title: The changing face of autism in Brazil.
abstract: At the end of 2012, after intensive lobbying by parent activist associations, a federal law recognized autism as a "disability for all legal purposes" in Brazil. Defining autism as a disability was more than a change of legal status to guarantee social benefits. It was also a political maneuver, orchestrated by parent associations, aimed to take the responsibility for treatment away from the public mental health network of services. This article examines the controversies that have set parent associations in direct antagonism with mental health professionals in the public health system. We draw from ethnographic data and theoretical discussions in the field of disability studies to situate these controversies within the context of a larger debate on the relationship between health, rights, and citizenship. We found similarities between the ethical and political goals of parent activists and mental health professionals in Brazil, but we argue that the main cause of dissent is the role that each of these social actors assigns to identity politics in their clinical and political projects.
authors.affiliation: Institute for Social Medicine, State University of Rio de Janeiro, Rua São Francisco Xavier 524, Rio De Janeiro, CEP 20550-900, Brazil, clarice.r@gmail.com.
authors.forename: Clarice
authors.initials: C
authors.lastname: Rios
authors.forename: Barbara
authors.initials: B
authors.lastname: Costa Andrada
mesh_terms: D001321:Autistic Disorder / Q000208:ethnology*; D001938:Brazil / Q000208:ethnology; D006801:Humans; D008603:Mental Health / Q000208:ethnology* / Q000331:legislation & jurisprudence; D010344:Patient Advocacy / Q000331:legislation & jurisprudence; D019989:Persons with Intellectual Disabilities / Q000331:legislation & jurisprudence*; D011640:Public Policy / Q000331:legislation & jurisprudence*
references.citation: Autism Res. 2012 Jun;5(3):160-79
references.pmid: 22495912
references.citation: Rev Assoc Med Bras (1992). 2011 Jan-Feb;57(1):2-5
references.pmid: 21390445
references.citation: J Med Philos. 2013 Aug;38(4):441-59
references.pmid: 23856481
references.citation: Promot Educ. 2007;Suppl 1:7-12
references.pmid: 17596091
references.citation: J Autism Dev Disord. 2011 Dec;41(12):1738-42
references.pmid: 21337063
references.citation: Nat Rev Neurosci. 2011 Sep 20;12 (10 ):603-12
references.pmid: 21931335
references.citation: Cien Saude Colet. 2009 Jan-Feb;14(1):67-77
references.pmid: 19142310
references.citation: Perspect Biol Med. 2006 Summer;49(3):407-24
references.pmid: 16960310
references.citation: Rev Bras Psiquiatr. 2008 Dec;30(4):390-8
references.pmid: 19142416
references.citation: Int J Ment Health Syst. 2008 Sep 05;2(1):12
references.pmid: 18775070