title: An innovative lab-based training program to help patient groups understand their disease and the research process.
abstract: Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow "trainees" to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.
authors: Tous Chercheurs, Marseille, France.
authors: Marion
authors: M
authors: Mathieu
authors: Tous Chercheurs, Marseille, France; Institut de Neurobiologie de la Méditerranée, INMED UMR 901 Inserm, Marseille, France; Aix-Marseille Université, Marseille, France.
authors: Constance
authors: C
authors: Hammond
authors: Tous Chercheurs, Marseille, France.
authors: David G
authors: DG
authors: Karlin
mesh_terms: D035843:Biomedical Research / Q000191:economics / Q000193:education* / Q000941:ethics; D005602:France; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007753:Laboratories; D010353:Patient Education as Topic / Q000191:economics / Q000379:methods*; D010358:Patient Participation