title: A lesson in participatory research for a rare mutation of cystic fibrosis.
authors.affiliation: University of Pennsylvania, 1006 Blockley Hall, 423 Guardian Drive, Philadelphia, PA, 19104, USA, emilykg@upenn.edu.
authors.forename: Emily
authors.initials: E
authors.lastname: Kramer-Golinkoff
mesh_terms: D035843:Biomedical Research / Q000458:organization & administration*; D055812:Community-Based Participatory Research / Q000458:organization & administration*; D003550:Cystic Fibrosis / Q000188:drug therapy* / Q000235:genetics*; D006801:Humans; D009154:Mutation; D010358:Patient Participation