title: Healthcare system supports for young adult patients with pediatric onset chronic conditions: a qualitative study.
abstract: Over 90% of children with chronic conditions survive into adulthood necessitating primary care teams to care for adults with pediatric-onset chronic conditions. This study explores practice supports and barriers to care for this population via qualitative techniques. Using in depth interviews with twenty-two healthcare providers practice supports identified include: formalizing intake processes, interoperable electronic medical records, and leveraging care coordination. Barriers identified included: definition of the medical team, lack of appropriate medical records, time and administrative burden, lack of training, and financial constraints. Themes may be utilized to design interventions and improve care coordination for patients with pediatric-onset chronic conditions.
authors.affiliation: Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA; Leonard Davis Institute of Health, University of Pennsylvania, Philadelphia, PA; CHOP Policy Lab Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA. Electronic address: szaldad@email.chop.edu.
authors.forename: Dava E
authors.initials: DE
authors.lastname: Szalda
authors.affiliation: Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA; Leonard Davis Institute of Health, University of Pennsylvania, Philadelphia, PA; CHOP Policy Lab Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA.
authors.forename: Manuel E
authors.initials: ME
authors.lastname: Jimenez
authors.affiliation: Department of Medicine, University of Pennsylvania, Philadelphia, PA.
authors.forename: Jeremiah E
authors.initials: JE
authors.lastname: Long
authors.affiliation: Department of Medicine, University of Pennsylvania, Philadelphia, PA.
authors.forename: Amelia
authors.initials: A
authors.lastname: Ni
authors.affiliation: Department of Medicine, University of Pennsylvania, Philadelphia, PA; Leonard Davis Institute of Health, University of Pennsylvania, Philadelphia, PA.
authors.forename: Judy A
authors.initials: JA
authors.lastname: Shea
authors.affiliation: Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA; Department of Medicine, University of Pennsylvania, Philadelphia, PA; Leonard Davis Institute of Health, University of Pennsylvania, Philadelphia, PA; CHOP Policy Lab Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA.
authors.forename: Sophia
authors.initials: S
authors.lastname: Jan
mesh_terms: D000293:Adolescent; D017668:Age of Onset; D001291:Attitude of Health Personnel; D002908:Chronic Disease / Q000453:epidemiology / Q000523:psychology / Q000628:therapy*; D003430:Cross-Sectional Studies; D003695:Delivery of Health Care / Q000458:organization & administration*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D020380:Needs Assessment; D063868:Patient Outcome Assessment; D018802:Patient-Centered Care / Q000458:organization & administration; D010372:Pediatrics; D015143:Philadelphia; D011320:Primary Health Care / Q000379:methods*; D036301:Qualitative Research; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult
keywords: Healthcare systems; Medical home; Qualitative methods