title: Postoperative health and patients' experiences of efficiency and quality of care after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy, two to six months after surgery.
abstract: OBJECTIVE
  To study post-discharge health after Cytoreductive Surgery (CRS) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC), and to analyse patients' experiences of in-hospital efficiency and quality of care.
  
  
  METHODS
  In-depth individual telephone interviews using an interview guide with open-ended questions were performed with 19 patients with peritoneal carcinomatosis between April and October, 2012. Data were analysed with systematic text condensation.
  
  
  RESULTS
  Four themes were identified: 1) Coming home was an essential step in the recovery process and the focus was on getting well physically despite mental stress, uncertainty about the medical rehabilitation plan and the future. 2) Health was affected negatively by postoperative chemotherapy and its side effects. 3) Stoma - a necessary evil affecting the patient's social life. 4) Quality of care and efficiency were defined in patient-centred terms and inter-personal care from the patient's perspectives on micro level. Despite all, 32% of the patients described being fully recovered and had started to study or work two months after surgery.
  
  
  CONCLUSIONS
  The study gives insights into some real-life experiences described by patients. The study results can be used to prepare written information, to design a postoperative rehabilitation plan for future patients with Peritoneal Carcinomatosis (PC) and to create a home-page through which patients can receive support from both health care professionals and other fellow patients.
authors: Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22 Uppsala, Sweden. Electronic address: christine.leo.swenne@pubcare.uu.se.
authors: Christine
authors: C
authors: Leo Swenne
authors: Department of Surgical Sciences, Uppsala University, Uppsala University Hospital, Entrance 70, 1st Floor, Sweden. Electronic address: karin.cederholm@akademiska.se.
authors: Karin
authors: K
authors: Cederholm
authors: Department of Surgical Sciences, Uppsala University, Uppsala University Hospital, Entrance 70, 1st Floor, Sweden. Electronic address: maria.gustaffson@akademiska.se.
authors: Maria
authors: M
authors: Gustafsson
authors: Department of Public Health and Caring Sciences, Uppsala University, Box 564, 751 22 Uppsala, Sweden; Department of Surgical Sciences, Uppsala University, Uppsala University Hospital, Entrance 70, 1st Floor, Sweden. Electronic address: erebouni.arakelian@surgsci.uu.se.
authors: Erebouni
authors: E
authors: Arakelian
mesh_terms: D000328:Adult; D000368:Aged; D000970:Antineoplastic Agents / Q000008:administration & dosage*; D002277:Carcinoma / Q000523:psychology* / Q000628:therapy; D065426:Cytoreduction Surgical Procedures; D005260:Female; D005500:Follow-Up Studies; D006760:Hospitalization; D006801:Humans; D006979:Hyperthermia, Induced; D007263:Infusions, Parenteral; D008297:Male; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D010534:Peritoneal Neoplasms / Q000523:psychology* / Q000628:therapy; D020377:Self Efficacy; D013997:Time Factors
chemical_list: D000970:Antineoplastic Agents
keywords: Efficiency; Perception; Peritoneal carcinomatosis; Postoperative health; Quality of care