title: Care coordination, family-centered care, and functional ability in children with special health care needs in the United States.
abstract: The purpose of this study was to determine if there was an association between care coordination, family-centered care, and functional ability among children with special health care needs (CSHCN). Analysis of data from the 2005-2006 National Survey of CSHCN revealed that the percentages of CSHCN receiving care coordination and family-centered care were 59.3 and 66.3, respectively. Children who did not receive care coordination had a 53% higher adjusted odds (odds ratio=1.53, 95% confidence interval 1.21-1.94, P<0.001) for a limitation in functional ability compared to CSHCN who received care coordination. Family-centered care was not associated with a limitation in functional ability in CSHCN (P=0.61). CSHCN are underserved with regard to care coordination and this appears to be associated with impaired functional ability. Longitudinal studies are needed to confirm causality.
authors.affiliation: 1 Puerto Rican Health Department, San Juan, Puerto Rico .
authors.forename: Madeline
authors.initials: M
authors.lastname: Marti-Morales
authors.forename: James E
authors.initials: JE
authors.lastname: Rohrer
mesh_terms: D000203:Activities of Daily Living; D002648:Child; D019988:Children with Disabilities / Q000534:rehabilitation; D022143:Family Nursing; D005260:Female; D006306:Health Surveys; D006801:Humans; D008297:Male; D017063:Outcome Assessment, Health Care; D010346:Patient Care Management; D018802:Patient-Centered Care; D014481:United States