title: Family-focused children's end of life care in hospital and at home.
abstract: An increasing number of children and young people require end of life care, and providing them and their families with optimum support at this time is crucial. This article describes how nurses working with children and families in home, hospital and community settings used the principles of practice development methodology to develop end of life care provision and follow-up bereavement support. It outlines the 'ways of knowing' that informed developments and how parents' priorities were kept central to the process. Finally, it discusses how the approach taken to practice development reflected the value of compassion in nursing practice.
authors.affiliation: Poole NHS Foundation Trust.
authors.forename: Helen
authors.initials: H
authors.lastname: Parker
authors.forename: Mairead
authors.initials: M
authors.lastname: Farrell
authors.forename: Allison
authors.initials: A
authors.lastname: Ryder
authors.forename: Karen
authors.initials: K
authors.lastname: Fernley
authors.forename: Chantel
authors.initials: C
authors.lastname: Cox
authors.forename: Helen
authors.initials: H
authors.lastname: Farasat
authors.forename: Jaqui
authors.initials: J
authors.lastname: Hewitt-Taylor
mesh_terms: D001601:Bereavement; D002648:Child; D005190:Family; D006699:Home Care Services; D006760:Hospitalization; D006801:Humans; D018802:Patient-Centered Care; D013727:Terminal Care / Q000458:organization & administration*; D006113:United Kingdom
keywords: Bereavement support; end of life care; palliative care