title: The feasibility and educational value of Hear My Voice, a chaplain-led spiritual life review process for patients with brain cancers and progressive neurologic conditions.
abstract: Research continues to establish the importance of spirituality for many persons with medical illnesses. This paper describes a pilot study titled, "Hear My Voice," designed to provide an opportunity for persons with progressive neurologic illnesses, including brain tumors and other neurodegenerative diseases, to review and discuss their spirituality with a board-certified chaplain, and to prepare a spiritual legacy document (SLD). First, we provide background information that underscores the importance of such a project for this patient population that is particularly vulnerable to cognitive impairment and communication difficulties. Second, we provide detailed methodology, including the semi-structured interview format used, the development of the SLD, and an overview of responses from participants and investigators. We also describe the quantitative and qualitative approaches to analysis taken with the aim of developing scientific validation in support of the Hear My Voice project.
authors: Department of Chaplain Services, Mayo Clinic, EI-2-130, 200 First St. SW, Rochester, MN, 55905, USA, piderman.katherine@mayo.edu.
authors: Katherine M
authors: KM
authors: Piderman
authors: Carmen Radecki
authors: CR
authors: Breitkopf
authors: Sarah M
authors: SM
authors: Jenkins
authors: Laura A
authors: LA
authors: Lovejoy
authors: Yvette M
authors: YM
authors: Dulohery
authors: Dean V
authors: DV
authors: Marek
authors: Heidi L
authors: HL
authors: Durland
authors: Debra L
authors: DL
authors: Head
authors: Spence W
authors: SW
authors: Swanson
authors: James T
authors: JT
authors: Hogg
authors: John L
authors: JL
authors: Evans
authors: Scott E
authors: SE
authors: Jorgenson
authors: Laura J
authors: LJ
authors: Bunkowski
authors: Karl L
authors: KL
authors: Jones
authors: Terin T
authors: TT
authors: Euerle
authors: Gracia M
authors: GM
authors: Kwete
authors: Keith A
authors: KA
authors: Miller
authors: Jacob R
authors: JR
authors: Morris
authors: Timothy J
authors: TJ
authors: Yoder
authors: Maria I
authors: MI
authors: Lapid
authors: Aminah
authors: A
authors: Jatoi
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001932:Brain Neoplasms / Q000473:pathology* / Q000517:prevention & control / Q000523:psychology*; D002977:Clergy; D005240:Feasibility Studies; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D010865:Pilot Projects; D011379:Prognosis; D011788:Quality of Life; D029181:Spirituality; D013315:Stress, Psychological; D011795:Surveys and Questionnaires