title: Challenges to breastfeeding infants with phenylketonuria.
abstract: Breastfeeding duration for infants with phenylketonuria (PKU) is less than other full-term infants. However, no study has examined the challenges encountered by mothers' breastfeeding infants with PKU. In 75 mothers of a child with PKU, three categories of breastfeeding challenges were identified: common breastfeeding issues, breastfeeding and PKU, and no challenges. The common breastfeeding issues can be identified in the literature but for these mothers, the issues are heightened due to frequent phenylalanine (Phe) monitoring. Even so, many mothers adapt breastfeeding to maintain desired Phe levels. A few mothers had no issues and were the exception, not the norm.
authors: School of Nursing, University of Washington, Seattle, WA. Electronic address: bantas@u.washington.edu.
authors: Sandra A
authors: SA
authors: Banta-Wright
authors: School of Nursing, Oregon Health & Science University, Portland, OR.
authors: Sheila M
authors: SM
authors: Kodadek
authors: Marshfield Clinic Research Foundation, Marshfield, WI.
authors: Robert D
authors: RD
authors: Steiner
authors: School of Nursing, University of Washington, Seattle, WA.
authors: Gail M
authors: GM
authors: Houck
mesh_terms: D000328:Adult; D001942:Breast Feeding / Q000379:methods* / Q000706:statistics & numerical data; D002657:Child Development / Q000502:physiology*; D005069:Evaluation Studies as Topic; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases / Q000175:diagnosis*; D008297:Male; D008423:Maternal Age; D020380:Needs Assessment; D010661:Phenylketonurias / Q000175:diagnosis*; D012189:Retrospective Studies; D018570:Risk Assessment; D012494:Sampling Studies; D013997:Time Factors; D014481:United States; D055815:Young Adult
keywords: Breastfeeding; Challenges; Infant–Newborn; Phenylalanine; Phenylketonuria