title: Understanding the effect of miliary tuberculosis through the experience of one young person.
abstract: In the UK, tuberculosis (TB) is on the increase. Miliary TB affects the lungs and can leave lasting damage, and affect a person's quality of life adversely. Healthcare professionals need to co-ordinate services efficiently, to ensure a smooth transition from hospital to home, and ensure there is appropriate support in the community for as long as necessary. In this article, a boy describes his journey through the illness: the associated bewilderment, deterioration, pain, fear and isolation; the emergencies; the prolonged but effective treatment; the care he received; and the support of his family. On discharge, he was still breathless and found it difficult to adapt to home life but, with thorough planning of his support with healthcare professionals, parents and relevant agencies, he was able to get back to school and continue his education.
authors.affiliation: Nottingham Children's Hospital.
authors.forename: Janice
authors.initials: J
authors.lastname: Mighten
mesh_terms: D000293:Adolescent; D001831:Body Temperature; D003371:Cough / Q000451:nursing; D005334:Fever / Q000451:nursing; D006801:Humans; D008297:Male; D008513:Medicine in Literature; D010343:Patient Admission; D010351:Patient Discharge; D011788:Quality of Life; D014391:Tuberculosis, Miliary / Q000000981:diagnostic imaging / Q000188:drug therapy / Q000382:microbiology / Q000451:nursing*; D014397:Tuberculosis, Pulmonary / Q000175:diagnosis / Q000188:drug therapy / Q000382:microbiology / Q000451:nursing*; D006113:United Kingdom; D015431:Weight Loss
keywords: Contact tracing; TB; infection control; miliary tuberculosis; notifiable disease; psychological support; respiratory disease; tuberculosis