title: [Cleft lip and palate: Health-related quality of life (French VSP-A scale) for patients and their family. About 51 families].
abstract: The aim of our study was to investigate the quality of life of patients undergoing cleft lip or cleft lip and palate as well as the perception of quality of life of patients perceived by their parents slot.
  
  
  METHODS
  Fifty-one adolescents and young adults (29 boys and 22 girls) who underwent cleft lip (FL 22) or lip and palate (CLP 29) and their parents have received psychological and surgical joint consultation. The minimum age for inclusion was 10 years (mean age 15.5 years). A quality of life questionnaire (VSP-A) "children" was given between 10 and 11 years and a questionnaire "adolescents" beyond. Parents have them answered a questionnaire of perceived quality of life of their children. The results were analyzed and compared to a control population (Statistics Student test). Perceived parents lived in relation to their children was obtained through the study of linear regression curves.
  
  
  RESULTS
  The response rate to the questionnaires was 66.7% for parents, 85.7% for children and 63.6% for teenagers. The quality of life of the patients was assessed by the patients to 65.1/100 on average. The index of overall quality of life was superimposed on the control population (p=0.66). Perceived quality of life of patients by their parents was fairly close to the quality of life described by patients (66.5). On the areas of family, education, recreation, quality index was proportionately less than for other areas. For each of these areas, parents overestimated the quality of life of their child. Compared to the control group the fields of education, leisure, vitality quality index were significantly lower in the/FL population P.
authors.affiliation: Chirurgie pédiatrique, pôle mère enfant, American Memorial Hospital, CHU de Reims, 47, rue Cognaq-Jay, 51092 Reims cedex, France; Chirurgie plastique, reconstructrice et esthétique, pôle locomoteur, hôpital Maison-Blanche, CHU de Reims, 45, rue Cognacq-Jay, 51092 Reims cedex, France; EA 3801, université de Reims Champagne Ardenne, URCA, SFR CAP santé, 51, rue Cognacq-Jay, 51100 Reims, France. Electronic address: carolinefiquet@me.com.
authors.forename: C
authors.initials: C
authors.lastname: François-Fiquet
authors.affiliation: Chirurgie pédiatrique, pôle mère enfant, American Memorial Hospital, CHU de Reims, 47, rue Cognaq-Jay, 51092 Reims cedex, France.
authors.forename: M
authors.initials: M
authors.lastname: Dupouy
authors.affiliation: Chirurgie pédiatrique, pôle mère enfant, American Memorial Hospital, CHU de Reims, 47, rue Cognaq-Jay, 51092 Reims cedex, France.
authors.forename: S
authors.initials: S
authors.lastname: Daoud
authors.affiliation: Chirurgie pédiatrique, pôle mère enfant, American Memorial Hospital, CHU de Reims, 47, rue Cognaq-Jay, 51092 Reims cedex, France.
authors.forename: M-L
authors.initials: ML
authors.lastname: Poli-Merol
mesh_terms: D000293:Adolescent; D002971:Cleft Lip / Q000523:psychology* / Q000601:surgery; D002972:Cleft Palate / Q000523:psychology* / Q000601:surgery; D005190:Family / Q000523:psychology*; D005260:Female; D005602:France; D006801:Humans; D008297:Male; D011788:Quality of Life; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Cleft lip/palate; Fente labio-palatine; Moquerie; Perception de soi; Quality of life; Qualité de vie; Self perception; Teasing; VSP-A