title: Primary care of adults with developmental disabilities in Ontario.
abstract: The health status and healthcare of adults with developmental disabilities have not been well-studied in Ontario, due to the absence of population-based data. To address this deficit, the Health Care Access Research and Developmental Disabilities (H-CARDD) program - a provincial partnership of scientists, policymakers and clinicians - has used existing provincial-level administrative data to provide descriptive information on the health of adults with developmental disabilities and the quality of their primary care relative to other adults. H-CARDD's findings have revealed many gaps in the care of adults with developmental disabilities. While primary care providers are critical to achieving needed changes, the broader healthcare context and infrastructure also need to be considered.
authors.affiliation: Clinician scientist at the Centre for Addiction and Mental Health and an adjunct scientist at ICES. She is an associate professor in the Faculty of Medicine at the University of Toronto.
authors.forename: Yona
authors.initials: Y
authors.lastname: Lunsky
authors.affiliation: Assistant professor in the Faculty of Health Sciences at the University of Ontario Institute of Technology and an adjunct scientist at ICES.
authors.forename: Robert S
authors.initials: RS
authors.lastname: Balogh
authors.affiliation: An assistant professor in the School of Psychology and a senior researcher at the Centre for Research on Educational and Community Services at the University of Ottawa. She is an adjunct scientist at ICES.
authors.forename: Virginie
authors.initials: V
authors.lastname: Cobigo
authors.affiliation: Director of Research, Evaluation and Education at Surrey Place Centre in Toronto.
authors.forename: Barry
authors.initials: B
authors.lastname: Isaacs
authors.affiliation: An independent scientist in the Provincial System Support Program at the Centre for Addiction and Mental Health and an adjunct scientist at ICES. She is an assistant professor in the Faculty of Medicine at the University of Toronto.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Lin
authors.affiliation: Professor in the Department of Public Health Sciences at Queen's University, an epidemiologist at Ongwanada and an adjunct scientist at ICES.
authors.forename: Hélène M J
authors.initials: HM
authors.lastname: Ouellette-Kuntz
mesh_terms: D000293:Adolescent; D000328:Adult; D003695:Delivery of Health Care / Q000706:statistics & numerical data; D002658:Developmental Disabilities / Q000453:epidemiology / Q000628:therapy*; D005260:Female; D054625:Healthcare Disparities / Q000706:statistics & numerical data; D006801:Humans; D008297:Male; D008875:Middle Aged; D009864:Ontario / Q000453:epidemiology; D017410:Practice Guidelines as Topic; D011320:Primary Health Care / Q000706:statistics & numerical data*; D055815:Young Adult