title: Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD.
abstract: In deciding on the treatment plan for patients with chronic obstructive pulmonary disease (COPD), the burden of COPD as experienced by patients should be the core focus. It is therefore important for daily practice to develop a tool that can both assess the burden of COPD and facilitate communication with patients in clinical practice. This paper describes the development of an integrated tool to assess the burden of COPD in daily practice. A definition of the burden of COPD was formulated by a Dutch expert team. Interviews showed that patients and health-care providers agreed on this definition. We found no existing instruments that fully measured burden of disease according to this definition. However, the Clinical COPD Questionnaire meets most requirements, and was therefore used and adapted. The adapted questionnaire is called the Assessment of Burden of COPD (ABC) scale. In addition, the ABC tool was developed, of which the ABC scale is the core part. The ABC tool is a computer program with an algorithm that visualises outcomes and provides treatment advice. The next step in the development of the tool is to test the validity and effectiveness of both the ABC scale and tool in daily practice.
authors.affiliation: CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands.
authors.forename: Annerika H M
authors.initials: AH
authors.lastname: Slok
authors.affiliation: Department of Pulmonology, Sint Franciscus Gasthuis, Rotterdam, The Netherlands.
authors.forename: Johannes C C M
authors.initials: JC
authors.lastname: in 't Veen
authors.affiliation: Department of Public Health and Primary Care, Leiden University Medical Centre, Leiden, The Netherlands.
authors.forename: Niels H
authors.initials: NH
authors.lastname: Chavannes
authors.affiliation: 1] Department of General Practice, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands [2] GRIAC Research Institute, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
authors.forename: Thys
authors.initials: T
authors.lastname: van der Molen
authors.affiliation: Institute for Health Policy and Management/Institute for Medical Technology Assessment, Erasmus University Rotterdam, Rotterdam, The Netherlands.
authors.forename: Maureen P M H
authors.initials: MP
authors.lastname: Rutten-van Mölken
authors.affiliation: Department of Pulmonary Diseases and Groningen Research Institute for Asthma and COPD (GRIAC), University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands.
authors.forename: Huib A M
authors.initials: HA
authors.lastname: Kerstjens
authors.affiliation: Huisartsenzorg IJsselstein, location 't Steyn, IJsselstein, The Netherlands.
authors.forename: Philippe L
authors.initials: PL
authors.lastname: Salomé
authors.affiliation: Lung Foundation Netherlands, Amersfoort, The Netherlands.
authors.forename: Sebastiaan
authors.initials: S
authors.lastname: Holverda
authors.affiliation: Department of Pulmonary Diseases, University Medical Centre Nijmegen, Nijmegen, The Netherlands.
authors.forename: P N Richard
authors.initials: PN
authors.lastname: Dekhuijzen
authors.affiliation: Department of Pulmonary Diseases, University Medical Centre Nijmegen, Nijmegen, The Netherlands.
authors.forename: Denise
authors.initials: D
authors.lastname: Schuiten
authors.affiliation: 1] CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands [2] PICASSO for COPD, Alkmaar, The Netherlands.
authors.forename: Guus M
authors.initials: GM
authors.lastname: Asijee
authors.affiliation: CAPHRI School for Public Health and Primary Care, Department of Family Medicine, Maastricht University, Maastricht, The Netherlands.
authors.forename: Onno C P
authors.initials: OC
authors.lastname: van Schayck
mesh_terms: D017281:Cost of Illness; D017144:Focus Groups; D006801:Humans; D007407:Interviews as Topic; D029424:Pulmonary Disease, Chronic Obstructive / Q000175:diagnosis*; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D064232:Visual Analog Scale