title: The forgotten ones: challenges and needs of children living with disabling parental chronic pain.
abstract: A qualitative study explored the challenges and needs of children living with parental chronic pain. Young adult children (n=30) of parents with chronic pain were interviewed. Parents (n=20) with chronic pain participated in four focus groups. Content analysis yielded five categories of child challenges: (a) understanding the big picture; (b) enduring hardships; (c) grieving losses; (d) communicating with parent, and; (e) isolating self from peers. Three categories of child needs emerged: (a) knowledge; (b) skills, and; (c) supervised interaction. Understanding these challenges and needs is a vital step in the process of developing evidence-based interventions for this at-risk group.
authors.affiliation: College of Nursing, Kent State University, Kent, OH. Electronic address: wlewando@kent.edu.
authors.forename: Wendy A
authors.initials: WA
authors.lastname: Umberger
authors.affiliation: School of Nursing and Health Sciences, Malone University, Canton, OH. Electronic address: jrisko@kent.edu.
authors.forename: Judy
authors.initials: J
authors.lastname: Risko
authors.affiliation: Chronic Pain Rehabilitation Program, Cleveland Clinic Foundation, Cleveland, OH. Electronic address: covinge@ccf.org.
authors.forename: Edward
authors.initials: E
authors.lastname: Covington
mesh_terms: D000293:Adolescent; D000367:Age Factors; D002648:Child; D002669:Child Welfare; D016241:Child of Impaired Parents / Q000523:psychology* / Q000706:statistics & numerical data; D002675:Child, Preschool; D059350:Chronic Pain / Q000175:diagnosis / Q000453:epidemiology*; D004185:Disability Evaluation; D006233:Persons with Disabilities; D005260:Female; D017144:Focus Groups; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010287:Parent-Child Relations; D036301:Qualitative Research; D012737:Sex Factors; D012934:Social Isolation; D014481:United States; D035862:Vulnerable Populations / Q000523:psychology*
keywords: Family processes; Parental chronic illness; Parent–child communication