title: Current dystrophic epidermolysis bullosa research does not match research needs perceived by patients and clinicians.
authors.affiliation: Dermatology Department, Complexo Hospitalario de Pontevedra, Spain. Electronic address: pauladavilaseijo@gmail.com.
authors.forename: Paula
authors.initials: P
authors.lastname: Davila-Seijo
authors.affiliation: Dermatology Department, Hospital Niño Jesús, Madrid, Spain.
authors.forename: Ángela
authors.initials: Á
authors.lastname: Hernández-Martín
authors.affiliation: Dystrophic Epidermolysis Bullosa Research Association, Málaga, Spain.
authors.forename: Evanina
authors.initials: E
authors.lastname: Morcillo-Makow
authors.affiliation: University of Nottingham Medical School, Queens Medical Center, United Kingdom.
authors.forename: Catriona
authors.initials: C
authors.lastname: Rajan
authors.affiliation: Dermatology Department, Complexo Hospitalario de Pontevedra, Spain; Research Unit, Fundación Academia Española de Dermatología y Venereología, Madrid, Spain.
authors.forename: Ignacio
authors.initials: I
authors.lastname: García-Doval
mesh_terms: D001291:Attitude of Health Personnel; D035843:Biomedical Research; D016108:Epidermolysis Bullosa Dystrophica / Q000628:therapy*; D006801:Humans; D020380:Needs Assessment; D057240:Patient Preference; D016032:Randomized Controlled Trials as Topic