title: When a child dies: parents' experiences of palliative care-an integrative literature review.
abstract: The aim of this integrative review was to increase knowledge about parents' experiences of palliative care when their child is dying or has died due to illness using Whittemore and Knafl (2005) analysis process. Computerized databases were used to search the literature. Nine papers met the inclusion criteria. The analysis resulted in five categories: genuine communication, sincere relationships, respect as an expert, and alleviation of suffering and need of support, including 15 subcategories. Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further studies need to be performed.
authors.affiliation: Department of Nursing Sciences, Mid Sweden University, Studiegången 1, Östersund, Sweden. Electronic address: titti.melin-johansson@miun.se.
authors.forename: Christina
authors.initials: C
authors.lastname: Melin-Johansson
authors.affiliation: Department of Nursing Sciences, Mid Sweden University, Studiegången 1, Östersund, Sweden; Child and Adolescent Medicine, Östersund hospital, Kyrkgatan 16, Östersund, Sweden.
authors.forename: Inge
authors.initials: I
authors.lastname: Axelsson
authors.affiliation: Child and Adolescent Medicine, Östersund hospital, Kyrkgatan 16, Östersund, Sweden.
authors.forename: Marie
authors.initials: M
authors.lastname: Jonsson Grundberg
authors.affiliation: Child and Adolescent Medicine, Östersund hospital, Kyrkgatan 16, Östersund, Sweden.
authors.forename: Frida
authors.initials: F
authors.lastname: Hallqvist
mesh_terms: D001293:Attitude to Death; D002648:Child; D003142:Communication; D005260:Female; D006801:Humans; D008297:Male; D010166:Palliative Care; D010290:Parents / Q000523:psychology*; D013315:Stress, Psychological / Q000517:prevention & control
keywords: Communication; Family; Literature review; Palliative care; Pediatrics; Support