title: Implementation of quality of life monitoring in Dutch routine care of adolescents with type 1 diabetes: appreciated but difficult.
abstract: OBJECTIVE
  Monitoring quality of life (QoL) improves well-being and care satisfaction of adolescents with type 1 diabetes. We set out to evaluate the implementation of the program DAWN (Diabetes Attitudes Wishes and Needs) MIND-Youth (Monitoring Individual Needs in Young People With Diabetes) (DM-Y), in which Dutch adolescents' QoL is assessed with the MIND Youth Questionnaire (MY-Q) and its outcomes are discussed. Successful implementation of DM-Y warrants close study of experienced barriers and facilitators as experienced by diabetes care teams as well as adolescents and parents.
  
  
  METHODS
  The study was conducted in 11 self-selected Dutch pediatric diabetes clinics. A mixed methods approach was used. Ten diabetes teams (26 members) were interviewed; 36 team members, 29 adolescents, and 66 parents completed an online survey.
  
  
  RESULTS
  Two of 10 teams successfully implemented DM-Y. Whereas 92% of teams valued DM-Y as a useful addition to routine care, most clinics were not able to continue because of logistical problems (lack of time and manpower). Still, all teams had the ambition to make DM-Y integral part of routine care in the nearby future. Seventy-nine percentage of the parents and 41% of the adolescents appreciated the usage of MY-Q, same percentage of adolescents neutral.
  
  
  CONCLUSIONS
  DM-Y is highly appreciated by teams, as well as adolescents and parents, but for most clinics it is difficult to implement. More effort should be paid to resolve logistic problems in order to facilitate dissemination of DM-Y in care nationwide.
authors.affiliation: Department of Medical Psychology, VU University Medical Center, Amsterdam, The Netherlands.|EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
authors.forename: Minke
authors.initials: M
authors.lastname: Eilander
authors.affiliation: Department of Medical Psychology, VU University Medical Center, Amsterdam, The Netherlands.|EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
authors.forename: Maartje
authors.initials: M
authors.lastname: de Wit
authors.affiliation: EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.|Department of Pediatrics, VU Medical Center, Amsterdam, The Netherlands.
authors.forename: Joost
authors.initials: J
authors.lastname: Rotteveel
authors.affiliation: Department of Medical Psychology, Catharina Hospital, Eindhoven, The Netherlands.
authors.forename: Nienke
authors.initials: N
authors.lastname: Maas-van Schaaijk
authors.affiliation: Department of Pediatrics, Catharina Hospital, Eindhoven, The Netherlands.
authors.forename: Angelique
authors.initials: A
authors.lastname: Roeleveld-Versteegh
authors.affiliation: Department of Medical Psychology, VU University Medical Center, Amsterdam, The Netherlands.|EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
authors.forename: Frank
authors.initials: F
authors.lastname: Snoek
mesh_terms: D000293:Adolescent; D000328:Adult; D001290:Attitude; D003922:Diabetes Mellitus, Type 1 / Q000453:epidemiology / Q000523:psychology / Q000628:therapy*; D005260:Female; D006284:Health Plan Implementation / Q000592:standards; D006801:Humans; D008297:Male; D008991:Monitoring, Physiologic / Q000379:methods*; D009426:Netherlands / Q000453:epidemiology; D010290:Parents / Q000523:psychology; D010342:Patient Acceptance of Health Care / Q000706:statistics & numerical data; D010348:Patient Care Team; D011320:Primary Health Care / Q000379:methods / Q000592:standards; D011788:Quality of Life; D011795:Surveys and Questionnaires
keywords: adolescent; diabetes mellitus; health planning; quality of life; type 1