title: Barriers to qualitative dementia research: the elephant in the room.
abstract: As our population is aging, the global prevalence of dementia is rising. Recent extensive reviews of the dementia literature highlight a clear need for additional qualitative research to address the experiences of people with dementia and their carers. To date, the vast majority of published dementia research is quantitative in nature and, perhaps not surprisingly, attracts the bulk of government funding. In contrast, qualitative dementia research is poorly resourced and less frequently published. Although a myriad of factors are responsible for this dichotomy, we propose that inadequate funding represents the "elephant in the room" of dementia research. In this article, we describe and emphasize the need for qualitative dementia research, highlight existing barriers, and outline potential solutions. Examples of barriers are provided and theoretical underpinnings are proposed.
authors.affiliation: University of Wollongong, Wollongong, New South Wales, Australia john.carmody@sesiahs.health.nsw.gov.au.
authors.forename: John
authors.initials: J
authors.lastname: Carmody
authors.affiliation: University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Victoria
authors.initials: V
authors.lastname: Traynor
authors.affiliation: University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Elena
authors.initials: E
authors.lastname: Marchetti
mesh_terms: D000375:Aging / Q000523:psychology; D003704:Dementia / Q000523:psychology*; D006801:Humans; D036301:Qualitative Research
keywords: dementia; geriatrics; health care, economics of; research, qualitative; resource allocation