title: Evaluation of a multidimensional cystic fibrosis transition program: a quality improvement initiative.
abstract: The adequate preparation of cystic fibrosis (CF) youth for the transfer from pediatric to adult-based health care services is essential to meet the needs of this changing population. This paper describes the evolution of a transition clinic for patients with CF into a multidimensional quality improvement transition initiative. Three transition interventions (a patient transition clinical pathway; collaboration with the adult clinic; and a tool to measure transfer readiness) were sequentially implemented and evaluated. Each was found to be a valuable addition to a comprehensive transition protocol and today are endorsed as part of transition best practices.
authors.affiliation: Cystic Fibrosis Clinic, British Columbia's Children's Hospital, Vancouver, BC, Canada. Electronic address: amgravelle1@gmail.com.
authors.forename: Anna M
authors.initials: AM
authors.lastname: Gravelle
authors.affiliation: ON TRAC Transition Initiative, British Columbia's Children's Hospital, Vancouver, BC, Canada.
authors.forename: Mary
authors.initials: M
authors.lastname: Paone
authors.affiliation: Cystic Fibrosis Clinic, Department of Pediatrics, British Columbia's Children's Hospital, Vancouver, BC, Canada.
authors.forename: A George F
authors.initials: AG
authors.lastname: Davidson
authors.affiliation: Cystic Fibrosis Clinic & Division of Pediatric Respiratory Medicine, British Columbia's Children's Hospital, Vancouver, BC, Canada.
authors.forename: Mark A
authors.initials: MA
authors.lastname: Chilvers
mesh_terms: D000293:Adolescent; D001955:British Columbia; D002648:Child; D003550:Cystic Fibrosis / Q000175:diagnosis / Q000628:therapy*; D005260:Female; D006801:Humans; D033183:Interdisciplinary Communication; D008297:Male; D063868:Patient Outcome Assessment; D016730:Program Development; D015397:Program Evaluation; D058996:Quality Improvement; D012720:Severity of Illness Index; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult
keywords: Adolescent transition; Cystic fibrosis (CF); Quality improvement (QI) initiative; Youth health