title: An experience with the Patient-Reported Outcomes Measurement Information System: pros and cons and unanswered questions.
abstract: The goal of the Patient-Reported Outcomes Measurement Information System (PROMIS) is to create efficient, reliable, and valid assessments of adult and child health. The nursing science literature in which PROMIS measures are used is rapidly expanding. Investigators have been encouraged to consider the integration of PROMIS measures into both descriptive studies and clinical trials. Doing this has created opportunities and challenges for investigators. This article highlights three projects to show the perspectives of nurse scientists who incorporated PROMIS measures into their research. The first project describes advantages of PROMIS to allow for comparisons of a study population with a national sample and to compliment legacy measures. The second project examines issues in the translation of tools for region-specific Hispanic populations. The third project provides a perspective on the use of PROMIS measures to capture cancer-related fatigue and to develop new components of a sexual function scale. As indicated by these three examples, nurse scientists can contribute an important role in moving the PROMIS initiative forward. Results from these types of projects also move symptom science forward within a more interdisciplinary approach to common measures of interest.
authors.affiliation: Division of Community and Health Systems Science, College of Nursing, Department of Psychiatry, Tucson, AZ.
authors.forename: Terry A
authors.initials: TA
authors.lastname: Badger
authors.affiliation: Department of Biobehavioral Nursing and Health Systems, University of Washington, Seattle, WA. Electronic address: heit@uw.edu.
authors.forename: Margaret
authors.initials: M
authors.lastname: Heitkemper
authors.affiliation: Department of Family Health Care Nursing, University of California, San Francisco, CA.
authors.forename: Kathryn A
authors.initials: KA
authors.lastname: Lee
authors.affiliation: Emory University, Atlanta, GA.
authors.forename: Deborah Watkins
authors.initials: DW
authors.lastname: Bruner
mesh_terms: D000328:Adult; D002648:Child; D002669:Child Welfare / Q000706:statistics & numerical data; D015897:Comorbidity; D059026:Diagnostic Self Evaluation; D005221:Fatigue / Q000175:diagnosis / Q000453:epidemiology / Q000451:nursing; D005260:Female; D063005:Health Information Systems; D006630:Hispanic or Latino; D006801:Humans; D043183:Irritable Bowel Syndrome / Q000453:epidemiology / Q000451:nursing / Q000628:therapy; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000453:epidemiology / Q000451:nursing; D015399:Nursing Research / Q000379:methods*; D063868:Patient Outcome Assessment; D015397:Program Evaluation; D011594:Psychometrics; D014481:United States
keywords: Depression; Fatigue; Irritable bowel; Pain; Patient-Reported Outcomes Measurement Information System; Sexual dysfunction; Spanish translation; Symptoms