title: Digital Solutions for Informed Decision Making: An Academic-Community Partnership for the Development of a Prostate Cancer Decision Aid for African American Men.
abstract: African American (AA) men are significantly more likely to die of prostate cancer (PrCA) than other racial groups, and there is a critical need to identify strategies for providing information about PrCA screening and the importance of informed decision making (IDM). To assess whether a computer-based IDM intervention for PrCA screening would be appropriate for AA men, this formative evaluation study examined their (1) PrCA risk and screening knowledge; (2) decision-making processes for PrCA screening; (3) usage of, attitudes toward, and access to interactive communication technologies (ICTs); and (4) perceptions regarding a future, novel, computer-based PrCA education intervention. A purposive convenience sample of 39 AA men aged 37 to 66 years in the Southeastern United States was recruited through faith-based organizations to participate in one of six 90-minute focus groups and complete a 45-item descriptive survey. Participants were generally knowledgeable about PrCA. However, few engaged in IDM with their doctor and few were informed about the associated risks and uncertainties of PrCA screening. Most participants used ICTs on a daily basis for various purposes including health information seeking. Most participants were open to a novel, computer-based intervention if the system was easy to use and its animated avatars were culturally appropriate. Because study participants had low exposure to IDM for PrCA, but frequently used ICTs, IDM interventions using ICTs (e.g., computers) hold promise for AA men and should be explored for feasibility and effectiveness. These interventions should aim to increase PrCA screening knowledge and stress the importance of participating in IDM with doctors.
authors.affiliation: University of South Carolina, Columbia, SC, USA sowens06@gmail.com.
authors.forename: Otis L
authors.initials: OL
authors.lastname: Owens
authors.affiliation: University of South Carolina, Columbia, SC, USA.
authors.forename: Daniela B
authors.initials: DB
authors.lastname: Friedman
authors.affiliation: University of South Carolina, Columbia, SC, USA.
authors.forename: Heather M
authors.initials: HM
authors.lastname: Brandt
authors.affiliation: University of Texas, Austin, TX, USA.
authors.forename: Jay M
authors.initials: JM
authors.lastname: Bernhardt
authors.affiliation: University of South Carolina, Columbia, SC, USA.
authors.forename: James R
authors.initials: JR
authors.lastname: Hébert
mesh_terms: D001741:Black or African American / Q000523:psychology*; D003159:Community-Institutional Relations; D003657:Decision Making; D003661:Decision Support Techniques; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007255:Information Services; D008297:Male; D008403:Mass Screening; D008571:Men / Q000523:psychology*; D008875:Middle Aged; D011471:Prostatic Neoplasms / Q000175:diagnosis* / Q000523:psychology*
keywords: informed decision making; minority health; prostate cancer screening; technology