title: [The follow up of patients and their relatives after cardiac arrest varies greatly].
abstract: The return to a good life after successfully resuscitated cardiac arrest may be hindered by cardiovascular morbidity, psychological distress and the consequences of anoxic brain injury. To support the return to everyday life, patients and their relatives are in need of health care follow-up with multiple focuses. Usually, this follow-up consists of at least one of three parallel tracks; cardiology for interventions and secondary prevention, post intensive care follow-up to capture and prevent consequences of the traumatic event and the ICU stay, or neurological follow-up for patients with neurological sequels. None of these tracks include all patients. In addition, survivors are usually included and followed with patient related outcome measures (PROM) through the multiple Swedish national quality registers. The different clinical follow-up systems and the registers are not coordinated and assessments and questions may be repeated multiple times. A more integrated follow-up model has the potential to benefit the patient and their relatives and to reduce costs.
authors.affiliation: Centrum för hjärtstopp - Skånes universitetssjukhus Lund, Sweden Centrum för hjärtstopp - Skånes universitetssjukhus Lund, Sweden.
authors.forename: Gisela
authors.initials: G
authors.lastname: Lilja
authors.affiliation: Lunds Universitet - Kardiologiska kliniken Lund, Sweden Lunds Universitet - Kardiologiska kliniken Lund, Sweden.
authors.forename: David
authors.initials: D
authors.lastname: Erlinge
authors.affiliation: Akademiska sjukhuset - Intensivvård Uppsala, Sweden Akademiska sjukhuset - Intensivvård Uppsala, Sweden.
authors.forename: Ing-Marie
authors.initials: IM
authors.lastname: Larsson
authors.affiliation: Akademiska sjukhuset - Intensivvård Uppsala, Sweden Akademiska sjukhuset - Intensivvård Uppsala, Sweden.
authors.forename: Ewa
authors.initials: E
authors.lastname: Wallin
authors.affiliation: Skånes Universitetssjukhus - Intensivvård Malmö, Sweden Skånes Universitetssjukhus - Intensivvård Malmö, Sweden.
authors.forename: Eva
authors.initials: E
authors.lastname: Åkerman
authors.affiliation: Skånes Universitetssjukhus - Neurologiska kliniken Lund, Sweden Skånes Universitetssjukhus - Neurologiska kliniken Lund, Sweden.
authors.forename: Tobias
authors.initials: T
authors.lastname: Cronberg
mesh_terms: D000203:Activities of Daily Living; D019091:Critical Pathways; D005190:Family; D006323:Heart Arrest / Q000150:complications*; D006801:Humans; D063868:Patient Outcome Assessment; D011788:Quality of Life; D012042:Registries; D062707:Return to Work; D017741:Survivors