title: Exploring Knowledge About Dialysis, Transplantation, and Living Donation Among Patients and Their Living Kidney Donors.
abstract: BACKGROUND
  In order to make a well-considered decision and give informed consent about renal replacement therapy, potential living kidney donors and recipients should have sufficient understanding of the options and risks.
  
  
  OBJECTIVE
  We aimed to explore knowledge about Dialysis & Transplantation (DT) and Living Donation (LD) among prospective living kidney donors and recipients.
  
  
  METHODS
  Eighty-five donors and 81 recipients completed the Rotterdam Renal Replacement Knowledge-Test (R3K-T) 1 day before surgery. The questionnaire was available in various languages.
  
  
  RESULTS
  Recipients knew significantly more about DT than donors (p < 0.001); donors knew more about LD than recipients (p < 0.001). A minority of donors (15 %) and recipients (17 %) had a score that was comparable to the knowledge level of the naïve general population. Recipients and donors knew less about DT and LD if their native language was not Dutch. In addition, recipients knew less about DT if they were undergoing pre-emptive transplantation.
  
  
  CONCLUSIONS
  We conclude that recipients and donors retain different information. The decision to undergo living donation appears to be not always based on full knowledge of the risks. We recommend that professionals assess knowledge of prospective donors and recipients during the education process using the R3K-T, and extra attention is required for non-native speakers.
authors: Department of Internal Medicine, Section Nephrology & Transplantation, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands. l.timmerman.1@erasmusmc.nl.
authors: Lotte
authors: L
authors: Timmerman
authors: Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Sohal Y
authors: SY
authors: Ismail
authors: General Surgery, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Annemarie E
authors: AE
authors: Luchtenburg
authors: Department of Internal Medicine, Section Nephrology & Transplantation, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Willij C
authors: WC
authors: Zuidema
authors: General Surgery, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Jan N M
authors: JN
authors: IJzermans
authors: Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Jan J V
authors: JJ
authors: Busschbach
authors: Department of Internal Medicine, Section Nephrology & Transplantation, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Willem
authors: W
authors: Weimar
authors: Department of Internal Medicine, Section Nephrology & Transplantation, Erasmus Medical Center Rotterdam, P.O. Box 2040, 3000 CA, Rotterdam, The Netherlands.
authors: Emma K
authors: EK
authors: Massey
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D006801:Humans; D016030:Kidney Transplantation; D019520:Living Donors; D008297:Male; D008875:Middle Aged; D006435:Renal Dialysis; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Informed consent; Kidney transplantation; Knowledge; Living donor; Organ donation; Questionnaire
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