title: The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study.
abstract: BACKGROUND
  The aim of the current study is to determine the effects of caregiving on bereavement outcome. The study will address two important gaps in the research literature: (1) the relationship between pre-death distress and post-death outcomes and (2) family caregivers' anticipation and preparation of the death of the person for whom they care.
  
  
  METHODS
  We will conduct a longitudinal, prospective study of adult family caregivers of adult patients receiving palliative care. All participants will complete a questionnaire administered at four points - approximately 4-8 weeks prior to bereavement, and 3-4, 6-7, and 9-10 months post-bereavement. The questionnaire includes measures of multidimensional caregiving experiences (strain, distress, positive appraisals, and family wellbeing), caregiver prolonged grief, multidimensional grief responses (despair, panic behaviour, blame and anger, detachment, disorganisation, and personal growth), prolonged grief, quality of life, general health (psychological and physical) and demographics. These caregivers' data will be compared to a comparison group matched for age, sex, and postcode, allowing the caregivers' general health and quality of life to be compared to a normative group. The caregivers will also be invited to participate in a semi-structured interview about preparing for impending bereavement.
  
  
  CONCLUSIONS
  This is the first study to address the methodological limitations in the current literature and will likely make a significant contribution to both our understanding of caregiving on bereavement outcome and to bereavement care offered in palliative and hospice settings.
authors: School of Psychology & Speech Pathology, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth, Western Australia 6845 Australia.
authors: Lauren J
authors: LJ
authors: Breen
authors: School of Nursing and Midwifery, Faculty of Health Sciences, Curtin University, Perth, Australia.
authors: Samar M
authors: SM
authors: Aoun
authors: School of Psychology & Speech Pathology, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth, Western Australia 6845 Australia.
authors: Moira
authors: M
authors: O'Connor
keywords: Bereavement; Family caregivers; Longitudinal; Palliative care