title: The experience of living with type 1 diabetes and attending clinic from the perception of children, adolescents and carers: analysis of qualitative data from the DEPICTED study.
abstract: Type 1 diabetes (T1D) is a complex, invasive childhood condition. Optimal glycemic control, essential to minimize risk of life-changing complications, is difficult to achieve. The DEPICTED trial evaluated a training program in consultation skills for pediatric diabetes teams. Qualitative descriptive analysis of questionnaire free-text comments from children, adolescents and carers participating in DEPICTED identified the emotional impact of living with T1D and how health professionals' communication skills in clinic influence the patient/carer experience. Healthcare professionals caring for children/adolescents with T1D and carers need training in patient-centered communication skills. Emotional needs of patients/carers need to be systematically assessed and addressed.
authors.affiliation: School of Healthcare Sciences, Cardiff University, Cardiff, Wales. Electronic address: lowes@cardiff.ac.uk.
authors.forename: Lesley
authors.initials: L
authors.lastname: Lowes
authors.affiliation: School of Medicine, Cardiff University, Cardiff, Wales.
authors.forename: Danielle
authors.initials: D
authors.lastname: Eddy
authors.affiliation: Cardiff and Vale University Health Board, The School of Psychology, Cardiff, Wales.
authors.forename: Sue
authors.initials: S
authors.lastname: Channon
authors.affiliation: South East Wales Trials Unit, School of Medicine, Cardiff University, Cardiff, Wales.
authors.forename: Rachel
authors.initials: R
authors.lastname: McNamara
authors.affiliation: South East Wales Trials Unit (SEWTU), Institute of Translation, Innovation, Methodology & Engagement, School of Medicine, Cardiff University, Cardiff, Wales.
authors.forename: Michael
authors.initials: M
authors.lastname: Robling
authors.affiliation: Institute of Molecular and Experimental Medicine, Cardiff University, Wales School of Medicine, Cardiff, Wales.
authors.forename: John W
authors.initials: JW
authors.lastname: Gregory
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000553:Ambulatory Care / Q000706:statistics & numerical data*; D017028:Caregivers / Q000523:psychology*; D002648:Child; D003142:Communication; D003922:Diabetes Mellitus, Type 1 / Q000175:diagnosis / Q000188:drug therapy / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008991:Monitoring, Physiologic / Q000523:psychology; D009723:Nurse-Patient Relations; D063868:Patient Outcome Assessment; D010465:Perception; D010817:Physician-Patient Relations; D036301:Qualitative Research; D018570:Risk Assessment; D012720:Severity of Illness Index; D014852:Wales
keywords: Childhood diabetes; Communication by healthcare professionals; Diabetes-related burnout; Patient/carer experience