title: Perceptions about participation in cancer clinical trials in New York state.
abstract: BACKGROUND
  Clinical trials are valuable in advancing cancer care through the investigation of ways in which to better prevent, detect and diagnose, and/or treat cancer. Recruitment of adults into clinical trials has historically been low.
  
  
  OBJECTIVE
  To survey adult cancer patients who reside in New York state to better understand their participation in and attitudes about clinical trials.
  
  
  METHODS
  From January 2012-April 2013, we conducted a one-time survey about clinical trials in 8 cancer-treatment or cancer-patient support organizations in the state. Surveys were offered in person and online to adults with a past or current cancer diagnosis. Analysis was limited to adults who resided in the state and provided a self-reported status of previous participation in clinical trials.
  
  
  RESULTS
  Of the 1,832 participants who completed the survey, 1,475 were included in the analysis. Our sample represented all regions of the state. Most of the respondents (68.1%) had never participated in a clinical trial. Almost 32% said they had never received information about research studies. Most (84%) felt that patients should be asked to participate in clinical trials, but fewer (70%) were willing to be approached about participation.
  
  
  CONCLUSIONS
  The sample is predominantly white and female and overrepresents breast and hematologic cancers.
  
  
  CONCLUSIONS
  Increased outreach coupled with a team approach to educate and enroll patients in clinical trials may be the necessary first steps to increase participation in trials and ensure a diverse sample of participants.
authors: Department of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
authors: Danielle M
authors: DM
authors: Crookes
authors: Department of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
authors: Chang
authors: C
authors: Wang
authors: The Leukemia & Lymphoma Society, Hauppauge, New York, USA.
authors: Karen R
authors: KR
authors: DeMairo
authors: Weill Cornell Medical College, New York, New York, USA.
authors: Maureen
authors: M
authors: Killackey
authors: Memorial Sloan-Kettering Cancer Center, New York, New York, USA.
authors: Jean C
authors: JC
authors: LePere
authors: The Greater New York City Affiliate of Susan G Komen for the Cure, New York, New York, USA.
authors: Anita
authors: A
authors: McFarlane
authors: Roswell Park Cancer Institute, Buffalo, New York, USA.
authors: Darryl
authors: D
authors: Somayaji
authors: American Cancer Society, Manasquan, New Jersey, USA.
authors: Patti
authors: P
authors: Allen
authors: Stony Brook Cancer Center, Stony Brook University, Stony Brook, New York, New York, USA.
authors: Linda
authors: L
authors: Bily
authors: Bassett Cancer Institute, Cooperstown, New York, USA.
authors: Beth Ann
authors: BA
authors: Brundage
authors: CancerCare, New York, New York, USA.
authors: Rosalie
authors: R
authors: Canosa
authors: CR Wood Cancer Center at Glens Falls Hospital, Glens Falls, New York, USA.
authors: Diana
authors: D
authors: Crean
authors: Department of Oncological Sciences, Icahn School of Medicine at Mount Sinai, New York, New York, USA. Lina.Jandorf@mssm.edu.
authors: Lina
authors: L
authors: Jandorf
keywords: barrier; cancer; clinical trial; cross-sectional survey; facilitator; recruitment