title: Identifying the unmet needs of breast cancer patients post-primary treatment: the Cancer Survivor Profile (CSPro).
abstract: OBJECTIVE
  The purpose of this study is to develop a brief measure of problem areas experienced by patients following primary treatment for breast cancer.
  
  
  METHODS
  Systematic reviews of the quantitative and qualitative literature were used to inform selection of scale items using (1) valid and reliable items from a national item bank (patient reported outcomes measurement information system [PROMIS]), (2) existing scales from prior breast cancer survivorship research, or (3) items developed by the investigators.
  
  
  RESULTS
  Participants (n = 400) were on average 51 years old, highly educated, Caucasian, diagnosed with stage I-III breast cancer, and a median of 1.96 years post-primary treatment. Principal component analysis on a random sample (n = 200) and confirmation on a second random sample (n = 200) indicated that each of the scales under consideration provided a significant measurement model for the symptom burden (CFI = 0.95), health behavior (CFI = 1.00), functional limitation (CFI = 0.99), health care seeking skill (CFI = 0.98), and cancer-related financial strain (CFI = 1.00) broad domains. The median Cronbach's alpha was 0.91. The measure demonstrated convergent, divergent, construct, and clinical validity. Lower levels of fatigue (β = 0.251. p < 0.000) and pain (β = 0.221, p < 0.000) and greater health competence (β = 0.278, p < 0.000) and physical activity (β = 0.165, p < 0.000) were associated with self-rated global health (F = 60.43, p < 0.000). The final measure consists of 73 items and requires approximately 15 min to complete.
  
  
  CONCLUSIONS
  The Cancer Survivor Profile (CSPro) provides a profile of problem areas supported by epidemiological and qualitative research on unmet needs of breast cancer survivors.
  
  
  CONCLUSIONS
  Breast cancer survivors can use the CSPro to prioritize problem areas following cancer treatment.
authors.affiliation: Departments of Medical and Clinical Psychology and Preventive Medicine and Biometrics, Uniformed Services University of the Health Sciences, Bethesda, MD, USA.
authors.forename: Briana L
authors.initials: BL
authors.lastname: Todd
authors.forename: Michael
authors.initials: M
authors.lastname: Feuerstein
authors.forename: Amanda
authors.initials: A
authors.lastname: Gehrke
authors.forename: Jennifer
authors.initials: J
authors.lastname: Hydeman
authors.forename: Lynda
authors.initials: L
authors.lastname: Beaupin
mesh_terms: D000328:Adult; D001943:Breast Neoplasms / Q000150:complications / Q000453:epidemiology / Q000534:rehabilitation*; D004034:Diet Surveys; D005221:Fatigue / Q000150:complications / Q000453:epidemiology / Q000628:therapy; D005260:Female; D015438:Health Behavior; D006801:Humans; D008875:Middle Aged; D020380:Needs Assessment; D020360:Neoadjuvant Therapy / Q000706:statistics & numerical data*; D011788:Quality of Life; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology / Q000706:statistics & numerical data*
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