title: Refinement of the symptom screening in pediatrics tool (SSPedi).
abstract: BACKGROUND
  Objective was to evaluate and refine a new instrument for paediatric cancer symptom screening named the Symptom Screening in Pediatrics Tool (SSPedi).
  
  
  METHODS
  Respondents were children 8-18 years of age undergoing active cancer treatment and parents of eligible children. Respondents completed SSPedi once and then responded to semi-structured questions. They rated how easy or difficult SSPedi was to complete. For items containing two concepts, we asked respondents whether concepts should remain together or be separated into two questions. We also asked about each item's importance and whether items were missing. Cognitive probing was conducted in children to evaluate their understanding of items and the response scale. After each group of 10 children and 10 parents, responses were reviewed to determine whether modifications were required. Recruitment ceased with the first group of 10 children in which modifications were not required.
  
  
  RESULTS
  Thirty children and 20 parents were required to achieve a final version of SSPedi. Fifteen items remain in the final version; the score ranges from 0 to 60.
  
  
  CONCLUSIONS
  Using opinions of children with cancer and parents of paediatric cancer patients, we successfully developed a symptom screening tool that is easy to complete, is understandable and demonstrates content validity.
authors.affiliation: Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario M5G 0A4, Canada.
authors.forename: C
authors.initials: C
authors.lastname: O'Sullivan
authors.affiliation: 1] Division of Haematology/Oncology, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada [2] Department of Pharmacy, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada [3] Leslie Dan Faculty of Pharmacy, University of Toronto, 144 College Street, Toronto, Ontario M5S 3M2, Canada.
authors.forename: L L
authors.initials: LL
authors.lastname: Dupuis
authors.affiliation: Division of Haematology/Oncology, Department of Pediatrics, London Health Sciences Centre, 800 Commissioners Road East, London, Ontario N6A 5W9, Canada.
authors.forename: P
authors.initials: P
authors.lastname: Gibson
authors.affiliation: Division of Hematology/Oncology, Children's Hospital of Eastern Ontario, 401 Smyth Road, Ottawa, Ontario K1H 8L1, Canada.
authors.forename: D L
authors.initials: DL
authors.lastname: Johnston
authors.affiliation: School of Nursing, UCSF Medical Center, Parnassus, 2 Koret Way, San Francisco, California 94143, USA.
authors.forename: C
authors.initials: C
authors.lastname: Baggott
authors.affiliation: Division of Haematology/Oncology, McMaster Children's Hospital, Health Sciences Centre, 1280 Main Street West, Hamilton, Ontario L8S 4K1, Canada.
authors.forename: C
authors.initials: C
authors.lastname: Portwine
authors.affiliation: Department of Psychology, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada.
authors.forename: B
authors.initials: B
authors.lastname: Spiegler
authors.affiliation: Ontario Parents Advocating for Children With Cancer (OPACC), 99 Citation Drive, Toronto, Ontario M2K 1S9, Canada.
authors.forename: S
authors.initials: S
authors.lastname: Kuczynski
authors.affiliation: Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario M5G 0A4, Canada.
authors.forename: D
authors.initials: D
authors.lastname: Tomlinson
authors.affiliation: Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario M5G 0A4, Canada.
authors.forename: S
authors.initials: S
authors.lastname: de Mol Van Otterloo
authors.affiliation: Department of Medicine, Toronto General Hospital, 200 Elizabeth Street, Toronto, Ontario M5G 2C4, Canada.
authors.forename: G A
authors.initials: GA
authors.lastname: Tomlinson
authors.affiliation: 1] Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario M5G 0A4, Canada [2] Division of Haematology/Oncology, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada.
authors.forename: L
authors.initials: L
authors.lastname: Sung
mesh_terms: D000293:Adolescent; D000970:Antineoplastic Agents / Q000009:adverse effects* / Q000627:therapeutic use; D001007:Anxiety / Q000139:chemically induced / Q000175:diagnosis; D002648:Child; D005260:Female; D006801:Humans; D008297:Male; D009325:Nausea / Q000139:chemically induced / Q000175:diagnosis; D009369:Neoplasms / Q000188:drug therapy* / Q000473:pathology; D010146:Pain / Q000139:chemically induced / Q000175:diagnosis; D057566:Self Report
chemical_list: D000970:Antineoplastic Agents
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