title: Cancer Support Needs for African American Breast Cancer Survivors and Caregivers.
abstract: Improved cancer screening and treatment advances have led to higher cancer survival rates in the United States. However, racial disparities in breast cancer survival persist for African American women who experience lower survival rates than white women. These disparities suggest that unmet needs related to survivorship still exist. This study focuses on the challenges that both African American cancer survivors and caregivers face across the cancer continuum. Five African American focus groups examined cancer survivor and caregiver support needs. Focus groups were recorded, transcribed, and uploaded into Atlas.ti. Thematic content analysis was applied to the text during the coding process. Themes were identified and emphasized based on the research team's integrated and unified final codes. Forty-one African Americans participated in five focus groups: 22 cancer survivors and 19 caregivers. Participants discussed five themes: (1) a culture that discourages the discussion of cancer; (2) lack of support services for African American cancer survivors; (3) lack of support services for cancer caregivers; (4) need for culturally appropriate cancer resources, including resources targeted at African American women; and (5) aspects that were helpful to cancer survivors and caregivers, including connecting with other survivors and caregivers, and having strong social support networks. We gained new insight into the unmet support needs for survivors and caregivers, especially when coping with the cancer experience continuum. While some cancer and caregiver support services exist, our study reveals a great need for services that incorporate the cultural differences that exist across races.
authors: Food and Environment Program, Union of Concerned Scientists, 1825 K Street NW, Washington, DC, 20006, USA. lhaynes-maslow@ucsusa.org.
authors: Lindsey
authors: L
authors: Haynes-Maslow
authors: School of Public Health, Department of Health Promotion and Behavioral Sciences, The University of Texas, Austin, TX, USA.
authors: Marlyn
authors: M
authors: Allicock
authors: Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors: La-Shell
authors: LS
authors: Johnson
mesh_terms: D000223:Adaptation, Psychological; D001741:Black or African American / Q000706:statistics & numerical data*; D001294:Attitude to Health; D001943:Breast Neoplasms / Q000208:ethnology* / Q000523:psychology / Q000628:therapy*; D017028:Caregivers; D005260:Female; D017144:Focus Groups; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D011379:Prognosis; D036301:Qualitative Research; D011788:Quality of Life; D012944:Social Support; D017741:Survivors; D044465:White People / Q000706:statistics & numerical data*
keywords: African American; Breast cancer; Cancer caregivers; Cancer support; Cancer survivors