title: Patient information, consents and privacy protection scheme for an information system dedicated to pervasive developmental disorders.
abstract: Patients explicit and unambiguous information, patients consents and privacy protection are reviewed in this article, in the frame of the deployment of the information system TEDIS dedicated to autism spectrum disorders. The role of the Delegate to the Protection of Data is essential at this stage. We developed a privacy protection scheme based on storing encrypted patients personal data on the server database and decrypting it on the Web browser. It tries to respond to the end-users request to manage nominative data in a human readable form and to meet with privacy protection framework.
authors.affiliation: Paris Descartes University, Faculty of Medicine, Department of Biostatistics and Medical Informatics, APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Mohamed
authors.initials: M
authors.lastname: Ben Said
authors.affiliation: Department of Child Psychiatry APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Laurence
authors.initials: L
authors.lastname: Robel
authors.affiliation: Paris Descartes University, Faculty of Medicine, Department of Biostatistics and Medical Informatics, APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Claude
authors.initials: C
authors.lastname: Messiaen
authors.affiliation: Department of Child Psychiatry APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Yann
authors.initials: Y
authors.lastname: Craus
authors.affiliation: Paris Descartes University, Faculty of Medicine, Department of Biostatistics and Medical Informatics, APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Jean Philippe
authors.initials: JP
authors.lastname: Jais
authors.affiliation: Department of Child Psychiatry APHP - Necker Enfants Malades Hospital, Paris, France.
authors.forename: Bernard
authors.initials: B
authors.lastname: Golse
authors.affiliation: Laboratoire de Biostatistiques, Epidémiologie, Santé Publique et Informatique Médicale (BESPIM) - CHU de Nîmes - Hôpital Carémeau - Nîmes- France.
authors.forename: Paul
authors.initials: P
authors.lastname: Landais
mesh_terms: D002659:Child Development Disorders, Pervasive / Q000175:diagnosis* / Q000628:therapy*; D016494:Computer Security; D003219:Confidentiality; D057286:Electronic Health Records / Q000458:organization & administration*; D055991:Health Records, Personal; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods; D007258:Informed Consent