title: The application of telemedicine in the follow-up of lung transplantation in a patient with cystic fibrosis.
abstract: The Cystic Fibrosis (CF) Unit of Children's Hospital Bambino Gesù in Rome (Italy) has more than 25 years of experience in diagnosis and treatment of Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) related diseases. The CF Unit actively collaborates with the Transplantation Division for the follow-up of patients with CF who undergo lung transplantation, performed in our Unit since 1991. We present the case of a 19 year-old girl with CF, with severe respiratory failure for which it was subjected to two lung transplant. During the follow-up the remote monitoring has allowed the identification of an early episode of pulmonary relapse and graft-versus-host reaction even before the onset of symptoms, allowing an effective intervention and a complete recovery of lung function.
authors.affiliation: High Specialization in Continuity of Care in Chronic Diseases.
authors.forename: F
authors.initials: F
authors.lastname: Murgia
authors.affiliation: High Specialization in Continuity of Care in Chronic Diseases.
authors.forename: B
authors.initials: B
authors.lastname: Corona
authors.affiliation: High Specialization in Continuity of Care in Chronic Diseases.
authors.forename: F
authors.initials: F
authors.lastname: Bianciardi
authors.affiliation: High Specialization in Continuity of Care in Chronic Diseases.
authors.forename: P
authors.initials: P
authors.lastname: Romano
authors.affiliation: Hospital Information Services Department, Pediatric Hospital Bambino Gesù, IRCCS.
authors.forename: I
authors.initials: I
authors.lastname: Tagliente
authors.affiliation: High Specialization in Continuity of Care in Chronic Diseases.
authors.forename: S
authors.initials: S
authors.lastname: Bella
mesh_terms: D000293:Adolescent; D002908:Chronic Disease; D003550:Cystic Fibrosis / Q000534:rehabilitation*; D019005:Cystic Fibrosis Transmembrane Conductance Regulator; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007558:Italy; D016040:Lung Transplantation / Q000534:rehabilitation*; D017216:Telemedicine / Q000379:methods*
chemical_list: D019005:Cystic Fibrosis Transmembrane Conductance Regulator
keywords: cystic fibrosis; lung transplantation; telemedicine; telemonitoring