title: Shared decision-making among caregivers and health care providers of youth with type 1 diabetes.
abstract: The present study aimed to examine perceptions of shared decision-making (SDM) in caregivers of youth with type 1 diabetes (T1D). Interview, survey data, and HbA1c assays were gathered from caregivers of 439 youth with T1D aged 3-18 years. Caregiver-report indicated high perceived SDM during medical visits. Multivariable linear regression indicated that greater SDM is associated with lower HbA1c, older child age, and having a pediatric endocrinologist provider. Multiple logistic regression found that caregivers who did not perceive having made any healthcare decisions in the past year were more likely to identify a non-pediatric endocrinologist provider and to report less optimal diabetes self-care. Findings suggest that youth whose caregivers report greater SDM may show benefits in terms of self-care and glycemic control. Future research should examine the role of youth in SDM and how best to identify youth and families with low SDM in order to improve care.
authors: Center for Psychological Studies, Nova Southeastern University, 3301 College Ave., Fort Lauderdale, FL, 33314, USA, jv637@nova.edu.
authors: Jessica M
authors: JM
authors: Valenzuela
authors: Laura B
authors: LB
authors: Smith
authors: Jeanette M
authors: JM
authors: Stafford
authors: Ralph B
authors: RB
authors: D'Agostino
authors: Jean M
authors: JM
authors: Lawrence
authors: Joyce P
authors: JP
authors: Yi-Frazier
authors: Michael
authors: M
authors: Seid
authors: Lawrence M
authors: LM
authors: Dolan
mesh_terms: D000293:Adolescent; D000367:Age Factors; D017028:Caregivers / Q000523:psychology* / Q000706:statistics & numerical data; D002648:Child; D002675:Child, Preschool; D003142:Communication; D003657:Decision Making / Q000502:physiology*; D003922:Diabetes Mellitus, Type 1 / Q000523:psychology*; D005260:Female; D006282:Health Personnel / Q000523:psychology* / Q000706:statistics & numerical data; D006801:Humans; D008297:Male; D010358:Patient Participation / Q000523:psychology / Q000706:statistics & numerical data; D011368:Professional-Family Relations; D012648:Self Care / Q000523:psychology / Q000706:statistics & numerical data; D012959:Socioeconomic Factors