocial care; Standard of care