title: Managing Advanced Progressive Supranuclear Palsy and Corticobasal Degeneration in a Palliative Care Unit: Admission Triggers and Outcomes.
abstract: BACKGROUND
  Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are characterized by rapid deterioration and a fatal outcome.
  
  
  OBJECTIVE
  Admission triggers, treatment efficacy, and care patterns.
  
  
  METHODS
  Retrospective analysis of patients with PSP/CBD admitted to an inpatient specialized palliative care service.
  
  
  RESULTS
  In 38 patients, there were 63 admissions for swallowing difficulties, falls, pain, impaired communication, cognitive/mood disturbances, respiratory symptoms, and infection. Mean length of stay was 11.6 days. Treatment response was variable. In 68%, of admission episodes there was stabilization or improvement, 75% were discharged home. In case of readmission, the mean interval has been 9.7 months. Time since diagnosis and admission triggers were not associated with outcome or death.
  
  
  CONCLUSIONS
  Patients showed high symptom load contrasting with discharge rates and subsequent health care utilization. Brief multidisciplinary interventions might be helpful to preserve autonomy.
authors.affiliation: Hospice Care DaSein, München, Germany Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria dr.j.buekki@hospiz-da-sein.de.
authors.forename: Johannes
authors.initials: J
authors.lastname: Bükki
authors.affiliation: Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria Department of Palliative Care, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany Department of Neurology, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany.
authors.forename: Georg
authors.initials: G
authors.lastname: Nübling
authors.affiliation: Insitute for Interdisciplinary Research in Palliative Care, Paracelsus Medical University, Salzburg, Austria Department of Palliative Care, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany Department of Neurology, Klinikum der Ludwig-Maximilians-Universität, Campus Großhadern, München, Germany.
authors.forename: Stefan
authors.initials: S
authors.lastname: Lorenzl
mesh_terms: D000058:Accidental Falls; D000368:Aged; D000369:Aged, 80 and over; D001480:Basal Ganglia Diseases / Q000150:complications*; D003680:Deglutition Disorders / Q000209:etiology; D005260:Female; D006801:Humans; D007902:Length of Stay; D008297:Male; D008875:Middle Aged; D010146:Pain / Q000209:etiology; D010166:Palliative Care; D010343:Patient Admission / Q000706:statistics & numerical data*; D012189:Retrospective Studies; D013494:Supranuclear Palsy, Progressive / Q000150:complications*
keywords: corticobasal degeneration; health care utilization; late phase; palliative care; progressive supranuclear palsy; symptom management