title: Providing end-of-life care in care homes for older people: a qualitative study of the views of care home staff and community nurses.
abstract: The study aimed to explore the views of care home staff (CHS) and community nurses (CNs) on providing end-of-life care (EOLC) in care homes. Participants were randomly selected and qualitative interviews conducted with 80 CHS and 10 CNs. Themes emerging from the data included the following: The meaning of EOLC; starting EOLC; dying in the care home; stress of providing EOLC; improving EOLC; and the role of the CN. CHS felt that planning for the end of life was important before residents reached the dying phase, which some found difficult to determine. Although CHS wished to avoid residents being transferred to hospital to die, they acknowledged that improvements in their skills and the resources available to them were needed to manage EOLC effectively. CNs were critical of the EOLC provided in some care homes, reporting tensions over their relationship with CHS. As the number of older people who die in care homes increases, there is a need to overcome these barriers to provide good EOLC.
authors.affiliation: King's College London, London, UK.
authors.forename: Cassie
authors.initials: C
authors.lastname: Goddard
authors.forename: Frances
authors.initials: F
authors.lastname: Stewart
authors.forename: Genevieve
authors.initials: G
authors.lastname: Thompson
authors.forename: Sue
authors.initials: S
authors.lastname: Hall
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D005260:Female; D006707:Homes for the Aged / Q000592:standards*; D006801:Humans; D008131:London; D008297:Male; D008875:Middle Aged; D009726:Nurses / Q000592:standards*; D036301:Qualitative Research; D013727:Terminal Care / Q000458:organization & administration*
keywords: care home staff; care homes; community nurses; end-of-life care; older people