title: Nursing Home Stakeholder Views of Resident Involvement in Medical Care Decisions.
abstract: Demand by nursing home residents for involvement in their medical care, or, patient-centered care, is expected to increase as baby boomers begin seeking long-term care for their chronic illnesses. To explore the needs in meeting this proposed demand, we used a qualitative descriptive method with content analysis to obtain the joint perspective of key stakeholders on the current state of person-centered medical care in the nursing home. We interviewed 31 nursing home stakeholders: 5 residents, 7 family members, 8 advanced practice registered nurses, 5 physicians, and 6 administrators. Our findings revealed constraints placed by the long-term care system limited medical involvement opportunities and created conflicting goals for patient-centered medical care. Resident participation in medical care was perceived as low, but important. The creation of supportive educational programs for all stakeholders to facilitate a common goal for nursing home admission and to provide assistance through the long-term care system was encouraged.
authors.affiliation: Texas A&M University-Corpus Christi, Corpus Christi, Texas, USA Theresa.garcia@tamucc.edu.
authors.forename: Theresa J
authors.initials: TJ
authors.lastname: Garcia
authors.affiliation: The University of Texas at Austin, Austin, Texas, USA.
authors.forename: Tracie C
authors.initials: TC
authors.lastname: Harrison
authors.affiliation: The University of Texas Medical Branch at Galveston, Galveston, Texas, USA.
authors.forename: James S
authors.initials: JS
authors.lastname: Goodwin
mesh_terms: D002908:Chronic Disease / Q000628:therapy*; D003220:Conflict, Psychological; D003657:Decision Making; D005190:Family; D006801:Humans; D007407:Interviews as Topic; D008134:Long-Term Care / Q000458:organization & administration*; D009735:Nursing Homes / Q000458:organization & administration*; D010347:Patient Care Planning; D010358:Patient Participation; D018802:Patient-Centered Care / Q000458:organization & administration*; D011209:Power, Psychological; D036301:Qualitative Research; D012648:Self Care
keywords: decision making; health care, long-term; health care, users’ experiences; holistic care; illness and disease, chronic; research, qualitative