title: Clinical Parameters and Tools for Home-Based Assessment of Parkinson's Disease: Results from a Delphi study.
abstract: BACKGROUND
  Parkinson's disease (PD) is a neurodegenerative disorder with fluctuating symptoms. To aid the development of a system to evaluate people with PD (PwP) at home (SENSE-PARK system) there was a need to define parameters and tools to be applied in the assessment of 6 domains: gait, bradykinesia/hypokinesia, tremor, sleep, balance and cognition.
  
  
  OBJECTIVE
  To identify relevant parameters and assessment tools of the 6 domains, from the perspective of PwP, caregivers and movement disorders specialists.
  
  
  METHODS
  A 2-round Delphi study was conducted to select a core of parameters and assessment tools to be applied. This process included PwP, caregivers and movement disorders specialists.
  
  
  RESULTS
  Two hundred and thirty-three PwP, caregivers and physicians completed the first round questionnaire, and 50 the second. Results allowed the identification of parameters and assessment tools to be added to the SENSE-PARK system. The most consensual parameters were: Falls and Near Falls; Capability to Perform Activities of Daily Living; Interference with Activities of Daily Living; Capability to Process Tasks; and Capability to Recall and Retrieve Information. The most cited assessment strategies included Walkers; the Evaluation of Performance Doing Fine Motor Movements; Capability to Eat; Assessment of Sleep Quality; Identification of Circumstances and Triggers for Loose of Balance and Memory Assessment.
  
  
  CONCLUSIONS
  An agreed set of measuring parameters, tests, tools and devices was achieved to be part of a system to evaluate PwP at home. A pattern of different perspectives was identified for each stakeholder.
authors: Clinical Pharmacology Unit, Instituto de Medicina Molecular, Lisbon, Portugal.|Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine, University of Lisbon, Portugal.
authors: Joaquim J
authors: JJ
authors: Ferreira
authors: Clinical Pharmacology Unit, Instituto de Medicina Molecular, Lisbon, Portugal.
authors: Ana T
authors: AT
authors: Santos
authors: Clinical Pharmacology Unit, Instituto de Medicina Molecular, Lisbon, Portugal.
authors: Josefa
authors: J
authors: Domingos
authors: The Cure Parkinson's Trust, London, UK.
authors: Helen
authors: H
authors: Matthews
authors: The Cure Parkinson's Trust, London, UK.
authors: Tom
authors: T
authors: Isaacs
authors: The Cure Parkinson's Trust, London, UK.
authors: Joy
authors: J
authors: Duffen
authors: HSG-IMIT, Villingen-Schwenningen, Germany.
authors: Ahmed
authors: A
authors: Al-Jawad
authors: NST-Norwegian Centre for Integrated Care and Telemedicine, University Hospital North Norway, Tromsø, Norway.
authors: Frank
authors: F
authors: Larsen
authors: NST-Norwegian Centre for Integrated Care and Telemedicine, University Hospital North Norway, Tromsø, Norway.|Department of Clinical Medicine, Faculty of Health Sciences, The Arctic University of Norway, Tromsø, Norway.
authors: J
authors: J
authors: Artur Serrano
authors: Hasomed GmbH, Magdeburg, Germany.
authors: Peter
authors: P
authors: Weber
authors: Hasomed GmbH, Magdeburg, Germany.
authors: Andrea
authors: A
authors: Thoms
authors: AbilityNet, London, UK.
authors: Stefan
authors: S
authors: Sollinger
authors: Institute for Medical Genetics and Applied Genomics, University of Tübingen, Germany.
authors: Holm
authors: H
authors: Graessner
authors: Hertie Institute for Clinical Brain Research, Department of Neurodegeneration, Center of Neurology, University of Tuebingen, Tuebingen, Germany.
authors: Walter
authors: W
authors: Maetzler
mesh_terms: D000203:Activities of Daily Living; D017028:Caregivers; D003697:Delphi Technique; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010300:Parkinson Disease / Q000150:complications / Q000175:diagnosis* / Q000503:physiopathology / Q000523:psychology
keywords: Outcomes assessment; Parkinson’s disease; delphi technique; patient-centered outcomes research