title: [How to Define Good Health Care: An Ethical Framework for the Evaluation of Health Care for the Chronically Ill].
abstract: In Germany we face an increase in chronic illnesses and a health care system not adjusted to the specific needs of this patient group. Innovative health care management programmes (for example, disease management programmes) might be able to play an important role in overcoming the existing deficits. By developing and implementing such programmes we are, how-ever, implicitly touching upon normative issues, but only rarely are the ethical aspects of these programmes discussed explicitly and evaluated in a systematic way. Against this backdrop, we have developed an ethical framework as a tool for evaluating general health care and innovative programmes for the chronically ill. The framework comprises on the one hand a list of criteria that define good health care in the context of chronic illness. Based on a coherentist conception of ethical justification, we developed 8 criteria (among others "the autonomy of patients concerning therapy, use of data and other life choices have to be promoted and respected") for the context of chronic illness. On the other hand, the framework provides a methodological approach to apply the criteria in 6 steps in order to evaluate a specific programme. Thereby, we want to give orienta-tion to policy makers and practitioners concerning the normative underpinnings of their work and support them in identifying relevant ethical requirements and potential problems at an early stage.
authors.affiliation: Institut für Ethik, Geschichte und Theorie der Medizin, Ludwig-Maximilians-Universität München, München.
authors.forename: C
authors.initials: C
authors.lastname: Klingler
authors.affiliation: Institut für Ethik, Geschichte und Theorie der Medizin, Ludwig-Maximilians-Universität München, München.
authors.forename: G
authors.initials: G
authors.lastname: Marckmann
mesh_terms: D000465:Algorithms; D002908:Chronic Disease / Q000145:classification*; D005858:Germany; D006304:Health Status; D006305:Health Status Indicators; D010358:Patient Participation / Q000379:methods; D017410:Practice Guidelines as Topic; D011785:Quality Assurance, Health Care / Q000941:ethics* / Q000592:standards*; D011788:Quality of Life