title: [The role of family carers of people with dementia in the assessment of need on the example of the CarenapD study].
abstract: Need driven dementia care at home requires the use of needs assessments like CarenapD. The CarenapD Manual states that the person with dementia (PwD) and caregivers (CA) should be included in the assessment process. In a pre-post study CarenapD has been applied in PwD (n = 55) and CA (n = 49) by professional staff (n = 15), CA were much more involved than PwD. Needs in PwD in T0 and T1 showed frequently functional needs(50 %), no need were frequently found in dementia-specific needs (42 %) and frequently unmet need was present in social needs (35 %). Burden-related needs in CA were reduced from T0 to T1 in daily difficulties (-14 %), support (-20 %) and breaks from caring (-9 %).This secondary analysis compares the need results of PwD and CA to discuss the unequal involvement of clients. In this secondary analysis needs data of PwD and CA is included. Need in PwD at T0 and T1 showed frequently met functional need (50 %), frequently no need in dementia specific needs (42 %) and high unmet need in social needs (35 %). Burden in CA could be reduced from T0 to T1 in Daily Difficulties (-14 %), Support (-20 %) and Breaks from Caring (9 %). Compared to the literature it is remarkable that a high rate in no need was found in dementia specific needs. Needs of CA show congruent results, it seems to have come to relief of burden in CA. Lack of knowledge and shame in CA as well as the continuous presence of both clients within the assessment process may have caused that dementia-specific needs were not enough addressed. PwD and CA should be actively involved in the assessment process and should contribute their individual point of view, as stated in the CarenapD Manual.
authors.affiliation: Deutsches Zentrum für Neurodegenerative Erkrankungen, Standort Witten und Universität Witten/Herdecke, Fakultät für Gesundheit, Departement für Pflegewissenschaft.
authors.forename: Christine
authors.initials: C
authors.lastname: Riesner
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000544:Alzheimer Disease / Q000451:nursing* / Q000523:psychology; D017028:Caregivers / Q000193:education* / Q000523:psychology; D003299:Cooperative Behavior; D017281:Cost of Illness; D022143:Family Nursing; D005195:Family Relations; D005260:Female; D005500:Follow-Up Studies; D005858:Germany; D006701:Home Nursing / Q000193:education* / Q000523:psychology; D006801:Humans; D033183:Interdisciplinary Communication; D008297:Male; D008370:Manuals as Topic; D008875:Middle Aged; D020380:Needs Assessment; D009730:Nursing Assessment / Q000458:organization & administration; D012944:Social Support; D013315:Stress, Psychological / Q000523:psychology
keywords: Bedarfserfassung; Dementia; Demenz; Familie mit Demenz; Family Carer; Family with Dementia; Need Assessment; pflegende Angehörige