title: Self-management and transition among adolescents/young adults with chronic or end-stage kidney disease.
abstract: BACKGROUND
  Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting).
  
  
  METHODS
  Self-management and/or HCT encompass a variety of domains that must be tailored to each individual. Annual assessments should begin between the ages of 12 and 14 and continue in the adult-focused setting until patients have achieved demonstrated self-management and/or HCT skills mastery. These assessments will guide interventions that are congruent in terms of literacy, development and culture. Facilitation of this process from the perspective of both the pediatric and the adult health-care systems is described.
  
  
  CONCLUSIONS
  Deficiencies and barriers to self-management and/or HCT for AYA with ESKD remain. There is no consensus on the definition of successful HCT preparation, with few tools to assess transition readiness and/or self-management. It is important for health providers to promote the self-management and/or health-care transition skills of AYA with ESKD. Customization of these activities and involvement of the whole family will contribute towards better health-related quality of life and patient outcomes.
authors: University of North Carolina Kidney Center at Chapel Hill, Chapel Hill, N.C., USA.
authors: Maria E
authors: ME
authors: Ferris
authors: Jessica R
authors: JR
authors: Cuttance
authors: Karina
authors: K
authors: Javalkar
authors: Sarah E
authors: SE
authors: Cohen
authors: Alexandra
authors: A
authors: Phillips
authors: Kristi
authors: K
authors: Bickford
authors: Keisha
authors: K
authors: Gibson
authors: M Ted
authors: MT
authors: Ferris
authors: Karin
authors: K
authors: True
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D003695:Delivery of Health Care; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007676:Kidney Failure, Chronic / Q000503:physiopathology / Q000628:therapy*; D008297:Male; D010353:Patient Education as Topic; D011788:Quality of Life; D006435:Renal Dialysis; D012648:Self Care; D060305:Transition to Adult Care / Q000458:organization & administration*