title: Factors associated with non-treatment or delayed treatment seeking in OCD sufferers: a review of the literature.
abstract: Obsessive-compulsive disorder (OCD) is a disabling disorder that can be successfully treated. However, a high percentage of sufferers neither ask for nor receive treatment for their symptoms, or they delay seeking treatment. The factors underlying the treatment-seeking behaviour of OCD patients are still not clear. This review includes 12 studies published before April 2014 that analyse the possible variables related to the delayed help-seeking behaviour of OCD patients. Studies showed that individuals who asked for help were more impaired and reported poorer quality of life. Help-seeking behaviour was associated with greater insight, severity, specific obsessive-compulsive symptoms, such as aggressive and other unpleasant obsessions, and comorbidity. Common barriers to seeking treatment were shame about the symptoms or about asking for treatment, not knowing where to find help, or inconveniences associated with treatment. Inconsistencies among the reviewed studies highlight the need to further evaluate the variables that keep OCD patients from seeking help. The review highlights the need for educational campaigns designed to detect underdiagnosed OCD individuals and improve access to mental health services, which could shorten delays in seeking treatment and, therefore, reduce the personal and financial costs of OCD. Guidelines for educational programs and future lines of research are discussed.
authors.affiliation: Universitat de València Departamento Personalidad, Evaluación y Tratamientos Psicológicos, Facultad de Psicología, Avda. Blasco Ibáñez 21, 46010 Valencia, Spain. Electronic address: Gemma.Garcia@uv.es.
authors.forename: Gemma
authors.initials: G
authors.lastname: García-Soriano
authors.affiliation: University Hospital Zürich, Department of Psychiatry and Psychotherapy, Culmannstrasse 8,8091 Zürich, Switzerland. Electronic address: Michael.Rufer@usz.ch.
authors.forename: Michael
authors.initials: M
authors.lastname: Rufer
authors.affiliation: University Hospital Zürich, Department of Psychiatry and Psychotherapy, Culmannstrasse 8,8091 Zürich, Switzerland. Electronic address: Aba.Delsignore@usz.ch.
authors.forename: Aba
authors.initials: A
authors.lastname: Delsignore
authors.affiliation: University Hospital Zürich, Department of Psychiatry and Psychotherapy, Culmannstrasse 8,8091 Zürich, Switzerland. Electronic address: Steffi.Weidt@usz.ch.
authors.forename: Steffi
authors.initials: S
authors.lastname: Weidt
mesh_terms: D006801:Humans; D009771:Obsessive-Compulsive Disorder / Q000628:therapy*; D010342:Patient Acceptance of Health Care / Q000523:psychology*
keywords: Health care seeking; Health care utilisation; Help-seeking behaviour; Obsessive-compulsive disorder; Seek advice; Treatment barriers; Treatment seeking