title: Through the eyes of young sibling donors: the hematopoietic stem cell donation experience.
abstract: This qualitative study used a grounded theory approach to explore how pediatric sibling donors of a successful hematopoietic stem cell transplantation conceptualized their donation experiences. Saving my sister's (or brother's) life describes the central phenomenon identified by this purposive sample of 8 sibling donors. Five themes captured their memories: being the perfect match, stepping up, worrying about the outcome, the waiting process, and sharing a special bond. Further research surrounding changes in relational issues will provide insight into inter-sibling support and the developmental course of the sibling relationship into adulthood when intensified by a health crisis.
authors.affiliation: The University of North Carolina at Chapel Hill School of Nursing, Chapel Hill, NC. Electronic address: jdauria@email.unc.edu.
authors.forename: Jennifer P
authors.initials: JP
authors.lastname: D'Auria
authors.affiliation: RTI International, Research Triangle Park, NC.
authors.forename: Tania M
authors.initials: TM
authors.lastname: Fitzgerald
authors.affiliation: The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC.
authors.forename: Cammie M
authors.initials: CM
authors.lastname: Presler
authors.affiliation: The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC.
authors.forename: Kimberly A
authors.initials: KA
authors.lastname: Kasow
mesh_terms: D000293:Adolescent; D000367:Age Factors; D064591:Allografts; D002648:Child; D005260:Female; D066296:Grounded Theory; D019337:Hematologic Neoplasms / Q000601:surgery*; D018380:Hematopoietic Stem Cell Transplantation / Q000379:methods / Q000523:psychology*; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D036301:Qualitative Research; D012801:Sibling Relations; D035781:Siblings / Q000523:psychology*; D014019:Tissue Donors / Q000523:psychology*; D055815:Young Adult
keywords: Bone marrow transplant; Donor; Interview; Pediatric; Qualitative; Sibling