title: Emerging therapies for hemophilia: a new era of care and the role of the interdisciplinary team.
abstract: The introduction of new hemophilia management therapies, targeting extended half-lives through bioengineering, ushers in an era of potential promise and increasing complexity, more so for those with hemophilia B than hemophilia A. Questions arise for patients, caregivers, and hemophilia treatment center (HTC) staff about how to assess and incorporate novel therapies and how to determine whether new therapies offer a distinct advantage over established treatment routines. Nurses and other interdisciplinary HTC staff are well positioned to assess, educate, and support patients and families in navigating this rapidly changing landscape. To support these challenging efforts, this review offers a perspective on issues affecting therapeutic transitions and provides tools to foster ongoing adherence.
authors.affiliation: Northern Regional Bleeding Disorders Center, Traverse City, Michigan.
authors.forename: Michelle
authors.initials: M
authors.lastname: Witkop
authors.affiliation: Penn Comprehensive Hemophilia and Thrombosis Program, University of Pennsylvania, Philadelphia, Pennsylvania.
authors.forename: Susan
authors.initials: S
authors.lastname: Cutter
authors.affiliation: Oregon Hemophilia Center, Oregon Health and Science Center, Portland, Oregon.
authors.forename: Joann
authors.initials: J
authors.lastname: Deutsche
authors.affiliation: Miami Hemophilia Treatment Center, University of Miami Miller School of Medicine, Miami, Florida.
authors.forename: Maria
authors.initials: M
authors.lastname: Santaella
authors.affiliation: Children's Healthcare of Atlanta, Atlanta, Georgia.
authors.forename: Robin
authors.initials: R
authors.lastname: Chapman
authors.affiliation: Clinical Programs, Mary M. Gooley Hemophilia Center, Rochester General, Rochester, New York.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Lafranco
authors.affiliation: Henry Ford Hospital, Hemophilia Treatment Center, Detroit, Michigan.
authors.forename: Angela
authors.initials: A
authors.lastname: Lambing
mesh_terms: D006467:Hemophilia A / Q000628:therapy*; D002836:Hemophilia B / Q000628:therapy*; D006782:Hospitals, Special / Q000379:methods* / Q000639:trends*; D006801:Humans