title: Implementing a telephone based peer support intervention for women with a BRCA1/2 mutation.
abstract: Women with a BRCA1/2 gene mutation face complex risk management decisions and communication issues that can lead to increased levels of distress and unmet needs. We describe the implementation of a peer-support program that aims to reduce distress among women with a BRCA1/2 mutation, including peer and support recipient satisfaction with the program, challenges and lessons learnt. Participants with a BRCA1/2 mutation were matched with a trained peer volunteer (also a mutation carrier) to have regular one-on-one phone calls, over 4 months. Details of the calls, including topics discussed, time spent and number, were collected. Peers and recipients completed surveys assessing how they felt the contact went, satisfaction with the program, and preferences for matching. Satisfaction with the program was high for both peers and recipients. 80% of pairs ended contact through mutual agreement. Peers and recipients differed in the importance placed on age and surgery experience to determine matches. The most challenging aspect of the program for peers was difficulty in contacting recipients. Peer support for women with a BRCA1/2 mutation is feasible. However, to encourage continued involvement by peers and recipients greater flexibility in the method and delivery of contact is needed. We advocate the use of text-messaging and/or email as mechanisms for pairs to arrange and maintain contact. These strategies should be in addition to, rather than replacing, calls. A mixed medium intervention, where recipients can tailor the method of communication to suit their needs, may be preferable and effective, though this would need to be tested.
authors.affiliation: Centre for Behavioural Research in Cancer, Cancer Council Victoria, 615 St Kilda Road, Melbourne, VIC, 3004, Australia.
authors.forename: Ashley
authors.initials: A
authors.lastname: Farrelly
authors.forename: Victoria
authors.initials: V
authors.lastname: White
authors.forename: Mary-Anne
authors.initials: MA
authors.lastname: Young
authors.forename: Michael
authors.initials: M
authors.lastname: Jefford
authors.forename: Sandra
authors.initials: S
authors.lastname: Ieropoli
authors.forename: Jessica
authors.initials: J
authors.lastname: Duffy
authors.forename: Ingrid
authors.initials: I
authors.lastname: Winship
authors.forename: Bettina
authors.initials: B
authors.lastname: Meiser
mesh_terms: D000328:Adult; D000368:Aged; D001315:Australia; D019313:BRCA1 Protein / Q000235:genetics*; D024682:BRCA2 Protein / Q000235:genetics*; D005260:Female; D006801:Humans; D008875:Middle Aged; D009154:Mutation; D017060:Patient Satisfaction; D010379:Peer Group; D012944:Social Support; D013689:Telephone; D014838:Volunteers
chemical_list: D019313:BRCA1 Protein; C492913:BRCA1 protein, human; D024682:BRCA2 Protein; C551750:BRCA2 protein, human
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