title: Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI.
abstract: BACKGROUND
  There is a lack of literature regarding service needs of people with SCI living in the community. Better assessment of expressed and met and unmet needs would help in the development of effective service delivery.
  
  
  OBJECTIVE
  From a national SCI Community Survey in Canada, the aim was to identify the most critical service needs of people living in the community at least 1 year post discharge from rehabilitation and the support they received to meet their needs.
  
  
  METHODS
  Data were collected mainly through a secure Web site and encompassed demographics, personal and household income, an SCI severity measure, and an SCI community needs measure containing information on 13 SCI-related needs.
  
  
  RESULTS
  A total of 1,549 persons with SCI (traumatic lesion, n = 1,137; nontraumatic lesion, n = 412) across Canada completed the survey. Most critical needs for community integration were expressed by a substantial proportion of survey participants, but significantly more expressed and met needs were reported by persons with a traumatic than a nontraumatic lesion. Personal and environmental characteristics influenced the probability of expressing and meeting needs (eg, severity of injury and household income). Help and support to meet expressed needs were received from government agencies, community organizations, and friends or family.
  
  
  CONCLUSIONS
  Better assessment of expressed and met or unmet needs for services remains a challenge but will serve as a tool to optimize service delivery in the community. Environmental barriers to services, particularly the process of getting needs met and associated costs, remain an issue that requires a reconsideration of some aspects of access to services.
authors.affiliation: Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS) and Université Laval , Quebec City , Canada.
authors.forename: Luc
authors.initials: L
authors.lastname: Noreau
authors.affiliation: Rick Hansen Institute , Vancouver , Canada ; Division of Spine, Department of Orthopedics, University of British Columbia , Vancouver , Canada.
authors.forename: Vanessa K
authors.initials: VK
authors.lastname: Noonan
authors.affiliation: Rick Hansen Institute , Vancouver , Canada ; Vancouver General Hospital , Vancouver , Canada.
authors.forename: John
authors.initials: J
authors.lastname: Cobb
authors.affiliation: Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS) and Université Laval , Quebec City , Canada.
authors.forename: Jean
authors.initials: J
authors.lastname: Leblond
authors.affiliation: Center for Interdisciplinary Research in Rehabilitation and Social Integration (CIRRIS) and Université Laval , Quebec City , Canada.
authors.forename: Frédéric S
authors.initials: FS
authors.lastname: Dumont
keywords: SCI-related needs; community living; environmental barriers; income; nontraumatic spinal cord injury; spinal cord injury