title: Caring for terminal patients in haematology: the urgent need of a new research agenda.
abstract: Although major therapeutic advances have led to improved survival for many hematologic malignancies in recent years, survival remains poor for some disease subtypes and a substantial proportion of patients are ultimately destined to die from their disease and/or related complications. Despite this, there is evidence that patients are not always referred to palliative/home care services as often as those with other cancers, although this situation may be improving in some areas. More research is needed, however, to explore reasons for this and identify whether patients may consequently have unmet needs that impact on their quality of life at this time.
authors.affiliation: Hematology Division, Sant'Eugenio Hospital, Piazzale dell'Umanesimo, 10, 00144, Rome, Italy, pniscola@gmail.com.
authors.forename: Pasquale
authors.initials: P
authors.lastname: Niscola
authors.forename: Andrea
authors.initials: A
authors.lastname: Tendas
authors.forename: Marco
authors.initials: M
authors.lastname: Giovannini
authors.forename: Laura
authors.initials: L
authors.lastname: Scaramucci
authors.forename: Alessio
authors.initials: A
authors.lastname: Perrotti
authors.forename: Paolo
authors.initials: P
authors.lastname: de Fabritiis
authors.forename: Debra A
authors.initials: DA
authors.lastname: Howell
mesh_terms: D006301:Health Services Needs and Demand; D019337:Hematologic Neoplasms / Q000401:mortality* / Q000628:therapy*; D006405:Hematology; D006699:Home Care Services; D017051:Hospice Care; D006801:Humans; D010166:Palliative Care; D011788:Quality of Life; D019452:Terminally Ill