title: Ready, set, stop: mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents.
abstract: Health care transition (HCT) from pediatric to adult-focused systems is a key milestone for youth. Developing self-care skills and HCT planning are key elements. In a survey at 4 pediatric specialty clinics to 79 youth aged 16 to 25 years and 52 parents, skill-based HCT readiness was assessed using the Transition Readiness Assessment Questionnaire (TRAQ). Multivariable logistic regression evaluated the association between TRAQ scores and self-care beliefs. In all, 70% of youth and 67% of parents believed that they/their child could manage their care. Only 38% of youth and 53% of parents reported thinking about HCT; only 18% of youth and 27% of parents reported having a HCT plan. Youth with higher TRAQ scores were more likely to believe they could manage their care, controlling for age and gender (adjusted odds ratio = 4.0, 95% confidence interval = 1.7-9.5). Transition readiness skills are associated with self-care beliefs. However, a mismatch exists between high reported self-care beliefs and low levels of transition planning.
authors.affiliation: Boston Children's Hospital, Boston, MA, USA Harvard Medical School, Boston, MA, USA gregory.sawicki@childrens.harvard.edu.
authors.forename: Gregory S
authors.initials: GS
authors.lastname: Sawicki
authors.affiliation: Boston Children's Hospital, Boston, MA, USA.
authors.forename: Skyler
authors.initials: S
authors.lastname: Kelemen
authors.affiliation: Boston Children's Hospital, Boston, MA, USA Harvard Medical School, Boston, MA, USA.
authors.forename: Elissa R
authors.initials: ER
authors.lastname: Weitzman
mesh_terms: D000293:Adolescent; D000328:Adult; D001900:Boston; D002908:Chronic Disease; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D020380:Needs Assessment / Q000706:statistics & numerical data*; D010290:Parents; D012648:Self Care / Q000379:methods* / Q000706:statistics & numerical data*; D011795:Surveys and Questionnaires; D060305:Transition to Adult Care / Q000706:statistics & numerical data*; D055815:Young Adult
keywords: adolescent; health care transition