title: Collaborative interaction points in post-discharge stroke care.
abstract: BACKGROUND
  Lack of appropriate electronic tools for supporting patient involvement and collaboration with care professionals is a problem in health care.
  
  
  METHODS
  Care and rehabilitation processes of post-discharge stroke patients were analysed using the concept of interaction points where patients, next-of-kin and care professionals interact and exchange information. Thirteen interviews with care professionals and five non-participatory observations were performed. Data were analysed using content analysis and modelling of interaction points in the patient journey.
  
  
  RESULTS
  Patient participation and interaction patterns vary; patients requiring home care have a passive role and next-of-kin or nurses become advocates by coordinating care on behalf of the patient, whereas patients who are able to visit primary care coordinate their own care by initiating interactions. Important categories of participation include the following: participation in care planning, in monitoring risk factors and in rehabilitation planning.
  
  
  CONCLUSIONS
  Designing a supportive electronic tool requires understanding the interactions and patients' activity levels at each interaction point. A tool for patients with higher activity level should support them to coordinate their own care, whereas for a less-active patient group, the tool could focus on supporting next-of-kin and care professionals in motivating, guiding and including passive patients in their care and rehabilitation processes.
authors.affiliation: Health Informatics Centre, Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
authors.forename: Nadia
authors.initials: N
authors.lastname: Davoody
authors.affiliation: Health Informatics Centre, Department of Learning, Informatics, Management and Ethics. Karolinska Institutet, Stockholm, Sweden.
authors.forename: Sabine
authors.initials: S
authors.lastname: Koch
authors.affiliation: Department of Medicine, Karolinska Institutet, Stockholm, Sweden.
authors.forename: Ingvar
authors.initials: I
authors.lastname: Krakau
authors.affiliation: Health Informatics Centre, Department of Learning, Informatics, Management and Ethics. Karolinska Institutet, Stockholm, Sweden.
authors.forename: Maria
authors.initials: M
authors.lastname: Hägglund
keywords: care planning; electronic tool; integrated care; patient participation; rehabilitation; stroke