title: Innovative approaches to studying health outcomes in rare diseases.
authors.affiliation: Department of Family Medicine, School of Medicine, University of Washington, Box 356390, Seattle, 98195, USA, wphllps@uw.edu.
authors.forename: William R
authors.initials: WR
authors.lastname: Phillips
mesh_terms: D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods*; D035583:Rare Diseases