title: Soliciting views of various communities on health research: a prelude to engagement in specific research projects.
abstract: BACKGROUND
  Members of the public are increasingly engaged in health-service and biomedical research and provide input into the content of research, design and data sharing. As there is variation among different communities on how research is perceived, to engage all sectors of the general public research institutions need to customize their approach.
  
  
  OBJECTIVE
  This paper explores how research institutions and community leaders can partner to determine the best ways to engage different sectors of the public in research.
  
  
  METHODS
  Following a literature review, a research institution engaged with four different sectors of the public through their respective representative community-based organizations (CBOs) by interviews with leaders, community member focus groups and a joint project.
  
  
  METHODS
  San Diego and Imperial Counties, California, United States of America (USA).
  
  
  CONCLUSIONS
  Before embarking on more specific research projects, investigators can gain valuable insights about different communities' attitudes to, and understanding of, health services and biomedical research by interacting directly with members of the community, collaborating with community leaders, and jointly identifying steps of engagement tailored to the community.
authors.affiliation: Clinical & Translational Research Institute, University of California-San Diego, La Jolla, CA, USA.
authors.forename: Howard L
authors.initials: HL
authors.lastname: Taras
authors.affiliation: Research Ethics Program, University of California-San Diego, La Jolla, CA, USA.
authors.forename: Michael W
authors.initials: MW
authors.lastname: Kalichman
authors.affiliation: Research & Development, VA San Diego Healthcare System, Department of Anesthesiology, University of California-San Diego, La Jolla, CA, USA.
authors.forename: Gery
authors.initials: G
authors.lastname: Schulteis
authors.affiliation: Clinical & Translational Research Institute, University of California-San Diego, La Jolla, CA, USA.
authors.forename: Jill
authors.initials: J
authors.lastname: Dumbauld
authors.affiliation: Clinicas de Salud del Pueblo, Inc., Brawley, CA, USA.
authors.forename: Yvonne
authors.initials: Y
authors.lastname: Bell
authors.affiliation: Operation Samahan, Inc, San Diego, CA, USA.
authors.forename: Fe Fidelis
authors.initials: FF
authors.lastname: Seligman
authors.affiliation: Epilepsy Foundation of San Diego County, San Diego, CA, USA.
authors.forename: Kathy D
authors.initials: KD
authors.lastname: West
mesh_terms: D002140:California; D003256:Community Participation / Q000379:methods; D017144:Focus Groups; D006302:Health Services Research; D006801:Humans; D007407:Interviews as Topic
keywords: biomedical; community; community based organization; public; research
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