title: Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery.
abstract: BACKGROUND
  Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery.
  
  
  METHODS
  An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals.
  
  
  RESULTS
  Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20% had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales.
  
  
  CONCLUSIONS
  These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.
authors.affiliation: School of Psychology, University of Central Lancashire, Preston PR1 2HE, UK. Electronic address: jabbott@uclan.ac.uk.
authors.forename: J
authors.initials: J
authors.lastname: Abbott
authors.affiliation: School of Medicine, Queen's University, Belfast BT7 1NN, UK.
authors.forename: J S
authors.initials: JS
authors.lastname: Elborn
authors.affiliation: Department of Child and Adolescent Psychiatry, Massachusetts General Hospital, Boston, MA 02114, USA.
authors.forename: A M
authors.initials: AM
authors.lastname: Georgiopoulos
authors.affiliation: Child and Adolescent Psychiatry, University Ulm Medical Centre, D-89075 Ulm, Germany.
authors.forename: L
authors.initials: L
authors.lastname: Goldbeck
authors.affiliation: Cystic Fibrosis Foundation, Medical Department, Bethesda, Maryland, MD 20814, USA.
authors.forename: B C
authors.initials: BC
authors.lastname: Marshall
authors.affiliation: The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH 03766, USA.
authors.forename: K A
authors.initials: KA
authors.lastname: Sabadosa
authors.affiliation: Department of Psychiatry, University of Buffalo, NY 14202, USA.
authors.forename: B A
authors.initials: BA
authors.lastname: Smith
authors.affiliation: Department of Psychology, University of Miami, FL 33146, USA.
authors.forename: A L
authors.initials: AL
authors.lastname: Quittner
mesh_terms: D001291:Attitude of Health Personnel; D003550:Cystic Fibrosis / Q000523:psychology* / Q000628:therapy*; D006297:Health Services Accessibility / Q000458:organization & administration*; D006801:Humans; D008605:Mental Health Services / Q000458:organization & administration*; D011795:Surveys and Questionnaires; D006113:United Kingdom; D014481:United States
keywords: Anxiety; Depression; Screening