title: SveDem, the Swedish Dementia Registry - a tool for improving the quality of diagnostics, treatment and care of dementia patients in clinical practice.
abstract: BACKGROUND
  The Swedish Dementia Registry (SveDem) was developed with the aim to improve the quality of diagnostic work-up, treatment and care of patients with dementia disorders in Sweden.
  
  
  METHODS
  SveDem is an internet based quality registry where several indicators can be followed over time. It includes information about the diagnostic work-up, medical treatment and community support (www.svedem.se). The patients are diagnosed and followed-up yearly in specialist units, primary care centres or in nursing homes.
  
  
  RESULTS
  The database was initiated in May 2007 and covers almost all of Sweden. There were 28 722 patients registered with a mean age of 79.3 years during 2007-2012. Each participating unit obtains continuous online statistics from its own registrations and they can be compared with regional and national data. A report from SveDem is published yearly to inform medical and care professionals as well as political and administrative decision-makers about the current quality of diagnostics, treatment and care of patients with dementia disorders in Sweden.
  
  
  CONCLUSIONS
  SveDem provides knowledge about current dementia care in Sweden and serves as a framework for ensuring the quality of diagnostics, treatment and care across the country. It also reflects changes in quality dementia care over time. Data from SveDem can be used to further develop the national guidelines for dementia and to generate new research hypotheses.
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division for Neurogeriatrics, Huddinge, Sweden; Geriatric Clinic, Karolinska University Hospital, Stockholm, Sweden.
authors.forename: Dorota
authors.initials: D
authors.lastname: Religa
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division of Clinical Geriatrics, Stockholm, Sweden.
authors.forename: Seyed-Mohammad
authors.initials: SM
authors.lastname: Fereshtehnejad
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division for Neurogeriatrics, Huddinge, Sweden.
authors.forename: Pavla
authors.initials: P
authors.lastname: Cermakova
authors.affiliation: Geriatric Clinic, Karolinska University Hospital, Stockholm, Sweden.
authors.forename: Ann-Katrin
authors.initials: AK
authors.lastname: Edlund
authors.affiliation: Geriatric Clinic, Karolinska University Hospital, Stockholm, Sweden; Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division of Clinical Geriatrics, Stockholm, Sweden.
authors.forename: Sara
authors.initials: S
authors.lastname: Garcia-Ptacek
authors.affiliation: Trädgårdstorgets Primary Care Unit, Linköping, Sweden.
authors.forename: Nicklas
authors.initials: N
authors.lastname: Granqvist
authors.affiliation: Municipality of Norrtälje, Norrtälje, Sweden.
authors.forename: Anne
authors.initials: A
authors.lastname: Hallbäck
authors.affiliation: Central hospital, Karlstad, Sweden.
authors.forename: Kerstin
authors.initials: K
authors.lastname: Kåwe
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division for Neurogeriatrics, Huddinge, Sweden.
authors.forename: Bahman
authors.initials: B
authors.lastname: Farahmand
authors.affiliation: Department of Public Health and Caring Sciences/Geriatrics, Uppsala University, Uppsala, Sweden.
authors.forename: Lena
authors.initials: L
authors.lastname: Kilander
authors.affiliation: Neuropsychiatric clinic, Sahlgrenska University Hospital, Gothenburg, Sweden.
authors.forename: Ulla-Britt
authors.initials: UB
authors.lastname: Mattsson
authors.affiliation: Clinical Memory Research Unit, Department of Clinical Sciences Malmö, Lund University, Malmö, Sweden.
authors.forename: Katarina
authors.initials: K
authors.lastname: Nägga
authors.affiliation: Department of Community Medicine and Rehabilitation, Geriatric Medicine, Umeå University, Umeå, Sweden.
authors.forename: Peter
authors.initials: P
authors.lastname: Nordström
authors.affiliation: Sahlgrenska Academy, Institute of Health and Care Sciences at Gothenburg University, Gothenburg, Sweden.
authors.forename: Helle
authors.initials: H
authors.lastname: Wijk
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division for Neurogeriatrics, Huddinge, Sweden; Centre for Research & Development, Uppsala University/County Council of Gävleborg, Gävle, Sweden.
authors.forename: Anders
authors.initials: A
authors.lastname: Wimo
authors.affiliation: Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division for Neurogeriatrics, Huddinge, Sweden.
authors.forename: Bengt
authors.initials: B
authors.lastname: Winblad
authors.affiliation: Geriatric Clinic, Karolinska University Hospital, Stockholm, Sweden; Karolinska Institutet, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Division of Clinical Geriatrics, Stockholm, Sweden.
authors.forename: Maria
authors.initials: M
authors.lastname: Eriksdotter
mesh_terms: D000367:Age Factors; D000368:Aged; D000369:Aged, 80 and over; D016208:Databases, Factual; D003704:Dementia / Q000175:diagnosis / Q000453:epidemiology*; D005260:Female; D006801:Humans; D008297:Male; D012042:Registries; D012737:Sex Factors; D013548:Sweden