title: Evaluation of North American Association of Central Cancer Registries' (NAACCR) data for use in population-based cancer survival studies.
abstract: Follow-up procedures vary among cancer registries in North America. US registries are funded by the Surveillance, Epidemiology, and End Results (SEER) Program and/or the National Program of Cancer Registries (NPCR). SEER registries ascertain vital status and date of last contact to meet follow-up standards. NPCR and Canadian registries primarily conduct linkages with local and national death records to ascertain deaths. Data on patients diagnosed between 2002 through 2006 and followed through 2007 were obtained from 51 registries. Registries that met follow-up standards or, at a minimum, conducted linkages with local and national death records had comparable age-standardized five-year survival estimates (all sites and races combined): 63.9% SEER, 63.1% NPCR, and 62.6% Canada. Estimates varied by cancer site. Survival data from registries using different follow-up procedures are comparable if death ascertainment is complete and all nondeceased patients are presumed to be alive to the end of the study period.
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW). hbw4@cdc.gov.
authors.forename: Hannah K
authors.initials: HK
authors.lastname: Weir
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Christopher J
authors.initials: CJ
authors.lastname: Johnson
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Angela B
authors.initials: AB
authors.lastname: Mariotto
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Donna
authors.initials: D
authors.lastname: Turner
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Reda J
authors.initials: RJ
authors.lastname: Wilson
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Diane
authors.initials: D
authors.lastname: Nishri
authors.affiliation: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA (HKW, RJW); Cancer Data Registry of Idaho, Boise, ID (CJJ); Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health, Bethesda, MD (ABM); Cancer Care Manitoba, Winnipeg, MB, Canada (DT); Cancer Care Ontario, Toronto, ON, Canada (DN); Georgia Center for Cancer Statistics, Emory University, Atlanta, GA (KCW).
authors.forename: Kevin C
authors.initials: KC
authors.lastname: Ward
mesh_terms: D035843:Biomedical Research; D002170:Canada / Q000453:epidemiology; D003627:Data Interpretation, Statistical; D003644:Death Certificates; D003710:Demography / Q000706:statistics & numerical data*; D005260:Female; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000453:epidemiology* / Q000401:mortality*; D012107:Research Design; D018426:SEER Program; D015996:Survival Rate; D014481:United States / Q000453:epidemiology