title: Experiences of dementia in a foreign country: qualitative content analysis of interviews with people with dementia.
abstract: BACKGROUND
  Dementia is a worldwide health concern of epidemic proportions. Research in the field of subjective experience of dementia suffers from a lack of diversity of their participants including immigrants. Different portraits of life with dementia could help us understand how people with dementia conceptualise their experiences of dementia and how they live. Our study aimed to explore the subjective experiences of living with dementia among Iranian immigrants in Sweden.
  
  
  METHODS
  Qualitative content analysis of interviews with fifteen people with dementia from Iranian immigrant backgrounds were conducted (8 females and 7 males).
  
  
  RESULTS
  Three themes and seven associated sub-themes were revealed. The themes included: Being a person with dementia means living with forgetfulness (personal sphere), living with forgetfulness in the private sphere means feeling incompetent but still loved, living with forgetfulness in the public sphere means feeling confident and secure but also isolated.
  
  
  CONCLUSIONS
  Living with dementia for the participants meant living with forgetfulness. They experienced feeling incompetent but still loved within their families and feeling confident and secure but also isolated in the society. Educating people with dementia and their families about the course and process of dementia may help them understand the changes better and adjust their expectations. Our study can provide a basis for healthcare workers to understand the experiences of living with dementia from this specific perspective.
authors.affiliation: School of Health, Care and Social Welfare, Mälardalen University, Box 325, 631 05, Eskilstuna, Sweden. monir.mazaheri@mdh.se.
authors.forename: Monir
authors.initials: M
authors.lastname: Mazaheri
authors.forename: Lars E
authors.initials: LE
authors.lastname: Eriksson
authors.forename: Alireza Nikbakht
authors.initials: AN
authors.lastname: Nasrabadi
authors.forename: Helena
authors.initials: H
authors.lastname: Sunvisson
authors.forename: Kristiina
authors.initials: K
authors.lastname: Heikkilä
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003704:Dementia / Q000523:psychology*; D054242:Emigrants and Immigrants / Q000523:psychology*; D005260:Female; D006801:Humans; D007492:Iran / Q000208:ethnology; D008297:Male; D011788:Quality of Life; D011795:Surveys and Questionnaires; D013548:Sweden
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