title: A person-centred intervention for providing information to parents of children with cancer. Experiences and effects.
abstract: OBJECTIVE
  The aim of this paper is to describe the experiences of participating in a person-centred information intervention aimed at parents of children with cancer.
  
  
  METHODS
  Eight parents participated in the intervention, beginning two months after their child's diagnosis. The intervention was based upon the representational approach to patient education and a mixed method approach was employed in the study. The experiences of parents and intervention nurses were captured via qualitative interviews and the effects of the intervention on parental psychosocial measures, primarily perceived stress, were evaluated using a single-case design with web-based questionnaires.
  
  
  RESULTS
  Parents expressed high satisfaction with the intervention, as reported in the follow-up interviews and on the scale measuring satisfaction. However, no changes were seen in the quantitative measures of psychosocial distress. The nurses performing the intervention felt it was useful and feasible.
  
  
  CONCLUSIONS
  A representational approach to providing person-centred information to parents of children with cancer was appreciated and considered feasible by both the parents and the intervention nurses. However, further research is needed considering the lack of effect on the parents' perceived stress.
authors.affiliation: Department of Nursing, Umeå University, SE-901 87 Umeå, Sweden; Child and Adolescent Medical Centre, Umeå University Hospital, SE-901 85 Umeå, Sweden. Electronic address: anders.ringner@umu.se.
authors.forename: Anders
authors.initials: A
authors.lastname: Ringnér
authors.affiliation: Department of Nursing, Umeå University, SE-901 87 Umeå, Sweden.
authors.forename: Stig
authors.initials: S
authors.lastname: Karlsson
authors.affiliation: Department of Nursing, Umeå University, SE-901 87 Umeå, Sweden.
authors.forename: Ulla
authors.initials: U
authors.lastname: Hällgren Graneheim
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology*; D009859:Oncology Nursing / Q000379:methods*; D010287:Parent-Child Relations; D010290:Parents / Q000193:education* / Q000523:psychology*; D018802:Patient-Centered Care / Q000379:methods*; D011368:Professional-Family Relations; D013315:Stress, Psychological / Q000517:prevention & control*; D011795:Surveys and Questionnaires; D013548:Sweden
keywords: Information; Interventions; Mixed methods; Paediatric oncology; Parents; Patient-centred information; Single-case design