title: UK Renal Registry 17th Annual Report: Chapter 4 Demography of the UK Paediatric Renal Replacement Therapy Population in 2013.
abstract: OBJECTIVE
  To describe the demographics of the paediatric renal replacement therapy (RRT) population under the age of 18 years in the UK and to analyse changes in demography over time.
  
  
  METHODS
  Data were collected electronically from all 13 paediatric renal centres within the UK. A series of cross-sectional and longitudinal analyses were performed to describe the demographics of paediatric RRT patients.
  
  
  RESULTS
  A total of 891 children and young people under 18 with established renal failure (ERF) were receiving treatment at paediatric nephrology centres in 2013. At the census date, 80.2% had a functioning transplant, 11.7%were receiving haemodialysis (HD) and 8.1% were receiving peritoneal dialysis (PD). In patients aged ,16 years the prevalence of ERF was 58.2 per million age related population(pmarp) and the incidence 9.3 pmarp. A third of the prevalent patients had one or more reported comorbidities.At transfer to adult services, 85.2% of patients had a functioning renal transplant. Pre-emptive transplantation was seen to occur in a third of children starting RRT under16 years, with lower rates seen in girls and ethnic minorities.Living donation as starting modality has continued to improve with an increase from 8.8% in 1999–2003 to 18.4% in 2009–2013. Survival in childhood amongst children starting RRT was the lowest in those aged less than two years.
  
  
  CONCLUSIONS
  We report continued improvement in data quality and electronic submission of data returns. The data provided in this report show relatively stable trends of incidence and prevalence in children with established renal failure.
authors.affiliation: UK Renal Registry, Bristol, UK.
authors.forename: Rishi
authors.initials: R
authors.lastname: Pruthi
authors.forename: Alexander J
authors.initials: AJ
authors.lastname: Hamilton
authors.forename: Catherine
authors.initials: C
authors.lastname: O'Brien
authors.forename: Anna
authors.initials: A
authors.lastname: Casula
authors.forename: Fiona
authors.initials: F
authors.lastname: Braddon
authors.forename: Carol
authors.initials: C
authors.lastname: Inward
authors.forename: Malcolm
authors.initials: M
authors.lastname: Lewis
authors.forename: Heather
authors.initials: H
authors.lastname: Maxwell
authors.forename: Jelena
authors.initials: J
authors.lastname: Stojanovic
authors.forename: Yincent
authors.initials: Y
authors.lastname: Tse
authors.forename: Manish D
authors.initials: MD
authors.lastname: Sinha
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D003710:Demography; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D012042:Registries; D017582:Renal Replacement Therapy; D006113:United Kingdom