title: Evidence suggests information is withheld for a number of reasons.
abstract: The advantages of the newborn screening (NBS) programme in the UK are well documented ( Farrell et al 2011 ), but screening identifies carriers of these conditions for whom there are minimal or no health concerns. However, there are implications for the future, when carriers reach reproductive age.
authors.affiliation: King's College London, on behalf of the RCN's Research in Child Health network's core community.
authors.forename: Jane
authors.initials: J
authors.lastname: Chudleigh
mesh_terms: D055318:Evidence-Based Nursing; D005260:Female; D006580:Genetic Carrier Screening / Q000379:methods; D030661:Genetic Privacy; D017408:Guidelines as Topic; D006801:Humans; D007231:Infant, Newborn; D015997:Neonatal Screening / Q000451:nursing*; D024802:Nurse's Role; D010287:Parent-Child Relations; D006113:United Kingdom