title: Health-Related Quality of Life in adolescent survivors of burns: Agreement on self-reported and mothers' and fathers' perspectives.
abstract: OBJECTIVE
  This study examined the agreement on self-reported Health-Related Quality of Life (HRQOL) between adolescents with burns and their mother's and father's observation at 6 and 18 months after the burn. Moreover, factors potentially influencing discrepancies between the adolescent and proxy reports were examined.
  
  
  METHODS
  Children with burns (11-18 years old) and their mother and father were invited to participate. A total of 54 adolescents aged 11 years or older filled out the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ). Descriptive and correlational analyses were performed.
  
  
  RESULTS
  The physical functioning scores showed to be optimal in almost all participants (99%) and across the three informants. Adolescents reported better functioning than their fathers and mothers on most of the scales. On average the correlations between self-reports and proxy reports were moderate to good. Higher parental traumatic stress scores were linked to less favorable parent-reported burn outcomes.
  
  
  CONCLUSIONS
  Overall, this study showed that a large proportion of the parents had similar views on the adolescents physical functioning, but disparities emerged also, mainly in psychosocial scales. The discrepancies between self- and parent reports should be discussed when they have a role in treatment decisions. Preferably, besides parent-reports, adolescents' self-reports should be included in clinical assessments and treatment decisions, as parental traumatic stress symptoms are a possible factor influencing parental observations.
authors.affiliation: Interunit Nursing Doctoral Program, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: raquelpan01@gmail.com.
authors.forename: Raquel
authors.initials: R
authors.lastname: Pan
authors.affiliation: Association of Dutch Burn Centers, Beverwijk, The Netherlands; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: megberts@burns.nl.
authors.forename: Marthe R
authors.initials: MR
authors.lastname: Egberts
authors.affiliation: Maternal-Infant and Public Health Nursing Department, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil. Electronic address: lucila@eerp.usp.br.
authors.forename: Lucila Castanheira
authors.initials: LC
authors.lastname: Nascimento
authors.affiliation: General and Specialized Nursing Department, University of São Paulo at Ribeirão Preto College of Nursing, WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil. Electronic address: rizzardo@eerp.usp.br.
authors.forename: Lídia Aparecida
authors.initials: LA
authors.lastname: Rossi
authors.affiliation: Queen Astrid Military Hospital, Burn Center, Psychologist, Brussels, Belgium. Electronic address: els.vandermeulen@mil.be.
authors.forename: Els
authors.initials: E
authors.lastname: Vandermeulen
authors.affiliation: Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: R.Geenen@uu.nl.
authors.forename: Rinie
authors.initials: R
authors.lastname: Geenen
authors.affiliation: Association of Dutch Burn Centers, Beverwijk, The Netherlands; Department of Clinical & Health Psychology, Utrecht University, Utrecht, The Netherlands. Electronic address: nvanloey@burns.nl.
authors.forename: Nancy E
authors.initials: NE
authors.lastname: Van Loey
mesh_terms: D000293:Adolescent; D002056:Burns / Q000523:psychology*; D002648:Child; D005220:Fathers / Q000523:psychology*; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D009035:Mothers / Q000523:psychology*; D019727:Proxy; D011788:Quality of Life / Q000523:psychology*; D057566:Self Report; D013313:Stress Disorders, Post-Traumatic / Q000523:psychology*; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*
keywords: Adolescents; Burn Outcomes Questionnaire; Burns; Family; Health-Related Quality of Life; Parents; Post-traumatic stress