title: A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research.
abstract: BACKGROUND
  Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to identify the PROMs that are being used in child and adolescent burn care and to determine the quality of such scales.
  
  
  METHODS
  Computerised and manual bibliographic searches of Medline, Social Sciences Index, Cinahl, Psychinfo, Psycharticles, AMED, and HAPI, were used to identify English-language articles using English-language PROMs from January 2001 to March 2013. The psychometric quality of the PROMs was assessed.
  
  
  RESULTS
  23 studies met the entry criteria and identified 32 different PROMs (31 generic, 1 burns-specific). Overall, the psychometric quality of the PROMs was low; only two generic scales (the Perceived Stigmatisation Questionnaire and the Social Comfort Scale) and only one burns-specific scale (the Children Burn Outcomes Questionnaire for children aged 5-18) had psychometric evidence relevant to this population.
  
  
  CONCLUSIONS
  The majority of PROMs did not have psychometric evidence for their use with child or adolescent burn patients. To appropriately identify the needs and treatment progress of child and adolescent burn patients, new burns-specific PROMs need to be developed and validated to reflect issues that are of importance to this population.
authors.affiliation: Centre for Appearance Research (CAR), University of the West of England, Bristol, United Kingdom. Electronic address: catrin.griffiths@uwe.ac.uk.
authors.forename: C
authors.initials: C
authors.lastname: Griffiths
authors.affiliation: Centre for Appearance Research (CAR), University of the West of England, Bristol, United Kingdom. Electronic address: Laura2.Armstrong-James@uwe.ac.uk.
authors.forename: L
authors.initials: L
authors.lastname: Armstrong-James
authors.affiliation: Department of Engineering Design and Mathematics, University of the West of England, Bristol, United Kingdom. Electronic address: paul.white@uwe.ac.uk.
authors.forename: P
authors.initials: P
authors.lastname: White
authors.affiliation: Centre for Appearance Research (CAR), University of the West of England, Bristol, United Kingdom. Electronic address: Nichola.rumsey@uwe.ac.uk.
authors.forename: N
authors.initials: N
authors.lastname: Rumsey
authors.affiliation: Department of Plastic Surgery, Southmead Hospital, Bristol, United Kingdom. Electronic address: jonathon.pleat@nbt.nhs.uk.
authors.forename: J
authors.initials: J
authors.lastname: Pleat
authors.affiliation: Centre for Appearance Research (CAR), University of the West of England, Bristol, United Kingdom. Electronic address: diana2.harcourt@uwe.ac.uk.
authors.forename: D
authors.initials: D
authors.lastname: Harcourt
mesh_terms: D000293:Adolescent; D002056:Burns / Q000628:therapy*; D002648:Child; D006801:Humans; D063868:Patient Outcome Assessment; D010372:Pediatrics; D011594:Psychometrics
keywords: Adolescent; Burn; PROM; Paediatric; Patient-reported outcome measures; Systematic review