title: Suffering, silence, and status: the importance and challenges of qualitative research on AIDS orphanhood.
abstract: Drawing on ethnographic fieldwork with Ugandan children affected by AIDS conducted from 2007 to 2014, this report summarizes findings of a study conducted to better understand the ways children experience orphanhood at the hands of HIV/AIDS. Three crucial, interrelated concepts emerged: suffering, silence, and status. This study explored the social context of AIDS orphanhood as both a cause of social suffering and a context for the suffering of individual children. Though problematic, silence about suffering is often due to continuing HIV/AIDS stigma in Uganda that makes one's status unspeakable, in spite of the adverse effect this has on the social order and efforts to eradicate the disease. Approaching silence as a distinct form of communication rather than an absence of it, the report considers silence's intergenerational functions, its detriments, and its consolations, in the context of HIV/AIDS-affected children's lives. In doing so, it also highlights the need for more child-centered, qualitative research on AIDS' psychosocial effects on children, despite the challenges of doing such research.
authors.affiliation: a International Institute of Social Studies , Erasmus University Rotterdam , The Hague , The Netherlands.
authors.forename: Kristen E
authors.initials: KE
authors.lastname: Cheney
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology*; D054540:Child, Orphaned; D006801:Humans; D036301:Qualitative Research; D013240:Stereotyping; D014454:Uganda
keywords: HIV status; children affected by AIDS; qualitative research; silence; suffering