title: Constructing the meaning of survivor with former pediatric brain tumor patients.
abstract: Although the term survivor is frequently used in cancer discourse, the meaning of survivor and how people identify with this term can be difficult to understand. The purpose of this qualitative study is to explore the meaning of the term survivor from the perspective of young adults who have experienced a pediatric brain tumor (PBT). A constructivist grounded theory was utilized in this study with 6 young adults who had a PBT. This study also used semistructured interviews with participants who also completed reflective journals, which were focused on the survivor concept. Data were analyzed through coding strategies and constant comparative methods. Findings present 4 major themes of process: (a) reviewing the illness experience, (b) qualifying as a survivor, (c) thinking positive, and (d) being changed. These themes are important to consider in the construction, interpretation, and understanding of how the majority of this population do not identify with the current social use of the term survivor. Clearly, there is a need for a clearer understanding of survivor and how it specifically applies to those who have had a PBT. Everyone should remain conscious and consider how a broad, generalizing term such as survivor may influence a person's attitude and advocacy toward their health.
authors.affiliation: Foothills Medical Centre, Calgary, Alberta, Canada.
authors.forename: Angela
authors.initials: A
authors.lastname: Zwiers
authors.affiliation: Western University, London, Ontario, Canada.
authors.forename: Craig
authors.initials: C
authors.lastname: Campbell
authors.affiliation: Western University, London, Ontario, Canada.
authors.forename: Marilyn
authors.initials: M
authors.lastname: Evans
authors.affiliation: Western University, London, Ontario, Canada kkirkwo2@uwo.ca.
authors.forename: Ken
authors.initials: K
authors.lastname: Kirkwood
mesh_terms: D000328:Adult; D001294:Attitude to Health; D001932:Brain Neoplasms / Q000523:psychology*; D005260:Female; D066296:Grounded Theory; D006801:Humans; D008297:Male; D036301:Qualitative Research; D017741:Survivors / Q000145:classification* / Q000523:psychology*; D014481:United States; D055815:Young Adult
keywords: brain tumor; cancer; constructivism; grounded theory; psychosocial issues; survivorship; young adults