title: Engaging community stakeholders to evaluate the design, usability, and acceptability of a chronic obstructive pulmonary disease social media resource center.
abstract: BACKGROUND
  Patients with chronic obstructive pulmonary disease (COPD) often report inadequate access to comprehensive patient education resources.
  
  
  OBJECTIVE
  The purpose of this study was to incorporate community-engagement principles within a mixed-method research design to evaluate the usability and acceptability of a self-tailored social media resource center for medically underserved patients with COPD.
  
  
  METHODS
  A multiphase sequential design (qual → QUANT → quant + QUAL) was incorporated into the current study, whereby a small-scale qualitative (qual) study informed the design of a social media website prototype that was tested with patients during a computer-based usability study (QUANT). To identify usability violations and determine whether or not patients found the website prototype acceptable for use, each patient was asked to complete an 18-item website usability and acceptability questionnaire, as well as a retrospective, in-depth, semistructured interview (quant + QUAL).
  
  
  RESULTS
  The majority of medically underserved patients with COPD (n=8, mean 56 years, SD 7) found the social media website prototype to be easy to navigate and relevant to their self-management information needs. Mean responses on the 18-item website usability and acceptability questionnaire were very high on a scale of 1 (strongly disagree) to 5 (strongly agree) (mean 4.72, SD 0.33). However, the majority of patients identified several usability violations related to the prototype's information design, interactive capabilities, and navigational structure. Specifically, 6 out of 8 (75%) patients struggled to create a log-in account to access the prototype, and 7 out of 8 patients (88%) experienced difficulty posting and replying to comments on an interactive discussion forum.
  
  
  CONCLUSIONS
  Patient perceptions of most social media website prototype features (eg, clickable picture-based screenshots of videos, comment tools) were largely positive. Mixed-method stakeholder feedback was used to make design recommendations, categorize usability violations, and prioritize potential solutions for improving the usability of a social media resource center for COPD patient education.
authors: Center for Digital Health and Wellness, Department of Health Education and Behavior, University of Florida, Gainesville, FL, United States. mstellefson@ufl.edu.
authors: Michael
authors: http://orcid.org/0000-0003-1717-4114
authors: M
authors: Stellefson
authors: Beth
authors: http://orcid.org/0000-0003-1679-715X
authors: B
authors: Chaney
authors: Don
authors: http://orcid.org/0000-0002-1342-5820
authors: D
authors: Chaney
authors: Samantha
authors: http://orcid.org/0000-0001-6141-5099
authors: S
authors: Paige
authors: Caroline
authors: http://orcid.org/0000-0002-8319-7923
authors: C
authors: Payne-Purvis
authors: Bethany
authors: http://orcid.org/0000-0001-8956-1434
authors: B
authors: Tennant
authors: Kim
authors: http://orcid.org/0000-0002-0050-3359
authors: K
authors: Walsh-Childers
authors: Ps
authors: http://orcid.org/0000-0002-6103-3573
authors: P
authors: Sriram
authors: Julia
authors: http://orcid.org/0000-0002-0822-846X
authors: J
authors: Alber
keywords: COPD; health communication; patient education; social media
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