title: A framework for creating standardized outcome measures for patient registries.
abstract: OBJECTIVE
  Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures.
  
  
  METHODS
  Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of the outcome measurement framework and the related tool.
  
  
  RESULTS
  The outcome measurement framework is a conceptual model for how information relevant to evaluating patient outcomes may be defined and collected in a standard way for a broad range of health areas. The related tool facilitates collecting, displaying and searching for information on outcome measures.
  
  
  CONCLUSIONS
  The model developed through this process offers a framework that can be used to define outcome measures in a standard way across medical conditions.
authors.affiliation: Harvard Medical School, Massachusetts Eye & Ear Infirmary, 243 Charles Street, Boston, MA 02114, USA.
authors.forename: Richard E
authors.initials: RE
authors.lastname: Gliklich
authors.forename: Michelle B
authors.initials: MB
authors.lastname: Leavy
authors.forename: Jannette
authors.initials: J
authors.lastname: Karl
authors.forename: Daniel M
authors.initials: DM
authors.lastname: Campion
authors.forename: Daniel
authors.initials: D
authors.lastname: Levy
authors.forename: Elise
authors.initials: E
authors.lastname: Berliner
mesh_terms: D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods* / Q000706:statistics & numerical data; D010865:Pilot Projects; D012042:Registries / Q000592:standards* / Q000706:statistics & numerical data
keywords: comparative effectiveness research; conceptual model; outcome measure; outcome measurement; patient outcomes; patient registry