title: The cost of research: a survey of participating sites in a nationwide registry.
abstract: OBJECTIVE
  Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion.
  
  
  METHODS
  A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment.
  
  
  RESULTS
  Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided.
  
  
  CONCLUSIONS
  This survey showed that reimbursement rates were well below the costs of enrollment.
authors: From The Children's Hospital of Philadelphia, Division of Rheumatology, Philadelphia, Pennsylvania, USA.J.L. Tress, BA, CCRP; D.D. Sherry, MD, The Children's Hospital of Philadelphia, Division of Rheumatology. tressj@email.chop.edu.
authors: Jenna L
authors: JL
authors: Tress
authors: From The Children's Hospital of Philadelphia, Division of Rheumatology, Philadelphia, Pennsylvania, USA.J.L. Tress, BA, CCRP; D.D. Sherry, MD, The Children's Hospital of Philadelphia, Division of Rheumatology.
authors: David D
authors: DD
authors: Sherry
mesh_terms: D035843:Biomedical Research / Q000191:economics*; D006801:Humans; D012042:Registries; D012219:Rheumatology / Q000191:economics*; D011795:Surveys and Questionnaires
keywords: JUVENILE RHEUMATOID DISEASES; REGISTRIES; SURVEY; TRIAL COSTS