title: Questionnaire survey on current status of home care and support for patients with hematological diseases.
abstract: In order to survey the current status of home care and support for patients with hematological diseases, questionnaires were sent to 3,591 hospitals and home care facilities in Tokyo and surrounding prefectures. The first survey showed that 81.7% of medical staff members at hospitals reported that they had experience with home care and support, but only 24.9% of home care facility staff members had such experience. The second questionnaire, surveying 1,202 personnel, identified four factors hampering successful establishment of home care and support networks for hematological diseases. These included insufficient familial support for patients, difficulty making end of life decisions by family members and patients, limited access to transfusion support, and financial problems.
authors.affiliation: Department of Palliative Care Center, Keio University Hospital.
authors.forename: Akiko
authors.initials: A
authors.lastname: Adachi
authors.forename: Yuiko
authors.initials: Y
authors.lastname: Tsukada
authors.forename: Sakiko
authors.initials: S
authors.lastname: Kondo
authors.forename: Keiko
authors.initials: K
authors.lastname: Asakura
authors.forename: Eri
authors.initials: E
authors.lastname: Matsuki
authors.forename: Shohei
authors.initials: S
authors.lastname: Kawagoe
authors.forename: Saori
authors.initials: S
authors.lastname: Hashiguchi
authors.forename: Hiroshi
authors.initials: H
authors.lastname: Nonaka
authors.forename: Junzo
authors.initials: J
authors.lastname: Takeda
authors.forename: Shinichiro
authors.initials: S
authors.lastname: Okamoto
mesh_terms: D019538:Health Care Surveys / Q000706:statistics & numerical data*; D006268:Health Facilities / Q000706:statistics & numerical data; D006297:Health Services Accessibility / Q000706:statistics & numerical data; D006402:Hematologic Diseases; D006699:Home Care Services / Q000706:statistics & numerical data*; D006761:Hospitals / Q000706:statistics & numerical data; D006801:Humans; D007564:Japan; D008503:Medical Staff / Q000706:statistics & numerical data; D012944:Social Support; D011795:Surveys and Questionnaires