title: Outcomes and satisfaction after delivery of a breast cancer survivorship care plan: results of a multicenter trial.
abstract: OBJECTIVE
  Survivorship care plans (SCPs) have been suggested to reduce fragmentation of care experienced by cancer survivors. Acceptance of SCPs is high, but trials in the United States are few. This pilot study used a quasiexperimental design to examine the outcomes achieved by breast cancer survivors receiving a standardized SCP visit at one of seven comprehensive cancer centers.
  
  
  METHODS
  Outcomes were assessed before and again 3 months after delivery of an SCP and included survivors' use of and satisfaction with SCPs, perceived knowledge about survivorship, and assessment of the quality and coordination of survivorship care.
  
  
  RESULTS
  One hundred thirty-nine survivors of breast cancer completed baseline and follow-up measures and received a standardized SCP visit. Participants most commonly used SCP materials to make decisions about exercise (64%), which tests to receive and when (62%), and dietary changes (62%). Only 21% shared the SCP with their primary care provider during that time. Satisfaction with the SCP was high, with 90% of participants reporting being at least satisfied with the SCP. Perceived knowledge about survivorship improved after SCP delivery, as did perceived care coordination and the provider's knowledge of the effects of cancer on survivors (all P < .001). Individuals closer to the time of diagnosis reported greater satisfaction with and use of SCPs.
  
  
  CONCLUSIONS
  This study demonstrates improvements in perceived knowledge and quality of survivorship care after receipt of a comprehensive SCP. Survivors were satisfied with their SCP, and those closer to diagnosis reported greater satisfaction with and use of the materials.
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC Stpalmer@mail.med.upenn.edu.
authors.forename: Steven C
authors.initials: SC
authors.lastname: Palmer
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Carrie Tompkins
authors.initials: CT
authors.lastname: Stricker
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: SarahLena L
authors.initials: SL
authors.lastname: Panzer
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Sarah A
authors.initials: SA
authors.lastname: Arvey
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: K Scott
authors.initials: KS
authors.lastname: Baker
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Jackie
authors.initials: J
authors.lastname: Casillas
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Patricia A
authors.initials: PA
authors.lastname: Ganz
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Mary S
authors.initials: MS
authors.lastname: McCabe
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Larissa
authors.initials: L
authors.lastname: Nekhlyudov
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Linda
authors.initials: L
authors.lastname: Overholser
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Ann H
authors.initials: AH
authors.lastname: Partridge
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Betsy
authors.initials: B
authors.lastname: Risendal
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Donald L
authors.initials: DL
authors.lastname: Rosenstein
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Karen L
authors.initials: KL
authors.lastname: Syrjala
authors.affiliation: Abramson Cancer Center of the University of Pennsylvania, Philadelphia, PA; LIVESTRONG, Austin, TX; Fred Hutchinson Cancer Research Center, Seattle, WA; University of California, Los Angeles, Jonsson Comprehensive Cancer Center, Los Angeles, CA; Memorial Sloan Kettering Cancer Center, New York, NY; Dana-Farber Cancer Institute, Boston, MA; University of Colorado Cancer Center, Denver, CO; and University of North Carolina Lineberger Comprehensive Cancer Center, Chapel Hill, NC.
authors.forename: Linda A
authors.initials: LA
authors.lastname: Jacobs
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001943:Breast Neoplasms; D002173:Cancer Care Facilities; D003266:Continuity of Patient Care; D005260:Female; D006801:Humans; D008875:Middle Aged; D010347:Patient Care Planning; D017060:Patient Satisfaction; D017741:Survivors