title: Children with chronic conditions: perspectives on condition management.
abstract: This qualitative study described children's (8-13 years old) perspectives of their chronic health conditions (e.g., asthma, diabetes, cystic fibrosis): how they perceived their condition, its management, and its implications for their future. The study used the family management style framework (FMSF) to examine child perspectives on the joint venture of condition management between the child and family. Children within this age group viewed condition management in ways similar to their parents and have developed their own routines around condition management. Future studies of this phenomenon comparing child and parent perspectives would further our understanding of the influence of family management.
authors.affiliation: University of Pennsylvania School of Nursing, Philadelphia, PA; Indiana University School of Nursing, Indianapolis, IN. Electronic address: bbeacham@iu.edu.
authors.forename: Barbara L
authors.initials: BL
authors.lastname: Beacham
authors.affiliation: University of Pennsylvania School of Nursing, Philadelphia, PA.
authors.forename: Janet A
authors.initials: JA
authors.lastname: Deatrick
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002648:Child; D002652:Child Behavior / Q000523:psychology; D002908:Chronic Disease / Q000523:psychology / Q000628:therapy*; D019468:Disease Management; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008134:Long-Term Care / Q000379:methods / Q000523:psychology; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D018570:Risk Assessment; D012494:Sampling Studies; D012737:Sex Factors
keywords: Childhood; Chronic health conditions; Condition management; Family; Long-term conditions; Management; School-aged children