title: Patient-centered care, collaboration, communication, and coordination: a report from AMIA's 2013 Policy Meeting.
abstract: In alignment with a major shift toward patient-centered care as the model for improving care in our health system, informatics is transforming patient-provider relationships and overall care delivery. AMIA's 2013 Health Policy Invitational was focused on examining existing challenges surrounding full engagement of the patient and crafting a research agenda and policy framework encouraging the use of informatics solutions to achieve this goal. The group tackled this challenge from educational, technical, and research perspectives. Recommendations include the need for consumer education regarding rights to data access, the need for consumers to access their health information in real time, and further research on effective methods to engage patients. This paper summarizes the meeting as well as the research agenda and policy recommendations prioritized among the invited experts and stakeholders.
authors.affiliation: University of Wisconsin, Madison, Wisconsin, USA.
authors.forename: Patti Flatley
authors.initials: PF
authors.lastname: Brennan
authors.affiliation: University of Virginia, Charlottesville, Virginia, USA.
authors.forename: Rupa
authors.initials: R
authors.lastname: Valdez
authors.affiliation: University of Missouri, Columbia, Missouri, USA.
authors.forename: Greg
authors.initials: G
authors.lastname: Alexander
authors.affiliation: Rush University, Chicago, Illinois, USA.
authors.forename: Shifali
authors.initials: S
authors.lastname: Arora
authors.affiliation: University of Texas Health Science Center, Houston, Texas, USA.
authors.forename: Elmer V
authors.initials: EV
authors.lastname: Bernstam
authors.affiliation: AcademyHealth, Washington, DC, USA.
authors.forename: Margo
authors.initials: M
authors.lastname: Edmunds
authors.affiliation: Chronology.MD, San Francisco, California, USA.
authors.forename: Nikolai
authors.initials: N
authors.lastname: Kirienko
authors.affiliation: American Medical Informatics Association, Bethesda, Maryland, USA.
authors.forename: Ross D
authors.initials: RD
authors.lastname: Martin
authors.affiliation: University of California San Francisco, San Francisco, California, USA.
authors.forename: Ida
authors.initials: I
authors.lastname: Sim
authors.affiliation: University of Colorado, Denver, Colorado, USA.
authors.forename: Diane
authors.initials: D
authors.lastname: Skiba
authors.affiliation: Vanderbilt University, Nashville, Tennessee, USA.
authors.forename: Trent
authors.initials: T
authors.lastname: Rosenbloom
mesh_terms: D003142:Communication; D003299:Cooperative Behavior; D057286:Electronic Health Records; D006291:Health Policy; D006801:Humans; D033283:Patient Access to Records; D018802:Patient-Centered Care; D012955:Societies, Medical; D014481:United States
keywords: data privacy; health information technology; health policy; patient engagement; patient-centered care