title: The everyday ethics of field work research with vulnerable patients.
abstract: Patients are increasingly involved in health informatics research. Researchers are always aware of the ethical dimensions of their research, but studies in the field with patients--especially among the frail, elderly, cognitively impaired--present specific additional 'everyday moral dilemmas'. Reflecting on experiences of a hospital study of patients with dementia, this paper draws attention on the type and constant presence of this situated ethics, the immediacy of decision-making, and the importance of everyday ethics for health informatics.
authors.affiliation: Decision Making Research Group, School of Healthcare, University of Leeds, UK.
authors.forename: Valentina
authors.initials: V
authors.lastname: Lichtner
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D006282:Health Personnel / Q000941:ethics*; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D008490:Medical Informatics / Q000941:ethics*; D010358:Patient Participation; D061214:Patient Safety; D018579:Patient Selection / Q000941:ethics*; D006113:United Kingdom; D035862:Vulnerable Populations