title: Breaking the Glass Ceiling: Increasing the Meaningful Involvement of Women Living With HIV/AIDS (MIWA) in the Design and Delivery of HIV/AIDS Services.
abstract: The meaningful involvement of women living with HIV/AIDS (MIWA) is a key feature of women-centred HIV care, yet little is known about transforming MIWA from principle to practice. Drawing on focus group data from the Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS), we explored HIV-positive women's meaningful involvement in the design and delivery of HIV/AIDS services in British Columbia, Canada. In this article, we highlight the benefits and tensions that emerge as women traverse multiple roles as service users and service providers within their care communities, and the impact this has on their access to care and overall health.
authors.affiliation: a Faculty of Health Sciences, Simon Fraser University , Burnaby , British Columbia , Canada.
authors.forename: Allison
authors.initials: A
authors.lastname: Carter
authors.forename: Saara
authors.initials: S
authors.lastname: Greene
authors.forename: Valerie
authors.initials: V
authors.lastname: Nicholson
authors.forename: Nadia
authors.initials: N
authors.lastname: O'Brien
authors.forename: Margarite
authors.initials: M
authors.lastname: Sanchez
authors.forename: Alexandra
authors.initials: A
authors.lastname: de Pokomandy
authors.forename: Mona
authors.initials: M
authors.lastname: Loutfy
authors.forename: Angela
authors.initials: A
authors.lastname: Kaida
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000175:diagnosis* / Q000523:psychology / Q000628:therapy*; D000293:Adolescent; D000328:Adult; D002170:Canada; D003153:Community Health Services / Q000458:organization & administration*; D003695:Delivery of Health Care / Q000379:methods*; D005260:Female; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008875:Middle Aged; D010358:Patient Participation; D014932:Women's Health Services; D055815:Young Adult