title: [Written advance directives in dementia: useful and relevant].
abstract: According to the Dutch euthanasia law, the current wishes of the patient can be replaced by an advance directive if the patient is unable to give consent. However, Dutch physicians say they have difficulty responding to advance directives in people with dementia. A crucial issue is how to establish whether the patient actually suffers in a specific situation. We argue that the patient's wishes, views and decisions should be discussed in a timely manner, and laid down both in patient directives and in the doctor's files. We also ask for regular discussion, updating and reaffirmation of the advance directive so that the patient can trust the doctor knowing the patient's wishes and what constitutes unbearable suffering for that patient. Through frequent discussion and reaffirmation, the advance directive can play the role intended by the law on euthanasia.
authors.affiliation: VU medisch centrum, afd. Metamedica, Amsterdam.
authors.forename: Guy A M
authors.initials: GA
authors.lastname: Widdershoven
authors.forename: Arie C
authors.initials: AC
authors.lastname: Nieuwenhuijzen Kruseman
authors.forename: Frans C B
authors.initials: FC
authors.lastname: van Wijmen
mesh_terms: D016223:Advance Directives; D003704:Dementia / Q000523:psychology*; D028601:Euthanasia, Active; D006801:Humans; D010820:Physicians / Q000523:psychology*