title: The dementia diagnosis: a literature review of information, understanding, and attributions.
abstract: This review examines how people understand and make sense of a dementia diagnosis. The review explores how lay frameworks and information presented at diagnosis may inform a caregiver's understanding of dementia in a family member. Existing qualitative research exploring how caregivers understand and make sense of dementia is reviewed. A literature search was conducted, and the results indicated that family carers often receive little or unclear information about dementia, with diagnostic information often delivered in euphemistic terms. Lack of clarity regarding diagnosis and prognosis creates uncertainty for caregivers and impacts future care planning. Caregiver's understandings of the condition vary, with some symptoms often not attributed to the condition. The literature highlights significant gaps and misconceptions in public knowledge regarding dementia, which raises questions about how family caregivers understand the condition. Further research is required to explore how information is presented to family carers at the time of diagnosis and how this is used to understand the condition.
authors.affiliation: Department of Psychology, Keele University, Keele, UK.|SUSTAIN, North Staffordshire Combined Healthcare Trust, Newcastle-under-Lyme, UK.
authors.forename: Laura
authors.initials: L
authors.lastname: Stokes
authors.affiliation: Faculty of Health Sciences, Staffordshire University, Stoke-on-Trent, UK.
authors.forename: Helen
authors.initials: H
authors.lastname: Combes
authors.affiliation: BUPA UK, Leeds, UK.
authors.forename: Graham
authors.initials: G
authors.lastname: Stokes
mesh_terms: D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D032882:Comprehension; D003704:Dementia / Q000175:diagnosis*; D005190:Family / Q000523:psychology*; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans
keywords: attributions; dementia; diagnosis; information; perceptions