title: Spectrum of Diabetes Research does not Reflect Patients' Scientific Preferences: A Longitudinal Evaluation of Diabetes Research Areas 2010-2013 vs. a Cross-sectional Survey in Patients with Diabetes.
abstract: OBJECTIVE
  To compare the proportions and trends in the distribution of research topics as presented during the annual meetings 2010-2013 of the European Association for the Study of Diabetes (EASD) to patients' preferences.
  
  
  METHODS
  Longitudinal evaluation of EASD research areas 2010-2013 divided into 9 main categories and compared with a cross-sectional survey in 918 people (652 with patients with diabetes, 205 relatives, 61 others interested), who had allocated their preferences to the same 9 topics.
  
  
  RESULTS
  "Development, pathophysiology and prevention of diabetes" was the primary category of interest for 25% of patients, 19% preferred "transplantation and cell therapy" and 16% "blood glucose measurement, devices and artificial pancreas". During the 4 years of abstract investigation 50% or more of total research activities was constantly dedicated to "pathophysiology and prevention of diabetes", less than 2% to "transplantation and cell therapy" and 2.8-4.3% to "blood glucose measurement, devices and artificial pancreas". The average proportion of EASD research related to "blood-glucose lowering therapy without insulin" and "insulin therapy" corresponded with the proportion of research patients would like to see (12.0 vs. 12.5%, and 6.9 vs. 4.7%, respectively). The majority, however, was commercially funded. Non-commercial research was not closer correlated to patients' preferences.
  
  
  CONCLUSIONS
  The distribution of research topics over the last 4 years as measured by the distribution of accepted EASD abstracts does not reflect what patients and their relatives want to have investigated. Better patient involvement and a reassessment of non-commercial funding strategies might help create more valuable research.
authors: Profil, Neuss, Germany.
authors: S
authors: S
authors: Arnolds
authors: Profil, Neuss, Germany.
authors: S
authors: S
authors: Heckermann
authors: Profil, Neuss, Germany.
authors: T
authors: T
authors: Heise
authors: Institute for Health Economics and Clinical Epidemiology, Medical Faculty of the University of Cologne, Cologne, Germany.
authors: P T
authors: PT
authors: Sawicki
mesh_terms: D035843:Biomedical Research / Q000191:economics / Q000639:trends; D003226:Congresses as Topic; D003430:Cross-Sectional Studies; D003920:Diabetes Mellitus / Q000209:etiology / Q000503:physiopathology / Q000517:prevention & control / Q000628:therapy*; D005060:Europe; D005192:Family Health; D006306:Health Surveys; D006801:Humans; D008137:Longitudinal Studies; D057240:Patient Preference; D012109:Research Support as Topic