title: Governing the postmortem procurement of human body material for research.
abstract: Human body material removed post mortem is a particularly valuable resource for research. Considering the efforts that are currently being made to study the biochemical processes and possible genetic causes that underlie cancer and cardiovascular and neurodegenerative diseases, it is likely that this type of research will continue to gain in importance. However, post mortem procurement of human body material for research raises specific ethical concerns, more in particular with regard to the consent of the research participant. In this paper, we attempt to determine which consent regime should govern the post mortem procurement of body material for research. In order to do so, we assess the various arguments that could be put forward in support of a duty to make body material available for research purposes after death. We argue that this duty does in practice not support conscription but is sufficiently strong to defend a policy of presumed rather than explicit consent.
authors.forename: Kristof
authors.initials: K
authors.lastname: Van Assche
authors.forename: Laura
authors.initials: L
authors.lastname: Capitaine
authors.forename: Guido
authors.initials: G
authors.lastname: Pennings
authors.forename: Sigrid
authors.initials: S
authors.lastname: Sterckx
mesh_terms: D001344:Autopsy; D026686:Beneficence; D035843:Biomedical Research / Q000941:ethics*; D002102:Cadaver; D032984:Ethics, Research; D018594:Human Body; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D028681:Moral Obligations; D026684:Personal Autonomy; D019724:Presumed Consent / Q000941:ethics*; D009927:Tissue and Organ Procurement / Q000941:ethics*