Professionals' attitudes regarding large-scale genetic information generated through next generation sequencing in research: a pilot study.
Under the auspices of a multi-national European scientific project involving whole genome sequencing, GEUVADIS, we set out to investigate the attitudes of the participating scientists of having their own genome sequenced. The views of such researchers on this subject have not been fully explored before and we utilized questionnaires and discussion groups to elicit their opinions. Many said that it was the first time that they had an opportunity to discuss ethical and social issues about sequencing. The many ongoing multi-national science projects present a good opportunity for social science research involving scientists and would benefit from rigorous research methodology, taking into account any language barriers.
Inserm and University of Toulouse, France Jmillerg73@gmail.com.
Jane
J
Miller
Inserm and University of Toulouse, France.
Alexandra
A
Soulier
Center for Genomic Regulation, Barcelona, Spain.
Gabrielle
G
Bertier
Inserm and University of Toulouse, France.
Anne
A
Cambon-Thomsen
D001290:Attitude; D004989:Ethics; D017144:Focus Groups; D030661:Genetic Privacy; D036281:Genetic Research / Q000941:ethics; D016678:Genome; D023281:Genomics / Q000941:ethics; D059014:High-Throughput Nucleotide Sequencing; D006801:Humans; D007258:Informed Consent; D010865:Pilot Projects; D012106:Research; D012107:Research Design; D012108:Research Personnel; D011795:Surveys and Questionnaires
attitudes; ethics; researchers; scientists; whole genome sequencing