title: Caregiver Preferences Regarding Personal Health Records in the Management of ADHD.
abstract: OBJECTIVE
  Personal health records (PHRs) may address the needs of children with attention deficit hyperactivity disorder. Among parents, we assessed acceptance, barriers, and intentions regarding use of PHR for their children with attention deficit hyperactivity disorder.
  
  
  METHODS
  Survey of parents from 3 practices in Rochester, NY. Stepwise logistic regression analysis explored factors predicting respondents' intentions for future use of PHR, accounting for care coordination needs, caregiver education, socioeconomic status, and satisfaction with providers.
  
  
  RESULTS
  Of 184 respondents, 23% had used the PHR for their child, 82% intended future use. No difference was observed between users and nonusers regarding gender, age, race, or education. Users were more likely than nonusers to reside in the suburbs (P = .03). Caregivers were more likely to plan future use of the PHR if they felt engaged as partners in their child's care (adjusted odds ratio = 2.3, 95% confidence interval = 1.2, 4.5).
  
  
  CONCLUSIONS
  Parents are enthusiastic about PHRs. Future work should focus on engaging them as members of the health care team.
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA sarah.ronis@uhhospitals.org.
authors.forename: Sarah D
authors.initials: SD
authors.lastname: Ronis
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
authors.forename: Constance D
authors.initials: CD
authors.lastname: Baldwin
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
authors.forename: Scott
authors.initials: S
authors.lastname: McIntosh
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
authors.forename: Kenneth
authors.initials: K
authors.lastname: McConnochie
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
authors.forename: Peter G
authors.initials: PG
authors.lastname: Szilagyi
authors.affiliation: University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
authors.forename: James
authors.initials: J
authors.lastname: Dolan
mesh_terms: D001289:Attention Deficit Disorder with Hyperactivity / Q000628:therapy*; D017028:Caregivers / Q000523:psychology* / Q000706:statistics & numerical data; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D057286:Electronic Health Records; D005260:Female; D055991:Health Records, Personal / Q000523:psychology*; D006801:Humans; D033182:Intention; D008297:Male; D009518:New York; D010290:Parents / Q000523:psychology*; D010342:Patient Acceptance of Health Care / Q000523:psychology / Q000706:statistics & numerical data; D017060:Patient Satisfaction; D012959:Socioeconomic Factors
keywords: ADHD; health service needs; patient centered care; personal health records