title: Involving parents in managing their child's long-term condition-a concept synthesis of family-centered care and partnership-in-care.
abstract: BACKGROUNG: Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions.
  
  
  METHODS
  A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care.
  
  
  RESULTS
  Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child.
  
  
  CONCLUSIONS
  The key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.
authors.affiliation: School of Human & Health Sciences, Division of Maternal and Child Health, University of Huddersfield, Huddersfield, UK. Electronic address: j.e.smith@hud.ac.uk.
authors.forename: Joanna
authors.initials: J
authors.lastname: Smith
authors.affiliation: School of Nursing, Midwifery and Social Work, Jean McFarlane Building, University of Manchetser, Manchester, UK.
authors.forename: Veronica
authors.initials: V
authors.lastname: Swallow
authors.affiliation: School of Nursing & Midwifery, Trinity College Dublin, Dublin 2, Ireland.
authors.forename: Imelda
authors.initials: I
authors.lastname: Coyne
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease / Q000451:nursing*; D003299:Cooperative Behavior; D022143:Family Nursing / Q000458:organization & administration*; D005260:Female; D006801:Humans; D007494:Ireland; D008134:Long-Term Care / Q000458:organization & administration; D008297:Male; D010287:Parent-Child Relations; D011368:Professional-Family Relations; D011787:Quality of Health Care; D018570:Risk Assessment; D016896:Treatment Outcome; D006113:United Kingdom
keywords: Child; Collaboration; Family-centered care; Parent; Partnership