title: Informal Support and Burden among Parents of Adults with Intellectual and/or Developmental Disabilities.
abstract: BACKGROUND
  Parents often play a lifelong role in supporting their sons and daughters with intellectual and/or developmental disabilities (IDD). There is a need to better understand parent resources, particularly when the individual with IDD has behaviour problems, as the latter has consistently been linked to parental burden.
  
  
  METHODS
  The current study aimed to investigate the relationship between the behaviour support needs of 212 adults with IDD and parental burden, and whether perceived helpfulness of informal supports moderated this relationship. The helpfulness of individual sources of informal support was also explored.
  
  
  RESULTS
  Informal support was negatively related to burden, although it did not act as a moderator. Individual sources varied in terms of how they were related to burden, but none acted as moderators.
  
  
  CONCLUSIONS
  Although informal social support appears to be important to parents and may help alleviate burden, it does not appear to act as a moderator as anticipated.
authors: York University, Toronto, ON, Canada.|Centre for Addiction and Mental Health, Toronto, ON, Canada.
authors: Suzanne
authors: http://orcid.org/0000-0001-8261-0571
authors: S
authors: Robinson
authors: York University, Toronto, ON, Canada.
authors: Jonathan A
authors: JA
authors: Weiss
authors: Centre for Addiction and Mental Health, Toronto, ON, Canada.
authors: Yona
authors: Y
authors: Lunsky
authors: Queen's University, Kingston, ON, Canada.
authors: Hélène
authors: H
authors: Ouellette-Kuntz
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017281:Cost of Illness; D002658:Developmental Disabilities / Q000451:nursing*; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000451:nursing*; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology*; D012944:Social Support; D055815:Young Adult
keywords: developmental disabilities; intellectual disabilities; parental burden; social support