title: Pediatric cardiac surgery Parent Education Discharge Instruction (PEDI) program: a pilot study.
abstract: BACKGROUND
  In developing countries, more children with complex cardiac defects now receive treatment for their condition. For successful long-term outcomes, children also need skilled care at home after discharge. The Parent Education Discharge Instruction (PEDI) program was developed to educate nurses on the importance of discharge teaching and to provide them with a structured process for conducting parent teaching for home care of children after cardiac surgery. The aim of this pilot study was to generate preliminary data on the feasibility and acceptability of the nurse-led structured discharge program on an Indian pediatric cardiac surgery unit.
  
  
  METHODS
  A pre-/post-design was used. Questionnaires were used to evaluate role acceptability, nurse and parent knowledge of discharge content, and utility of training materials with 40 nurses and 20 parents. Retrospective audits of 50 patient medical records (25 pre and 25 post) were performed to evaluate discharge teaching documentation.
  
  
  RESULTS
  Nurses' discharge knowledge increased from a mean of 81% to 96% (P = .001) after participation in the training. Nurses and parents reported high levels of satisfaction with the education materials (3.75-4 on a 4.00-point scale). Evidence of discharge teaching documentation in patient medical records improved from 48% (12 of 25 medical records) to 96% (24 of 25 medical records) six months after the implementation of the PEDI program.
  
  
  CONCLUSIONS
  The structured nurse-led parent discharge teaching program demonstrated feasibility, acceptability, utility, and sustainability in the cardiac unit. Future studies are needed to examine nurse, parent, child, and organizational outcomes related to this expanded nursing role in resource-constrained environments.
authors.affiliation: University of California at San Francisco School of Nursing, San Francisco, CA, USA sandra.staveski@ucsf.edu.
authors.forename: Sandra L
authors.initials: SL
authors.lastname: Staveski
authors.affiliation: Children's HeartLink, Edina, MN, USA.
authors.forename: Bistra
authors.initials: B
authors.lastname: Zhelva
authors.affiliation: Innova Heart Hospital, Hyderabad, India.
authors.forename: Reena
authors.initials: R
authors.lastname: Paul
authors.affiliation: Innova Heart Hospital, Hyderabad, India.
authors.forename: Rosalind
authors.initials: R
authors.lastname: Conway
authors.affiliation: University of Wisconsin School of Medicine and Public Health, Madison, WI, USA.
authors.forename: Anna
authors.initials: A
authors.lastname: Carlson
authors.affiliation: University of Wisconsin School of Medicine and Public Health, Madison, WI, USA.
authors.forename: Gouthami
authors.initials: G
authors.lastname: Soma
authors.affiliation: University of California at San Francisco School of Nursing, San Francisco, CA, USA.
authors.forename: Susan
authors.initials: S
authors.lastname: Kools
authors.affiliation: University of California at San Francisco School of Nursing, San Francisco, CA, USA.
authors.forename: Linda S
authors.initials: LS
authors.lastname: Franck
mesh_terms: D001291:Attitude of Health Personnel; D006348:Cardiac Surgical Procedures; D002648:Child; D002983:Clinical Competence; D003906:Developing Countries; D005240:Feasibility Studies; D019983:Guideline Adherence; D006266:Health Education / Q000379:methods* / Q000458:organization & administration; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007194:India; D009726:Nurses; D010290:Parents / Q000193:education*; D010342:Patient Acceptance of Health Care; D010351:Patient Discharge; D010865:Pilot Projects; D011368:Professional-Family Relations; D016730:Program Development; D015397:Program Evaluation; D012189:Retrospective Studies; D011795:Surveys and Questionnaires
keywords: all levels; congenital heart disease (CHD); congenital heart surgery; education; nursing