title: Information preferences regarding cure rates and prognosis of Austrian patients with advanced lung cancer.
abstract: BACKGROUND
  Due to concerns about patients' wellbeing, open end-of-life communication is associated with reservation. Furthermore, sociocultural differences must be considered. The objective of this pilot study was therefore to investigate the information preferences of Austrian patients regarding cure rates and prognosis.
  
  
  METHODS
  The information preferences of 50 advanced lung cancer patients were assessed at their first visit to the Department of Radiation Oncology, Medical University of Vienna. Preferences in terms of content (cure rates and/or prognosis) and depth of the information (additional quantitative estimates) were addressed. After the individually adapted medical consultation, patients' satisfaction with the consultation and the emotional responses to the information were evaluated.
  
  
  RESULTS
  The majority of patients (76 %) requested information about cure rates and/or prognosis; nearly half of these (47 %) wanted additional quantitative estimates. Neither sociodemographic variables, disease characteristics, nor time since diagnosis had an impact on the information preferences. The individually adapted medical information showed no overall negative influence on the emotional responses; only patients receiving prognostic information had significantly higher distress scores after the consultation. High satisfaction with the individually adapted medical consultation was reported by 92 % of patients.
  
  
  CONCLUSIONS
  Austrian physicians may offer end-of-life communication and directly ask patients about their information preferences, since patients seem able to decide whether or not prognostic information would overwhelm their emotional capacity and therefore to accept or reject the invitation. The disclosure of cure rates and/or prognosis with or without quantitative estimates-according to the patients' preferences-shows overall no negative impact on emotional reactions. The individually adapted consultation results in high patient satisfaction. Nevertheless, prognostic information may lead to higher distress.
authors.affiliation: Department of Radiation Oncology, Comprehensive Cancer Center, Medical University of Vienna, Waehringer Guertel 18-20, 1090, Vienna, Austria.
authors.forename: Tamara
authors.initials: T
authors.lastname: Rumpold
authors.forename: Carola
authors.initials: C
authors.lastname: Lütgendorf-Caucig
authors.forename: Reinhold
authors.initials: R
authors.lastname: Jagsch
authors.forename: Karin
authors.initials: K
authors.lastname: Dieckmann
authors.forename: Herbert
authors.initials: H
authors.lastname: Watzke
authors.forename: Richard
authors.initials: R
authors.lastname: Pötter
authors.forename: Kathrin
authors.initials: K
authors.lastname: Kirchheiner
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001317:Austria; D018572:Disease-Free Survival; D005260:Female; D006801:Humans; D008175:Lung Neoplasms / Q000401:mortality* / Q000473:pathology / Q000523:psychology / Q000532:radiotherapy*; D008297:Male; D008875:Middle Aged; D009367:Neoplasm Staging / Q000523:psychology; D010166:Palliative Care / Q000523:psychology; D010353:Patient Education as Topic; D010358:Patient Participation / Q000523:psychology; D057240:Patient Preference; D010865:Pilot Projects; D011379:Prognosis; D011788:Quality of Life / Q000523:psychology; D011795:Surveys and Questionnaires