title: [Long-term follow up of childhood cancer survivors in the Murcia Region: preferences and attitudes of Primary Care professionals].
abstract: OBJECTIVE
  To assess attitudes, beliefs and knowledge of primary medical care professionals as regards the follow-up of Childhood Cancer Survivors (CCS) and the introduction of a Long-Term Follow-Up Program for Childhood Cancer Survivors in the Region of Murcia (PLASESCAP-MUR).
  
  
  METHODS
  Descriptive cross-sectional study using a structured, self-administered questionnaire. These questionnaires were sent to all primary medical care professionals in Murcia Health District 1.
  
  
  RESULTS
  Response rate of 58% (100/172), with 71% and 22% being family physicians and pediatricians, respectively, of whom 49% provided medical care to a CCS in the last 5 years, with 84% reporting that they never or rarely received a detailed report of overall assessment of the survivor. More than 75% found that access to detailed follow-up information was quite or very useful; 95% prefer to consult experts when providing medical care to survivors, and 80% believe that improving the quality of the environment may decrease the morbidity and mortality of the survivors. A statistically significant relationship was found between the length of practicing medicine and the perception of the importance of environmental factors.
  
  
  CONCLUSIONS
  It seems to be important to increase the training of primary care professionals for the long-term follow-up of CCS, as well as having the detailed information through a personalized long-term follow-up of each survivor. PLASESCAP-MUR offers an integrated follow-up to CCS in a model of shared care between Long Term Monitoring Units and Primary Care Units.
authors.affiliation: Unidad de Salud Medioambiental Pediátrica, Servicio de Pediatría, Laboratorio de Entorno y Salud Humana, Instituto de Investigación Biosanitaria de la Región de Murcia (IMIB), Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: A
authors.initials: A
authors.lastname: Cárceles-Álvarez
authors.affiliation: Unidad de Salud Medioambiental Pediátrica, Servicio de Pediatría, Laboratorio de Entorno y Salud Humana, Instituto de Investigación Biosanitaria de la Región de Murcia (IMIB), Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España. Electronic address: ortega@pehsu.org.
authors.forename: J A
authors.initials: JA
authors.lastname: Ortega-García
authors.affiliation: Sección de Oncología y Hematología Pediátricas, Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: J L
authors.initials: JL
authors.lastname: Fuster-Soler
authors.affiliation: Unidad de Salud Medioambiental Pediátrica, Servicio de Pediatría, Laboratorio de Entorno y Salud Humana, Instituto de Investigación Biosanitaria de la Región de Murcia (IMIB), Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: G A
authors.initials: GA
authors.lastname: Rivera-Pagán
authors.affiliation: Sección de Oncología y Hematología Pediátricas, Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: M
authors.initials: M
authors.lastname: Bermúdez-Cortés
authors.affiliation: Unidad de Salud Medioambiental Pediátrica, Servicio de Pediatría, Laboratorio de Entorno y Salud Humana, Instituto de Investigación Biosanitaria de la Región de Murcia (IMIB), Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: V
authors.initials: V
authors.lastname: Gomariz-Peñalver
authors.affiliation: Servicio de Docencia y Formación. Gerencia de Área n.° 1 Murcia-Oeste, Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, España.
authors.forename: E
authors.initials: E
authors.lastname: Monzó-Nuñez
authors.affiliation: Departamento de Métodos Cuantitativos e Informáticos, Universidad Politécnica de Cartagena, Murcia, España.
authors.forename: F A
authors.initials: FA
authors.lastname: López-Hernández
mesh_terms: D000293:Adolescent; D001291:Attitude of Health Personnel; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D005260:Female; D005500:Follow-Up Studies; D019538:Health Care Surveys; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007223:Infant; D008297:Male; D009369:Neoplasms / Q000628:therapy*; D011320:Primary Health Care; D013030:Spain; D017741:Survivors; D013997:Time Factors
keywords: Atención primaria; Environmental health; Long-term care; Neoplasias; Neoplasms; Pediatrics; Pediatría; Primary health care; Salud medioambiental; Seguimiento a largo plazo; Supervivientes; Survivors