title: The European Registry for Patients with Mechanical Circulatory Support (EUROMACS): first annual report.
abstract: The European Registry for Patients with Mechanical Circulatory Support (EUROMACS) was founded on 10 December 2009 with the initiative of Roland Hetzer (Deutsches Herzzentrum Berlin, Berlin, Germany) and Jan Gummert (Herz- und Diabeteszentrum Nordrhein-Westfalen, Bad Oeynhausen, Germany) with 15 other founding international members. It aims to promote scientific research to improve care of end-stage heart failure patients with ventricular assist device or a total artificial heart as long-term mechanical circulatory support. Likewise, the organization aims to provide and maintain a registry of device implantation data and long-term follow-up of patients with mechanical circulatory support. Hence, EUROMACS affiliated itself with Dendrite Clinical Systems Ltd to offer its members a software tool that allows input and analysis of patient clinical data on a daily basis. EUROMACS facilitates further scientific studies by offering research groups access to any available data wherein patients and centres are anonymized. Furthermore, EUROMACS aims to stimulate cooperation with clinical and research institutions and with peer associations involved to further its aims. EUROMACS is the only European-based Registry for Patients with Mechanical Circulatory Support with rapid increase in institutional and individual membership. Because of the expeditious data input, the European Association for Cardiothoracic Surgeons saw the need to optimize the data availability and the significance of the registry to improve care of patients with mechanical circulatory support and its potential contribution to scientific intents; hence, the beginning of their alliance in 2012. This first annual report is designed to provide an overview of EUROMACS' structure, its activities, a first data collection and an insight to its scientific contributions.
authors.affiliation: Euromacs e.V. c/o Deutsches Herzzentrum Berlin, Berlin, Germany theodeby@euromacs.org paul.mohacsi@insel.ch.
authors.forename: Theo M M H
authors.initials: TM
authors.lastname: de By
authors.affiliation: Department of Cardiology, Swiss Cardiovascular Center, University Hospital (Inselspital), Bern, Switzerland.
authors.forename: Paul
authors.initials: P
authors.lastname: Mohacsi
authors.affiliation: Herz- und Diabeteszentrum NRW, Bad Oeynhausen, Germany.
authors.forename: Jan
authors.initials: J
authors.lastname: Gummert
authors.affiliation: Universitätsklinikum Halle, Halle, Germany.
authors.forename: Hasan
authors.initials: H
authors.lastname: Bushnaq
authors.affiliation: Deutsches Herzzentrum Berlin, Berlin, Germany.
authors.forename: Thomas
authors.initials: T
authors.lastname: Krabatsch
authors.affiliation: Rigshospitalet, Copenhagen, Denmark.
authors.forename: Finn
authors.initials: F
authors.lastname: Gustafsson
authors.affiliation: Université Pierre et Marie Curie, Hôpital Pitié Salpetrière, Paris, France.
authors.forename: Pascal
authors.initials: P
authors.lastname: Leprince
authors.affiliation: AO Niguarda Ca Granda, Milan, Italy.
authors.forename: Luigi
authors.initials: L
authors.lastname: Martinelli
authors.affiliation: Katholieke Universiteit Leuven, Leuven, Belgium.
authors.forename: Bart
authors.initials: B
authors.lastname: Meyns
authors.affiliation: Herz- und Diabeteszentrum NRW, Bad Oeynhausen, Germany.
authors.forename: Michiel
authors.initials: M
authors.lastname: Morshuis
authors.affiliation: IKEM, Institute for Clinical and Experimental Medicine, Prague, Czech Republic.
authors.forename: Ivan
authors.initials: I
authors.lastname: Netuka
authors.affiliation: Deutsches Herzzentrum Berlin, Berlin, Germany.
authors.forename: Evgenij
authors.initials: E
authors.lastname: Potapov
authors.affiliation: Herz- und Diabeteszentrum NRW, Bad Oeynhausen, Germany.
authors.forename: Armin
authors.initials: A
authors.lastname: Zittermann
authors.affiliation: Deutsches Herzzentrum Berlin, Berlin, Germany.
authors.forename: Eva Maria
authors.initials: EM
authors.lastname: Delmo Walter
authors.affiliation: Deutsches Herzzentrum Berlin, Berlin, Germany.
authors.forename: Roland
authors.initials: R
authors.lastname: Hetzer
mesh_terms: D004867:Equipment Design; D005060:Europe; D006333:Heart Failure / Q000601:surgery*; D006353:Heart-Assist Devices / Q000706:statistics & numerical data*; D006801:Humans; D012042:Registries
keywords: Biventricular assist device; Bridge to transplant; End-stage heart failure; Left ventricular assist device; Mechanical circulatory support; Registry; Right ventricular assist device; Total artificial heart