title: Health information wanted and obtained from doctors/nurses: a comparison of Chinese cancer patients and family caregivers.
abstract: OBJECTIVE
  To assess and compare health information wanted and obtained from doctors/nurses by Chinese cancer patients and family caregivers.
  
  
  OBJECTIVE
  (1) What are the instrument's psychometrics in Chinese cancer patients and family caregivers? (2) How might Chinese cancer patients and family caregivers differ in the amount of different types of health information they want to have? and (3) How might Chinese cancer patients and family caregivers differ in the amount of different types of information they were able to obtain from doctors/nurses?
  
  
  METHODS
  This was a cross-sectional study using a paper-pen questionnaire. A total of 198 participants (79 cancer patients; 119 family caregivers) from a general hospital in Sichuan, China completed the instrument in March 2014.
  
  
  RESULTS
  The instrument has excellent reliability and validity. Participants wanted to have a wide range of health information, including but not limited to information about diagnosis or treatment. Across all types of information, participants obtained from doctors/nurses significantly less than what they wanted. The discrepancy between information wanted and obtained varied across different types of information. The discrepancy was largest for information about complementary and alternative medicine (CAM) and psychosocial aspects and smallest for information about diagnosis and self-care. Patients and caregivers did not differ in the amount of different types of information they wanted or obtained from medical professionals.
  
  
  CONCLUSIONS
  There is a great need for providing more information to both patients and their families, particularly information about CAM and psychosocial aspects.
authors: School of Nursing and School of Information, University of Texas at Austin, Austin, TX, USA, boxie@utexas.edu.
authors: Bo
authors: B
authors: Xie
authors: Zhaohui
authors: Z
authors: Su
authors: Yihao
authors: Y
authors: Liu
authors: Mo
authors: M
authors: Wang
authors: Ming
authors: M
authors: Zhang
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D002681:China; D000529:Complementary Therapies; D003430:Cross-Sectional Studies; D005260:Female; D066275:Health Information Exchange / Q000592:standards*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D009726:Nurses; D010358:Patient Participation / Q000379:methods*; D018802:Patient-Centered Care / Q000379:methods*; D010820:Physicians; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D055815:Young Adult