title: [Daily routine of informal caregivers-needs and concerns with regard to the discharge of their elderly family members from the hospital setting-a qualitative study].
abstract: BACKGROUND
  The care of an elderly frail and ill family member places a great responsibility on informal caregivers. Following discharge of the older person from the hospital setting it can be observed that caregivers are often inadequately informed about aspects such as health status, prognosis, complications, and care interventions. Concerns and needs of caregivers regarding their daily living and routine following hospital discharge has not been investigated and is considered important for an optimized discharge management.
  
  
  OBJECTIVE
  To explore personal needs and concerns of informal caregivers with regard to daily living prior to discharge of their family member.
  
  
  METHODS
  Eight narrative interviews were conducted with caregivers and were analysed using Mayring's content analysing method.
  
  
  RESULTS
  All caregivers had concerns regarding the maintenance of a functional daily routine. As well as caring and household duties, this functional daily routine included negotiating one's own personal time off duties, the reality of the deteriorating health status of the family member and the associated sense of hope. The intensity of family ties affected the functional daily routine. Caregivers had different expectations with regard to their integration during the hospital period.
  
  
  CONCLUSIONS
  To support caregivers in their situation it is advisable to assess the functional daily routine of caregivers. Their need for time off their household and caring duties and their informational and educational needs to pertaining to disease progression, possible sources of support and symptom management should be recognised. Further inquiries into caregiver's involvement and responsibilities in the discharge process are needed.
authors: Luzerner Kantonsspital, Luzern.
authors: Cornelia
authors: C
authors: Küttel
authors: Hochschule für Gesundheit Freiburg, Freiburg.
authors: Petra
authors: P
authors: Schäfer-Keller
authors: Bereich Pflege und medizintechnische und -therapeutische Dienste (MTTD), Kantonsspital Aarau, Aarau.
authors: Corinne
authors: C
authors: Brunner
authors: Bereich Pflege und medizintechnische und -therapeutische Dienste (MTTD), Kantonsspital Aarau, Aarau.
authors: Antoinette
authors: A
authors: Conca
authors: Medizinische Universitätsklinik, Kantonsspital Aarau, Aarau.
authors: Philipp
authors: P
authors: Schütz
authors: Universitätsspital Basel & Institut für Pflegewissenschaft, Universität Basel.
authors: Irena Anna
authors: IA
authors: Frei
mesh_terms: D000203:Activities of Daily Living / Q000145:classification / Q000523:psychology; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D002908:Chronic Disease / Q000451:nursing* / Q000523:psychology*; D004185:Disability Evaluation; D005260:Female; D016330:Frail Elderly; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008875:Middle Aged; D010351:Patient Discharge; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D013557:Switzerland
keywords: Bedürfnisse; Pflegende Angehörige; Spitalentlassung; caregivers; functioning daily routine; funktionierender Alltag; needs; patient discharge