title: Quality of life assessment in two consecutive years of patients in a waiting list for lung transplantation.
abstract: BACKGROUND
  Patients on a waiting list for lung transplantation (LT) have physical and emotional setbacks due to limiting symptoms such as dyspnea and cough. Time on a waiting list may worsen the conditions of these patients and affect their quality of life (QoL).
  
  
  OBJECTIVE
  Our objective was to evaluate QoL components in patients in 2 consecutive years who were waiting for transplantation.
  
  
  METHODS
  We studied patients who remained on a waiting list for transplantation in the first 2 years after inclusion on the list. Evaluation was performed using the Short-Form-36 (SF-36) Questionnaire and the Saint George's Respiratory Questionnaire (SGRQ).
  
  
  RESULTS
  Fifty-six patients were included (38.5 ± 15 years), 33 women (59%) and 23 men (41%). Of these, 18 had bronchiectasis, 14 had cystic fibrosis, 9 had lung fibrosis, 8 had lung emphysema, and 7 had other diseases. The domains with greater involvement in the first and second year were Functional Capacity and Physical Aspects. In the second year there was a significant worsening in Physical Aspects (2.5-0 points; P = .032). The domains related to the emotional component did not have significant changes.
  
  
  CONCLUSIONS
  The progression of the disease and progressive worsening of symptoms of patients on a transplantation waiting list led to less physical exercise, worsening the effects of inactivity. After 1 year on a waiting list for LT, patients had a significant loss of functionality, which had an impact on QoL.
authors.affiliation: Instituto do Coração, Hospital das Clínicas da Universidade de São Paulo, São Paulo, Brazil. Electronic address: fisioterapia@incor.usp.br.
authors.forename: M I Z
authors.initials: MI
authors.lastname: Feltrim
authors.affiliation: Instituto do Coração, Hospital das Clínicas da Universidade de São Paulo, São Paulo, Brazil.
authors.forename: A A C
authors.initials: AA
authors.lastname: Coelho
authors.affiliation: Instituto do Coração, Hospital das Clínicas da Universidade de São Paulo, São Paulo, Brazil.
authors.forename: M M
authors.initials: MM
authors.lastname: Scatimburgo
authors.affiliation: Instituto do Coração, Hospital das Clínicas da Universidade de São Paulo, São Paulo, Brazil.
authors.forename: G M
authors.initials: GM
authors.lastname: Pereira
authors.affiliation: Instituto do Coração, Hospital das Clínicas da Universidade de São Paulo, São Paulo, Brazil.
authors.forename: P
authors.initials: P
authors.lastname: Pego-Fernandes
mesh_terms: D000328:Adult; D001987:Bronchiectasis / Q000601:surgery; D003550:Cystic Fibrosis / Q000601:surgery; D018450:Disease Progression; D005260:Female; D006305:Health Status Indicators; D006801:Humans; D016040:Lung Transplantation; D008297:Male; D008875:Middle Aged; D011656:Pulmonary Emphysema / Q000601:surgery; D011658:Pulmonary Fibrosis / Q000601:surgery; D011788:Quality of Life; D011795:Surveys and Questionnaires; D014850:Waiting Lists; D055815:Young Adult