title: Values important to terminally ill African American older adults in receiving hospice care.
abstract: While racial disparity in the use of hospice care by older African Americans is widely acknowledged, little is known about the values that they consider as important in receiving health care services along with direct experiences with having these values respected by hospice care providers. Using individual, face-to-face interviews, data were collected directly from 28 African American hospice patients about their experiences in hospice care. Content analysis was used to identify and categorize themes from multiple readings of the qualitative data. Resulting themes included: dying at home, open communications, independent decision-making, autonomy in daily life, unwillingness to be a burden, and relationships. Through the initial assessment, value preferences can be explored and then shared with hospice team members to ensure that services are provided in such a way that their values and preferences are respected.
authors.affiliation: a The University of Alabama School of Social Work , Tuscaloosa , Alabama , USA.
authors.forename: Hyunjin
authors.initials: H
authors.lastname: Noh
mesh_terms: D001741:Black or African American / Q000523:psychology*; D000367:Age Factors; D000368:Aged; D000369:Aged, 80 and over; D002983:Clinical Competence; D003142:Communication; D018864:Cultural Diversity; D003657:Decision Making; D005260:Female; D017051:Hospice Care / Q000523:psychology*; D006801:Humans; D007398:Interpersonal Relations; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D057240:Patient Preference; D026684:Personal Autonomy; D012737:Sex Factors; D012944:Social Support; D012959:Socioeconomic Factors; D019452:Terminally Ill / Q000523:psychology*
keywords: African American; elderly; hospice; preference; qualitative; value