title: Pain therapy in haemophilia in Germany. Patient survey (BESTH study).
abstract: One of many challenges in the treatment of persons with haemophilia is the selection and application of appropriate pain-relieving therapies. The current situation of pain management for persons with haemophilia in Germany was evaluated using a survey with the intention of identifying potential areas for improvement. Results of 685 respondents showed that 86% experienced episodes of pain and that pain was already present in 66% of children and adolescents. Joint pain was the most common type of pain (92%), remarkably so even in 80% of young patients. Half of the patients received pharmacological therapy for the pain and 46% of the patients received physiotherapy. Priority and sequence of the contacted physicians and therapists for diagnosis and therapy is described. Satisfaction with pain therapy was expressed by 56% of participants and 18% felt their pain not treated sufficiently.
  
  
  CONCLUSIONS
  The results of the survey will be used to develop measures for improvement of long-term care of haemophilia patients regarding pain therapy.
authors.affiliation: Werner Kalnins, Deutsche Hämophilie Gesellschaft (DHG e. V.), Neumann-Reichardt-Str. 34, 22041 Hamburg.
authors.forename: W
authors.initials: W
authors.lastname: Kalnins
authors.forename: G
authors.initials: G
authors.lastname: Schelle
authors.forename: K
authors.initials: K
authors.lastname: Jost
authors.forename: W
authors.initials: W
authors.lastname: Eberl
authors.forename: A
authors.initials: A
authors.lastname: Tiede
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D018771:Arthralgia / Q000175:diagnosis / Q000453:epidemiology* / Q000628:therapy*; D015984:Causality; D002648:Child; D002675:Child, Preschool; D015897:Comorbidity; D005260:Female; D005858:Germany / Q000453:epidemiology; D019538:Health Care Surveys; D006467:Hemophilia A / Q000175:diagnosis / Q000453:epidemiology* / Q000628:therapy; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D059408:Pain Management / Q000706:statistics & numerical data*; D010147:Pain Measurement / Q000187:drug effects / Q000706:statistics & numerical data*; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D010818:Practice Patterns, Physicians' / Q000706:statistics & numerical data; D015995:Prevalence; D012307:Risk Factors; D016896:Treatment Outcome; D055815:Young Adult
keywords: Haemophilia; pain management; survey