title: Use of human surplus biospecimens in research: a survey from a cancer centre.
abstract: Little is known about the public's views on the use of human biospecimens for research in the Eastern Mediterranean Region. A study at a cancer centre in Amman, Jordan, assessed patients' perceptions about the use of blood and tissue samples obtained during clinical care and the use of these in research. A self-administered questionnaire was distributed to a sample of 205 adult cancer patients. Almost all patients (98.0%) accepted the use of their surplus blood samples and archived tissue in research if they consented, with about one-third requesting a specific opt-in consent. Most patients (82.9%) also agreed to donate a blood sample for research purposes only, 84.9% were interested to know the results of that research, but with a specific opt-in consent, and 81.0% accepted sending their samples to research laboratories abroad, even without specific consent. Patients' views on the potential use of the surplus biospecimens in research were largely concordant with the international literature.
authors: Department of Pathology and Laboratory Medicine, King Hussein Cancer Centre, Amman, Jordan.
authors: M
authors: M
authors: Al-Hussaini
authors: Clinical Research and Cancer Registry Office, King Hussein Cancer Centre, Amman, Jordan.
authors: A
authors: A
authors: Abu-Hmaidan
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D035843:Biomedical Research / Q000941:ethics*; D002173:Cancer Care Facilities; D002755:Choice Behavior; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D007597:Jordan; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D011795:Surveys and Questionnaires; D014015:Tissue Banks / Q000941:ethics*