title: Review of 103 Swedish Healthcare Quality Registries.
abstract: OBJECTIVE
  In the past two decades, an increasing number of nationwide, Swedish Healthcare Quality Registries (QRs) focusing on specific disorders have been initiated, mostly by physicians. Here, we describe the purpose, organization, variables, coverage and completeness of 103 Swedish QRs.
  
  
  METHODS
  From March to September 2013, we examined the 2012 applications of 103 QRs to the Swedish Association of Local Authorities and Regions (SALAR) and also studied the annual reports from the same QRs. After initial data abstraction, the coordinator of each QR was contacted at least twice between June and October 2013 and asked to confirm the accuracy of the data retrieved from the applications and reports.
  
  
  RESULTS
  About 60% of the QRs covered ≥80% of their target population (completeness). Data recorded in Swedish QRs include aspects of disease management (diagnosis, clinical characteristics, treatment and lead times). In addition, some QRs retrieve data on self-reported quality of life (EQ5D, SF-36 and disease-specific measures), lifestyle (smoking) and general health status (World Health Organization performance status, body mass index and blood pressure).
  
  
  CONCLUSIONS
  Detailed clinical data available in Swedish QRs complement information from government-administered registries and provide an important source not only for assessment and development of quality of care but also for research.
authors.affiliation: Primary Care Research Unit, Vårdcentralen Värmlands Nysäter, Värmland County, Sweden; School of Health and Medical Sciences, Örebro University, Örebro, Sweden; Department of Health Management and Health Economy, Institute of Health and Society, University of Oslo, Oslo, Norway.
authors.forename: L
authors.initials: L
authors.lastname: Emilsson
authors.forename: B
authors.initials: B
authors.lastname: Lindahl
authors.forename: M
authors.initials: M
authors.lastname: Köster
authors.forename: M
authors.initials: M
authors.lastname: Lambe
authors.forename: J F
authors.initials: JF
authors.lastname: Ludvigsson
mesh_terms: D003695:Delivery of Health Care / Q000458:organization & administration*; D005260:Female; D006801:Humans; D008297:Male; D011785:Quality Assurance, Health Care; D012042:Registries; D013548:Sweden
keywords: adult; child; life quality; morbidity; register; registry