Interactions between parents of technology-dependent children and providers: an integrative review.
This article is a review of the literature on the experiences of parents and their interactions with healthcare providers while caring for their technology-dependent child(ren) in their homes. Results are presented in the following themes: information needs, respect and partnership with healthcare providers, care coordination, and experiences with home healthcare nurses. Parents needed information and guidance and felt supported when providers recognized parents' expertise with the child's care, and offered reassurance and confirmation about their practices. Home healthcare clinicians provided supportive care in the home, but their presence created challenges for the family. By acknowledging and valuing the parents' expertise, healthcare providers can empower parents to confidently care for their child.
Jennifer A. Jachimiec, MS, RN, PCNS-BC, CPN, is a Staff Nurse, Rocky Mountain Hospital for Children, Denver, Colorado. Jennifer Obrecht, DNP, RN, DNP, RN, PCNS-BC is a Clinical Assistant Professor, Department of Women, Children and Family Health Science, University of Illinois at Chicago College of Nursing, Chicago, Illinois. Karen Kavanaugh, PhD, RN, FAAN, is an Elizabeth Schotanus Professor of Pediatric Nursing at Wayne State University College of Nursing and the Children's Hospital of Michigan, Detroit, Michigan.
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D000328:Adult; D020811:Biomedical Technology; D002648:Child; D002675:Child, Preschool; D004185:Disability Evaluation; D019988:Children with Disabilities / Q000534:rehabilitation*; D007722:Health Knowledge, Attitudes, Practice; D006282:Health Personnel; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D010290:Parents / Q000193:education*; D011368:Professional-Family Relations; D012656:Self-Help Devices / Q000706:statistics & numerical data