title: Japanese Bereaved Family Members' Perspectives of Palliative Care Units and Palliative Care: J-HOPE Study Results.
abstract: The study purpose was to understand the perspectives of bereaved family members regarding palliative care unit (PCU) and palliative care and to compare perceptions of PCU before admission and after bereavement. A cross-sectional questionnaire survey was conducted, and the perceptions of 454 and 424 bereaved family members were obtained regarding PCU and palliative care, respectively. Family members were significantly more likely to have positive perceptions after bereavement (ranging from 73% to 80%) compared to before admission (ranging from 62% to 71%). Bereaved family members who were satisfied with medical care in the PCU had a positive perception of the PCU and palliative care after bereavement. Respondents younger than 65 years of age were significantly more likely to have negative perceptions of PCU and palliative care.
authors: College of Nursing, Kanto Gakuin University, Yokohama, Japan ksatomi@kanto-gakuin.ac.jp.
authors: Satomi
authors: S
authors: Kinoshita
authors: Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
authors: Mitsunori
authors: M
authors: Miyashita
authors: Department of Palliative and Supportive Care, Seirei Mikatahara General Hospital, Hamamatsu, Japan.
authors: Tatsuya
authors: T
authors: Morita
authors: Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
authors: Kazuki
authors: K
authors: Sato
authors: Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
authors: Ayaka
authors: A
authors: Shoji
authors: Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
authors: Yurika
authors: Y
authors: Chiba
authors: Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
authors: Tamana
authors: T
authors: Miyazaki
authors: Department of Palliative Medicine, Osaka University Graduate School of Medicine, Osaka, Japan.
authors: Satoru
authors: S
authors: Tsuneto
authors: Department of Palliative Medicine, Tsukuba Medical Center Hospital, Tsukuba, Japan.
authors: Yasuo
authors: Y
authors: Shima
mesh_terms: D000328:Adult; D000368:Aged; D001601:Bereavement; D003430:Cross-Sectional Studies; D005190:Family / Q000523:psychology*; D005195:Family Relations; D005260:Female; D006801:Humans; D007564:Japan; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010166:Palliative Care / Q000458:organization & administration / Q000523:psychology*; D000070659:Patient Comfort; D010465:Perception; D013727:Terminal Care / Q000458:organization & administration / Q000523:psychology*
keywords: Japanese palliative care unit; bereaved family; bereavement; cancer; family members’ perspectives; palliative care