title: Assessment of inflammatory bowel disease patient's needs and problems from a nursing perspective.
abstract: BACKGROUND
  In this study, we aimed at assessing Inflammatory Bowel Disease patients' needs and current nursing practice to investigate to what extent consensus statements (European Crohn's and Colitis Organization) on the nursing roles in caring for patients with IBD concur with local practice.
  
  
  METHODS
  We used a mixed-method convergent design to combine quantitative data prospectively collected in the Swiss IBD cohort study and qualitative data from structured interviews with IBD healthcare experts. Symptoms, quality of life, and anxiety and depression scores were retrieved from physician charts and patient self-reported questionnaires. Descriptive analyses were performed based on quantitative and qualitative data.
  
  
  RESULTS
  230 patients of a single center were included, 60% of patients were males, and median age was 40 (range 18-85). The prevalence of abdominal pain was 42%. Self-reported data were obtained from 75 out of 230 patients. General health was perceived significantly lower compared with the general population (p < 0.001). Prevalence of tiredness was 73%; sleep problems, 78%; issues related to work, 20%; sexual constraints, 35%; diarrhea, 67%; being afraid of not finding a bathroom, 42%; depression, 11%; and anxiety symptoms, 23%. According to experts' interviews, the consensus statements are found mostly relevant with many recommendations that are not yet realized in clinical practice.
  
  
  CONCLUSIONS
  Identified prevalence may help clinicians in detecting patients at risk and improve patient management.
authors: Department of Abdominal Surgery, University Hospital Zurich, Zurich, Switzerland.
authors: Hanna
authors: H
authors: Burkhalter
authors: Prisca
authors: P
authors: Stucki-Thür
authors: Birgit
authors: B
authors: David
authors: Sven
authors: S
authors: Lorenz
authors: Beatrice
authors: B
authors: Biotti
authors: Gerhard
authors: G
authors: Rogler
authors: Valerie
authors: V
authors: Pittet
mesh_terms: D015746:Abdominal Pain / Q000451:nursing; D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001007:Anxiety / Q000451:nursing; D015331:Cohort Studies; D003863:Depression / Q000451:nursing; D003967:Diarrhea / Q000451:nursing; D005239:Fear; D005260:Female; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000451:nursing*; D008297:Male; D008875:Middle Aged; D009730:Nursing Assessment / Q000592:standards / Q000706:statistics & numerical data*; D017410:Practice Guidelines as Topic / Q000592:standards; D036301:Qualitative Research; D011788:Quality of Life; D057566:Self Report; D012735:Sexual Dysfunction, Physiological / Q000451:nursing; D012893:Sleep Wake Disorders / Q000451:nursing; D013557:Switzerland; D055815:Young Adult