title: A comparison of a centralized versus de-centralized recruitment schema in two community-based participatory research studies for cancer prevention.
abstract: Use of community-based participatory research (CBPR) approaches is increasing with the goal of making more meaningful and impactful advances in eliminating cancer-related health disparities. While many reports have espoused its advantages, few investigations have focused on comparing CBPR-oriented recruitment and retention. Consequently, the purpose of this analysis was to report and compare two different CBPR approaches in two cancer prevention studies. We utilized frequencies and Chi-squared tests to compare and contrast subject recruitment and retention for two studies that incorporated a randomized, controlled intervention design of a dietary and physical activity intervention among African Americans (AA). One study utilized a de-centralized approach to recruitment in which primary responsibility for recruitment was assigned to the general AA community of various church partners whereas the other incorporated a centralized approach to recruitment in which a single lay community individual was hired as research personnel to lead recruitment and intervention delivery. Both studies performed equally well for both recruitment and retention (75 and 88 % recruitment rates and 71 and 66 % retention rates) far exceeding those rates traditionally cited for cancer clinical trials (~5 %). The de-centralized approach to retention appeared to result in statistically greater retention for the control participants compared to the centralized approach (77 vs. 51 %, p < 0.01). Consequently, both CBPR approaches appeared to greatly enhance recruitment and retention rates of AA populations. We further note lessons learned and challenges to consider for future research opportunities.
authors.affiliation: College of Nursing, University of South Carolina, Columbia, SC, 29208, USA, swann.adams@sc.edu.
authors.forename: Swann Arp
authors.initials: SA
authors.lastname: Adams
authors.forename: Sue P
authors.initials: SP
authors.lastname: Heiney
authors.forename: Heather M
authors.initials: HM
authors.lastname: Brandt
authors.forename: Michael D
authors.initials: MD
authors.lastname: Wirth
authors.forename: Samira
authors.initials: S
authors.lastname: Khan
authors.forename: Hiluv
authors.initials: H
authors.lastname: Johnson
authors.forename: Lisa
authors.initials: L
authors.lastname: Davis
authors.forename: Cassandra M
authors.initials: CM
authors.lastname: Wineglass
authors.forename: Tatiana Y
authors.initials: TY
authors.lastname: Warren-Jones
authors.forename: Tisha M
authors.initials: TM
authors.lastname: Felder
authors.forename: Ruby F
authors.initials: RF
authors.lastname: Drayton
authors.forename: Briana
authors.initials: B
authors.lastname: Davis
authors.forename: Deeonna E
authors.initials: DE
authors.lastname: Farr
authors.forename: James R
authors.initials: JR
authors.lastname: Hébert
mesh_terms: D000328:Adult; D001741:Black or African American; D055812:Community-Based Participatory Research / Q000379:methods*; D004032:Diet; D015444:Exercise; D005260:Female; D006266:Health Education / Q000458:organization & administration; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000208:ethnology* / Q000517:prevention & control*; D018579:Patient Selection; D016032:Randomized Controlled Trials as Topic; D012107:Research Design
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