title: International confederation for cleft lip and palate and related craniofacial anomalies task force report: holistic outcomes.
abstract: Objective : This paper describes the process and outcomes of the 2013 American Cleft Palate-Craniofacial Association task force on Holistic Outcomes. The goals and membership of the task force are presented. Methods : Using internet communication, the group introduced themselves, shared ideas and information related to holistic assessment and implementation of using a validated holistic measure, the Child Oral Health Impact Profile (COHIP) at participating international sites. Results : Data from the sites were analyzed using descriptive statistics. Administration of the COHIP was successful. It varied from self-completion as well as verbal presentation due to language differences and a function of the short time period to complete collection. Additionally qualitative comments were reported by the task force site directors. Conclusions : Future directions for holistic assessment and communication among task force members and sites were discussed at the Congress and are presented in this report.
authors.forename: Hillary L
authors.initials: HL
authors.lastname: Broder
mesh_terms: D026683:Advisory Committees; D002971:Cleft Lip / Q000523:psychology / Q000628:therapy*; D002972:Cleft Palate / Q000523:psychology / Q000628:therapy*; D003226:Congresses as Topic; D019465:Craniofacial Abnormalities / Q000523:psychology / Q000628:therapy; D006694:Holistic Health; D006801:Humans; D038622:Internationality; D009937:Organizational Objectives; D011788:Quality of Life; D018434:Sickness Impact Profile