title: Establishment of a regional Danish database for patients with a stoma.
abstract: OBJECTIVE
  To present the Danish Stoma Database Capital Region with clinical variables related to stoma creation including colostomy, ileostomy and urostomy.
  
  
  METHODS
  The stomatherapists in the Capital Region of Denmark developed a database covering patient identifiers, interventions, conditions, short-term outcome, long-term outcome and known major confounders. The completeness of data was validated against the Danish National Patient Register.
  
  
  RESULTS
  In 2013, five hospitals included data from 1123 patients who were registered during the year. The types of stomas formed from 2007 to 2013 showed a variation reflecting the subspecialization and surgical techniques in the centres. Between 92 and 94% of patients agreed to participate in the standard programme aimed at handling of the stoma and more than 88% of patients having planned surgery had the stoma site marked pre-operatively.
  
  
  CONCLUSIONS
  The database is fully operational with high data completeness and with data about patients with a stoma from before surgery up to 12 months after surgery. The database provides a solid basis for professional learning, clinical research and benchmarking.
authors.affiliation: Department of Gastroenterology, Herlev Hospital, University of Copenhagen, Copenhagen, Denmark.
authors.forename: A K
authors.initials: AK
authors.lastname: Danielsen
authors.forename: B M
authors.initials: BM
authors.lastname: Christensen
authors.forename: J
authors.initials: J
authors.lastname: Mortensen
authors.forename: L L
authors.initials: LL
authors.lastname: Voergaard
authors.forename: P
authors.initials: P
authors.lastname: Herlufsen
authors.forename: L
authors.initials: L
authors.lastname: Balleby
mesh_terms: D016208:Databases, Factual / Q000706:statistics & numerical data*; D003718:Denmark; D004766:Enterostomy / Q000379:methods / Q000706:statistics & numerical data*; D005260:Female; D006801:Humans; D008297:Male; D054047:Surgical Stomas / Q000706:statistics & numerical data*; D013520:Urologic Surgical Procedures / Q000379:methods / Q000706:statistics & numerical data*
keywords: Stoma creation; clinical database; enterostoma therapy; quality development; stoma care nurses; stoma nursing