title: Analysis and proposed model of family caregivers' relationships with home health providers and perceptions of the quality of formal services.
abstract: Relationships between families and home health nurses promote effective care and service access for those at end of life, positive caregiver experiences, and satisfaction with care. This study explores family caregivers' accounts of relationships with home care nurses; findings inform a model of relationships and satisfaction with home health services. Ethnographic, qualitative interviews were conducted with 26 bereaved caregivers in one Western Canadian regional health agency. Data analysis was informed by symbolic interactionism. Participants described their relationships with home care nurses and spoke about their assessments of the care provided. Findings highlighted the importance of the length, frequency, and continuity of contact, conversation, socializing, and sharing information. Participants were cognizant of their own and care recipients' roles in building relationship. Nurse behaviors demonstrating affection, acknowledgment, commitment, and understanding were appreciated. A model links relationship preconditions, relational demonstrations, and perceived care quality and may be used to identify points of intervention.
authors.affiliation: University of Victoria, Victoria, British Columbia, Canada. lmfunk@uvic.ca
authors.forename: Laura
authors.initials: L
authors.lastname: Funk
authors.forename: Kelli
authors.initials: K
authors.lastname: Stajduhar
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001955:British Columbia; D017028:Caregivers / Q000523:psychology*; D002983:Clinical Competence; D005260:Female; D006699:Home Care Services; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D064691:Nurses, Community Health; D017060:Patient Satisfaction; D011368:Professional-Family Relations; D011787:Quality of Health Care
keywords: end of life; family caregiving; home care nursing; palliative; relationships; satisfaction