title: Call for a disease-specific patient-reported outcome tool in adult congenital heart disease.
authors.affiliation: From the Department of Internal Medicine, Division of Cardiology, Washington University School of Medicine/Barnes-Jewish Hospital, Saint Louis, MO (A.M.C.); and Division of Cardiovascular Research at Saint Luke's Mid America Heart Institute and the Department of Biomedical and Health Informatics for UMKC, University of Missouri Kansas City/Mid America Heart Institute, Kansas City, MO (J.A.S.). acedars@dom.wustl.edu.
authors.forename: Ari M
authors.initials: AM
authors.lastname: Cedars
authors.affiliation: From the Department of Internal Medicine, Division of Cardiology, Washington University School of Medicine/Barnes-Jewish Hospital, Saint Louis, MO (A.M.C.); and Division of Cardiovascular Research at Saint Luke's Mid America Heart Institute and the Department of Biomedical and Health Informatics for UMKC, University of Missouri Kansas City/Mid America Heart Institute, Kansas City, MO (J.A.S.).
authors.forename: John A
authors.initials: JA
authors.lastname: Spertus
mesh_terms: D000328:Adult; D006330:Heart Defects, Congenital / Q000523:psychology / Q000628:therapy*; D006801:Humans; D063868:Patient Outcome Assessment; D011788:Quality of Life
keywords: congenital heart defects; quality of life