title: Caregivers' management of schooling for their children with fetal alcohol spectrum disorder.
abstract: In this article we describe a grounded theory study of how caregivers of school-aged children with fetal alcohol spectrum disorder (FASD) managed their children's schooling. We completed 30 interviews with 17 caregivers residing in a western Canadian province, as well as document analysis and 25 hours of participant observation. We used constant comparative analysis to construct our substantive theory: intertwining to fit in. The core variable is an iterative cycle caregivers used to resolve their main concerns: preventing their children from failing academically and in social interactions and preventing themselves from being regarded as unacceptable parents. To intertwine to fit in, caregivers used two strategies: orchestrating schooling and keeping up appearances. They also regulated their relationships with their children. "Intertwining to fit in" contributes to the literature on attachment and parenting and extends explanations about caregivers' advocacy for their children with FASD. The theory has implications for school personnel and practitioners, as well as researchers.
authors: University of British Columbia, Vancouver, British Columbia, Canada suretha@mail.ubc.ca.
authors: Suretha
authors: S
authors: Swart
authors: University of British Columbia, Vancouver, British Columbia, Canada.
authors: Wendy A
authors: WA
authors: Hall
authors: University of British Columbia, Vancouver, British Columbia, Canada.
authors: William T
authors: WT
authors: McKee
authors: University of British Columbia, Vancouver, British Columbia, Canada.
authors: Laurie
authors: L
authors: Ford
mesh_terms: D002648:Child; D004493:Education; D063647:Fetal Alcohol Spectrum Disorders / Q000523:psychology*; D066296:Grounded Theory; D006801:Humans; D007407:Interviews as Topic; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research
keywords: caregivers / caregiving; children, disability; grounded theory; parenting; symbolic interactionism