title: Policy change for infants born at the "cusp of viability": a Canadian NICU experience.
abstract: Resuscitation and life-support treatments for infants born at the "cusp of viability" continue to be subject to clinical and ethical debate. Reported positive outcomes for these infants led our Neonatal Program to critically review our historic practice of discouraging resuscitation of infants born at <24 weeks' gestational age. This practice change required a multifaceted, collaborative approach including neonatal, perinatal, and obstetric efforts. An exceptional experience was the formation of a dedicated working group that included invaluable input from parents who had lived the NICU experience. The inclusion of family members in the development of clinical policy was a novel experience for NICU staff, which we feel ultimately resulted in a more ethically sound approach to the care of these infants and their families. In this article, we explore our experience of the process of policy change, which although detailed and transparent was also complex and challenging in development and implementation.
authors.affiliation: Division of Neonatal-Perinatal Medicine, Department of Pediatrics, and.
authors.forename: Linda
authors.initials: L
authors.lastname: Mahgoub
authors.affiliation: Division of Neonatal-Perinatal Medicine, Department of Pediatrics, and John Dossetor Health Ethics Centre, University of Alberta, Edmonton, Alberta, Canada; and.
authors.forename: Michael
authors.initials: M
authors.lastname: van Manen
authors.affiliation: Division of Neonatal-Perinatal Medicine, Department of Pediatrics, and John Dossetor Health Ethics Centre, University of Alberta, Edmonton, Alberta, Canada; and.
authors.forename: Paul
authors.initials: P
authors.lastname: Byrne
authors.affiliation: Division of Neonatal-Perinatal Medicine, Department of Pediatrics, and Neonatal and Infant Follow Up Clinic, Glenrose Rehabilitation Hospital, Edmonton, Alberta, Canada juzer.tyebkhan@albertahealthservices.ca.
authors.forename: Juzer M
authors.initials: JM
authors.lastname: Tyebkhan
mesh_terms: D002170:Canada / Q000453:epidemiology; D005865:Gestational Age; D006291:Health Policy / Q000331:legislation & jurisprudence* / Q000639:trends; D006801:Humans; D007231:Infant, Newborn; D007234:Infant, Premature / Q000502:physiology*; D007363:Intensive Care Units, Neonatal / Q000331:legislation & jurisprudence* / Q000639:trends; D016414:Resuscitation Orders / Q000331:legislation & jurisprudence*
keywords: NICU; ethics; extreme prematurity; gestational age; infant; policy change; viability