title: [Comparison of two national quality of life surveys for patients with end stage renal disease between 2005-2007 and 2011: indicators slightly decreased].
abstract: BACKGROUND
  The Epidemiology Network and Nephrology Information provides since 2001 the epidemiological monitoring of end stage renal disease (ESRD) in France. Two cross-sectional studies to estimate the level of quality of life in ESRD patients were performed in 2005 and 2007 and repeated in 2011. The main objective is to analyze the evolution of the quality of life of ESRD between these two surveys.
  
  
  METHODS
  The studies were conducted on a representative sample of subjects aged 18 and over, prevalent dialysis or holders of a functioning kidney transplant last year, followed in center dialysis and/or transplantation in one of the eight French regions selected. The quality of life was measured by a generic questionnaire, and two specifics questionnaires.
  
  
  RESULTS
  The evolution of the quality of life deteriorated slightly between 2005-2007 and 2011. There is however few dimensions affected. The variation in scores is not meaningful in general, with maximum decreases less than 4 points according to the statistical methods used. This diminution is not clinically significant.
  
  
  CONCLUSIONS
  The quality of life in dialysis patients or transplant did not evolve between 2005-2007 and 2011. Currently, it is difficult to assess the benefits of the national plan for improving the quality of life of people with chronic diseases because the last data are too close to the end of the plan.
authors.affiliation: Laboratoire de santé publique, SPMC EA3279, Aix-Marseille université, 13385 Marseille, France; Service de santé publique et information médicale, hôpital de la Conception, 13005 Marseille, France. Electronic address: davy.beauger@ap-hm.fr.
authors.forename: Davy
authors.initials: D
authors.lastname: Beauger
authors.affiliation: Laboratoire de santé publique, SPMC EA3279, Aix-Marseille université, 13385 Marseille, France; Service de santé publique et information médicale, hôpital de la Conception, 13005 Marseille, France.
authors.forename: Stéphanie
authors.initials: S
authors.lastname: Gentile
authors.affiliation: Agence de la biomédecine, 1, avenue du Stade-de-France, 93212 Saint-Denis-La-Plaine cedex, France.
authors.forename: Christian
authors.initials: C
authors.lastname: Jacquelinet
authors.affiliation: Centre de néphrologie et de transplantation rénale, hôpital de la Conception, CHU de Marseille, 147, boulevard Baillé, 13005 Marseille, France.
authors.forename: Bertrand
authors.initials: B
authors.lastname: Dussol
authors.affiliation: Université de Lorraine, université Paris Descartes, Apemac, EA4360, 54000 Nancy, France.
authors.forename: Serge
authors.initials: S
authors.lastname: Briançon
mesh_terms: D000368:Aged; D003430:Cross-Sectional Studies; D005260:Female; D005602:France / Q000453:epidemiology; D006306:Health Surveys; D006801:Humans; D007676:Kidney Failure, Chronic / Q000453:epidemiology*; D016030:Kidney Transplantation; D008297:Male; D011788:Quality of Life; D012042:Registries; D006435:Renal Dialysis
keywords: Cross-sectional study; Dialyse; Dialysis; Health evaluation; Insuffisance rénale; Quality of life; Qualité de vie; Renal failure; Transplantation; Étude transversale; Évaluation