Community-engagement strategies of the developmental disabilities practice-based research network (DD-PBRN).
There is often a rich but untold history of events that occur and relationships that form before a practice-based research network (PBRN) is launched. This is particularly the case in PBRNs that are community based and comprise partnerships outside of the health care system. In this article we summarize an organizational "prenatal history" before the birth of a PBRN devoted to people with developmental disabilities. Using a case study approach, this article describes the historic events that preceded and fostered the evolution of this PBRN and contrasts how the processes leading to the creation of this multistakeholder, community-based PBRN differ from those of typical academic/clinical practice PBRNs. We propose potential advantages and complexities inherent to this newest iteration of PBRNs.
From the Cleveland Clinic Lerner College of Medicine (CVT) and the Department of Family Medicine and Community Health and Mandel School of Applied Social Sciences (JJW), Case Western Reserve University, Cleveland; the Fairview Hospital/Cleveland Clinic Family Medicine Residency, Cleveland (CVT); and the Practice-Based Research Network Shared Resource, Cleveland Clinical and Translational Science Collaborative, Cleveland (JJW). catyle@ccf.org.
Carl V
CV
Tyler
From the Cleveland Clinic Lerner College of Medicine (CVT) and the Department of Family Medicine and Community Health and Mandel School of Applied Social Sciences (JJW), Case Western Reserve University, Cleveland; the Fairview Hospital/Cleveland Clinic Family Medicine Residency, Cleveland (CVT); and the Practice-Based Research Network Shared Resource, Cleveland Clinical and Translational Science Collaborative, Cleveland (JJW).
James J
JJ
Werner
D019058:Community Networks / Q000458:organization & administration*; D055812:Community-Based Participatory Research; D002658:Developmental Disabilities; D006801:Humans
Community-Based Participatory Research; Developmental Disabilities; Populations; Practice-based Research; Underserved