title: Validation of the Holistic Comfort Questionnaire-caregiver in Portuguese-Brazil in a cohort of informal caregivers of palliative care cancer patients.
abstract: OBJECTIVE
  The aims of this study were to perform a cross-cultural adaptation and to assess the psychometric properties of the Portuguese (Brazil) version of the Holistic Comfort Questionnaire-caregiver (HCQ-caregiver) in a sample of family caregivers (FCs) of palliative care (PC) cancer patients.
  
  
  METHODS
  The HCQ-caregiver was applied by a trained interviewer to a sample of 150 FCs of PC patients with advanced cancer; 50 participants were subjected to a retest 2 to 7 days after the initial test. The mean score, ceiling and floor effects, and skewness of each HCQ-caregiver item were measured. The instrument's internal consistency was assessed by means of Cronbach's alpha, and the test-retest reliability was assessed using the intraclass correlation coefficient (ICC). The convergent validity was assessed through the correlation between HCQ-caregiver and quality of life scores. Scores on the HCQ-caregiver were compared (discriminant validity) as a function of treatment setting and FC's self-perception of emotional health.
  
  
  RESULTS
  A ceiling effect was found in 19 items, four of which exhibited maximum response rates above 90 % and inadequate results regarding skewness. Cronbach's alpha was 0.858, and the ICC was 0.961. The scores on the HCQ-caregiver exhibited moderate-to-strong correlations with the scores of quality of life. The FCs' perceptions of comfort did not differ as a function of the treatment setting but were greater when the FCs had a better self-perception of their emotional health.
  
  
  CONCLUSIONS
  The present study demonstrates the validity and reliability of the Brazilian version of the HCQ-caregiver.
authors.affiliation: Oncology Graduate Program, Cancer Hospital of Barretos, Barretos, São Paulo, Brazil, bsrpaiva@gmail.com.
authors.forename: Bianca Sakamoto Ribeiro
authors.initials: BS
authors.lastname: Paiva
authors.forename: André Lopes
authors.initials: AL
authors.lastname: de Carvalho
authors.forename: Katharine
authors.initials: K
authors.lastname: Kolcaba
authors.forename: Carlos Eduardo
authors.initials: CE
authors.lastname: Paiva
mesh_terms: D000328:Adult; D000368:Aged; D001938:Brazil; D017028:Caregivers / Q000523:psychology*; D015331:Cohort Studies; D003430:Cross-Sectional Studies; D004644:Emotions; D005006:Ethnicity; D005260:Female; D006801:Humans; D008297:Male; D008603:Mental Health; D008875:Middle Aged; D009369:Neoplasms / Q000628:therapy*; D010166:Palliative Care / Q000523:psychology*; D010465:Perception; D011594:Psychometrics / Q000379:methods*; D011788:Quality of Life; D012067:Religion; D015203:Reproducibility of Results; D012649:Self Concept; D011795:Surveys and Questionnaires; D055815:Young Adult
references.citation: Am J Nurs. 2000 Sep;100(9):34-7; quiz 38
references.pmid: 11002789
references.citation: J Pain Symptom Manage. 2009 Jan;37(1):13-22
references.pmid: 18676119
references.citation: Am J Hosp Palliat Care. 2001 May-Jun;18(3):170-80
references.pmid: 11406893
references.citation: Eur J Cancer. 2012 Apr;48(6):904-11
references.pmid: 22033328
references.citation: Qual Life Res. 2005 Mar;14(2):561-4
references.pmid: 15892446
references.citation: Phys Ther. 2012 Mar;92(3):388-97
references.pmid: 22114200
references.citation: Rev Esc Enferm USP. 2014 Apr;48(2):278-84
references.pmid: 24918887
references.citation: J Clin Epidemiol. 2007 Jan;60(1):34-42
references.pmid: 17161752
references.citation: Soc Sci Med. 2006 Mar;62(6):1486-97
references.pmid: 16168541
references.citation: J Pain Symptom Manage. 2009 Jan;37(1):3-12
references.pmid: 18538977
references.citation: Support Care Cancer. 2010 Feb;18(2):255-63
references.pmid: 19609571
references.citation: Image J Nurs Sch. 1991 Winter;23(4):237-40
references.pmid: 1937522
references.citation: BMC Med Res Methodol. 2014 Jan 21;14:8
references.pmid: 24447633
references.citation: Qual Life Res. 2002 May;11(3):193-205
references.pmid: 12074258
references.citation: Int Psychogeriatr. 2007 Aug;19(4):635-46
references.pmid: 16870036
references.citation: J Adv Nurs. 1994 Jun;19(6):1178-84
references.pmid: 7930099
references.citation: Rev Saude Publica. 2011 Feb;45(1):153-65
references.pmid: 21181054
references.citation: Cancer Nurs. 2014 Sep-Oct;37(5):391-400
references.pmid: 24172755