title: Multidisciplinary ALS clinics in the USA: A comparison of those who attend and those who do not.
abstract: Optimization of quality of life (QoL) is perceived by many as the primary goal for patients with amyotrophic lateral sclerosis (ALS), often via multidisciplinary clinics (MDCs). The aim of this study was to examine the differences in QoL, physical function, and social problem-solving skills for individuals with ALS attending MDCs compared to non-attenders. An online survey was completed by 295 people with ALS in the United States. Results showed there were no differences between the groups in global QoL, measures of physical function, or social problem-solving skills. Attenders and non-attenders of MDCs reported similar use of treatments for their ALS, although attenders received more health care services from nurses, therapists, social workers, dieticians, and in-home care providers. In conclusion, oher instruments may be needed to assess the benefits of MDCs. Qualitative studies of attenders and non-attenders of MDCs may reveal important differences that could guide care.
authors.affiliation: Department of Neurology.
authors.forename: Helen E
authors.initials: HE
authors.lastname: Stephens
authors.forename: Stephanie
authors.initials: S
authors.lastname: Felgoise
authors.forename: Jared
authors.initials: J
authors.lastname: Young
authors.forename: Zachary
authors.initials: Z
authors.lastname: Simmons
mesh_terms: D000368:Aged; D000690:Amyotrophic Lateral Sclerosis / Q000453:epidemiology / Q000523:psychology / Q000628:therapy; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010348:Patient Care Team; D011788:Quality of Life / Q000523:psychology*; D012720:Severity of Illness Index; D012920:Social Behavior Disorders / Q000209:etiology*; D014481:United States / Q000453:epidemiology
keywords: Multidisciplinary care; amyotrophic lateral sclerosis; problem solving; quality of life