title: The myth of the miracle baby: how neonatal nurses interpret media accounts of babies of extreme prematurity.
abstract: Improved life sustaining technology in the neonatal intensive care unit (NICU) has resulted in an increased probability of survival in extremely premature babies. Miracle baby stories in the popular press are a regular occurrence and these reports are often the first source from which the general public learn about extremely premature babies. The research from which this paper is drawn sought to explore the care-giving and ethical dilemmas of neonatal nurses when caring for extremely premature babies 24 weeks gestation and less. This current paper aims to outline the views of neonatal nurses on miracle baby stories in the media. Data were collected via a questionnaire to 760 Australian neonatal nurses with 414 returned, representing a response rate of 54.4%. Narrative was collected from semi-structured interviews with 24 experienced neonatal nurses in NSW, Australia. A qualitative approach utilising thematic analysis was utilised to analyse the data. The theme the myth of the miracle baby is seen as generating myths and unrealistic expectations on the part of vulnerable families and the public. Neonatal nurses, as the primary caregivers for tiny babies and their families, viewed popular media publications with suspicion, believing published reports to be incomplete, inaccurate and biased towards the positive.
authors.affiliation: University of Technology, Sydney, NSW, Australia.
authors.forename: Janet
authors.initials: J
authors.lastname: Green
authors.affiliation: Monash University, Melbourne, Victoria, Australia.|Flinders University, Adelaide, South Australia, Australia.|Philip Darbyshire Consulting Ltd, Adelaide, South Australia, Australia.
authors.forename: Philip
authors.initials: P
authors.lastname: Darbyshire
authors.forename: Anne
authors.initials: A
authors.lastname: Adams
authors.affiliation: Oxford Brookes University, Oxford, United Kingdom.|University of New England, Armidale, Australia.
authors.forename: Debra
authors.initials: D
authors.lastname: Jackson
mesh_terms: D001291:Attitude of Health Personnel; D001315:Australia; D006801:Humans; D062071:Infant, Extremely Premature; D007231:Infant, Newborn; D007363:Intensive Care Units, Neonatal; D008402:Mass Media; D033262:Narration; D017283:Neonatal Nursing / Q000941:ethics*; D011368:Professional-Family Relations; D036301:Qualitative Research; D011795:Surveys and Questionnaires
keywords: extreme prematurity; media; miracle baby; neonatal nurses; qualitative research