title: National survey of patients with Gorlin syndrome highlights poor awareness, multiple treatments and profound psychosocial impact of disease.
authors.affiliation: Dermatology Centre, Salford Royal NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.|Dermatology Department, Manchester Royal Infirmary, Central Manchester NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
authors.forename: F R
authors.initials: FR
authors.lastname: Ali
authors.affiliation: Dermatology Department, Manchester Royal Infirmary, Central Manchester NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
authors.forename: N J
authors.initials: NJ
authors.lastname: Collier
authors.affiliation: Department of Medical Genetics, Manchester Royal Infirmary, Central Manchester NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
authors.forename: D G
authors.initials: DG
authors.lastname: Evans
authors.affiliation: Gorlin Syndrome Group, Preston, UK.
authors.forename: M
authors.initials: M
authors.lastname: Costello
authors.affiliation: Gorlin Syndrome Group, Preston, UK.
authors.forename: S
authors.initials: S
authors.lastname: Webster
authors.affiliation: Dermatology Centre, Salford Royal NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.|Dermatology Department, Manchester Royal Infirmary, Central Manchester NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
authors.forename: J T
authors.initials: JT
authors.lastname: Lear
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001364:Awareness; D001478:Basal Cell Nevus Syndrome / Q000453:epidemiology* / Q000523:psychology / Q000628:therapy; D002648:Child; D002675:Child, Preschool; D003131:Combined Modality Therapy; D005260:Female; D006801:Humans; D015994:Incidence; D008297:Male; D008875:Middle Aged; D010344:Patient Advocacy; D011610:Psychosocial Deprivation; D011795:Surveys and Questionnaires; D006113:United Kingdom / Q000453:epidemiology; D055815:Young Adult