title: Measuring Health-Related Quality of Life With the Parental Opinions of Pediatric Constipation Questionnaire.
abstract: OBJECTIVE
  The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument.
  
  
  METHODS
  410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC.
  
  
  RESULTS
  Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning.
  
  
  CONCLUSIONS
  The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.
authors.affiliation: Medical College of Wisconsin, asilverm@mcw.edu.
authors.forename: Alan H
authors.initials: AH
authors.lastname: Silverman
authors.affiliation: The University of Memphis, University of Tennessee Health Science Center-Memphis.
authors.forename: Kristoffer S
authors.initials: KS
authors.lastname: Berlin
authors.affiliation: Nationwide Children's Hospital.
authors.forename: Carlo
authors.initials: C
authors.lastname: Di Lorenzo
authors.affiliation: Children's Hospital of Boston.
authors.forename: Samuel
authors.initials: S
authors.lastname: Nurko
authors.affiliation: The University of Memphis.
authors.forename: Rebecca C
authors.initials: RC
authors.lastname: Kamody
authors.affiliation: University of South Alabama, and.
authors.forename: Ananthasekar
authors.initials: A
authors.lastname: Ponnambalam
authors.affiliation: Nationwide Children's Hospital.
authors.forename: Suzanne
authors.initials: S
authors.lastname: Mugie
authors.affiliation: Medical College of Wisconsin.
authors.forename: Christina
authors.initials: C
authors.lastname: Gorges
authors.affiliation: UT Southwestern Medical Center.
authors.forename: Rina
authors.initials: R
authors.lastname: Sanghavi
authors.affiliation: Medical College of Wisconsin.
authors.forename: Manu R
authors.initials: MR
authors.lastname: Sood
mesh_terms: D000293:Adolescent; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology / Q000706:statistics & numerical data; D002648:Child; D002675:Child, Preschool; D003248:Constipation / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D010372:Pediatrics; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires / Q000592:standards*
keywords: assessment; elimination disorders; encopresis; health-related quality of life