title: Canadian Organ Replacement Register (CORR): reflecting the past and embracing the future.
abstract: BACKGROUND
  The Canadian Organ Replacement Register (CORR) is the only Canadian information system on kidney and extra-kidney organ failure and transplantation in Canada. CORR's mandate is to record and analyze the level of activity and outcomes of vital organ transplantation and treatment of end stage kidney disease using dialysis, either hemodialysis or peritoneal dialysis, activities across Canada. The Canadian Organ Replacement Register was officially launched in 1987, and it included transplantation of extra-renal vital organs (liver, heart, lung, pancreas, bowel), in addition to renal transplantation and replacement therapy, with new financial support from the provinces.
  
  
  OBJECTIVE
  This manuscript describes the process of data acquisition and reporting, focusing on the patients with end stage kidney disease on dialysis, with data reported from the 2014 CORR Annual Data Report and the Center-Specific Reports on Clinical Measures.
  
  
  METHODS
  CORR is currently housed in the Canadian Institute for Health Information and collects data from hospital dialysis programs, regional transplant programs, organ procurement organizations and kidney dialysis services offered at independent health facilities. Data on patients is collected by completion of survey forms for each patient at the start of dialysis or receiving a transplant, using the Initial Registration form, and yearly follow up forms, which collects data on the status of the patient as of October 31(st).
  
  
  RESULTS
  The incident rate per million population (RPMP) has remained stable with the exception of the 65+ age group with has experience a modest decrease since 2001. However, there has been an increasing prevalence of ESKD diagnoses, with the highest rate per million population (RPMP) amongst the age group 65+ years. This is likely attributed to gradual improving patient survival. Between 2003 and 2012, nearly 90% of dialysis patients younger than <18 and 26% of patients 75+ years survived for at least five years.
  
  
  CONCLUSIONS
  As the number of people treated for end-stage organ failure grows, so does the importance of understanding their treatment and outcomes. In 2014, CORR continues to evolve and support the important information need to advance ESRD research and clinical practice.
authors.affiliation: Department of Medicine, Division of Nephrology, University of Western Ontario, London, Ontario Canada ; Lawson Health Research Institute, Kidney Clinical Research Unit, London, Ontario Canada ; Canadian Institute of Health Information, Toronto, Canada ; London Health Sciences Centre, Victoria Hospital, Room A2-338, 800 Commissioners Road East, London, Ontario N6A 5 W9 Canada.
authors.forename: Louise M
authors.initials: LM
authors.lastname: Moist
authors.affiliation: Department of Medicine, Division of Nephrology, University of Toronto, Toronto, Ontario Canada.
authors.forename: Stanley
authors.initials: S
authors.lastname: Fenton
authors.affiliation: Department of Medicine, Division of Nephrology, University of Toronto, Toronto, Ontario Canada ; Canadian Institute of Health Information, Toronto, Canada.
authors.forename: Joseph S
authors.initials: JS
authors.lastname: Kim
authors.affiliation: Division of Nephrology, University of British Columbia, Vancouver, Canada.
authors.forename: John S
authors.initials: JS
authors.lastname: Gill
authors.affiliation: Canadian Institute of Health Information, Toronto, Canada.
authors.forename: Frank
authors.initials: F
authors.lastname: Ivis
authors.affiliation: Canadian Institute of Health Information, Toronto, Canada.
authors.forename: Eric
authors.initials: E
authors.lastname: de Sa
authors.affiliation: Canadian Institute of Health Information, Toronto, Canada.
authors.forename: Juliana
authors.initials: J
authors.lastname: Wu
authors.affiliation: Lawson Health Research Institute, Kidney Clinical Research Unit, London, Ontario Canada.
authors.forename: Ahmed A
authors.initials: AA
authors.lastname: Al-Jaishi
authors.affiliation: Ottawa Hospital Research Institute, The Ottawa Hospital, Ottawa, Canada.
authors.forename: Manish M
authors.initials: MM
authors.lastname: Sood
authors.affiliation: Department of Medicine, Division of Nephrology, University of Alberta, Edmonton, Alberta Canada.
authors.forename: Scott
authors.initials: S
authors.lastname: Klarenbach
authors.affiliation: Department of Medicine, University of Calgary, Calgary, Alberta Canada.
authors.forename: Brenda R
authors.initials: BR
authors.lastname: Hemmelgarn
authors.affiliation: Department of Medicine, Division of Nephrology, University of Saskatchewan, Saskatoon, Saskatchewan Canada.
authors.forename: Joanne E
authors.initials: JE
authors.lastname: Kappel
keywords: Hemodialysis; Peritoneal dialysis; Renal replacement register CORR