title: Meanings of the sickening process for patients with systemic lupus erythematosus: a review of the literature.
abstract: Systemic lupus erythematosus is an autoimmune disease that causes many psychological repercussions that have been studied through qualitative research. These are considered relevant, since they reveal the amplitude experienced by patients. Given this importance, this study aims to map the qualitative production in this theme, derived from studies of experiences of adult patients of both genders and that had used as a tool a semi-structured interview and/or field observations, and had made use of a sampling by a saturation criterion to determine the number of participants in each study. The survey was conducted in Pubmed, Lilacs, Psycinfo e Cochrane databases, searching productions in English and Portuguese idioms published between January 2005 and June 2012. The 19 revised papers that have dealt with patients in the acute phase of the disease showed themes that were categorized into eight topics that contemplated the experienced process at various stages, from the onset of the disease, extending through the knowledge of the diagnosis and the understanding of the manifestations of the disease, drug treatment and general care, evolution and prognosis. The collected papers also point to the difficulty of understanding, of the patients, on what consists the remission phase, revealing also that this is a clinical stage underexplored by psychological studies.
authors.affiliation: Universidade Estadual de Campinas (Unicamp), Campinas, SP, Brasil. Electronic address: vera@alves.com.br.
authors.forename: Vera Lucia Pereira
authors.initials: VL
authors.lastname: Alves
authors.affiliation: Universidade Estadual de Campinas (Unicamp), Campinas, SP, Brasil.
authors.forename: Andreia Queiroz
authors.initials: AQ
authors.lastname: Carniel
authors.affiliation: Universidade Estadual de Campinas (Unicamp), Campinas, SP, Brasil.
authors.forename: Lilian Tereza Lavras
authors.initials: LT
authors.lastname: Costallat
authors.affiliation: Universidade Estadual de Campinas (Unicamp), Campinas, SP, Brasil.
authors.forename: Egberto Ribeiro
authors.initials: ER
authors.lastname: Turato
mesh_terms: D000328:Adult; D018450:Disease Progression; D005260:Female; D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000523:psychology*; D008297:Male; D011379:Prognosis
keywords: Adaptação psicológica; Chronic disease; Doença crônica; Lúpus eritematoso sistêmico; Pesquisa qualitativa; Psychological adaptation; Qualitative research; Systemic lupus erythematosus