title: Implementation of an epilepsy self-management protocol.
abstract: It is essential that patients with epilepsy receive educational information about their disease and its management, but there is dissatisfaction with the education received. The purposes of this evidence-based project were to examine the current knowledge level and disease management behaviors of patients with epilepsy in an outpatient clinic and to measure the effectiveness of implementing a self-management protocol using the Epilepsy Self-Management Scale (ESMS). Pender's health promotion model and Rogers' diffusion of innovation theory were used to guide the development and completion of this project. An evidence-based epilepsy self-management protocol was developed and implemented at an outpatient neurology clinic by an interprofessional clinic team that consisted of (a) evaluation of self-management behaviors (ESMS), (b) individual education using the ESMS and developed resources, (c) follow-up telephone call, and (d) measurement of outcomes of the self-management protocol (patient self-management [ESMS] and process). Twenty patients participated in all or portions of the protocol. Scores on the ESMS increased from preimplementation to postimplementation of the protocol (t = -2.67). Seizure management and information management were identified as the most difficult self-management areas. Recommended changes in protocol implementation include adding information about safety measures such as medical alert bracelets and driving to the educational packets. Follow-up telephone calls were discontinued because of difficulties reaching patients. The results of this study suggest that the ESMS is an acceptable tool for evaluating patients' self-management behaviors. Epilepsy self-management protocols need to include both verbal and written educational materials. Educating patients with epilepsy about positive self-management behaviors may lead to better health outcomes.
authors.affiliation: Questions or comments about this article may be directed to Kimberly A. Cole, DNP FNP-BC, at kimberly.cole@utoledo.edu. She is an Assistant Professor in the Department of Neurology, University of Toledo, Toledo, OH. Phyllis M. Gaspar, PhD RN, is a Professor, University of Toledo, Toledo, OH.
authors.forename: Kimberly A
authors.initials: KA
authors.lastname: Cole
authors.forename: Phyllis M
authors.initials: PM
authors.lastname: Gaspar
mesh_terms: D000328:Adult; D000368:Aged; D004059:Diffusion of Innovation; D004827:Epilepsy / Q000451:nursing*; D055318:Evidence-Based Nursing; D005260:Female; D006293:Health Promotion / Q000379:methods; D006801:Humans; D008297:Male; D008875:Middle Aged; D016294:Models, Nursing; D009730:Nursing Assessment / Q000379:methods*; D009820:Ohio; D010043:Outcome and Process Assessment, Health Care / Q000379:methods; D010044:Outpatient Clinics, Hospital; D010348:Patient Care Team; D010353:Patient Education as Topic / Q000379:methods; D012648:Self Care / Q000379:methods*; D055815:Young Adult