title: Parents' experiences of healthcare provider actions when their child dies: an integrative review of the literature.
abstract: OBJECTIVE
  To review, critique and synthesise current research studies that examine parental perceptions of healthcare provider actions during and after the death of a child.
  
  
  CONCLUSIONS
  Five main themes were synthesised from the literature: staff attitudes and affect; follow-up care and ongoing contact; communication; attending to the parents; and continuity of care.
  
  
  CONCLUSIONS
  This review helps to identify important aspects of paediatric end-of-life care as recognised by parents, with the intention of placing the family at the centre of any future end-of-life care education or policy/protocol development.
authors.affiliation: School of Nursing and Midwifery, Monash University, Melbourne, Victoria, Australia; Adult and Paediatric Intensive Care Unit, Monash Health, Melbourne, Victoria, Australia.
authors.forename: Ashleigh
authors.initials: A
authors.lastname: Butler
authors.forename: Helen
authors.initials: H
authors.lastname: Hall
authors.forename: Georgina
authors.initials: G
authors.lastname: Willetts
authors.forename: Beverley
authors.initials: B
authors.lastname: Copnell
mesh_terms: D001291:Attitude of Health Personnel; D001293:Attitude to Death; D002648:Child; D003142:Communication; D019033:Delivery of Health Care, Integrated; D005260:Female; D006282:Health Personnel / Q000458:organization & administration* / Q000523:psychology; D006801:Humans; D008297:Male; D024802:Nurse's Role; D017063:Outcome Assessment, Health Care; D010290:Parents / Q000523:psychology*; D011368:Professional-Family Relations; D013727:Terminal Care / Q000458:organization & administration* / Q000523:psychology; D014481:United States
keywords: Death; healthcare provider; paediatrics; parents' experience; review