title: Clinical guideline-driven personalized self-management diary for paediatric cancer survivors.
abstract: Shared Decision Making (SDM) is the process of patients and clinicians working together to manage medical treatment using the existing knowledge base. This paper presents the YouCan framework, a system for summarizing and presenting the necessary knowledge for SDM related to pediatric cancer follow-up management. Knowledge modelling of a Clinical Practice Guideline produced a customized ontology, which was then passed through a pellet reasoned to produce a customized patient diary that summarizes a patient's oncological history as well as the potential issues they may face in follow-up.
authors.affiliation: NICHE Research Group, Faculty of Computer Science, Dalhousie University, Canada.
authors.forename: Samuel Alan
authors.initials: SA
authors.lastname: Stewart
authors.affiliation: NICHE Research Group, Faculty of Computer Science, Dalhousie University, Canada.
authors.forename: Samina
authors.initials: S
authors.lastname: Abidi
authors.affiliation: IWK Health Centre, Halifax, Canada.
authors.forename: Louise
authors.initials: L
authors.lastname: Parker
authors.affiliation: IWK Health Centre, Halifax, Canada.
authors.forename: Mark
authors.initials: M
authors.lastname: Bernstein
authors.affiliation: NICHE Research Group, Faculty of Computer Science, Dalhousie University, Canada.
authors.forename: Syed Sibte Raza
authors.initials: SS
authors.lastname: Abidi
mesh_terms: D002170:Canada; D002675:Child, Preschool; D003657:Decision Making; D020000:Decision Support Systems, Clinical / Q000592:standards*; D003661:Decision Support Techniques; D019317:Evidence-Based Medicine; D005260:Female; D006801:Humans; D008297:Male; D008495:Medical Oncology / Q000592:standards*; D008499:Medical Records / Q000592:standards*; D009369:Neoplasms / Q000175:diagnosis / Q000628:therapy*; D010372:Pediatrics / Q000592:standards*; D017410:Practice Guidelines as Topic; D057285:Precision Medicine / Q000592:standards; D012648:Self Care / Q000592:standards*; D017741:Survivors