title: Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review.
abstract: OBJECTIVE
  To critically appraise the measurement properties of questionnaires measuring participation in children and adolescents (0-18 years) with a disability.
  
  
  METHODS
  Bibliographic databases were searched for studies evaluating the measurement properties of self-report or parent-report questionnaires measuring participation in children and adolescents (0-18 years) with a disability. The methodological quality of the included studies and the results of the measurement properties were evaluated using a checklist developed on consensus-based standards.
  
  
  RESULTS
  The search strategy identified 3,977 unique publications, of which 22 were selected; these articles evaluated the development and measurement properties of eight different questionnaires. The Child and Adolescent Scale of Participation was evaluated most extensively, generally showing moderate positive results on content validity, internal consistency, reliability and construct validity. The remaining questionnaires also demonstrated positive results. However, at least 50 % of the measurement properties per questionnaire were not (or only poorly) assessed.
  
  
  CONCLUSIONS
  Studies of high methodological quality, using modern statistical methods, are needed to accurately assess the measurement properties of currently available questionnaires. Moreover, consensus is required on the definition of the construct 'participation' to determine content validity and to enable meaningful interpretation of outcomes.
authors: Department of Ophthalmology, EMGO + Institute for Health and Care Research, VU University Medical Centre, PO Box 7057, 1007 MB, Amsterdam, The Netherlands, l.rainey@vumc.nl.
authors: Linda
authors: L
authors: Rainey
authors: Ruth
authors: R
authors: van Nispen
authors: Carlijn
authors: C
authors: van der Zee
authors: Ger
authors: G
authors: van Rens
mesh_terms: D000293:Adolescent; D057189:Checklist; D002648:Child; D002675:Child, Preschool; D032921:Consensus; D006233:Persons with Disabilities / Q000534:rehabilitation*; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D010358:Patient Participation / Q000523:psychology*; D011788:Quality of Life; D015203:Reproducibility of Results; D012107:Research Design; D057566:Self Report; D011795:Surveys and Questionnaires