title: Shared governance in building community capacity: A case study of sleep apnea.
abstract: East Harlem has the highest diabetes mortality rate in New York City, NY. Using Community Based Participatory Research principles, the East Harlem Partnership for Diabetes Prevention-a community- academic partnership-formed to build community capacity with a goal to address health disparities in East Harlem. As part of prevention efforts, community partners chose to study the prevalence of obstructive sleep apnea and its relationship to pre-diabetes and progression to diabetes. However, community partners insisted any study of sleep apnea go beyond simple assessment to ensure the largely uninsured, minority population enrolled also have access to state of the art diagnosis and treatment. Through compromise and collaboration, the partnership developed a culturally appropriate and scientifically rigorous method to diagnose and treat sleep apnea as part of a novel research program.
authors.affiliation: Departments of Health Evidence and Policy and Preventive Medicine, Mount Sinai School of Medicine, New York, United States of America.
authors.forename: Euny C
authors.initials: EC
authors.lastname: Lee
authors.affiliation: Union Settlement Association, New York, United States of America.
authors.forename: Ellen P
authors.initials: EP
authors.lastname: Simon
authors.affiliation: Departments of Health Evidence and Policy and Preventive Medicine, Mount Sinai School of Medicine, New York, United States of America.
authors.forename: Jillian
authors.initials: J
authors.lastname: Nickerson
authors.affiliation: Departments of Health Evidence and Policy and Preventive Medicine, Mount Sinai School of Medicine, New York, United States of America.
authors.forename: Barbara
authors.initials: B
authors.lastname: Brenner
authors.affiliation: East Harlem Partnership for Diabetes Prevention and Senior Health Partners, New York, United States of America.
authors.forename: Sandra
authors.initials: S
authors.lastname: Talavera
authors.affiliation: East Harlem Partnership for Diabetes Prevention and Centers for Community and Academic Research Partnerships, Mount Sinai CONDUITS, New York, United States of America.
authors.forename: Crispin
authors.initials: C
authors.lastname: Goytia
authors.affiliation: Institute for Family Health, Family Health Center at North General, 1879 Madison Ave, New York, United States of America.
authors.forename: Guedy
authors.initials: G
authors.lastname: Arniella
authors.affiliation: Departments of Health Evidence and Policy and Preventive Medicine, Mount Sinai School of Medicine, New York, United States of America.
authors.forename: Carol R
authors.initials: CR
authors.lastname: Horowitz
keywords: East Harlem; Obstructive sleep apnea; community capacity building; community-based participatory research; diabetes prevention; underserved communities