title: SAPs: a different perspective.
authors.affiliation: a ALS Emergency Treatment Fund.
authors.forename: Jess
authors.initials: J
authors.lastname: Rabourn
authors.forename: Richard S
authors.initials: RS
authors.lastname: Bedlack
mesh_terms: D057176:Compassionate Use Trials; D003625:Data Collection; D032984:Ethics, Research; D019317:Evidence-Based Medicine; D006801:Humans; D028681:Moral Obligations; D010361:Patients