title: [Advance care planning for people with intellectual disability].
abstract: Difficult medical decisions regularly need to be made for people with intellectual disability. They are often unable to play a meaningful role in this and the decisions fall to the family or guardians. A useful aid to proactive medical management is advance care planning. This is a long-term care plan which is centred on the well-being of patients and their quality of life. Ideally it should be a matter for patients and those closest to them, the responsible medical practitioner and those tasked with the day-to-day care of patients. It is important to draw up this plan carefully and to regularly review it in the light of current circumstances.
authors.affiliation: Universiteit Maastricht, afd. Huisartsgeneeskunde en Expertisecentrum Palliatieve Zorg, Maastricht.
authors.forename: Annemieke M A
authors.initials: AM
authors.lastname: Wagemans
authors.forename: Frans C B
authors.initials: FC
authors.lastname: van Wijmen
mesh_terms: D032722:Advance Care Planning / Q000458:organization & administration; D000369:Aged, 80 and over; D003657:Decision Making; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology; D008134:Long-Term Care; D008297:Male; D008875:Middle Aged; D010347:Patient Care Planning; D011788:Quality of Life