title: Changes in identity after aphasic stroke: implications for primary care.
abstract: Background. Stroke survivors with aphasia experience difficulty associated with their communication disorder. While much has been written about aphasia's impacts on partners/family, we lack data regarding the psychosocial adjustment of aphasic stroke survivors, with a paucity of data from the patients themselves. Methods. Qualitative study of lived experiences of individuals with poststroke aphasia. Each of the stroke survivors with aphasia completed 3-4 semistructured interviews. In most cases, patients' partners jointly participated in interviews, which were transcribed and analyzed using techniques derived from grounded theory. Results. 12 patients were interviewed, with the total of 45 interviews over 18 months. Themes included poststroke changes in patients' relationships and identities, which were altered across several domains including occupational identity, relationship and family roles, and social identity. While all these domains were impacted by aphasia, the impact varied over time. Conclusion. Despite the challenges of interviewing individuals with aphasia, we explored aphasia's impacts on how individuals experience their identity and develop new identities months and years after stroke. This data has important implications for primary care of patients with aphasia, including the importance of the long-term primary care relationship in supporting psychosocial adjustment to life after aphasic stroke.
authors: Department of Emergency Medicine, Los Angeles County-USC, Los Angeles, CA 90033, USA.
authors: Benjamin
authors: 0000-0002-9585-170X
authors: B
authors: Musser
authors: Department of Family Medicine, Boston University School of Medicine, Boston, MA 02118, USA ; Department of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.
authors: Joanne
authors: 0000-0002-9760-7882
authors: J
authors: Wilkinson
authors: Department of Family Medicine, Boston University School of Medicine, Boston, MA 02118, USA.
authors: Thomas
authors: T
authors: Gilbert
authors: Department of Health Policy and Management, Boston University School of Public Health, Boston, MA 02118, USA ; Center for Healthcare Organization and Implementation Research, ENRM Veterans Affairs Hospital, Bedford, MA 01730, USA.
authors: Barbara G
authors: BG
authors: Bokhour