title: Moving forward: a qualitative research inquiry to inform the development of a resource pack for women following primary breast cancer treatment.
abstract: While the UK charity Breast Cancer Care has extensive resources for women with breast cancer, this research partnership developed the first resource driven and informed by primary research with these women, exploring their needs and developing the resource according to need. Data were collected from focus groups with breast cancer survivors and telephone interviews with health professionals and experts, which explored the needs of women after primary cancer treatment, and were analyzed using thematic analysis. As well as information, these women needed resources to help them regain control over life, adapt to a changed body, and restore lost confidence.
authors.affiliation: a University of Southampton , Highfield , Southampton , UK.
authors.forename: Deborah
authors.initials: D
authors.lastname: Fenlon
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Reed
authors.forename: Emma
authors.initials: E
authors.lastname: Blows
authors.forename: Karen
authors.initials: K
authors.lastname: Scanlon
authors.forename: Julie
authors.initials: J
authors.lastname: Wray
authors.forename: Ann
authors.initials: A
authors.lastname: Dewey
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001943:Breast Neoplasms / Q000523:psychology* / Q000628:therapy; D002608:Charities; D005260:Female; D006801:Humans; D007255:Information Services / Q000458:organization & administration*; D008875:Middle Aged; D020380:Needs Assessment; D036301:Qualitative Research; D017741:Survivors / Q000523:psychology* / Q000706:statistics & numerical data; D006113:United Kingdom
keywords: breast cancer; charity; information needs; resources; survivorship