title: The double helix: when the system fails the intertwined needs of caregiver and patient.
abstract: When a family caregiver becomes injured, she learns the difficulties--and costs--of caring for herself and her chronically ill husband at the same time.
authors.affiliation: Suzanne Geffen Mintz (suzanne@suzannemintz.com) founded Family Caregiver Advocacy in 2013 in order to focus her efforts on improving care and quality of life for families living with multiple chronic conditions. Prior to that, she was cofounder and CEO of the National Family Caregivers Association (now Caregiver Action Network) for twenty years. Her most recent book is A Family Caregiver Speaks Up: "It Doesn't Have to Be This Hard."
authors.forename: Suzanne
authors.initials: S
authors.lastname: Geffen Mintz
mesh_terms: D017028:Caregivers; D005260:Female; D018409:Foot Injuries / Q000503:physiopathology*; D006301:Health Services Needs and Demand; D006701:Home Nursing; D006801:Humans; D008297:Male; D009103:Multiple Sclerosis / Q000451:nursing*; D000070599:Shoulder Injuries; D018454:Spouses; D014481:United States
keywords: Chronic Care; Consumer Issues; Other—family caregiving; Patient/Family Engagement; Personal Experience (-Narrative Matters-)