title: Establishment of population-based stroke registry in Ludhiana city, northwest India: feasibility and methodology.
abstract: OBJECTIVE
  The Indian Council of Medical Research (ICMR) initiated the Task Force Project to evaluate the feasibility of conducting a population-based stroke registry in Ludhiana city, Punjab, Northwest India.
  
  
  METHODS
  All first-ever, stroke patients over 18 years from the city of Ludhiana were included in the study from March 26th 2010 to March 25th 2011. Stroke information was collected based on the WHO STEPS approach from the participating hospitals, scan centres and doctors. Modified Rankin Scale (mRS) was administered by telephonic interview at 28 days after stroke. The information on stroke deaths was obtained from the Municipal Corporation (MC) office.
  
  
  RESULTS
  A total of 905 first-ever stroke patients were documented. After excluding duplicate cases and patients from outside the city, 493 patients were included. The practical issues identified in data collection from these centres were reluctance to take informed consent, lack of willingness to share the data, difficulty to identify key persons from each centre, retrieving medical records from public hospitals and poor documentation of deaths in MC office.
  
  
  CONCLUSIONS
  Population-based stroke registry was feasible in an urban population with the above methodology. The issues related to feasibility were identified and necessary changes were made for the main phase of the registry.
authors.affiliation: Department of Neurology, Stroke Unit, Christian Medical College and Hospital, Ludhiana, India.
authors.forename: Jeyaraj Durai
authors.initials: JD
authors.lastname: Pandian
authors.forename: Gagandeep
authors.initials: G
authors.lastname: Singh
authors.forename: Rajinder
authors.initials: R
authors.lastname: Bansal
authors.forename: Birinder S
authors.initials: BS
authors.lastname: Paul
authors.forename: Monika
authors.initials: M
authors.lastname: Singla
authors.forename: Shavinder
authors.initials: S
authors.lastname: Singh
authors.forename: Shweta J
authors.initials: SJ
authors.lastname: Verma
authors.forename: Premjeeth
authors.initials: P
authors.lastname: Moodbidri
authors.forename: Paramdeep
authors.initials: P
authors.lastname: Kaur
authors.forename: Gagandeep
authors.initials: G
authors.lastname: Mehmi
authors.forename: Om P
authors.initials: OP
authors.lastname: Arora
authors.forename: Arun K
authors.initials: AK
authors.lastname: Dhanuka
authors.forename: Meenakshi
authors.initials: M
authors.lastname: Sharma
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003625:Data Collection / Q000379:methods*; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D007194:India / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D012042:Registries / Q000592:standards*; D020521:Stroke / Q000453:epidemiology* / Q000401:mortality; D055815:Young Adult