title: Disease-related social situation in family of children with chronic kidney disease--parents` assessment. A multicentre study.
abstract: OBJECTIVE
  Chronic kidney disease (CKD) in children burdens life of patients and their families. Little is known about parents` assessment of families' social situation. However, the knowledge of the details of a patient's and his family's life standards might influence modification and optimization of applied therapy. Therefore, the main goal of the present study was to explore the selected elements of life situation of patients suffering with CKD as well as their parents, depending on the CKD stage and appropriate treatment.
  
  
  METHODS
  Cross-sectional national study was conducted. A total of 203 children with CKD and 388 their parent-proxies (196 women and 192 men) were enrolled into this study. Patient data and questionnaires filled by both parents, concerning social-demographic parameters and assessment of changes in families after CKD diagnosis in the child, were analysed.
  
  
  RESULTS
  CKD children are being brought up in proper families whose financial situation is not good. Children need help in process of education. Perception of current situation differed between both parents in the change of the income source, taking care of CKD child, change in social relations and evaluating relations with medical staff. Parents do not obtain proper support from social workers.
  
  
  CONCLUSIONS
  Families of CKD children require support in area of financial and educational help for school children. The discrepancies in evaluation of family situation between mothers and fathers of ill children might be the source of conflicts possibly resulting in worsening the outcome for CKD children.
authors.affiliation: Department of Paediatric Nephrology, Wroclaw Medical University, Poland.
authors.forename: Katarzyna
authors.initials: K
authors.lastname: Kiliś-Pstrusińska
authors.affiliation: Department of Paediatric Nephrology, Wroclaw Medical University, Poland.
authors.forename: Anna
authors.initials: A
authors.lastname: Medyńska
authors.affiliation: Clinic of Paediatrics, Nephrology and Endocrinology, Silesian Medical University, Zabrze, Poland.
authors.forename: Piotr
authors.initials: P
authors.lastname: Adamczyk
authors.affiliation: Department of Pediatric & Adolescent Nephrology & Hypertension, Medical University of Gdansk, Poland.
authors.forename: Irena
authors.initials: I
authors.lastname: Bałasz-Chmielewska
authors.affiliation: Department of Nephrology, Kidney Transplantation and Hypertension, The Children's Memorial Health Institute, Warsaw, Poland.
authors.forename: Ryszard
authors.initials: R
authors.lastname: Grenda
authors.affiliation: Department of Pediatric Cardiology and Nephrology, Poznan University of Medical Sciences, Poland.
authors.forename: Agnieszka
authors.initials: A
authors.lastname: Kluska-Jóźwiak
authors.affiliation: Department of Pediatrics and Nephrology, Medical University of Warsaw, Poland.
authors.forename: Beata
authors.initials: B
authors.lastname: Leszczyńska
authors.affiliation: Department of Nephrology, Children Hospital, Torun, Poland.
authors.forename: Ilona
authors.initials: I
authors.lastname: Olszak-Szot
authors.affiliation: Polish-American Children's Hospital, Jagiellonian University, Krakow , Poland.
authors.forename: Monika
authors.initials: M
authors.lastname: Miklaszewska
authors.affiliation: Clinic of Paediatrics, Nephrology and Endocrinology, Silesian Medical University, Zabrze, Poland.
authors.forename: Maria
authors.initials: M
authors.lastname: Szczepańska
authors.affiliation: Nephrology Division, Polish Mother's Memorial Hospital Research Institute, Lodz, Poland.
authors.forename: Marcin
authors.initials: M
authors.lastname: Tkaczyk
authors.affiliation: Department of Pediatrics and Nephrology, Medical University of Bialystok, Poland.
authors.forename: Anna
authors.initials: A
authors.lastname: Wasilewska
authors.affiliation: Polish-American Children's Hospital, Jagiellonian University, Krakow, Poland.
authors.forename: Katarzyna
authors.initials: K
authors.lastname: Zachwieja
authors.affiliation: Department of Pediatric Nephrology, Medical University of Lublin, Poland.
authors.forename: Maria
authors.initials: M
authors.lastname: Zajączkowska
authors.affiliation: Department of Pediatrics and Nephrology, Medical University of Warsaw, Poland.
authors.forename: Helena
authors.initials: H
authors.lastname: Ziółkowska
authors.affiliation: Department of Pediatric & Adolescent Nephrology & Hypertension, Medical University of Gdansk, Poland.
authors.forename: Ilona
authors.initials: I
authors.lastname: Zagożdżon
authors.affiliation: Department of Paediatric Nephrology, Wroclaw Medical University, Poland.
authors.forename: Danuta
authors.initials: D
authors.lastname: Zwolińska
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology*; D010465:Perception; D011044:Poland; D011788:Quality of Life; D051436:Renal Insufficiency, Chronic / Q000209:etiology / Q000523:psychology*; D066252:Sociological Factors; D013315:Stress, Psychological; D011795:Surveys and Questionnaires