title: Issues patients would like to discuss at their review consultation in breast cancer clinics--a cross-sectional survey.
abstract: OBJECTIVE
  In breast cancer (BC) there are different therapies available with different side effects affecting the health-related quality of life (HRQOL) of patients. Here we report a novel tool, the BC-specific Patient Concerns Inventory (PCI). This work includes a survey that is part of the validation process to allow a larger cohort and comparisons with clinical characteristics. We report the concerns that BC patients would like to discuss in the outpatient clinic - using the PCI - and also their choice of multidisciplinary team members they would like to see.
  
  
  METHODS
  We carried out a cross-sectional survey - using the BC-specific PCI, the EORTC QLQ-C30 and the EORTC BC QLQ-BR23 - of patients who had completed their initial treatment and were attending a review outpatient clinic. 249 patients were recruited from February to July 2012.
  
  
  RESULTS
  Survey responses were obtained from 80% (200/249). The three most frequent items were fear of cancer coming back (62%, 124), breast sensitivity/pain (46%, 92), and fatigue/tiredness and low energy levels overall (46%, 92). The most frequently selected members of the multidisciplinary team that patients wished to see were the breast care nurse (46%, 92), the medical oncologist (28%, 55) and the psychologist (20%, 40).
  
  
  CONCLUSIONS
  The PCI provides the opportunity for multiprofessional engagement across a range of issues specific to BC. It can identify issues relating to physical, psychological, sexual and social functioning, as well as issues relating to body image and lifestyle.
authors.forename: Anastasios
authors.initials: A
authors.lastname: Kanatas
authors.forename: Derek
authors.initials: D
authors.lastname: Lowe
authors.forename: Galina
authors.initials: G
authors.lastname: Velikova
authors.forename: Brenda
authors.initials: B
authors.lastname: Roe
authors.forename: Kieran
authors.initials: K
authors.lastname: Horgan
authors.forename: Richard J
authors.initials: RJ
authors.lastname: Shaw
authors.forename: Simon N
authors.initials: SN
authors.lastname: Rogers
mesh_terms: D000368:Aged; D001943:Breast Neoplasms / Q000628:therapy*; D018567:Breast Neoplasms, Male / Q000628:therapy*; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010358:Patient Participation; D057240:Patient Preference; D011369:Professional-Patient Relations; D011788:Quality of Life; D012017:Referral and Consultation; D011795:Surveys and Questionnaires