title: Primary care-led dementia diagnosis services in South Gloucestershire: Themes from people and families living with dementia and health care professionals.
abstract: BACKGROUND
  Primary care-led dementia services are an increasingly common form of service delivery; however, little is known about how these services are understood by their main stakeholders: the patients, family members and health care professionals. A primary care-led dementia service was piloted in the South Gloucestershire area during 2012, in which general practitioners (GPs) led the process of assessment and establishing a diagnosis. Of the 26 surgeries in the area, 11 initially agreed to participate in the pilot, with 12 more joining the project by the end of December 2012.
  
  
  OBJECTIVE
  The aim of this study was to provide a qualitative analysis of the experiences of health care professionals, patients and their families, of the new process of assessment, diagnosis and treatment of dementia within a primary care service.
  
  
  METHODS
  Four patients, three care-givers and eight health care professionals were interviewed by peer researchers - all of whom were current care-givers. Interviews were transcribed and analysed using thematic analysis following Braun and Clarke's model. Data were also gathered about the number of referrals and what happened to these referrals.
  
  
  RESULTS
  Themes gathered into four main areas: 'the journey', 'what next?', 'the benefits and limits of primary care' and 'are GPs getting it right'?
  
  
  CONCLUSIONS
  The analysis provided a perspective on the experiences of patients, family members and health care professionals involved in the relocation of part of the memory service, from secondary care (memory clinics) to primary care, being piloted in South Gloucestershire. This identified both practical issues to be improved upon as well as possible barriers.
authors.affiliation: Glenside Campus, University of the West of England, Bristol, UK emily3.dodd@uwe.ac.uk.
authors.forename: Emily
authors.initials: E
authors.lastname: Dodd
authors.affiliation: Glenside Campus, University of the West of England, Bristol, UK.
authors.forename: Richard
authors.initials: R
authors.lastname: Cheston
authors.affiliation: Avon and Wiltshire Partnership NHS Trust, Bristol, UK.
authors.forename: Sarah
authors.initials: S
authors.lastname: Cullum
authors.affiliation: Bristol Community Health, Bristol, UK.
authors.forename: Rosalyn
authors.initials: R
authors.lastname: Jefferies
authors.affiliation: Glenside Campus, University of the West of England, Bristol, UK.
authors.forename: Sanda
authors.initials: S
authors.lastname: Ismail
authors.affiliation: Glenside Campus, University of the West of England, Bristol, UK.
authors.forename: Lauren
authors.initials: L
authors.lastname: Gatting
authors.affiliation: Glenside Campus, University of the West of England, Bristol, UK.
authors.forename: Tina
authors.initials: T
authors.lastname: Fear
authors.affiliation: Hamad Medical Corporation, Doha, Qatar; The University of South Australia, Adelaide, Australia.
authors.forename: Richard
authors.initials: R
authors.lastname: Gray
mesh_terms: D000368:Aged; D001291:Attitude of Health Personnel; D017028:Caregivers / Q000523:psychology; D003704:Dementia / Q000175:diagnosis* / Q000523:psychology / Q000628:therapy*; D004739:England; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D008875:Middle Aged; D010043:Outcome and Process Assessment, Health Care; D011320:Primary Health Care / Q000592:standards*; D036301:Qualitative Research
keywords: Alzheimer’s disease; dementia; diagnosis; memory clinics; primary care