title: Public health surveillance of nonmalignant blood disorders.
abstract: Nonmalignant blood disorders currently affect millions of Americans, and their prevalence is expected to grow over the next several decades. This is owing to improvements in treatment leading to increased life expectancy of people with hereditary conditions, like sickle cell disease and hemophilia, but also the rising occurrence of risk factors for venous thromboembolism. The lack of adequate surveillance systems to monitor these conditions and their associated health indicators is a significant barrier to successfully assess, inform, and measure prevention efforts and progress toward national health goals. CDC is strengthening surveillance activities for blood disorders by improving and developing new methods that are tailored to best capture and monitor the epidemiologic characteristics unique to each disorder. These activities will provide a robust evidence base for public health action to improve the health of patients affected by or at risk for these disorders.
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia. Electronic address: mbeckman@cdc.gov.
authors.forename: Michele G
authors.initials: MG
authors.lastname: Beckman
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Mary M
authors.initials: MM
authors.lastname: Hulihan
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Vanessa R
authors.initials: VR
authors.lastname: Byams
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Meredith A
authors.initials: MA
authors.lastname: Oakley
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Nimia
authors.initials: N
authors.lastname: Reyes
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Sean
authors.initials: S
authors.lastname: Trimble
authors.affiliation: Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia.
authors.forename: Althea M
authors.initials: AM
authors.lastname: Grant
mesh_terms: D001778:Blood Coagulation Disorders / Q000175:diagnosis / Q000453:epidemiology; D001803:Blood Transfusion / Q000592:standards; D006402:Hematologic Diseases / Q000175:diagnosis* / Q000453:epidemiology; D006453:Hemoglobinopathies / Q000175:diagnosis / Q000453:epidemiology; D006801:Humans; D061214:Patient Safety; D011159:Population Surveillance / Q000379:methods; D011634:Public Health / Q000379:methods*; D014481:United States / Q000453:epidemiology