title: Usability testing of an online self-management program for adolescents with cancer.
abstract: The objective of this study was to explore the usability of a bilingual (English and French) Internet-based self-management program for adolescents with cancer and their parents and refine the Internet program. A qualitative study design with semistructured, audio-taped interviews and observation was undertaken with 4 iterative cycles. A purposive sample of English-speaking and French-speaking adolescents with cancer and one of their parents/caregivers was recruited. Adolescents and parents provided similar feedback on how to improve the usability of the Internet program. Most changes to the website were completed after the initial cycles of English and French testing. Both groups also found information presented on the website to be appropriate, credible, and relevant to their experiences of going through cancer. Participants reported the program would have been extremely helpful when they were first diagnosed with cancer. Usability testing uncovered some issues that affected the usability of the website that led to refinements in the online program.
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada jennifer.stinson@sickkids.ca.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Stinson
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Abha
authors.initials: A
authors.lastname: Gupta
authors.affiliation: University of Montreal, Montreal, Quebec, Canada.
authors.forename: France
authors.initials: F
authors.lastname: Dupuis
authors.affiliation: University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Bruce
authors.initials: B
authors.lastname: Dick
authors.affiliation: University of Montreal, Montreal, Quebec, Canada.
authors.forename: Caroline
authors.initials: C
authors.lastname: Laverdière
authors.affiliation: University of Montreal, Montreal, Quebec, Canada.
authors.forename: Sylvie
authors.initials: S
authors.lastname: LeMay
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Lillian
authors.initials: L
authors.lastname: Sung
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Dettmer
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Stephanie
authors.initials: S
authors.lastname: Gomer
authors.affiliation: CHU Sainte-Justine, Montreal, Quebec, Canada.
authors.forename: Janie
authors.initials: J
authors.lastname: Lober
authors.affiliation: The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Carol Y
authors.initials: CY
authors.lastname: Chan
mesh_terms: D000293:Adolescent; D000328:Adult; D002170:Canada; D017028:Caregivers / Q000193:education*; D002648:Child; D003194:Computer-Assisted Instruction / Q000379:methods*; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000628:therapy*; D010290:Parents / Q000193:education*; D010353:Patient Education as Topic / Q000379:methods*; D036301:Qualitative Research; D012648:Self Care / Q000379:methods*
keywords: Internet; adolescent; patient education; pediatric cancer; self-management