title: Acceptability of an Advance Directive That Limits Food and Liquids in Advanced Dementia.
abstract: Some individuals fear living with advanced dementia and may even commit suicide if they receive dementia diagnosis. Living with advanced dementia could be prevented if a person who cannot feed himself or herself would not be fed by others. The purpose of the study was to find out how acceptable would be an advance directive that includes discontinuation of feeding at certain stage of dementia for relatives of persons who died with dementia. All participants of 2 focus groups would be willing to indicate at least 1 condition in which they would not want to be fed. Some of them would be willing to make a proxy decision to stop feeding in the absence of advance directives.
authors.affiliation: School of Aging Studies, University of South Florida, Tampa, FL, USA lvolicer@usf.edu.
authors.forename: Ladislav
authors.initials: L
authors.lastname: Volicer
authors.affiliation: School of Aging Studies, University of South Florida, Tampa, FL, USA.
authors.forename: Karen
authors.initials: K
authors.lastname: Stets
mesh_terms: D032722:Advance Care Planning / Q000941:ethics*; D016223:Advance Directives / Q000941:ethics / Q000523:psychology*; D003657:Decision Making; D003704:Dementia / Q000523:psychology*; D004750:Enteral Nutrition / Q000941:ethics / Q000523:psychology*; D017144:Focus Groups; D006801:Humans; D010342:Patient Acceptance of Health Care / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology
keywords: dehydration; fear of dementia; proxy; religion; suicide