title: A Web-Based Platform for Educating Researchers About Bioethics and Biobanking.
abstract: Participation in biobanking among individuals with familial risk for hereditary cancer (IFRs) and underserved/minority populations is vital for biobanking research. To address gaps in researcher knowledge regarding ethical concerns of these populations, we developed a web-based curriculum. Based on formative research and expert panel assessments, a curriculum and website was developed in an integrative, systematic manner. Researchers were recruited to evaluate the curriculum. Public health graduate students were recruited to pilot test the curriculum. All 14 researchers agreed the curriculum was easy to understand, adequately addressed the domains, and contained appropriate post-test questions. The majority evaluated the dialgoue animations as interesting and valuable. Twenty-two graduate students completed the curriculum, and 77 % improved their overall test score. A web-based curriculum is an acceptable and effective way to provide information to researchers about vulnerable populations' biobanking concerns. Future goals are to incorporate the curriculum with larger organizations.
authors.affiliation: Department of Health Outcomes & Behavior, Moffitt Cancer Center, Tampa, FL, USA.
authors.forename: Ivana
authors.initials: I
authors.lastname: Sehovic
authors.affiliation: Department of Health Outcomes & Behavior, Moffitt Cancer Center, Tampa, FL, USA.|Department of Oncologic Sciences, Morsani College of Medicine, University of South Florida, 12902 Magnolia Drive, MRC CANCONT, Tampa, FL, 33612, USA.
authors.forename: Clement K
authors.initials: CK
authors.lastname: Gwede
authors.affiliation: Department of Health Outcomes & Behavior, Moffitt Cancer Center, Tampa, FL, USA.|Department of Oncologic Sciences, Morsani College of Medicine, University of South Florida, 12902 Magnolia Drive, MRC CANCONT, Tampa, FL, 33612, USA.
authors.forename: Cathy D
authors.initials: CD
authors.lastname: Meade
authors.affiliation: Tuskegee University National Center for Bioethics in Research and Health Care & College of Veterinary Medicine, Nursing, and Allied Heath, Tuskegee, AL, USA.
authors.forename: Stephen
authors.initials: S
authors.lastname: Sodeke
authors.affiliation: Emory University School of Medicine, Atlanta, GA, USA.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Pentz
authors.affiliation: Department of Health Outcomes & Behavior, Moffitt Cancer Center, Tampa, FL, USA. gwen.quinn@moffitt.org.|Department of Oncologic Sciences, Morsani College of Medicine, University of South Florida, 12902 Magnolia Drive, MRC CANCONT, Tampa, FL, 33612, USA. gwen.quinn@moffitt.org.
authors.forename: Gwendolyn P
authors.initials: GP
authors.lastname: Quinn
mesh_terms: D001675:Bioethics / Q000193:education*; D018070:Biological Specimen Banks / Q000592:standards*; D035843:Biomedical Research / Q000592:standards*; D006801:Humans; D012108:Research Personnel / Q000193:education*; D013663:Teaching / Q000592:standards*; D064878:Web Browser / Q000706:statistics & numerical data*
keywords: Biobanking; Bioethics; Education; Genetics; Medically underserved; eLearning