title: Analysis of individualized education programs to quantify long-term educational needs following surgical intervention for single-suture craniosynostosis.
abstract: BACKGROUND
  Single-suture craniosynostosis (SSC) is a common craniofacial condition with potential neurocognitive sequelae.
  
  
  OBJECTIVE
  To quantify any long-term functional academic and behavioural difficulties of children with SSC as indicated by the need for individualized education programs (IEPs), despite having undergone surgical treatment.
  
  
  METHODS
  Records of all school-age patients from 1992 to 2011 who underwent operative intervention for SSC were identified. Fifty-nine patients' guardians were contacted by telephone to provide informed consent for completion of a mailed standardized questionnaire querying demographic information as well as information regarding the patient's health, family and educational history; specifically whether the patient had ever been provided educational support as delineated in an IEP. The primary outcome measure was the history of the patient being assigned educational support as delineated in an IEP.
  
  
  RESULTS
  Thirty-seven consenting guardians completed and returned the standardized questionnaire (response rate 62.7%). Twenty-one patients were male and 16 were female, with an age range of five to 14 years (mean age 10.2 years). Eleven (29.7%) patients had a previous history of or currently were receiving educational support delineated in an IEP.
  
  
  CONCLUSIONS
  A higher proportion of school-age patients with a history of SSC (status postsurgical intervention) in the present study received educational support delineated in an IEP than the proportion of IEPs in the general student population of the United States (11.3%).
authors.affiliation: Division of Plastic Surgery, University of Missouri, Columbia, Missouri, USA.
authors.forename: Laura J
authors.initials: LJ
authors.lastname: Doshier
authors.affiliation: Division of Plastic Surgery, University of Missouri, Columbia, Missouri, USA.
authors.forename: Arshad R
authors.initials: AR
authors.lastname: Muzaffar
authors.affiliation: Division of Plastic Surgery, University of Missouri, Columbia, Missouri, USA.
authors.forename: Kathleen Km
authors.initials: KK
authors.lastname: Deidrick
authors.affiliation: Division of Plastic Surgery, University of Missouri, Columbia, Missouri, USA.
authors.forename: Gale B
authors.initials: GB
authors.lastname: Rice
keywords: Craniosynostosis; Individualized education program
references.citation: Plast Reconstr Surg. 1999 Aug;104(2):582-3
references.pmid: 10654710
references.citation: Plast Reconstr Surg. 1993 Oct;92(5):831-9; discussion 840-1
references.pmid: 8415964
references.citation: Cleft Palate Craniofac J. 1997 Sep;34(5):374-9
references.pmid: 9345602
references.citation: Plast Reconstr Surg. 2005 May;115(6):1518-23
references.pmid: 15861054
references.citation: Plast Reconstr Surg. 1994 Aug;94(2):408-10
references.pmid: 8041840
references.citation: J Craniofac Surg. 1999 Jan;10 (1):38-42
references.pmid: 10388424
references.citation: Semin Pediatr Neurol. 2004 Dec;11(4):305-10
references.pmid: 15828715
references.citation: J Neurosurg. 2007 Aug;107(2 Suppl):103-10
references.pmid: 18459881
references.citation: Plast Reconstr Surg. 2005 Aug;116(2):400-7
references.pmid: 16079664
references.citation: Child Dev. 1994 Apr;65(2 Spec No):606-21
references.pmid: 8013242
references.citation: Cleft Palate Craniofac J. 1998 May;35(3):197-203
references.pmid: 9603552
references.citation: Plast Reconstr Surg. 1996 Feb;97(2):276-81
references.pmid: 8559809
references.citation: Childs Nerv Syst. 2007 Mar;23(3):269-81
references.pmid: 17186250
references.citation: J Pediatr Psychol. 2004 Dec;29(8):651-68
references.pmid: 15491988
references.citation: Neurosurgery. 2010 Aug;67(2):408-15; discussion 415-6
references.pmid: 20644427
references.citation: J Neurosurg. 2006 Nov;105(5 Suppl):382-4
references.pmid: 17328262
references.citation: J Craniofac Surg. 2002 Jul;13(4):520-5; discussion 526
references.pmid: 12140415
references.citation: Dev Med Child Neurol. 2003 Jan;45(1):34-43
references.pmid: 12549753
references.citation: J Sch Health. 2006 Jan;76(1):33-7
references.pmid: 16457683
references.citation: J Neurosurg Pediatr. 2010 Mar;5(3):232-7
references.pmid: 20192638
references.citation: Ann Plast Surg. 2001 Apr;46(4):415-20
references.pmid: 11324885
references.citation: J Craniofac Surg. 2009 Jan;20(1):138-42
references.pmid: 19165011
references.citation: Pediatrics. 1999 Apr;103(4 Pt 1):791-5
references.pmid: 10103304
references.citation: Plast Reconstr Surg. 2004 Sep 15;114(4):841-7; discussion 848-9
references.pmid: 15468388