title: Use of assisted reproductive technology treatment as reported by mothers in comparison with registry data: the Upstate KIDS Study.
abstract: OBJECTIVE
  To assess the validity of maternally reported assisted reproductive technologies (ART) use and to identify predictors of reporting errors.
  
  
  METHODS
  Linkage study.
  
  
  METHODS
  Not applicable.
  
  
  METHODS
  A total of 5,034 (27%) mothers enrolled, from whom 4,886 (97%) self-reported information about use of infertility treatment, including ART, for the index birth.
  
  
  METHODS
  None.
  
  
  METHODS
  Four measures of validity (sensitivity, specificity, positive and negative predictive values) and use of net reclassification improvement (NRI) methods to identify predictors associated with concordant/discordant maternal reporting.
  
  
  RESULTS
  The Upstate New York Infant Development Screening Program (Update KIDS Study) was linked with the Society for Assisted Reproductive Technology Clinic Outcome Reporting System (SART CORS) using a defined algorithm for 2008-2010. The sensitivity, specificity, positive and negative predictive values were high (0.93, 0.99, 0.80, and 1.00, respectively). The validity of maternal report was high, reflecting few differences by participant characteristics except for maternal age dichotomized at 29 years as identified with NRI methods.
  
  
  CONCLUSIONS
  Maternally reported ART is valid, with little variation across various characteristics. No strong predictors of discordant reporting were found, supporting the utility of population-based research with SART CORS linkage.
authors: Division of Intramural Population Health Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, Rockville, Maryland. Electronic address: louisg@mail.nih.gov.
authors: Germaine M
authors: GM
authors: Buck Louis
authors: New York State Department of Health, Albany, New York.
authors: Charlotte
authors: C
authors: Druschel
authors: Department of Environmental Health Sciences and Epidemiology, University at Albany, Albany, New York.
authors: Erin
authors: E
authors: Bell
authors: Department of Obstetrics and Gynecology, Geisel School of Medicine at Dartmouth, Hanover, New Hampshire.
authors: Judy E
authors: JE
authors: Stern
authors: Department of Obstetrics, Gynecology, and Reproductive Biology, Michigan State University, East Lansing, Michigan.
authors: Barbara
authors: B
authors: Luke
authors: Department of Epidemiology and Biostatistics, University of South Carolina, Columbia, South Carolina.
authors: Alexander
authors: A
authors: McLain
authors: Biostatistics and Bioinformatics Branch, Division of Intramural Population Health Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, Rockville, Maryland.
authors: Rajeshwari
authors: R
authors: Sundaram
authors: Epidemiology Branch, Division of Intramural Population Health Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, Rockville, Maryland.
authors: Edwina
authors: E
authors: Yeung
mesh_terms: D000293:Adolescent; D000328:Adult; D017677:Age Distribution; D004522:Educational Status; D004651:Employment; D005260:Female; D006801:Humans; D008403:Mass Screening / Q000379:methods* / Q000706:statistics & numerical data*; D008423:Maternal Age; D008875:Middle Aged; D009035:Mothers; D009518:New York / Q000453:epidemiology; D011159:Population Surveillance / Q000379:methods*; D012042:Registries / Q000706:statistics & numerical data*; D015203:Reproducibility of Results; D027724:Reproductive Techniques, Assisted / Q000706:statistics & numerical data*; D057566:Self Report / Q000706:statistics & numerical data*; D012680:Sensitivity and Specificity; D055815:Young Adult
keywords: Assisted reproductive technologies; infertility; maternal report; sensitivity; validity