title: Creating an eLearning resource to improve knowledge and understanding of pregnancy in the context of HIV infection.
abstract: Patient narratives have much to teach healthcare professionals about the experience of living with a chronic condition. While the biomedical narrative of HIV treatment is hugely encouraging, the narrative of living with HIV continues to be overshadowed by a persuasive perception of stigma. This paper presents how we sought to translate the evidence from a qualitative study of the perspectives of HIV affected pregnant women and expectant fathers on the care they received, from the pre conception to post natal period, into educational material for maternity care practice. Narrative scripts were written based on the original research interviews, with care taken to reflect the key themes from the research. We explore the way in which the qualitative findings bring to life patient and partner experiences and what it means for nurses, midwives and doctors to be prepared to care for couples affected by HIV. In so doing, we challenge the inequity between the dominance of biomedical knowledge over understanding the patient experience in the preparation of health professionals to care for HIV affected women and men who are having a baby or seeking to have a baby.
authors.affiliation: School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK. carmel.kelly@qub.ac.uk.
authors.forename: Carmel
authors.initials: C
authors.lastname: Kelly
authors.affiliation: School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK. ereid04@qub.ac.uk.
authors.forename: Esther
authors.initials: E
authors.lastname: Reid
authors.affiliation: School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK. m.lohan@qub.ac.uk.
authors.forename: Maria
authors.initials: M
authors.lastname: Lohan
authors.affiliation: School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK. f.a.alderdice@qub.ac.uk.
authors.forename: Fiona
authors.initials: F
authors.lastname: Alderdice
authors.affiliation: School of Nursing & Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast BT9 7BL, UK. d.spence@qub.ac.uk.
authors.forename: Dale
authors.initials: D
authors.lastname: Spence
mesh_terms: D020375:Education, Distance / Q000379:methods*; D005220:Fathers / Q000523:psychology*; D005260:Female; D015658:HIV Infections / Q000517:prevention & control / Q000523:psychology*; D006679:HIV Seropositivity / Q000523:psychology; D006266:Health Education / Q000379:methods*; D007722:Health Knowledge, Attitudes, Practice; D006282:Health Personnel / Q000193:education*; D006801:Humans; D007858:Learning; D008297:Male; D009660:Northern Ireland; D011247:Pregnancy; D011248:Pregnancy Complications / Q000821:virology*; D037841:Pregnant People / Q000523:psychology*; D036301:Qualitative Research; D012747:Sexual Partners / Q000523:psychology