title: Life Experiences of People Affected by Crohn's Disease and Their Support Networks: Scoping Review.
abstract: This scoping review identifies and describes relevant studies related to the evidence published on life experiences and perceived social support of people affected by Crohn's disease. Twenty-three studies were definitely selected and analyzed for the topics explored. The overall findings show patients' needs and perceptions. There is a lack of evidence about patients' perceived needs as well as the understanding of social support that has contributed to improve their life experiences with that chronic illness. Lack of energy, loss of body control, body image damaged due to different treatments and surgeries, symptoms related to fear of disease, feeling burdened loss related to independence, and so on are some of the concerns with having to live with those affected by the Crohn. To underline those experiences through this scoping review provides valuable data for health care teams, especially for the nursing profession, considered by those affected as one of the main roles along the whole pathological process. This review provides the basis for developing broader research on the relatively underexplored topics and consequently improves specific programs that could address patients' needs.
authors: University of Alicante, Spain sofia.garcia@ua.es.
authors: Sofía
authors: S
authors: García-Sanjuán
authors: University of Alicante, Spain.
authors: Manuel
authors: M
authors: Lillo-Crespo
authors: University of Alicante, Spain.
authors: Ángela
authors: Á
authors: Sanjuán-Quiles
authors: University of Alicante, Spain CIBER Epidemiología y Salud Pública (CIBERESP), Spain.
authors: Diana
authors: D
authors: Gil-González
authors: University of Alicante, Spain.
authors: Miguel
authors: M
authors: Richart-Martínez
mesh_terms: D002908:Chronic Disease / Q000523:psychology; D003424:Crohn Disease / Q000523:psychology*; D006801:Humans; D008016:Life Change Events; D024802:Nurse's Role / Q000523:psychology; D012944:Social Support; D011795:Surveys and Questionnaires
keywords: Crohn’s disease; inflammatory bowel disease; life experience; meaning; nurse specialist; scoping review; social support