title: [Caring for disabled teenagers in intensive care, a specific form of care].
abstract: Duchenne muscular dystrophy is a genetic degenerative disease, resulting in severe motor disability and associated with a fatal prognosis. Children suffering from the disease face numerous treatments and repeated hospitalisations. The care of young patients during these hospital stays represents a key moment for establishing a relationship of trust with them and their family. A survey of two paediatric intensive care units identified the establishment of this bond as being an integral part of care.
authors.forename: Delphine
authors.initials: D
authors.lastname: Micaëlli
mesh_terms: D000293:Adolescent; D003422:Critical Care / Q000379:methods*; D006233:Persons with Disabilities; D006801:Humans; D020388:Muscular Dystrophy, Duchenne / Q000628:therapy*