title: Social and community participation following spinal cord injury: a critical review.
abstract: Evaluation of rehabilitation outcomes following acquired disability should include participation in social and community life. Evidence is needed to guide clinical practice to ensure that it is client-centered; therefore, findings from studies that report on social and community participation following spinal cord injury (SCI) need to be reviewed and synthesized. The objectives of this critical literature review are to examine the available evidence on social and community participation following SCI and to examine the factors that influence that participation. The barriers and facilitators will be identified and described in terms of the contextual factors - personal or environmental, as outlined by the International Classification of Functioning, Disability and Health. An additional objective is to appraise the quality of the evidence examined. A systematic literature search was completed in the databases OVID MEDLINE, AMED, CINAHL PLUS, PSYCHINFO, and hand searches were carried out. Quantitative, qualitative, and mixed methods studies were included. Twenty-three studies fulfilled the inclusion criteria: 17 quantitative, five qualitative, and one mixed methods. In general, studies were of low methodological quality, and no intervention studies were identified. The terms participation, social participation, and community participation were used interchangeably often without clarification of meaning. Adequate personal care assistance, appropriate social support, having adequate specialized equipment, and appropriate occupational therapy input were found to facilitate social and community participation, whereas problems with transport, inaccessibility of the natural and built environment, issues with healthcare services and rehabilitation providers, and pain were identified as barriers. In-depth investigation into what aspects of social and community participation are important to those living with SCI is needed so that client-focused solutions and interventions can be identified and developed, aimed at creating and promoting opportunities for social and community participation.
authors.affiliation: Department of Occupational Therapy, School of Primary Health Care, Monash University, Melbourne, Victoria, Australia.
authors.forename: Linda
authors.initials: L
authors.lastname: Barclay
authors.forename: Rachael
authors.initials: R
authors.lastname: McDonald
authors.forename: Primrose
authors.initials: P
authors.lastname: Lentin
mesh_terms: D006297:Health Services Accessibility; D006801:Humans; D007899:Leisure Activities; D010809:Physical Fitness; D012919:Social Behavior; D012931:Social Environment; D012944:Social Support; D013119:Spinal Cord Injuries / Q000534:rehabilitation*