title: [Children and adolescents on hemodialysis: attributes associated with quality of life].
abstract: OBJECTIVE
  To identify quality of life impacting attributes related to health of children and adolescents with chronic renal failure,on hemodialysis, as initial step to build the specific module DISABKIDS®.
  
  
  METHODS
  An Exploratory descriptive study, with qualitative approach, with data collected between August of 2011 to March of 2013, through focus group analysis, with 42 participants between 8 and 18 years, their parents and caregivers. The data analysis was conducted following the thematic content, using the program Qualitative Data Analysis Software.
  
  
  RESULTS
  Seven themes were identified:water and food restrictions, limitations imposed by the treatment, time dedicated to treatment, change in body image related to the vascular access and growth,stigma, self-care and hope of kidney transplantation.
  
  
  CONCLUSIONS
  Relevant aspects to the participants' experience regarding the disease and the treatment were apprehended, trying to understand how this process is associated to quality of life.
authors.affiliation: Midwest State University, Guarapuava, PR, Brazil.
authors.forename: Isabella Schroeder
authors.initials: IS
authors.lastname: Abreu
authors.affiliation: Nursing School of Ribeirão Preto, University of São Paulo, Guarapuava, PR, Brazil.
authors.forename: Maria Fernanda Cabral
authors.initials: MF
authors.lastname: Kourrouski
authors.affiliation: Nursing School of Ribeirão Preto, University of São Paulo, Guarapuava, PR, Brazil.
authors.forename: Danielle Maria de Souza Serio
authors.initials: DM
authors.lastname: dos Santos
authors.affiliation: Institute and Polyclinic of Psychology Medicine, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
authors.forename: Monika
authors.initials: M
authors.lastname: Bullinger
authors.affiliation: Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil.
authors.forename: Lucila Castanheira
authors.initials: LC
authors.lastname: Nascimento
authors.affiliation: Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil.
authors.forename: Regina Aparecida Garcia
authors.initials: RA
authors.lastname: de Lima
authors.affiliation: Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil.
authors.forename: Claudia Benedita
authors.initials: CB
authors.lastname: dos Santos
mesh_terms: D000293:Adolescent; D002648:Child; D005260:Female; D006801:Humans; D007676:Kidney Failure, Chronic / Q000523:psychology / Q000628:therapy; D008297:Male; D011788:Quality of Life; D006435:Renal Dialysis / Q000523:psychology