title: Big data, miniregistries: a rapid-turnaround solution to get quality improvement data into the hands of medical specialists.
abstract: The cost to build and to maintain traditional registries for many dire, complex, low-frequency conditions is prohibitive. The authors used accessible technology to develop a platform that would generate miniregistries (small, routinely updated datasets) for surveillance, to identify patients who were missing elected utilization and to influence clinicians to change practices to improve care. The platform, tested in 5 medical specialty departments, enabled the specialists to rapidly and effectively communicate clinical questions, knowledge of disease, clinical workflows, and improve opportunities. Each miniregistry required 1 to 2 hours of collaboration by a specialist. Turnaround was 1 to 14 days.
authors.affiliation: Research Scientist for the Division of Research in Oakland, CA. lisa.herrinton@kp.org.
authors.forename: Lisa J
authors.initials: LJ
authors.lastname: Herrinton
authors.affiliation: Senior Data Consultant for the Division of Research in Oakland, CA. liyan.liu@kp.org.
authors.forename: Liyan
authors.initials: L
authors.lastname: Liu
authors.affiliation: Research Project Manager for the Division of Research in Oakland, CA. andrea.altschuler@kp.org.
authors.forename: Andrea
authors.initials: A
authors.lastname: Altschuler
authors.affiliation: Orthopedist at the Downey Medical Center in CA. richard.m.dell@kp.org.
authors.forename: Richard
authors.initials: R
authors.lastname: Dell
authors.affiliation: Director of Medical Group Performance Improvement for The Permanente Federation in Oakland, CA. violeta.rabrenovich@kp.org.
authors.forename: Violeta
authors.initials: V
authors.lastname: Rabrenovich
authors.affiliation: Associate Executive Director for The Permanente Federation in Oakland, CA. amy.l.compton-phillips@kp.org.
authors.forename: Amy L
authors.initials: AL
authors.lastname: Compton-Phillips
mesh_terms: D000068598:Data Accuracy; D004502:Education, Medical, Continuing / Q000379:methods* / Q000592:standards; D006801:Humans; D058996:Quality Improvement; D012042:Registries / Q000592:standards*; D015203:Reproducibility of Results