title: Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.
abstract: A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.
authors: Cochrane Agenda and Priority Setting Methods Group; BioMedical Genomics Centre, F-140, Rail Vihar, 480, Madurdaha, Kolkata 700 107, West Bengal, India.
authors: Soumyadeep
authors: S
authors: Bhaumik
authors: Special Technical Assistant, Fulbright-Clinton Fellow, Nepal Health Research Council, Government of Nepal, Ministry of Health and Population, Nepal.
authors: Sangeeta
authors: S
authors: Rana
authors: Columbia University, College of Physicians and Surgeons, New York, United States.
authors: Chante
authors: C
authors: Karimkhani
authors: Cochrane Agenda and Priority Setting Methods Group; Centre for Global Health, Bruyère Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
authors: Vivian
authors: V
authors: Welch
authors: Jack Brockhoff Child Health and Wellbeing Program, McCaughey Vic Health Centre, Melbourne School of Population and Global Health; Cochrane Agenda and Priority Setting Methods Group University of Melbourne, Victoria, Australia.
authors: Rebecca
authors: R
authors: Armstrong
authors: Departments of Family Medicine and Epidemiology and Community Medicine, Primary Care Research Group and Equity Methods Group; WHO Guideline Review Committee and Strategic Advisory Group of Experts (SAGE) on Immunization Bruyere Research Institute, University of Ottawa, Ontario, Canada; WHO, Geneva, Switzerland.
authors: Kevin
authors: K
authors: Pottie
authors: Department of Dermatology; Department of Epidemiology, Colorado School of Public Health, University of Colorado Anschutz Medical Campus, Aurora, United States.
authors: Robert
authors: R
authors: Dellavalle
authors: Ethical Review and M&E, Nepal Health Research Council, Nepal.
authors: Purushottam
authors: P
authors: Dhakal
authors: Professor of Public Policy, Social Science Research Unit and EPPI-Centre; Cochrane Agenda and Priority Setting Methods Group, UCL Institute of Education, United Kingdom.
authors: Sandy
authors: S
authors: Oliver
authors: Epidemiology Research Unit; Caribbean Branch, University of West Indies, Mona Kingston, Jamaica; US Cochrane Center, Jamaica.
authors: Damian K
authors: DK
authors: Francis
authors: Peninsula Dental School; Cochrane Agenda and Priority Setting Methods Group, Plymouth University, Plymouth, United Kingdom.
authors: Mona
authors: M
authors: Nasser
authors: Cochrane Agenda and Priority Setting Methods Group, Crowe Associates Ltd, United Kingdom.
authors: Sally
authors: S
authors: Crowe
authors: Columbia Presbyterian Hospital, New York, United States.
authors: Baran
authors: B
authors: Aksut
authors: Department of Diagnostic, Clinical and Public Health Medicine - Italian Cochrane Centre; Cochrane Agenda and Priority Setting Methods Group University of Modena and Reggio Emilia, Modena, Italy.
authors: Roberto D
authors: RD
authors: Amico
mesh_terms: D003256:Community Participation; D003657:Decision Making; D000069576:Health Equity / Q000941:ethics*; D006292:Health Priorities / Q000941:ethics*; D006301:Health Services Needs and Demand; D006801:Humans; D007194:India; D011634:Public Health; D012106:Research; D035862:Vulnerable Populations