title: Genetic counselors and health literacy: the role of genetic counselors in developing a web-based resource about the Affordable Care Act.
abstract: The Western States Genetic Services Collaborative (WSGSC) recognized the need for clear and understandable information about the Affordable Care Act (ACA) for families throughout the life course. The genetic counselors working in the WSGSC developed, tested, and implemented a web resource ( http://www.westernstatesgenetics.org/ACA_home.htm ) to help families navigate information about the ACA tailored to their life situation. The training and experience of genetic counselors provide the skills needed to translate complicated information, like that of the ACA, into formats that the general public can comprehend. The website went public in October 2013, and it has been positively received. The development of this website is a good case study in how genetic counseling skills can be applied to public health education and improving health literacy.
authors.affiliation: Genomics Section, Hawaii Department of Health, 741 Sunset Avenue, Honolulu, HI, 96816, USA, sylvia@hawaiigenetics.org.
authors.forename: Sylvia
authors.initials: S
authors.lastname: Mann
authors.forename: Pauline
authors.initials: P
authors.lastname: Mui
authors.forename: Jennifer
authors.initials: J
authors.lastname: Boomsma
authors.forename: Lianne
authors.initials: L
authors.lastname: Hasegawa
mesh_terms: D005817:Genetic Counseling; D006266:Health Education / Q000458:organization & administration*; D006801:Humans; D020407:Internet; D058991:Patient Protection and Affordable Care Act / Q000458:organization & administration*; D014481:United States; D000078329:Workforce