title: Rare childhood cancers--an increasing entity requiring the need for global consensus and collaboration.
abstract: Rare childhood cancers have not benefited to the same extent from the gains that have been made for their frequently occurring counterparts. In recent years, this gap has been recognized and a number of vehicles now exist to improve outcome, including rare tumor groups, disease-specific registries, and clinics. The multitude of approaches has allowed significant progress, however, this framework is limited by patient number and is not inclusive for every type of rare childhood cancer. These shortcomings can be overcome by a single global unified approach to the study of rare childhood tumors.
authors: Department of Haematology and Oncology, Princess Margaret Hospital for Children, GPO Box D184, Perth, Western Australia, 6840, Australia.|School of Paediatrics and Child Health, University of Western Australia, GPO Box D184, Perth, Western Australia, 6840, Australia.|Telethon Kids Institute, University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
authors: Rishi S
authors: RS
authors: Kotecha
authors: Telethon Kids Institute, University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
authors: Ursula R
authors: UR
authors: Kees
authors: Department of Haematology and Oncology, Princess Margaret Hospital for Children, GPO Box D184, Perth, Western Australia, 6840, Australia.|School of Paediatrics and Child Health, University of Western Australia, GPO Box D184, Perth, Western Australia, 6840, Australia.
authors: Catherine H
authors: CH
authors: Cole
authors: Department of Haematology and Oncology, Princess Margaret Hospital for Children, GPO Box D184, Perth, Western Australia, 6840, Australia.|School of Paediatrics and Child Health, University of Western Australia, GPO Box D184, Perth, Western Australia, 6840, Australia.|Telethon Kids Institute, University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
authors: Nicholas G
authors: NG
authors: Gottardo
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D032921:Consensus; D014943:Global Health; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007391:International Cooperation; D009369:Neoplasms / Q000453:epidemiology*; D015995:Prevalence; D035583:Rare Diseases / Q000453:epidemiology*; D012042:Registries
keywords: Cancer; childhood; infrequent; pediatric; rare