title: Parent-mediated intervention: adherence and adverse effects.
abstract: OBJECTIVE
  The purpose of this study was to investigate parent implementation of home-based therapy regimens, and the relationship between implementation and family-level outcomes.
  
  
  METHODS
  A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the Family Life Survey, which incorporated child and family measures, and items measuring parent implementation of home-based therapy regimens.
  
  
  RESULTS
  Parents are more likely to implement therapeutic regimens when these are "enfolded" into other daily activities and routines. If parents have to "find a slot" in the daily routine to implement therapy, they will sacrifice personal leisure, participation in paid work, and time spent with other family members. Greater parent sacrifices/trade-offs was negatively associated with family well-being.
  
  
  CONCLUSIONS
  As a general rule, children do well when their families do well, and families do well when they have the resources they need to juggle work and family and care demands. Recruiting parents as interventionists can tax family resources. Rehabilitation professionals must weigh up the pros and cons of parent-mediated intervention, and look to enfolding therapy into the everyday family routine.
authors: Family and Disability Studies Initiative, Rehabilitation Medicine, University of Alberta , Alberta , Canada and.
authors: David
authors: D
authors: McConnell
authors: Miriam
authors: M
authors: Parakkal
authors: Amber
authors: A
authors: Savage
authors: Gwendolyn
authors: G
authors: Rempel
mesh_terms: D000293:Adolescent; D000328:Adult; D000416:Alberta; D002648:Child; D002675:Child, Preschool; D004185:Disability Evaluation; D006233:Persons with Disabilities / Q000534:rehabilitation*; D005190:Family; D005191:Family Characteristics; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D010287:Parent-Child Relations; D010290:Parents; D010349:Patient Compliance; D012944:Social Support
keywords: Developmental disability; family-centered care; home programs; parent; therapy