Big data and public health: navigating privacy laws to maximize potential.
Jane Hyatt Thorpe and Elizabeth Gray are funded by the Robert Wood Johnson Foundation for work to develop and maintain an online resource of federal and state laws related to health information, including analyses, decision-support tools, and comparative maps ( www.healthinfolaw.org ). In addition, Thorpe is funded under a subcontract with ResDAC to provide guidance related to the Centers for Medicare & Medicaid Services' data-release policies. Thorpe also serves as a senior advisor in the U.S. Department of Health and Human Services Office of the National Coordinator for Health Information Technology (ONC). The authors thank Dr. Jeffrey Lerner and the ECRI Institute for addressing big data at their November 2013 annual conference and inviting Thorpe to speak, which prompted this article.
Jane Hyatt
JH
Thorpe
Jane Hyatt Thorpe and Elizabeth Gray are funded by the Robert Wood Johnson Foundation for work to develop and maintain an online resource of federal and state laws related to health information, including analyses, decision-support tools, and comparative maps ( www.healthinfolaw.org ). In addition, Thorpe is funded under a subcontract with ResDAC to provide guidance related to the Centers for Medicare & Medicaid Services' data-release policies. Thorpe also serves as a senior advisor in the U.S. Department of Health and Human Services Office of the National Coordinator for Health Information Technology (ONC). The authors thank Dr. Jeffrey Lerner and the ECRI Institute for addressing big data at their November 2013 annual conference and inviting Thorpe to speak, which prompted this article.
Elizabeth Alexandra
EA
Gray
D003219:Confidentiality / Q000331:legislation & jurisprudence*; D066264:Datasets as Topic / Q000331:legislation & jurisprudence*; D020408:Health Insurance Portability and Accountability Act; D018907:Privacy / Q000331:legislation & jurisprudence; D011634:Public Health / Q000331:legislation & jurisprudence* / Q000706:statistics & numerical data; D014481:United States