title: Living with pain: the experience of children and adolescents in palliative care.
abstract: A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget's theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses' understanding that effective management of pain in children is essential for a normal life and less suffering.
authors.affiliation: School of Nursing, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Camila Amaral
authors.initials: CA
authors.lastname: Borghi
authors.affiliation: Department of Mother-Childhood and Psychiatric Nursing, School of Nursing, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Lisabelle Mariano
authors.initials: LM
authors.lastname: Rossato
authors.affiliation: Department of Mother-Childhood and Psychiatric Nursing, School of Nursing, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Elaine Buchhorn Cintra
authors.initials: EB
authors.lastname: Damião
authors.affiliation: School of Nursing, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Danila Maria Batista
authors.initials: DM
authors.lastname: Guedes
authors.affiliation: School of Nursing, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Ellen Maria Reimberg da
authors.initials: EM
authors.lastname: Silva
authors.affiliation: Child Institute, Clinic Hospital, Medicine College, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Silvia Maria de Macedo
authors.initials: SM
authors.lastname: Barbosa
authors.affiliation: Public Health College, University of São Paulo, São Paulo, SP, Brazil.
authors.forename: Rita Tiziana
authors.initials: RT
authors.lastname: Polastrini