title: Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project.
abstract: OBJECTIVE
  The eumusc.net project is an initiative founded by the European Community and the European League Against Rheumatism. One aim of the project was to facilitate equal standards for musculoskeletal health across Europe. The aim of this work-package was to develop patient-centred and consensus based standards of care (SOC) for osteoarthritis (OA), which should be available in a professional and a patient version.
  
  
  METHODS
  A systematic review concerning guidelines dealing with OA was conducted. Furthermore, experts in musculoskeletal diseases were contacted to ensure that 'grey' literature was not excluded. Documents that fulfilled predefined inclusion/exclusion criteria were included and all interventions for OA were extracted and categorised. Based on this list of interventions, a three round Delphi exercise with an international and multidisciplinary expert panel, including patient research partners, was performed to achieve expert consensus.
  
  
  RESULTS
  Six documents were included and used for further analysis. Out of them, 46 interventions have been extracted and 10 consensus based SOC were formulated. In addition, a patient version, written in a lay-understandable wording and in the format of checklist questions was developed. An example is SOC 5: "People with OA should achieve optimal pain control using pharmacological and non-pharmacological means." The matching patient-centred checklist question reads: "Do I know how to control pain associated with OA?"
  
  
  CONCLUSIONS
  The SOC for OA will be available in the 23 languages of the European Union to enhance unified information to patients and professionals and to further harmonise the treatment/care of OA within Europe.
authors.affiliation: Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria.
authors.forename: Michaela A
authors.initials: MA
authors.lastname: Stoffer
authors.affiliation: Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria.
authors.forename: Josef S
authors.initials: JS
authors.lastname: Smolen
authors.affiliation: Royal Cornwall Hospital, Truro Cornwall, UK.
authors.forename: Anthony
authors.initials: A
authors.lastname: Woolf
authors.affiliation: University Medical Centre Ljubljana, Ljubljana, Slovenia.
authors.forename: Ales
authors.initials: A
authors.lastname: Ambrozic
authors.affiliation: Universitatea de Medicina si Farmacie Carol Davila, Bucharest, Romania.
authors.forename: Florian
authors.initials: F
authors.lastname: Berghea
authors.affiliation: Maastricht University Medical Center, Maastricht, The Netherlands.
authors.forename: Annelies
authors.initials: A
authors.lastname: Boonen
authors.affiliation: National Rheumatoid Arthritis Society, Berkshire, UK.
authors.forename: Ailsa
authors.initials: A
authors.lastname: Bosworth
authors.affiliation: Instituto de Salud Musculoesqueletica, Madrid, Spain.
authors.forename: Loreto
authors.identifier: http://orcid.org/0000-0002-4401-2551
authors.initials: L
authors.lastname: Carmona
authors.affiliation: Paris Descartes University, Paris, France Department of Rheumatology-Hôpital Cochin. Assistance Publique-Hôpitaux de Paris, Paris, France INSERM (U1153): Clinical Epidemiology and biostatistics, PRES Sorbonne Paris-Cité, Paris, France.
authors.forename: Maxime
authors.initials: M
authors.lastname: Dougados
authors.affiliation: Reumapatientenbond, Amersfoort, The Netherlands.
authors.forename: Maarten
authors.initials: M
authors.lastname: de Wit
authors.affiliation: Royal Cornwall Hospital, Truro Cornwall, UK.
authors.forename: Josephine
authors.initials: J
authors.lastname: Erwin
authors.affiliation: Department of Physical Medicine and Rehabilitation, Medical University of Vienna, Vienna, Austria.
authors.forename: Veronika
authors.initials: V
authors.lastname: Fialka-Moser
authors.affiliation: Universitatea de Medicina si Farmacie Carol Davila, Bucharest, Romania.
authors.forename: Ruxandra
authors.initials: R
authors.lastname: Ionescu
authors.affiliation: University of Leeds and NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK.
authors.forename: Anne-Maree
authors.initials: AM
authors.lastname: Keenan
authors.affiliation: Instituto de Salud Musculoesqueletica, Madrid, Spain.
authors.forename: Estibaliz
authors.initials: E
authors.lastname: Loza
authors.affiliation: National Advisory Unit on Rehabilitation in Rheumatology (NKRR), Oslo, Norway.
authors.forename: Rikke H
authors.initials: RH
authors.lastname: Moe
authors.affiliation: Rheumatikerförbundet, Swedish Rheumatism Association, Stockholm, Sweden.
authors.forename: Rolf
authors.initials: R
authors.lastname: Greiff
authors.affiliation: Instytut Reumatologii, Warsaw, Poland.
authors.forename: Pawel
authors.initials: P
authors.lastname: Olejnik
authors.affiliation: Orthopedics and Rheumatology, Clinical Sciences, Lund University, Lund, Sweden.
authors.forename: Ingemar F
authors.initials: IF
authors.lastname: Petersson
authors.affiliation: Université de Lorraine, Université Paris Descartes, Apemac, EA 4360, Nancy, France.
authors.forename: Anne-Christine
authors.initials: AC
authors.lastname: Rat
authors.affiliation: University Medical Centre Ljubljana, Ljubljana, Slovenia.
authors.forename: Blaz
authors.initials: B
authors.lastname: Rozman
authors.affiliation: Orthopedics and Rheumatology, Clinical Sciences, Lund University, Lund, Sweden.
authors.forename: Britta
authors.initials: B
authors.lastname: Strömbeck
authors.affiliation: National Rheumatoid Arthritis Society, Berkshire, UK.
authors.forename: Lorraine
authors.initials: L
authors.lastname: Tanner
authors.affiliation: National Advisory Unit on Rehabilitation in Rheumatology (NKRR), Oslo, Norway.
authors.forename: Till
authors.initials: T
authors.lastname: Uhlig
authors.affiliation: Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: Theodora P M Vliet
authors.initials: TP
authors.lastname: Vlieland
authors.affiliation: Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria.
authors.forename: Tanja A
authors.initials: TA
authors.lastname: Stamm
mesh_terms: D003697:Delphi Technique; D005060:Europe; D019317:Evidence-Based Medicine; D006801:Humans; D010003:Osteoarthritis / Q000628:therapy*; D059408:Pain Management / Q000379:methods*; D018802:Patient-Centered Care / Q000592:standards*; D059039:Standard of Care / Q000592:standards*
keywords: Health services research; Osteoarthritis; Patient perspective