title: A new data management system for the French National Registry of human alveolar echinococcosis cases.
abstract: Alveolar echinococcosis (AE) is an endemic zoonosis in France due to the cestode Echinococcus multilocularis. The French National Reference Centre for Alveolar Echinococcosis (CNR-EA), connected to the FrancEchino network, is responsible for recording all AE cases diagnosed in France. Administrative, epidemiological and medical information on the French AE cases may currently be considered exhaustive only on the diagnosis time. To constitute a reference data set, an information system (IS) was developed thanks to a relational database management system (MySQL language). The current data set will evolve towards a dynamic surveillance system, including follow-up data (e.g. imaging, serology) and will be connected to environmental and parasitological data relative to E. multilocularis to better understand the pathogen transmission pathway. A particularly important goal is the possible interoperability of the IS with similar European and other databases abroad; this new IS could play a supporting role in the creation of new AE registries.
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - OSU THETA Franche-Comté Bourgogne, 25000 Besançon, France.
authors.forename: Amandine
authors.initials: A
authors.lastname: Charbonnier
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Jenny
authors.initials: J
authors.lastname: Knapp
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Florent
authors.initials: F
authors.lastname: Demonmerot
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Solange
authors.initials: S
authors.lastname: Bresson-Hadni
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Francis
authors.initials: F
authors.lastname: Raoul
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Frédéric
authors.initials: F
authors.lastname: Grenouillet
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Laurence
authors.initials: L
authors.lastname: Millon
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France - National Reference Centre of Alveolar Echinococcosis - FrancEchino Network - WHO Collaborating Centre for Prevention and Treatment of Human Alveolar Echinococcosis, University Hospital Centre of Besançon, 25000 Besançon, France.
authors.forename: Dominique Angèle
authors.initials: DA
authors.lastname: Vuitton
authors.affiliation: Laboratoire Chrono-Environnement, UMR/CNRS 6249 University of Franche-Comté, 25000 Besançon, France.
authors.forename: Sylvie
authors.initials: S
authors.lastname: Damy
mesh_terms: D000818:Animals; D003219:Confidentiality; D003625:Data Collection; D004443:Echinococcosis; D004444:Echinococcosis, Hepatic / Q000453:epidemiology*; D005602:France / Q000453:epidemiology; D006801:Humans; D007256:Information Systems / Q000458:organization & administration*; D011159:Population Surveillance; D012042:Registries; D014584:User-Computer Interface; D015047:Zoonoses