title: Evaluation of a Resource for Adolescents and Young Adults Diagnosed With Cancer.
abstract: OBJECTIVE
  Adolescents and young adults (AYAs) have a need for information about their cancer diagnosis. The purpose of this study was to evaluate a book for AYAs diagnosed with cancer, in particular to assess satisfaction, changes in perceived knowledge and coping, the impact of health literacy (HL) on perceived knowledge, and the impact of the book on distress levels.
  
  
  METHODS
  Forty-six AYAs (12-24 years of age) completed questionnaires before and after receiving the Now What . . . ? book designed to provide broad and comprehensive information to AYAs with cancer.
  
  
  RESULTS
  Overall satisfaction with the book was excellent. Levels of perceived knowledge increased in several domains; however, levels of distress, which were elevated, did not improve after participants received the book. Levels of HL related to prebook perceived knowledge, but not to postbook perceived knowledge, suggested that the book is useful for people with all levels of HL.
  
  
  CONCLUSIONS
  The usefulness and high levels of satisfaction with the book, including the qualitative feedback, demonstrate the potential benefit of the Now What . . . ? books for AYA patients diagnosed with cancer.
authors: CanTeen Australia, NSW, Australia Cancer Nursing Research Unit, Sydney Nursing School, The University of Sydney, NSW, Australia Fiona.mcdonald@canteen.org.au.
authors: Fiona E J
authors: FE
authors: McDonald
authors: CanTeen Australia, NSW, Australia Cancer Nursing Research Unit, Sydney Nursing School, The University of Sydney, NSW, Australia.
authors: Pandora
authors: P
authors: Patterson
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services; D002648:Child; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000175:diagnosis / Q000451:nursing*; D009859:Oncology Nursing; D010353:Patient Education as Topic; D010371:Pediatric Nursing; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: AYA; oncology; patient education; resource; youth