title: Childhood cancer survivor care: development of the Passport for Care.
abstract: Survivors of childhood cancer are at risk of long-term adverse effects and late effects of the disease and/or its treatment. In response to national recommendations to improve evidence-based follow-up care, a web-based support system for clinical decision making, the Passport for Care (PFC), was developed for use at the point of care to produce screening recommendations individualized to the survivor. To date, the PFC has been implemented in over half of the nearly 200 clinics affiliated with the Children's Oncology Group across the USA. Most clinician users report that the PFC has been integrated into clinic workflows, and that it fosters improved conversations with survivors about the potential late effects a survivor might experience and about the screening and/or behavioural interventions recommended to improve health status. Furthermore, clinicians using the PFC have indicated that they adhered more closely to follow-up care guidelines. Perspectives on the challenges encountered and lessons learned during the development and deployment of the PFC are reviewed and contrasted with other nationwide approaches to the provision of guidance on survivor follow-up care; furthermore, the implications for the care of childhood cancer survivors are discussed.
authors.affiliation: Hematology-Oncology Section, Department of Paediatrics, Texas Children's Cancer Center, Baylor College, One Baylor Plaza, Houston, TX 77030, USA.
authors.forename: David G
authors.initials: DG
authors.lastname: Poplack
authors.affiliation: Center for Collaborative and Interactive Technologies, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77030, USA.
authors.forename: Michael
authors.initials: M
authors.lastname: Fordis
authors.affiliation: Department of Population Sciences, City of Hope, 1500 East Duarte Road, Duarte, CA 91010, USA.
authors.forename: Wendy
authors.initials: W
authors.lastname: Landier
authors.affiliation: Department of Population Sciences, City of Hope, 1500 East Duarte Road, Duarte, CA 91010, USA.
authors.forename: Smita
authors.initials: S
authors.lastname: Bhatia
authors.affiliation: Cancer Survivorship Division, Departments of Oncology and Epidemiology, and Cancer Control, St Jude's Children's Research Hospital, 262 Danny Thomas Place, Memphis, TN 38105, USA.
authors.forename: Melissa M
authors.initials: MM
authors.lastname: Hudson
authors.affiliation: Hematology-Oncology Section, Department of Paediatrics, Texas Children's Cancer Center, Baylor College, One Baylor Plaza, Houston, TX 77030, USA.
authors.forename: Marc E
authors.initials: ME
authors.lastname: Horowitz
mesh_terms: D002648:Child; D002675:Child, Preschool; D006801:Humans; D009369:Neoplasms / Q000401:mortality / Q000628:therapy*; D017741:Survivors