title: Identifying the educational needs of lung transplant recipients with cystic fibrosis.
abstract: OBJECTIVE
  To elucidate the education needs of patients who have undergone lung transplant for cystic fibrosis while participating in the development of therapeutic education programs in French transplant centers.
  
  
  METHODS
  From January 2009 to March 2012, in-depth educational diagnosis interviews were conducted with 42 adult transplant recipients with cystic fibrosis who were being followed up at 7 French transplant centers. Several areas were explored: health status, social and occupational outcomes, knowledge about the disease and treatments, and experience of the disease. The interviews combined open- and closed-ended questions for more systematic exploration of knowledge about the disease and treatments.
  
  
  RESULTS
  After receiving the transplant, the patients' health had improved and their lives were returning to normal. They had acquired much usable knowledge about managing their disease. Educational needs regarding transplant-related complications and management of immunosuppressive drugs were evident. The analysis also demonstrated the need to better inform patients about pregnancy and new social rights and to offer them psychological support in adjusting to their new health status.
  
  
  CONCLUSIONS
  Therapeutic education of patients should continue well after transplant to maintain safety knowledge and meet patients' new needs. A comprehensive therapeutic education program for transplant candidates that includes the preparatory, immediate posttransplant, and late posttransplant phases is needed.
authors.affiliation: Hôpital Mère et Enfant, Nantes.
authors.forename: Valérie
authors.initials: V
authors.lastname: David
authors.affiliation: CHU Nantes.
authors.forename: David
authors.initials: D
authors.lastname: Feldman
authors.affiliation: CHU Nantes-Nord, Saint-Herblain.
authors.forename: Isabelle
authors.initials: I
authors.lastname: Danner-Boucher
authors.affiliation: CHU Nantes.
authors.forename: Anne Le
authors.initials: AL
authors.lastname: Rhun
authors.affiliation: CHU Nantes-Nord, Saint-Herblain.
authors.forename: Beatrice
authors.initials: B
authors.lastname: Guyomarch
authors.affiliation: Vaincre la Mucoviscidose, Paris.
authors.forename: Sophie
authors.initials: S
authors.lastname: Ravilly
authors.affiliation: Université Paris 13, Bobigny, France.
authors.forename: Claire
authors.initials: C
authors.lastname: Marchand
mesh_terms: D000328:Adult; D003550:Cystic Fibrosis / Q000601:surgery*; D005260:Female; D005602:France; D006801:Humans; D007407:Interviews as Topic; D016040:Lung Transplantation; D008297:Male; D020380:Needs Assessment; D010353:Patient Education as Topic; D011788:Quality of Life