title: Update on the challenges facing the adult with congenital heart disease community: for both the patient and provider.
abstract: OBJECTIVE
  The success in the management of congenital heart disease has resulted in a growing population now expected to reach adulthood. The declining mortality during childhood results in adults with decades of cardiovascular disease burden. The purpose of this review is to provide an update on some of the common issues encountered when caring for the adult with congenital heart disease through a review of recently published articles.
  
  
  RESULTS
  This review focuses on addressing the lack of information, gaps in clinical care, single ventricle complications, and heart failure in the adults with congenital heart disease population.
  
  
  CONCLUSIONS
  The advancing age of the congenital heart population comes with a substantial life cardiovascular risk. Despite this, they typically experience and report a good quality of life. Providing care to adults with congenital heart disease requires a comprehensive team to address the many complications that are known to arise. This comprehensive team should be available to all.
authors.affiliation: Thomas P. Graham Jr. Division of Pediatric Cardiology, the Division of Cardiovascular Medicine, and the Vanderbilt Heart and Vascular Institute, Vanderbilt University School of Medicine, Nashville, Tennessee, USA.
authors.forename: Larry W
authors.initials: LW
authors.lastname: Markham
mesh_terms: D000328:Adult; D002300:Cardiac Care Facilities / Q000458:organization & administration*; D055317:Evidence-Based Practice / Q000458:organization & administration*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006297:Health Services Accessibility / Q000458:organization & administration*; D006301:Health Services Needs and Demand; D006330:Heart Defects, Congenital / Q000150:complications / Q000453:epidemiology* / Q000523:psychology; D006333:Heart Failure / Q000517:prevention & control* / Q000523:psychology; D006801:Humans; D007348:Insurance, Health / Q000706:statistics & numerical data; D008297:Male; D015337:Multicenter Studies as Topic; D017410:Practice Guidelines as Topic; D011247:Pregnancy; D011249:Pregnancy Complications, Cardiovascular / Q000453:epidemiology* / Q000523:psychology; D011788:Quality of Life; D012307:Risk Factors; D060305:Transition to Adult Care / Q000458:organization & administration; D014481:United States / Q000453:epidemiology