title: An empirically based practice perspective on the transition to adulthood for solid organ transplant recipients.
abstract: Preparing patients for transitioning to self-managed care and subsequently transferring to the adult healthcare system has become a critical process for clinicians working with pediatric transplant recipients. This paper reviews several barriers to a successful transition. These include patient barriers, caregiver barriers, and considerations within pediatric and adult centers. To date, few approaches for improving the transition process have been empirically tested. This review details studies that have examined possible models including usage of a transition coordinator and transition clinics. Recommendations are offered to promote an optimal transition including the importance and content of preparation, assessing and addressing transition readiness, insuring the involvement of all stakeholders, and finally, at minimum providing services during the transfer period. Future directions are offered aiming to advance this important area of investigation.
authors.affiliation: Fordham University, Bronx, NY, USA.
authors.forename: Rachel A
authors.initials: RA
authors.lastname: Annunziato
authors.forename: Dawn
authors.initials: D
authors.lastname: Freiberger
authors.forename: Kathy
authors.initials: K
authors.lastname: Martin
authors.forename: Jacqueline
authors.initials: J
authors.lastname: Helcer
authors.forename: Christopher
authors.initials: C
authors.lastname: Fitzgerald
authors.forename: Debra S
authors.initials: DS
authors.lastname: Lefkowitz
mesh_terms: D000328:Adult; D002648:Child; D006801:Humans; D012648:Self Care; D060305:Transition to Adult Care / Q000458:organization & administration*; D066027:Transplant Recipients
keywords: pediatric transplantation; transfer; transition