title: [Long-term home oxygen therapy in children: evidences and open issues].
abstract: BACKGROUND
  Long-term home oxygen therapy is indicated for patients with chronic hypoxemia. We intend to describe pediatric population on long-term home oxygen therapy followed-up at Pediatric Respiratory Unit of a tertiary care hospital between 2003-2012 and to compare with previous 1991-2000 review; to verify conformity with international and national recommendations and need for specific pediatric national guidelines, non-existent in Portugal.
  
  
  METHODS
  Retrospective, descriptive and comparative study based on clinical files review. Review the guidelines for oxygen therapy in pediatric population.
  
  
  RESULTS
  We studied 86 patients (59.3% males). The median age at the beginning of oxygen therapy was 0.0 (0.0-216.0) months, with a median duration of 15.0 (3.0-223.0) months. The most frequent diagnosis was bronchopulmonary dysplasia (53.5%), followed by bronchiolitis obliterans (14.0%), neurologic disorders (10.5%), cystic fibrosis (8.1%), miscellaneous syndromes (5.8%), sickle-cell disease (3.5%), other neonatal lung diseases (2.3%) and interstitial lung diseases (2.3%). Are maintained on follow-up 53 (61.6%) patients, 38 on oxygen therapy; 12 (13.9%) died. The median time of follow-up was 39.5 (1.0-246.0) months, minim on other neonatal lung diseases and maximum on cystic fibrosis. Comparing with previous review, this shows a relative increase in bronchiolitis obliterans and bronchopulmonary dysplasia patients, with increased duration in the latter, and inclusion of neurologic and hematologic patients.
  
  
  CONCLUSIONS
  Prescription of long-term oxygen therapy in pediatric age mainly occurs in specific diseases of infants and pre-school aged. Neurologic and hematologic patients represent new indications, similarly to international publications.
  
  
  CONCLUSIONS
  The knowledge of national reality and pediatric orientations are needed for care plans and rational prescription.
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Lia
authors: L
authors: Oliveira
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Joana
authors: J
authors: Coelho
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal. Unidade de Pneumologia Pediátrica. Cuidados Respiratórios Domiciliários e de TransiçÉo. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Rosário
authors: R
authors: Ferreira
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal. Unidade de Pneumologia Pediátrica. Cuidados Respiratórios Domiciliários e de TransiçÉo. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Teresa
authors: T
authors: Nunes
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal. Unidade de Pneumologia Pediátrica. Cuidados Respiratórios Domiciliários e de TransiçÉo. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Ana
authors: A
authors: Saianda
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal. Unidade de Pneumologia Pediátrica. Cuidados Respiratórios Domiciliários e de TransiçÉo. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Luisa
authors: L
authors: Pereira
authors: Serviço de Pediatria Médica. Departamento de Pediatria. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal. Unidade de Pneumologia Pediátrica. Cuidados Respiratórios Domiciliários e de TransiçÉo. Hospital de Santa Maria. Centro Hospitalar Lisboa Norte. Lisboa. Portugal.
authors: Teresa
authors: T
authors: Bandeira
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D005260:Female; D019983:Guideline Adherence / Q000706:statistics & numerical data; D006699:Home Care Services; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D010102:Oxygen Inhalation Therapy / Q000592:standards; D012189:Retrospective Studies; D013997:Time Factors