title: A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics.
abstract: OBJECTIVE
  To identify generic, multidimensional patient-reported outcome measures (PROMs) for children up to 18 years old and describe their characteristics and content assessed using the International Classification of Functioning, Disability and Health Children and Youth version (ICF-CY).
  
  
  METHODS
  The search strategy, developed by an information specialist, included four groups of terms related to "measure," "health," "children and young people," and "psychometric performance." The search was limited to publications from 1992. Five electronic databases and two online-specific PROM databases were searched. Two groups of reviewers independently screened all abstracts for eligible PROMs. Descriptive characteristics of the eligible PROMs were collected, and items and domains of each questionnaire were mapped onto the ICF-CY chapters.
  
  
  RESULTS
  We identified 35 PROMs, of which 29 were generic PROMs and 6 were preference-based measures. Many PROMs cover a range of aspects of health; however, social functioning is represented most often. Content covered differs both in which aspects of health are assessed and whether individual questions focus on functioning (what the subject can or does do) and/or well-being (how the subject feels about a certain aspect of his or her health).
  
  
  CONCLUSIONS
  A broad variety of PROMs is available to assess children's health. Nevertheless, only a few PROMs can be used across all age ranges to 18 years. When mapping their content on the ICF-CY, it seems that most PROMs exclude at least one major domain, and all conflate aspects of functioning and well-being in the scales.
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK. Electronic address: a.janssens@exeter.ac.uk.
authors.forename: Astrid
authors.initials: A
authors.lastname: Janssens
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Jo
authors.initials: J
authors.lastname: Thompson Coon
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Morwenna
authors.initials: M
authors.lastname: Rogers
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Karen
authors.initials: K
authors.lastname: Allen
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Colin
authors.initials: C
authors.lastname: Green
authors.affiliation: Nuffield Department of Population Health, University of Oxford, Oxford, UK.
authors.forename: Crispin
authors.initials: C
authors.lastname: Jenkinson
authors.affiliation: Department of Rehabilitation Medicine, University of Leeds, Leeds, UK.
authors.forename: Alan
authors.initials: A
authors.lastname: Tennant
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Stuart
authors.initials: S
authors.lastname: Logan
authors.affiliation: Peninsula Cerebra Research Unit & NIHR PenCLAHRC, University of Exeter Medical School, University of Exeter, Exeter, UK.
authors.forename: Christopher
authors.initials: C
authors.lastname: Morris
mesh_terms: D002648:Child; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods / Q000592:standards; D063868:Patient Outcome Assessment; D057566:Self Report; D011795:Surveys and Questionnaires / Q000592:standards*; D013810:Therapeutic Equivalency
keywords: children and young people; health-related quality of life; patient-reported outcome measures; review