title: From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care.
abstract: OBJECTIVE
  To evaluate the perception of oncology patients and their caregivers upon diagnosis and beginning of the therapy and during palliative care.
  
  
  METHODS
  A cross-sectional study at the oncology and palliative care outpatients clinics of the Faculdade de Medicina do ABC. Clinical and demographic data from patients and their caregivers were collected and questionnaires regarding the elements considered important in relation to the treatment were applied.
  
  
  RESULTS
  We enrolled 32 patients and 23 caregivers that were initiating treatment at the oncology outpatient clinic, as well as 20 patients and 20 caregivers at the palliative care clinic. Regarding the patients treated at the oncology clinic, the issues considered most important were a physician available to discuss the disease and answer questions (84%), trust in the physician (81%), and a physician with accessible language (81%). For their caregivers, the following issues were considered extremely important: trust in the medical team that treats the patients (96%), and the same medical team taking care of their relatives (87%). As to patients treated at the palliative care clinic, trust in the physician (83%), to be with people considered important to them (78%), and to be treated preserving their dignity (72%) were considered extremely important. For their caregivers, to receive adequate information about the disease and the treatment's risks and benefits (84%), and sincere communication of information about the disease (79%) were considered extremely relevant.
  
  
  CONCLUSIONS
  Confidence through good communication and consistency in care were fundamental values to achieve satisfaction among caregivers and patients with cancer during all the course of disease development.
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Bruna Antenussi
authors: BA
authors: Munhoz
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Henrique Soares
authors: HS
authors: Paiva
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Beatrice Martinez Zugaib
authors: BM
authors: Abdalla
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Guilherme
authors: G
authors: Zaremba
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Andressa Macedo Paiva
authors: AM
authors: Rodrigues
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Mayra Ribeiro
authors: MR
authors: Carretti
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Camila Ribeiro de Arruda
authors: CR
authors: Monteiro
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Aline
authors: A
authors: Zara
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Jussara Oliveira
authors: JO
authors: Silva
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Widner Baptista
authors: WB
authors: Assis
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Luciana Campi
authors: LC
authors: Auresco
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Leonardo Lopes
authors: LL
authors: Pereira
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Adriana Braz Del
authors: AB
authors: Giglio
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Ana Claudia de Oliveira
authors: AC
authors: Lepori
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Damila Cristina
authors: DC
authors: Trufelli
authors: Faculdade de Medicina do ABC, Santo André, SP, Brazil.
authors: Auro
authors: A
authors: del Giglio
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D003142:Communication; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008495:Medical Oncology; D008875:Middle Aged; D009369:Neoplasms / Q000175:diagnosis / Q000523:psychology / Q000628:therapy; D016522:Oncology Service, Hospital; D010045:Outpatients / Q000523:psychology; D010166:Palliative Care / Q000379:methods / Q000523:psychology*; D010348:Patient Care Team; D017060:Patient Satisfaction; D010817:Physician-Patient Relations; D011795:Surveys and Questionnaires; D013997:Time Factors; D016896:Treatment Outcome
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