title: 'Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders.
abstract: Fathers are increasingly invited to take part in antenatal care of which screening for sickle cell trait is a part. Expectations about involvement reflect changing perceptions of fatherhood and negotiation of gendered identities. Current policy supports male involvement, but is less clear on what basis and with what consequences. In exploring this, our qualitative study, using semi-structured interviews, presents the experiences of fathers who have recently undergone antenatal screening for sickle cell. The sample was generated in discussion with eight non-governmental organisations. We recruited 24 fathers from nine UK cities. Our analysis outlines the importance of 'presence', in which fathers rely on nurturing definitions of fatherhood to display their sense of responsibility. Fathers, however, struggled to find a meaningful role as traditional masculinities became juxtaposed with new and complex forms of gender organisation, creating the potential for estrangement. To conclude, screening policy makes an appeal to emergent masculinities. It also generates risks and compromises choice, due to the normative values implicit in the screening process, reinforced by the more controlling aspects of health surveillance. This creates confusion among fathers, who are not sure why they have been invited into the antenatal space.
authors.affiliation: Department of Health Sciences, University of York, Seebohm Rowntree Building, York YO10 5DD, UK. Electronic address: karl.atkin@york.ac.uk.
authors.forename: Karl
authors.initials: K
authors.lastname: Atkin
authors.affiliation: Department of Health Sciences, University of York, Seebohm Rowntree Building, York YO10 5DD, UK. Electronic address: maria.berghs@york.ac.uk.
authors.forename: Maria
authors.initials: M
authors.lastname: Berghs
authors.affiliation: De Montfort University, Room 1.27, Hawthorn Building, Leicester LE1 9BH, UK. Electronic address: sdyson@dmu.ac.uk.
authors.forename: Simon
authors.initials: S
authors.lastname: Dyson
mesh_terms: D000328:Adult; D000755:Anemia, Sickle Cell / Q000175:diagnosis*; D005220:Fathers / Q000523:psychology*; D005260:Female; D005820:Genetic Testing; D006801:Humans; D008297:Male; D057228:Masculinity; D011247:Pregnancy; D011296:Prenatal Diagnosis
keywords: Antenatal care; Fatherhood; Genetic screening; Masculinity; Sickle cell; UK