title: Walking in the shoes of patients, not just in their genes: a patient-centered approach to genomic medicine.
abstract: Genomic technologies are increasing the precision with which clinicians can assess an individual patient's risk for developing diseases and identify which patients are likely to benefit from specific treatments. Also advocating for a shift away from a one-size-fits-all approach is the growing emphasis on "patient-centered" care. Using examples from breast cancer, we make a case for why, in order to optimize patient health outcomes, genomic medicine will need to be practiced within a patient-centered framework. We present a six-function conceptual framework for patient-centered care and discuss findings from a national survey evaluating the patient-centeredness of care delivered in the USA.
authors.affiliation: Division of Cancer Control and Population Sciences, National Cancer Institute, NIH, 9609 Medical Center Drive, 3E514, MSC 9762, Bethesda, MD, 20892-9762, USA, aroran@mail.nih.gov.
authors.forename: Neeraj K
authors.initials: NK
authors.lastname: Arora
authors.forename: Bradford W
authors.initials: BW
authors.lastname: Hesse
authors.forename: Steven B
authors.initials: SB
authors.lastname: Clauser
mesh_terms: D001943:Breast Neoplasms / Q000235:genetics* / Q000523:psychology / Q000628:therapy*; D003142:Communication; D003657:Decision Making; D020869:Gene Expression Profiling; D023281:Genomics; D006801:Humans; D018802:Patient-Centered Care / Q000458:organization & administration*; D011369:Professional-Patient Relations; D012648:Self Care; D035501:Uncertainty