title: Cancer-related internet information communication between oncologists and patients with breast cancer: a qualitative study.
abstract: OBJECTIVE
  Many patients with cancer search out information about their cancer on the internet, thus affecting their relationship with their oncologists. An in-depth analysis of patient-physician communication about information obtained from the internet is currently lacking.
  
  
  METHODS
  We audio-recorded visits of patients with breast cancer and their oncologists where internet information was expected to be discussed. Inductive thematic text analysis was used to identify qualitative themes from these conversations.
  
  
  RESULTS
  Twenty-one patients self-reported discussing cancer-related internet information (CRII) with their oncologists; 16 audio recordings contained detectable discussions of CRII and were analyzed. Results indicated that oncologists and patients initiated CRII discussions implicitly and explicitly. Oncologists responded positively to patient-initiated CRII discussions by (1) acknowledging their limited expertise/knowledge, (2) encouraging/approving using the internet as an information resource, (3) providing information/guidance on the proper use of internet searches, (4) discussing the pros and cons of relevant treatment options, or (5) giving information. Finally, patients reacted to the CRII discussions by (1) indicating that they only used reputable sources/websites, (2) asking for further explanation of information, (3) expressing continued concern, or (4) asking for the oncologist's opinion or recommendation.
  
  
  CONCLUSIONS
  These results indicate that the majority of patients introduce internet information implicitly, in order to guard against any threat to their self-esteem. Physicians, in turn, seem to respond in a supportive fashion to reduce any threat experienced. Future interventions may consider providing prescription-based guidance on how to navigate the internet as a health information resource and to encourage patients to bring these topics up with their oncologist.
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Megan Johnson
authors: MJ
authors: Shen
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Robert C
authors: RC
authors: Dyson
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Thomas A
authors: TA
authors: D'Agostino
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Jamie S
authors: JS
authors: Ostroff
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Maura N
authors: MN
authors: Dickler
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.
authors: Alexandra S
authors: AS
authors: Heerdt
authors: Memorial Sloan Kettering Cancer Center, New York City, NY, USA.|Hamad Medical Corporation, Doha, Qatar.
authors: Carma L
authors: CL
authors: Bylund
mesh_terms: D000328:Adult; D000368:Aged; D001943:Breast Neoplasms / Q000523:psychology / Q000628:therapy*; D003142:Communication; D054626:Consumer Health Information; D005260:Female; D006801:Humans; D057226:Information Seeking Behavior; D020407:Internet; D008875:Middle Aged; D010817:Physician-Patient Relations; D036301:Qualitative Research; D057566:Self Report
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