title: The Information Needs of South African Parents of Children With Cancer.
abstract: Information is an important need in order for parents to be empowered to face their child's cancer condition. To explore the information needs of parents of children with cancer treated at an academic hospital in the Gauteng Province of South Africa, a descriptive phenomenological design was selected. The study setting was an academic hospital in Johannesburg and purposive sampling included 13 parents who spoke English and were willing to participate in the study. Qualitative interviews were conducted and thematic analyses were used to analyze the data. Four themes emerged from the data: the shock of the diagnosis, information needs about the disease and investigations, living with the treatment, and communication of the information. There was no consensus on which information was needed at specific points in time and parents had different opinions on how information should be made available to them. Continuous assessment allowing individualized information, according to the preference of the parents in the language of choice, could possibly meet their information needs.
authors: University of the Witwatersrand, Johannesburg, South Africa lize.maree@wits.ac.za.
authors: Johanna E
authors: JE
authors: Maree
authors: University of the Witwatersrand, Johannesburg, South Africa.
authors: Sarah
authors: S
authors: Parker
authors: University of the Witwatersrand, Johannesburg, South Africa.
authors: Lara
authors: L
authors: Kaplan
authors: University of the Witwatersrand, Johannesburg, South Africa.
authors: Juanita
authors: J
authors: Oosthuizen
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D003142:Communication; D019988:Children with Disabilities; D006301:Health Services Needs and Demand; D006801:Humans; D033181:Information Dissemination; D007407:Interviews as Topic; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology*; D010290:Parents / Q000193:education / Q000523:psychology*; D010353:Patient Education as Topic; D010372:Pediatrics / Q000458:organization & administration / Q000592:standards; D036301:Qualitative Research; D012944:Social Support; D013019:South Africa / Q000453:epidemiology
keywords: South Africa; childhood cancer; information needs; qualitative study