title: A novel Interactive Health Communication Application (IHCA) for parents of children with long-term conditions: Development, implementation and feasibility assessment.
abstract: BACKGROUND
  Few evidence-based, on-line resources exist to support home-based care of childhood long-term conditions.
  
  
  METHODS
  In a feasibility study, children with stages 3, 4, or 5 chronic kidney disease, parents and professionals collaboratively developed a novel Online Parent Information and Support (OPIS) application. Parents were randomized to an intervention arm with access to OPIS or a control arm without access. OPIS usage was assessed using Google Analytics. Parents in the intervention arm completed the Suitability Assessment of Materials (SAM) and User Interface Satisfaction (USE) questionnaires and participated in qualitative interviews.
  
  
  RESULTS
  Twenty parents accessed OPIS with a mean of 23.3 (SD 20.8, range 2-64) visits per user. Responses from the SAM and USE questionnaires were positive, most respondents rating OPIS highly and finding it easy to use. Qualitative suggestions include refinement of OPIS components, enabling personalization of OPIS functionalities and proactive endorsements of OPIS by professionals.
  
  
  CONCLUSIONS
  Implementation of OPIS into standard practice is feasible in the centre where it was developed. Suggested developments will augment reported strengths to inform ongoing testing in the wider UK network of units. Our design and methods are transferrable to developing and evaluating web-applications to support home-based clinical care-giving for other long-term conditions.
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .
authors.forename: Veronica
authors.initials: V
authors.lastname: Swallow
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .|b Royal Manchester Children's Hospital, Central Manchester University Hospitals NHS Foundation Trust , Manchester , UK , and.
authors.forename: Ian
authors.initials: I
authors.lastname: Carolan
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .|b Royal Manchester Children's Hospital, Central Manchester University Hospitals NHS Foundation Trust , Manchester , UK , and.
authors.forename: Trish
authors.initials: T
authors.lastname: Smith
authors.affiliation: b Royal Manchester Children's Hospital, Central Manchester University Hospitals NHS Foundation Trust , Manchester , UK , and.
authors.forename: Nicholas J A
authors.initials: NJ
authors.lastname: Webb
authors.affiliation: c School of Nursing, University of North Carolina , Chapel Hill , NC , USA.
authors.forename: Kathleen
authors.initials: K
authors.lastname: Knafl
authors.affiliation: c School of Nursing, University of North Carolina , Chapel Hill , NC , USA.
authors.forename: Sheila
authors.initials: S
authors.lastname: Santacroce
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .
authors.forename: Malcolm
authors.initials: M
authors.lastname: Campbell
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .
authors.forename: Melanie
authors.initials: M
authors.lastname: Harper-Jones
authors.affiliation: b Royal Manchester Children's Hospital, Central Manchester University Hospitals NHS Foundation Trust , Manchester , UK , and.
authors.forename: Noreen
authors.initials: N
authors.lastname: Hanif
authors.affiliation: a School of Nursing, Midwifery & Social Work, University of Manchester , Manchester , UK .
authors.forename: Andrew
authors.initials: A
authors.lastname: Hall
mesh_terms: D000293:Adolescent; D000328:Adult; D044466:Asian People; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease; D003299:Cooperative Behavior; D005260:Female; D058015:Health Communication / Q000379:methods*; D006699:Home Care Services; D006801:Humans; D007223:Infant; D020407:Internet; D007400:Interprofessional Relations; D007407:Interviews as Topic; D008297:Male; D010290:Parents / Q000523:psychology*; D011369:Professional-Patient Relations; D015397:Program Evaluation; D051436:Renal Insufficiency, Chronic / Q000628:therapy*; D012944:Social Support; D013222:State Medicine; D011795:Surveys and Questionnaires; D006113:United Kingdom; D044465:White People; D055815:Young Adult
keywords: Application; children and young people; kidney; long-term; mixed-methods; parents