title: How do you keto? Survey of North American pediatric ketogenic diet centers.
abstract: We surveyed ketogenic diet centers in North America about their practices surrounding the ketogenic diet. An internet survey was disseminated via REDCap(©) to North American ketogenic diet centers identified from the Charlie Foundation and Ketocal(©) websites. Fifty-six centers responded. In addition to physicians, nurses and dieticians, ketogenic teams included social workers (39%), feeding specialists (14%), educational liaisons (4%), psychologists (5%), and pharmacists (36%). A child attending school (2%), non-English speaking family (19%), single-parent family (0%), and oral feeding (6%) were rarely considered barriers. Overall, the diet was considered the first or second (0%), third or fourth (67%), fifth or sixth (29%), and last resort treatment (4%) by centers. It was considered the first or second treatment for GLUT1 disease (86%) and third or fourth for Dravet (63%), West (71%), and Doose (65%) syndromes. Ketogenic diet is no longer a last resort option. Traditional barriers do not influence its use.
authors.affiliation: Department of Pediatrics, Ajou University School of Medicine, Suwon, Korea Department of Pediatrics, Epilepsy Center, Ann & Robert H. Lurie Children's Hospital of Chicago, and the Northwestern Memorial Feinberg School of Medicine, Chicago, IL, USA.
authors.forename: Da Eun
authors.initials: DE
authors.lastname: Jung
authors.affiliation: Division of Pediatric Neurology, Department of Pediatrics and Communicable Diseases, University of Michigan, Ann Arbor, MI, USA.
authors.forename: Sucheta M
authors.initials: SM
authors.lastname: Joshi
authors.affiliation: Department of Pediatrics, Epilepsy Center, Ann & Robert H. Lurie Children's Hospital of Chicago, and the Northwestern Memorial Feinberg School of Medicine, Chicago, IL, USA atberg@luriechildrens.org.
authors.forename: Anne T
authors.initials: AT
authors.lastname: Berg
mesh_terms: D002170:Canada; D002648:Child; D003657:Decision Making; D055423:Diet, Ketogenic / Q000706:statistics & numerical data*; D004827:Epilepsy / Q000178:diet therapy; D006801:Humans; D020407:Internet; D010818:Practice Patterns, Physicians' / Q000706:statistics & numerical data; D014481:United States
keywords: epilepsy; ketogenic diet; practices; survey