Toward ethical research practice with deaf participants.
In recent years, scholars have been critical of what they consider unethical conduct by researchers whose studies focus on members of the Deaf or signing communities. This is the first empirical study that investigates ethical concerns and recommendations from the perspective of three stakeholder groups (Deaf research participants, researchers, and Deaf studies experts). We analyzed focus group discussions using strategies from grounded theory and community-based participatory research. The themes we identified highlight the need for the broader scientific research community to include linguistically and culturally sensitive research procedures that more adequately protect the rights of Deaf research participants, as well as other marginalized groups. We address the need to increase the number of Deaf scientists and reconsider collaboration practices between Deaf and hearing researchers.
Georgia Institute of Technology, Atlanta, GA, USA jenny.singleton@gatech.edu.
Jenny L
JL
Singleton
Boston University, Boston, MA, USA.
Gabrielle
G
Jones
University of Virginia, Charlottesville, VA, USA.
Shilpa
S
Hanumantha
D055812:Community-Based Participatory Research; D054521:Cultural Competency; D003638:Deafness; D032984:Ethics, Research; D017144:Focus Groups; D006301:Health Services Needs and Demand; D006806:Human Rights; D006801:Humans; D019986:Persons with Hearing Disabilities; D012106:Research; D012108:Research Personnel; D035842:Research Subjects; D012111:Residence Characteristics; D012813:Sign Language; D035862:Vulnerable Populations
community-based participatory research; community-engaged research; deaf participants; deaf researchers; research ethics; research in host communities; sign language research