title: Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.
abstract: OBJECTIVE
  To provide an overview of PCORI's approach to engagement in research.
  
  
  METHODS
  The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to fund patient-centered comparative effectiveness research. Requirements for research funding from PCORI include meaningful engagement of patients and other stakeholders in the research. PCORI's approach to engagement in research is guided by a conceptual model of patient-centered outcomes research (PCOR), that provides a structure for understanding engagement in research.
  
  
  RESULTS
  To understand and improve engagement in research PCORI is learning from awardees and other stakeholders. Those efforts are described along with PCORI's capacity building and guidance to awardees via the Engagement Rubric. PCORI's unique model of engaging patients and other stakeholders in merit review of funding applications is also described. Additional support for learning about engagement in research is provided through specific research funding and through PCORI's major infrastructure initiative, PCORnet.
  
  
  CONCLUSIONS
  PCORI requires engagement of stakeholders in the research it funds. In addition PCORI engages stakeholders in activities including review of funding applications and establishment of CER research infrastructure through PCORnet. The comprehensive approach to engagement is being evaluated to help guide the field toward promising practices in research engagement.
authors.affiliation: Patient-Centered Outcomes Research Institute (PCORI), 1828 L Street NW 9th Floor, Washington, DC, 20036, USA, lfrank@pcori.org.
authors.forename: Lori
authors.initials: L
authors.lastname: Frank
authors.forename: Laura
authors.initials: L
authors.lastname: Forsythe
authors.forename: Lauren
authors.initials: L
authors.lastname: Ellis
authors.forename: Suzanne
authors.initials: S
authors.lastname: Schrandt
authors.forename: Sue
authors.initials: S
authors.lastname: Sheridan
authors.forename: Jason
authors.initials: J
authors.lastname: Gerson
authors.forename: Kristen
authors.initials: K
authors.lastname: Konopka
authors.forename: Sarah
authors.initials: S
authors.lastname: Daugherty
mesh_terms: D000047:Academies and Institutes; D057186:Comparative Effectiveness Research; D006801:Humans; D063868:Patient Outcome Assessment; D010358:Patient Participation; D018802:Patient-Centered Care / Q000379:methods*; D011788:Quality of Life