title: Parent experiences raising young people with type 1 diabetes and celiac disease.
abstract: Authors of this qualitative descriptive study interviewed 30 parents concerning their experiences raising a child or adolescent with type 1 diabetes (T1D) and celiac disease (CD). Analysis revealed six themes: (a) health complications of T1D, (b) challenges of daily disease management, (c) financial concerns, (d) the young person's emotional/mental health, (e) experiences with healthcare providers, and (f) experiences with people outside the family and at school. Results suggest nurses need to be sensitive to challenges young people living with T1D and CD and their parents face, conduct ongoing assessments, and provide time during interactions to adequately address concerns.
authors.affiliation: Family Nurse Practitioner, Intermountain Healthcare, Salt Lake City, UT.
authors.forename: Kerri
authors.initials: K
authors.lastname: Erickson
authors.affiliation: College of Nursing, Brigham Young University, Provo, UT.
authors.forename: Donna
authors.initials: D
authors.lastname: Freeborn
authors.affiliation: School of Family Life, Brigham Young University, Provo, UT.
authors.forename: Susanne Olsen
authors.initials: SO
authors.lastname: Roper
authors.affiliation: College of Nursing, Brigham Young University, Provo, UT. Electronic address: Barbara-Mandleco@byu.edu.
authors.forename: Barbara
authors.initials: B
authors.lastname: Mandleco
authors.affiliation: University Medical Center at Texas Tech University, Lubbock, TX.
authors.forename: Ashley
authors.initials: A
authors.lastname: Anderson
authors.affiliation: McKay School of Education, Brigham Young University, Provo, UT.
authors.forename: Tina
authors.initials: T
authors.lastname: Dyches
mesh_terms: D000293:Adolescent; D017028:Caregivers / Q000523:psychology; D002446:Celiac Disease / Q000175:diagnosis / Q000451:nursing* / Q000523:psychology; D002648:Child; D003922:Diabetes Mellitus, Type 1 / Q000175:diagnosis / Q000451:nursing* / Q000523:psychology; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D020380:Needs Assessment; D010287:Parent-Child Relations; D016487:Parenting / Q000523:psychology*; D036301:Qualitative Research; D011788:Quality of Life; D018570:Risk Assessment; D013315:Stress, Psychological; D014481:United States
keywords: Celiac disease; Child/adolescent health; Chronic illness; Qualitative; Type 1 diabetes